Re: [CMLHope] Re: stroke
Thanks Jeanie, I really do not worry because as you know, it's not productive and helps NOTHING. I also am thankful my bp has gone down to normal without medication, as I really have tried to relieve all stress in my life. Has your bp gone down? I sure hope so. We can create our own stress by worrying, or relax in the everyday joy of going through trials to make us stronger I am praying for your side pain to go away, for sure. I'd like for you to get to the bottom of that. There's something causing it. Have you considered having that pet scan I mentioned? The earlier something is caught, of course the better. Blessings and love to you as you enjoy every day as a gift. 18's, SZ -Original Message- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Mon, Jan 4, 2016 5:21 pm Subject: Re: [CMLHope] Re: stroke Hi Susan , Just wanted to tell you that my mom and grandmother both had strokes in their late 70s. My sister died of a stroke in her late 60s. So it runs in the women of my family. Of course they weren't on tkis but we're on medicines for other things. My doctor warned me to keep my BP down to avoid strokes while on ponatinib. Well all the BP meds make me sick so I can't take them. I think we have a lot of stress due to the CML and worrying about the meds we take; I know I do. Good luck and continue to mend and thanks for the info on strokes. My mom was completely out of it when she had her stroke. She had to learn to read and write again and attended those therapies. After a while she became her old self again until she fell and broke her hip. ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 3, 2016, at 9:00 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Hi Jeanie, I have had four previous strokes, all due to trying the four other meds that are out. With gleevec I had two strokes while I was on it that were minor. The docs were not convinced the gleevec caused it, but I was! Then 2 years after being off all drugs for cml, I had a major stroke which at first left my eye frozen, and damaged hearing, along with balance problems. Thankfully, those things all went away after 3 months. I am most blessed. Then each other pill I tried, (all 3 others) I had a symptom of stroke almost immediately. (bad eye bleed, frozen eye like the big stroke). They could only find cavernous malformations in my brain to lend itself to such easy bleeding. About 9 months ago I went back on the last drug, bosulif, because my numbers were getting pretty high after 7 yrs of no meds at all. I started with 100 mg of bosulif, which is very low. The usual dose is 500 mg. When my numbers went up just a little after being in remission, the docs suggested I go to 300 mg. I agreed only to 200 mg. So this time, I had doubled my dosage, and 10 days later, had double vision and severe nausea all afternoon right when we were sharing Christmas with my son and whole family on the 26th. I wasn't sure about it, I thought it might be all the sugar I ate, as I am diabetic. So decided just to hit the bed for the evening so as not to ruin their visit. Kids left next day. Then on Wednesday, continuing the double vision somewhat, I vomited. The docs had all said one more symptom get to the e.r., so I went. Sure enough, the ct scan showed 4 new blood spots in four different parts of my brain. (that was a new one, usually they were all in same place.) Luckily very little was affected this time, halleluhiah! Long ago the statistics used to be only 1% had brain bleeds, i.e. strokes from these medications. I am one of the 1%. Don't know if the figures have changed, but one thing I do know. None of you need to worry about this happening to you. My father died of a brain aneurysm, so apparently I'm prone to it. But I know I'll only go when it's His timing, not my own! I'll keep plugging and try to keep a joyful heart until then! Definitely planning on enjoying my retirement. 18's and love, Susan Z -Original Message- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 1:24 pm Subject: Re: [CMLHope] Re: stroke Hi Susan, Just wondering how you knew you were having a stroke?? The tkis say wash your hands after handling and these are going in out stomach!!! Keep strong and keep fighting!! ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 3, 2016, at 1:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Susan, you
Re: [CMLHope] Re: stroke
Yes you are right Susan. Think of each day as a gift. My BP goes up when I see a white coat but is has stayed a little high as of late. I have had 3 ct scans and nothing showed up about my side. I also had endoscopy with no results except red stomach.im so happy you are doing better. Thanks for being there for me and all. Still haven't heard from Marty. My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 5, 2016, at 11:40 AM, 'Susan Zimmerman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Thanks Jeanie, > I really do not worry because as you know, it's not productive and helps > NOTHING. I also am thankful my bp has gone down to normal without > medication, as I really have tried to relieve all stress in my life. Has > your bp gone down? I sure hope so. We can create our own stress by > worrying, or relax in the everyday joy of going through trials to make us > stronger I am praying for your side pain to go away, for sure. I'd like > for you to get to the bottom of that. There's something causing it. Have > you considered having that pet scan I mentioned? The earlier something is > caught, of course the better. > > Blessings and love to you as you enjoy every day as a gift. 18's, > SZ > > > > > -Original Message- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Jan 4, 2016 5:21 pm > Subject: Re: [CMLHope] Re: stroke > > Hi Susan , > Just wanted to tell you that my mom and grandmother both had strokes in their > late 70s. > My sister died of a stroke in her late 60s. So it runs in the women of my > family. > Of course they weren't on tkis but we're on medicines for other things. > My doctor warned me to keep my BP down to avoid strokes while on ponatinib. > Well all the BP meds make me sick so I can't take them. > I think we have a lot of stress due to the CML and worrying about the meds we > take; I know I do. > Good luck and continue to mend and thanks for the info on strokes. > My mom was completely out of it when she had her stroke. She had to learn to > read and write again and attended those therapies. > After a while she became her old self again until she fell and broke her hip. > ❤️ > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 3, 2016, at 9:00 PM, 'Susan Zimmerman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hi Jeanie, > I have had four previous strokes, all due to trying the four other meds that > are out. With gleevec I had two strokes while I was on it that were minor. > The docs were not convinced the gleevec caused it, but I was! Then 2 years > after being off all drugs for cml, I had a major stroke which at first left > my eye frozen, and damaged hearing, along with balance problems. Thankfully, > those things all went away after 3 months. I am most blessed. Then each > other pill I tried, (all 3 others) I had a symptom of stroke almost > immediately. (bad eye bleed, frozen eye like the big stroke). They could > only find cavernous malformations in my brain to lend itself to such easy > bleeding. About 9 months ago I went back on the last drug, bosulif, because > my numbers were getting pretty high after 7 yrs of no meds at all. I started > with 100 mg of bosulif, which is very low. The usual dose is 500 mg. When my > numbers went up just a little after being in remission, the docs suggested I > go to 300 mg. I agreed only to 200 mg. So this time, I had doubled my > dosage, and 10 days later, had double vision and severe nausea all afternoon > right when we were sharing Christmas with my son and whole family on the > 26th. I wasn't sure about it, I thought it might be all the sugar I ate, as > I am diabetic. So decided just to hit the bed for the evening so as not to > ruin their visit. Kids left next day. Then on Wednesday, continuing the > double vision somewhat, I vomited. The docs had all said one more symptom > get to the e.r., so I went. Sure enough, the ct scan showed 4 new blood > spots in four different parts of my brain. (that was a new one, usually they > were all in same place.) Luckily very little was affected this time, > halleluhiah! > > Long ago the statistics used to be only 1% had brain bleeds, i.e. strokes > from these medications. I am one of the 1%. Don't know if the
Re: [CMLHope] Re: stroke
SZ, remember one thing that you have a lot of people that are in the same boat that you are in and as a group we are here to help each other out when we feel blue. That's what so nice to have fellow CML friends and care takers. All that any of us have to do is email any of us and we will do our best help. This CML (thing) we have is hard on all of us but we will survive. greenie In a message dated 1/3/2016 8:36:28 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Thank you so very much for all the well wishes! It means a whole lot to me. Thanks Greenie, and Beth, and Jeannie and Marcie!!! Sure wish we'd hear from Marty.. Does anyone have any contact with his family? Greenie, I sure do feel safer at home for sure! Now that I'm older, I am definitely not the "go" bug that I used to be. I want to leave a legacy for my family of loving people really well and hoping they will see Christ in me. I know you all feel the same way about not wasting time and enjoying every day. When life becomes iffy, we value it far more, eh? Every day is a gift and I hope I make it pleasant for someone else. I can only do this if I pause before my every response instead of spewing out the first thing that comes in my head. Sometimes that first thing is not so good, lol! Enjoy 2016 as a marvelous gift to spread the good stuff, not the bad! 18's and love, SZ -Original Message- From: bkbarney via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 12:42 pm Subject: Re: [CMLHope] Re: stroke Susan, very happy you are out of the hospital...hope the new year ahead is full of joy, healing and renewed health for you...glad you are out of the hospital too. Please take good care...Love, and 18's Beth.. p.s. I was thinking the same thing about Marty..where are you Marty and how are you B -Original Message- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Sun, Jan 3, 2016 5:20 am Subject: Re: [CMLHope] Re: stroke SZ, theirs nothing like being in your own home, glad your out of the hospital it's safer to be at home. greenie In a message dated 1/2/2016 7:24:17 P.M. Eastern Standard Time, _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) writes: Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol! Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately? It's been ages. 18's, Susan Z -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You receiv
Re: [CMLHope] Re: stroke
