Thats how I feel, my mother has it.
But the ER, heart, and lung doctors say my heat and lungs are in great
shape.
Greg
On 7/29/2021 10:18 AM, Eric Olson wrote:
Greg,
I had a diaphragm pacer implanted about 20 years ago. They never
could get it to work. They said I was an "anomaly" You sound like
someone with COPD
On Tue, Jul 27, 2021 at 11:04 PM Jim Lubin <[email protected]
<mailto:[email protected]>> wrote:
I knew someone who was a C2 quad dependent on a vent to breathe
and changed to a diaphragm pacemaker. She wrote an article about it
https://files.wearesrna.org/newsletters/j5/journal-5-11.htm
<https://files.wearesrna.org/newsletters/j5/journal-5-11.htm>
She suffered from depression and stopped eating then passed away a
few years ago.
On Tue, Jul 27, 2021 at 5:28 PM Greg <[email protected]
<mailto:[email protected]>> wrote:
I'm still having problems with my breathing, I'm not on trech
now, I was last year for a week or two. I am on a respirator
but only at night, sometimes during the day if I'm really out
of breath. I've been to so many doctors they just can't find
my problem. My oxygen levels are fine, but I feel like I'm out
of breath. Sometimes it feels like a heavy chest, sometimes I
feel like I've been running around the block, and other times
I just don't feel like I'm getting air.
My next test is an EMG. To test the diaphragm for electrical
currents. And they also talked about a sniff test.
My breast feel like they're big enough, I'm just breathing
real hard. I have had blood pressure issues, often in the
70s/40s. So I am taking a blood pressure medication.
They're also talking about a diaphragm Peacemaker. Is anyone
ever had that or know someone who has? I worry that will make
my breathing not natural, like making me take breaths when I'm
trying to breathe out xcetera.
It all started the day after I had a heart ablation to fix
A-Flutter on my heart. But that shouldn't have anything to do
with it, except I was intubated. I left the hospital and had
to go back that night my breathing was so hard. They thought
it was a CO2 buildup, but that's gotten a lot better.
I haven't had a good breath in about 2 months now. At least
one that felt normal. I don't know what's worse not breathing
well for being on that darn ventilator. I don't want to go to
trech again.
Greg
