Re: [QUAD-L] Test

[Cullen]

Title: Test
Every things good here, haven't had any problems yet.Cullen  C3      --- On Mon, 4/7/08, RollinOn <[EMAIL PROTECTED]> wrote:From: RollinOn <[EMAIL PROTECTED]>Subject: [QUAD-L] TestTo: quad-list@eskimo.comReceived: Monday, April 7, 2008, 10:29 AM


 
 

I keep getting booted from the list is anyone else having this happen?





Mark Jackson

   RollinOn







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Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[Stacy Harim]

I certaintly wish I didn't have mine.  I'll be 34 in July and with the 
condition of my back with all the rods, I've decided I don't want to bare 
children.  I hate not knowing exactly when it's coming and then when it does 
come, I have a mess to clean up a lot of times b/c I cant feel that it's come.  
I do wear depends in case my catheter leaks and make sure not to miss a day 
when I am expecting my period.

Stacy


- Original Message 
From: Maria <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 10:55:16 PM
Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

I am 42 years old, and after my accident in December of 2000, I didn't have my 
period for seven months or so.  Of course, when I would mention this to my 
husband back then, he would say let's not talk about it.  Maybe it will never 
come back.  Well, shortly after that it did come back.  Now, I wish it would go 
away.  Couple of things.  One is that I have a 33-year-old caregiver, who had 
to have a total hysterectomy due to cancer.  She is cancer free and we are 
always joking about her not having a period anymore and how I wish I didn't.  
Also, I never thought my husband would be putting in a tampon for me, much less 
showing a caregiver how to do it.  I use a tampon during the bowel and shower 
program.  Thank God we have a good sense of humor.  I have to wonder if I'm 
looking forward to menopause.  As I'm normally cold, and I wonder how the hot 
flashes are, besides the lack of bleeding.  I guess I'll have to wait and see.

Take care --
Maria
C5/6 




On Tue, Apr 8, 2008 at 9:41 AM, <[EMAIL PROTECTED]> wrote:

Ladies,
   I was 17 when I was injured and didn't get my period for 4 months 
because your body is in shock-I was told. Then I had normal, for me, periods. 
When I turned 40 I started have crying spells and being extremely exasperated, 
I found out it was pre menopause. I had it for 10 years!
  Also, when I was first injured I would sweat like crazy. Sometimes just when 
I was in bed. I would have to sleep with towels all over my bed and my hair 
would be soaking wet. Then I went through a long spell when I only sweat when I 
was in my chair. I had to have my hair cut short and wear towel around my neck. 
I would need to change my top at least once a day.
   DATING WAS A CHALLENGE. I also went through college with sweat dripping on 
my term paper's. This was before computer's and if they got wet, I would have 
to type them all over again. I sweat like this from 1973 till 1988 when I had 
ryzodomy surgery. An uncredited side affect from the surgery was I never sweat 
again AT ALL.
   I hope this helps.
  
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey






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Re: [QUAD-L] PAIN

[Oconnelldb]

 
 
I used to 'love' my elec blanket when I slept alone.  now I just  shiver to 
sleep and wake up warm.
AZDAVE
 
 
In a message dated 4/8/2008 7:51:42 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
I find when I  lay down that the blood in my legs maybe much colder than my 
body temperature.  When I lay down all that cold blood pumps through my body 
and makes me freeze  for a couple hours. If I use my electric blanket for 30 
minutes or so makes a  world of difference!  I live in Florida and still get  
cold! 
Janet 
C -6  -1964 
- Original Message 
From:  Merrill Burghardt <[EMAIL PROTECTED]>
To:  quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject:  FW: [QUAD-L] PAIN 
 
Forgot to  mention.  Every night when I lie down my body seems fine for about 
30  minutes.  Regardless how warm it is, I will be shivering while under a  
mountain of blankets.  I will continue to shiver for several hours until  
falling asleep around 4:00am. 
I feel this might  have something to do with urinating but no idea what as I 
have a  supra-pubic.  A similar period was experienced years ago but included  
AD.  A deposit in my penis removed resolved this for  years. 
Merrill 
 
