I knew someone who was a C2 quad dependent on a vent to breathe and changed to a diaphragm pacemaker. She wrote an article about it https://files.wearesrna.org/newsletters/j5/journal-5-11.htm
She suffered from depression and stopped eating then passed away a few years ago. On Tue, Jul 27, 2021 at 5:28 PM Greg <[email protected]> wrote: > > I'm still having problems with my breathing, I'm not on trech now, I was > last year for a week or two. I am on a respirator but only at night, > sometimes during the day if I'm really out of breath. I've been to so many > doctors they just can't find my problem. My oxygen levels are fine, but I > feel like I'm out of breath. Sometimes it feels like a heavy chest, > sometimes I feel like I've been running around the block, and other times I > just don't feel like I'm getting air. > > My next test is an EMG. To test the diaphragm for electrical currents. And > they also talked about a sniff test. > > My breast feel like they're big enough, I'm just breathing real hard. I > have had blood pressure issues, often in the 70s/40s. So I am taking a > blood pressure medication. > > They're also talking about a diaphragm Peacemaker. Is anyone ever had that > or know someone who has? I worry that will make my breathing not natural, > like making me take breaths when I'm trying to breathe out xcetera. > > It all started the day after I had a heart ablation to fix A-Flutter on my > heart. But that shouldn't have anything to do with it, except I was > intubated. I left the hospital and had to go back that night my breathing > was so hard. They thought it was a CO2 buildup, but that's gotten a lot > better. > > I haven't had a good breath in about 2 months now. At least one that felt > normal. I don't know what's worse not breathing well for being on that darn > ventilator. I don't want to go to trech again. > > Greg >