Hi Susan , Just wanted to tell you that my mom and grandmother both had strokes in their late 70s. My sister died of a stroke in her late 60s. So it runs in the women of my family. Of course they weren't on tkis but we're on medicines for other things. My doctor warned me to keep my BP down to avoid strokes while on ponatinib. Well all the BP meds make me sick so I can't take them. I think we have a lot of stress due to the CML and worrying about the meds we take; I know I do. Good luck and continue to mend and thanks for the info on strokes. My mom was completely out of it when she had her stroke. She had to learn to read and write again and attended those therapies. After a while she became her old self again until she fell and broke her hip. ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 3, 2016, at 9:00 PM, 'Susan Zimmerman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hi Jeanie, > I have had four previous strokes, all due to trying the four other meds that > are out. With gleevec I had two strokes while I was on it that were minor. > The docs were not convinced the gleevec caused it, but I was! Then 2 years > after being off all drugs for cml, I had a major stroke which at first left > my eye frozen, and damaged hearing, along with balance problems. Thankfully, > those things all went away after 3 months. I am most blessed. Then each > other pill I tried, (all 3 others) I had a symptom of stroke almost > immediately. (bad eye bleed, frozen eye like the big stroke). They could > only find cavernous malformations in my brain to lend itself to such easy > bleeding. About 9 months ago I went back on the last drug, bosulif, because > my numbers were getting pretty high after 7 yrs of no meds at all. I started > with 100 mg of bosulif, which is very low. The usual dose is 500 mg. When my > numbers went up just a little after being in remission, the docs suggested I > go to 300 mg. I agreed only to 200 mg. So this time, I had doubled my > dosage, and 10 days later, had double vision and severe nausea all afternoon > right when we were sharing Christmas with my son and whole family on the > 26th. I wasn't sure about it, I thought it might be all the sugar I ate, as > I am diabetic. So decided just to hit the bed for the evening so as not to > ruin their visit. Kids left next day. Then on Wednesday, continuing the > double vision somewhat, I vomited. The docs had all said one more symptom > get to the e.r., so I went. Sure enough, the ct scan showed 4 new blood > spots in four different parts of my brain. (that was a new one, usually they > were all in same place.) Luckily very little was affected this time, > halleluhiah! > > Long ago the statistics used to be only 1% had brain bleeds, i.e. strokes > from these medications. I am one of the 1%. Don't know if the figures have > changed, but one thing I do know. None of you need to worry about this > happening to you. My father died of a brain aneurysm, so apparently I'm > prone to it. But I know I'll only go when it's His timing, not my own! I'll > keep plugging and try to keep a joyful heart until then! Definitely planning > on enjoying my retirement. > > 18's and love, > Susan Z > > > -Original Message- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sun, Jan 3, 2016 1:24 pm > Subject: Re: [CMLHope] Re: stroke > > Hi Susan, > Just wondering how you knew you were having a stroke?? The tkis say wash > your hands after handling and these are going in out stomach!!! > Keep strong and keep fighting!! > ❤️ > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 3, 2016, at 1:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Susan, you are a strong and amazingly positive woman...I am so sorry this > happened..but trust you will heal.I think it's so hard to know what to > do..regarding dosages and changing meds.trust your own knowing about your > body and your own knowing about what may work best for you.. > > Much love and healing energy... Beth > > > -Original Message- > From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Wed, Dec 30, 2015 11:50 pm > Subject: Re: [CMLHope] Re: stroke > > Dea
Re: [CMLHope] Re: stroke
Thank you so very much for all the well wishes! It means a whole lot to me. Thanks Greenie, and Beth, and Jeannie and Marcie!!! Sure wish we'd hear from Marty.. Does anyone have any contact with his family? Greenie, I sure do feel safer at home for sure! Now that I'm older, I am definitely not the "go" bug that I used to be. I want to leave a legacy for my family of loving people really well and hoping they will see Christ in me. I know you all feel the same way about not wasting time and enjoying every day. When life becomes iffy, we value it far more, eh? Every day is a gift and I hope I make it pleasant for someone else. I can only do this if I pause before my every response instead of spewing out the first thing that comes in my head. Sometimes that first thing is not so good, lol! Enjoy 2016 as a marvelous gift to spread the good stuff, not the bad! 18's and love, SZ -Original Message- From: bkbarney via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 12:42 pm Subject: Re: [CMLHope] Re: stroke Susan, very happy you are out of the hospital...hope the new year ahead is full of joy, healing and renewed health for you...glad you are out of the hospital too. Please take good care...Love, and 18's Beth.. p.s. I was thinking the same thing about Marty..where are you Marty and how are you B -Original Message- From: Myvety2k via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 5:20 am Subject: Re: [CMLHope] Re: stroke SZ, theirs nothing like being in your own home, glad your out of the hospital it's safer to be at home. greenie In a message dated 1/2/2016 7:24:17 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol!Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately? It's been ages. 18's, Susan Z -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googleg
Re: [CMLHope] Re: stroke