 
  

 









Hope is the  last thing that dies in man; and though it be exceedingly 
deceitful, yet it is  of this good use to us, that while we are traveling 
through 
life it conducts us  in an easier and more pleasant way to our journey's end. 
_François  de La Rochefoucauld_ 
(http://www.quotationspage.com/quotes/Francois_de_La_Rochefoucauld/) 



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[QUAD-L] Am idol

[Oconnelldb]

David Cook and Brooke White  (you've  got a friend) were my least favorite 
tonight.
David Archuleta is my fav followed closely by Carley  Smithson.
AZDAVE
 
Hope is the  last thing that dies in man; and though it be exceedingly 
deceitful, yet it is  of this good use to us, that while we are traveling 
through 
life it conducts us  in an easier and more pleasant way to our journey's end. 
_François  de La Rochefoucauld_ 
(http://www.quotationspage.com/quotes/Francois_de_La_Rochefoucauld/) 



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Re: [QUAD-L] PAIN

[DAANOO]

 
Hi Janet.
I always thought it was not safe for a quadriplegic to use an  electric 
blanket.  I was told that by someone in the past, but I can't  remember who it 
was.
 
Dana

In a message dated 4/8/2008 9:51:42 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
 
 
 
 
 
I find when I  lay down that the blood in my legs maybe much colder than my 
body temperature.  When I lay down all that cold blood pumps through my body 
and makes me freeze  for a couple hours. If I use my electric blanket for 30 
minutes or so makes a  world of difference!  I live in Florida and still get  
cold! 
Janet 
C -6  -1964 
- Original Message 
From:  Merrill Burghardt <[EMAIL PROTECTED]>
To:  quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject:  FW: [QUAD-L] PAIN 
 
Forgot to  mention.  Every night when I lie down my body seems fine for about 
30  minutes.  Regardless how warm it is, I will be shivering while under a  
mountain of blankets.  I will continue to shiver for several hours until  
falling asleep around 4:00am. 
I feel this might  have something to do with urinating but no idea what as I 
have a  supra-pubic.  A similar period was experienced years ago but included  
AD.  A deposit in my penis removed resolved this for  years. 
Merrill 
 
 
















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Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[Maria]

I am 42 years old, and after my accident in December of 2000, I didn't have
my period for seven months or so.  Of course, when I would mention this to
my husband back then, he would say let's not talk about it.  Maybe it will
never come back.  Well, shortly after that it did come back.  Now, I wish it
would go away.  Couple of things.  One is that I have a 33-year-old
caregiver, who had to have a total hysterectomy due to cancer.  She is
cancer free and we are always joking about her not having a period anymore
and how I wish I didn't.  Also, I never thought my husband would be putting
in a tampon for me, much less showing a caregiver how to do it.  I use a
tampon during the bowel and shower program.  Thank God we have a good sense
of humor.  I have to wonder if I'm looking forward to menopause.  As I'm
normally cold, and I wonder how the hot flashes are, besides the lack of
bleeding.  I guess I'll have to wait and see.

Take care --
Maria
C5/6



On Tue, Apr 8, 2008 at 9:41 AM, <[EMAIL PROTECTED]> wrote:

