Wow, Dana you are facing quite a bit right now, we will be praying for the
right Doctor to perform exactly what is needed and for you to have the strength
to pull through it all, You are a Sweet Woman, may the grace and love of God be
with you. Dan H**
On Sunday, September 4, 2016 5:30 AM, Dana Wray <[email protected]> wrote:
I have been suffering numerous UTI for the last year and had a number of
testing. I was just told a week and a half ago that my ileoconduit was no
longer working and I needed a new one. I didn't realize that urologist I had
been seeing realized what I was facing. He had given me 4 lithotripsy to break
kidney stones. The urologist gave me three doctors. I had to look up the
numbers and call each office. None of the three doctors could do that kind of
surgery. One of the office managers gave me the name of somebody that he
thought might do this type of surgery. I had been in the hospital for two weeks
with sepsis and another urinary tract. The doctor said that he had performed
over 100 of the surgeries. Two out of three people had complications and he had
lost some of his patients, I don't have any other option. Has anyone ever
heard problems on your ileoconduit no longer function. Dr. Wyre said that in
normal ileoconduit will last at the most 40 years. I hope I will hear from
someone. I may be looking at the wrong words but I'm not really finding
documentation about the surgery. He will have to cut another 6 inches off my
small intestine to make a stoma. I don't know the ureters are working properly.
I didn't ask that question. I had just completed 14 days using a central line
after I got out of the hospital and I'd already developed another infection. So
please provide any information. I don't think I have any option, but I'm
trying to prepare myself. My disability C4-5 quadriplegic complete, 42 years
post. Ileoconduit was performed after bladder cancer 86. I just had 10 inches
taken out of my large intestine: in November 2015. Seven lymph were remitted
that were cancerous. Three were not. I took chemotherapy for a couple months
but it just cause bleeding. So it was no longer a candidate. They are going to
peat scan after my surgery,the surgery is going to be 10 hours long at KU
hospital on 9/7/16. There is also something on my ovaries and a couple modules
on my lungs. I wanted to share this with all of my Quad friends, if anyone can
offer any information to my medical situation, please respond. It will be hard
for me to check my messages or the on my computer to read about other persons
with spinal cord injury with the same problem. Thank you for any input you can
provide.