Hi Jeanie, I have had four previous strokes, all due to trying the four other meds that are out. With gleevec I had two strokes while I was on it that were minor. The docs were not convinced the gleevec caused it, but I was! Then 2 years after being off all drugs for cml, I had a major stroke which at first left my eye frozen, and damaged hearing, along with balance problems. Thankfully, those things all went away after 3 months. I am most blessed. Then each other pill I tried, (all 3 others) I had a symptom of stroke almost immediately. (bad eye bleed, frozen eye like the big stroke). They could only find cavernous malformations in my brain to lend itself to such easy bleeding. About 9 months ago I went back on the last drug, bosulif, because my numbers were getting pretty high after 7 yrs of no meds at all. I started with 100 mg of bosulif, which is very low. The usual dose is 500 mg. When my numbers went up just a little after being in remission, the docs suggested I go to 300 mg. I agreed only to 200 mg. So this time, I had doubled my dosage, and 10 days later, had double vision and severe nausea all afternoon right when we were sharing Christmas with my son and whole family on the 26th. I wasn't sure about it, I thought it might be all the sugar I ate, as I am diabetic. So decided just to hit the bed for the evening so as not to ruin their visit. Kids left next day. Then on Wednesday, continuing the double vision somewhat, I vomited. The docs had all said one more symptom get to the e.r., so I went. Sure enough, the ct scan showed 4 new blood spots in four different parts of my brain. (that was a new one, usually they were all in same place.) Luckily very little was affected this time, halleluhiah! Long ago the statistics used to be only 1% had brain bleeds, i.e. strokes from these medications. I am one of the 1%. Don't know if the figures have changed, but one thing I do know. None of you need to worry about this happening to you. My father died of a brain aneurysm, so apparently I'm prone to it. But I know I'll only go when it's His timing, not my own! I'll keep plugging and try to keep a joyful heart until then! Definitely planning on enjoying my retirement. 18's and love, Susan Z -Original Message- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 1:24 pm Subject: Re: [CMLHope] Re: stroke Hi Susan, Just wondering how you knew you were having a stroke?? The tkis say wash your hands after handling and these are going in out stomach!!! Keep strong and keep fighting!! ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 3, 2016, at 1:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Susan, you are a strong and amazingly positive woman...I am so sorry this happened..but trust you will heal.I think it's so hard to know what to do..regarding dosages and changing meds.trust your own knowing about your body and your own knowing about what may work best for you.. Much love and healing energy... Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Dec 30, 2015 11:50 pm Subject: Re: [CMLHope] Re: stroke Dear all, Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers. 18's and love, Sz Sent from my Sprint phone -- Original message-- From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PM To: cmlhope@googlegroups.com; Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message
Re: [CMLHope] Re: stroke
SZ, theirs nothing like being in your own home, glad your out of the hospital it's safer to be at home. greenie In a message dated 1/2/2016 7:24:17 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol! Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately? It's been ages. 18's, Susan Z -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Hi Susan, Just wondering how you knew you were having a stroke?? The tkis say wash your hands after handling and these are going in out stomach!!! Keep strong and keep fighting!! ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 3, 2016, at 1:00 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Susan, you are a strong and amazingly positive woman...I am so sorry this > happened..but trust you will heal.I think it's so hard to know what to > do..regarding dosages and changing meds.trust your own knowing about your > body and your own knowing about what may work best for you.. > > Much love and healing energy... Beth > > > -Original Message- > From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Wed, Dec 30, 2015 11:50 pm > Subject: Re: [CMLHope] Re: stroke > > Dear all, > Just a note to say I'm in my local hospital. It did turn out to be a small > stroke which started last Sat. In morning I will learn if 2nd cat svan showed > the bleeding stopped. Prayers are appreciated. I am agitated w myself for > agreeing to up the bosulif when my numbers increased just a little. If I had > followed the doc's suggestion of an even higher dose I would be dead now. > After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose > is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down > for several months...dont need another one! God is in charge...Jeannie, > without pills this time lol. You all mean so much to me. I'm feeling fine > now. God bless and stay safe on new year's eve! Thanks for yr. prayers. > 18's and love, Sz > > Sent from my Sprint phone > > -- Original message-- > From: Myvety2k via CMLHope > Date: Wed, Dec 30, 2015 3:34 PM > To: cmlhope@googlegroups.com; > Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Yes, glad you are home. My last stay in the hospital was 10 days. Was so glad to get home and get some real food!!! Yes Marty , where are you??? ❤️ My Motto: Faith and Pills Jeanie 18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 3, 2016, at 12:42 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Susan, > very happy you are out of the hospital...hope the new year ahead is full of > joy, healing and renewed health for you...glad you are out of the hospital > too. Please take good care...Love, and 18's Beth.. > > p.s. I