>  *Ladies,*
> *   I was 17 when I was injured and didn't get my period for 4 months
> because your body is in shock-I was told. Then I had normal, for me,
> periods. When I turned 40 I started have crying spells and being extremely
> exasperated, I found out it was pre menopause. I had it for 10 years!*
> *  Also, when I was first injured I would sweat like crazy. Sometimes just
> when I was in bed. I would have to sleep with towels all over my bed and my
> hair would be soaking wet. Then I went through a long spell when I only
> sweat when I was in my chair. I had to have my hair cut short and wear towel
> around my neck. I would need to change my top at least once a day.*
> *   DATING WAS A CHALLENGE. I also went through college with sweat
> dripping on my term paper's. This was before computer's and if they got wet,
> I would have to type them all over again. I sweat like this from 1973 till
> 1988 when I had ryzodomy surgery. An uncredited side affect from the surgery
> was I never sweat again AT ALL.*
> *   I hope this helps.*
> *  *
> *Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
> Married to Sweet Pete Living in Parsippany, New Jersey*
>
>
>
> --
> Planning your summer road trip? Check out AOL Travel 
> Guides
> .
>

Re: [QUAD-L] Who is watching American Idol

[DAANOO]

Quadius,
I agree with you, as I think they all have talent.  I  really like 
1.  David Cook from Kansas City area
2.  David  Archuleta so cute and talented
3.  Kristy Lee Cook reminds me a little  of Carrie Underwood
4.  Carly Smithson and Michael Johns love their  accents
Silesia, Jason and Brook are also good
I really don't know who  will go this week, possibly Brook or Silesia, but I 
really don't  know.

So does everybody else think?
Dana 



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RE: [QUAD-L] PAIN

[Janet Severt]

I find when I lay down that the blood in my legs maybe much colder than my
body temperature. When I lay down all that cold blood pumps through my body
and makes me freeze for a couple hours. If I use my electric blanket for 30
minutes or so makes a world of difference!  I live in Florida and still get
cold!

Janet

C -6 -1964

 

- Original Message 
From: Merrill Burghardt <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject: FW: [QUAD-L] PAIN

Forgot to mention.  Every night when I lie down my body seems fine for about
30 minutes.  Regardless how warm it is, I will be shivering while under a
mountain of blankets.  I will continue to shiver for several hours until
falling asleep around 4:00am.

 

I feel this might have something to do with urinating but no idea what as I
have a supra-pubic.  A similar period was experienced years ago but included
AD.  A deposit in my penis removed resolved this for years.

 

Merrill

 

  _  

Re: [QUAD-L] Who is watching American Idol

[Quadius]

Can't say I hate any of them.
Q


On 4/8/08, Paul Jacobson <[EMAIL PROTECTED]> wrote:
>
>  I like:
>
> 1.  David Cook
> 2.  David Archeleta
> 3.  Carly Smithson
>
> Paul c5/6
>
> - Original Message -
> *From:* [EMAIL PROTECTED]
> *To:* quad-list@eskimo.com
> *Sent:* Tuesday, April 08, 2008 5:18 PM
> *Subject:* [QUAD-L] Who is watching American Idol
>
>
> Just wondering?
> Dana
>
>
>
>  --
> Planning your summer road trip? Check out AOL Travel 
> Guides
> .
>
>

Re: [QUAD-L] Who is watching American Idol

[Paul Jacobson]

I like:

1.  David Cook
2.  David Archeleta
3.  Carly Smithson

Paul c5/6
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Tuesday, April 08, 2008 5:18 PM
  Subject: [QUAD-L] Who is watching American Idol


  Just wondering?
  Dana





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[QUAD-L] Who is watching American Idol

[DAANOO]

Just wondering?
Dana



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Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[Stacy Harim]

Hi,

It was six months before I got my period after I was paralyzed from 
encephalomyelitis.  I was told that your body goes into some sort of shock and 
I was also on a good amount of steriods.  They also made my hair fall out.  
After that I had weak periods for quite  a long time and now I get a really bad 
one every few months.  The doctors put me on antideppresants when I began 
recovering from a coma so it was easier to deal with my recovery.  I quit the 
antideppresants after a couple of years and was fine until I hurt my back again 
from osteomyelitis.  I had a few spinal surgeries and my period quit again for 
a few months.  I quess when the nerves get involved, it affects other parts of 
our body in pretty signifigant ways.  

