Greg, I had a diaphragm pacer implanted about 20 years ago. They never could get it to work. They said I was an "anomaly" You sound like someone with COPD
On Tue, Jul 27, 2021 at 11:04 PM Jim Lubin <[email protected]> wrote: > I knew someone who was a C2 quad dependent on a vent to breathe and > changed to a diaphragm pacemaker. She wrote an article about it > https://files.wearesrna.org/newsletters/j5/journal-5-11.htm > > She suffered from depression and stopped eating then passed away a few > years ago. > > On Tue, Jul 27, 2021 at 5:28 PM Greg <[email protected]> wrote: > >> >> I'm still having problems with my breathing, I'm not on trech now, I was >> last year for a week or two. I am on a respirator but only at night, >> sometimes during the day if I'm really out of breath. I've been to so many >> doctors they just can't find my problem. My oxygen levels are fine, but I >> feel like I'm out of breath. Sometimes it feels like a heavy chest, >> sometimes I feel like I've been running around the block, and other times I >> just don't feel like I'm getting air. >> >> My next test is an EMG. To test the diaphragm for electrical currents. >> And they also talked about a sniff test. >> >> My breast feel like they're big enough, I'm just breathing real hard. I >> have had blood pressure issues, often in the 70s/40s. So I am taking a >> blood pressure medication. >> >> They're also talking about a diaphragm Peacemaker. Is anyone ever had >> that or know someone who has? I worry that will make my breathing not >> natural, like making me take breaths when I'm trying to breathe out xcetera. >> >> It all started the day after I had a heart ablation to fix A-Flutter on >> my heart. But that shouldn't have anything to do with it, except I was >> intubated. I left the hospital and had to go back that night my breathing >> was so hard. They thought it was a CO2 buildup, but that's gotten a lot >> better. >> >> I haven't had a good breath in about 2 months now. At least one that felt >> normal. I don't know what's worse not breathing well for being on that darn >> ventilator. I don't want to go to trech again. >> >> Greg >> >