was thinking the same thing about Marty..where are you Marty and how > are you B > > > -Original Message- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sun, Jan 3, 2016 5:20 am > Subject: Re: [CMLHope] Re: stroke > > SZ, theirs nothing like being in your own home, glad your out of the hospital > it's safer to be at home. > > greenie > > In a message dated 1/2/2016 7:24:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Dear Angie, > > Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif > until I turn 65 next September without my numbers going crazy. I know you > are thrilled to get your body back, lol! Thanks and you are right, what a > way to end 2015! So glad I got out of hospital on the 31st, which made > insurance so much easier for the change in years. > > All you blood buddies out there, best wishes to you all and I lift you in my > prayers whenever I hear about problems. Anybody heard from Marty lately? > It's been ages. > > 18's, > Susan Z > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Susan, you are a strong and amazingly positive woman...I am so sorry this happened..but trust you will heal.I think it's so hard to know what to do..regarding dosages and changing meds.trust your own knowing about your body and your own knowing about what may work best for you.. Much love and healing energy... Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Dec 30, 2015 11:50 pm Subject: Re: [CMLHope] Re: stroke Dear all, Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers. 18's and love, Sz Sent from my Sprint phone -- Original message-- From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PM To: cmlhope@googlegroups.com; Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Susan, very happy you are out of the hospital...hope the new year ahead is full of joy, healing and renewed health for you...glad you are out of the hospital too. Please take good care...Love, and 18's Beth.. p.s. I was thinking the same thing about Marty..where are you Marty and how are you B -Original Message- From: Myvety2k via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Jan 3, 2016 5:20 am Subject: Re: [CMLHope] Re: stroke SZ, theirs nothing like being in your own home, glad your out of the hospital it's safer to be at home. greenie In a message dated 1/2/2016 7:24:17 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol!Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately? It's been ages. 18's, Susan Z -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
HUGS! From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope@googlegroups.com Sent: Saturday, January 2, 2016 7:24 PM Subject: Re: [CMLHope] Re: stroke Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol! Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately?It's been ages. 18's,Susan Z-- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol! Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the 31st, which made insurance so much easier for the change in years. All you blood buddies out there, best wishes to you all and I lift you in my prayers whenever I hear about problems. Anybody heard from Marty lately? It's been ages. 18's, Susan Z -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Sz, Hang in their I'll be thinking of good thoughts for you so that you can get better. greenie In a message dated 12/31/2015 12:50:03 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear all, Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers. 18's and love, Sz Sent from my Sprint phone -- Original message-- From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PM To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) ; Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Best wishes, Susan. What a way to end the year!Wishing you all the best of health in 2016...May love increase, and troubles cease! I am so far off Gleevec for 6 months and no sign of trouble.Knock on woodAngie From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope@googlegroups.com Sent: Thursday, December 31, 2015 12:49 AM Subject: Re: [CMLHope] Re: stroke Dear all,Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers.18's and love, Sz Sent from my Sprint phone -- Original message--From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Thanks Dave! Sz Sent from my Sprint phone -- Original message--From: Myvety2k via CMLHope Date: Thu, Dec 31, 2015 7:51 AMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Re: stroke Sz, Hang in their I'll be thinking of good thoughts for you so that you can get better. greenie In a message dated 12/31/2015 12:50:03 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes:Dear all, Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers. 18's and love, Sz Sent from my Sprint phone -- Original message-- From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PM To: cmlhope@googlegroups.com; Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: stroke
Dear all,Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers increased just a little. If I had followed the doc's suggestion of an even higher dose I would be dead now. After 10 days on 200 mg of bosulif, here comes another stroke! Regular dose is 500 mg. I'm just weird. So now off all bosulif. Pray my numbers stay down for several months...dont need another one! God is in charge...Jeannie, without pills this time lol. You all mean so much to me. I'm feeling fine now. God bless and stay safe on new year's eve! Thanks for yr. prayers.18's and love, Sz Sent from my Sprint phone -- Original message--From: Myvety2k via CMLHope Date: Wed, Dec 30, 2015 3:34 PMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Re: Merry Christmas and happy Hilidays -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