I hope our advice and experiences help you,
Stacy



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 12:51:57 AM
Subject: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)


Ladies, 
I am new at this, it has only been 1 yr. 8 mo. since my accident.  And I can't 
seem to get a straight answer to my question.

I am 40 and right after my accident my period stopped for a couple of months.  
Then I would have it 2 or 3 days then go 2 weeks then get it again. I just 
never know when it is going to come.

My question is this: I am experiencing sweating on the right side of my head.  
Especially above my ear to my neck.  The sweat just runs down my face.  My 
scalp has been soaked most of the day.  Also my right cheek is flushed.  

It comes and goes, right now I am in the drying out stage.  Going to bed 
shortly and always wake up sweated (only on the one side) sometime during the 
night..  

I have adjusted with my disability and have been at peace with it.  My life has 
changed in so many ways, More for the good than the bad.  

My point is:I have not been depressed but lately my moods have been wacky and I 
cry over stuff that I normally would not.  

If you have any advice I would love to hear from you. 

Thanks Ladies!
Shelly 



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[QUAD-L] Brett Eastburn, someone you should know

[wheelchair]

_Motivational Speaker Brett  Eastburn_ (http://bretteastburn.net/#)  
 
 
 
bretteastburn.net/#



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Re: [QUAD-L] Book & Movies that are very real

[Lori Michaelson]

Smallpox.  The g'mint wants us to think that it was eradicated years ago.
It was not.  Why don't you go to Amazon.com and get better synopsis'?  And I
more than highly suggest reading them!

Lori

On Tue, Apr 8, 2008 at 1:41 AM, <[EMAIL PROTECTED]> wrote:

>  What virus was the demon in the freezer about?
> Dana
> All those books sound really good.
>
>
>
>  --
> Planning your summer road trip? Check out AOL Travel 
> Guides
> .
>



-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

Re: [QUAD-L] Enemeez again

[wheelchair]

I did my best.  I tried to get as many as I could.  I wished that  I could 
get a lot more.
Maybe... next time I'll try harder.
Best Wishes
 
 
 
In a message dated 4/8/2008 3:50:29 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

I missed the boat on 30 also.  I guess I wrote them too  late
.
Dana 





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Re: [QUAD-L] Enemeez again

[DAANOO]

I missed the boat on 30 also.  I guess I wrote them too  late
.
Dana 



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FW: [QUAD-L] PAIN

[Merrill Burghardt]

My problems begin about 20 minutes after going to bed.  An hour of reclining
in the chair, or even just putting feet up before going to bed might lessen
the impact.

 

Merrill

 

  _  

From: John S. [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 1:14 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

 

Sure sounds like AD. Have you tried elevating your head and chest? Take
something for pain and blood pressure? wrap a towel around your head? Maybe,
sit on your commode a few minutes before getting in bed to release gas build
up?
Just a suggestion. Try pain meds before getting back into bed. Give it time
to work. The move into and out of the chair causes me a lot of pain I don't
actually feel. My body does, though.

john

- Original Message 
From: Merrill Burghardt <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject: FW: [QUAD-L] PAIN

Forgot to mention.  Every night when I lie down my body seems fine for about
30 minutes.  Regardless how warm it is, I will be shivering while under a
mountain of blankets.  I will continue to shiver for several hours until
falling asleep around 4:00am.

 

I feel this might have something to do with urinating but no idea what as I
have a supra-pubic.  A similar period was experienced years ago but included
AD.  A deposit in my penis removed resolved this for years.

 

Merrill

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 11:11 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

  _  

You rock. That's why Blockbuster's offering you one month of Blockbuster
Total Access
 , No Cost.

 

  _  

Going green? See the top 12 foods to eat organic.
 

 

 

  _  

You rock. That's why Blockbuster's offering you one
  month of Blockbuster Total Access, No Cost.

Re: [QUAD-L] PAIN

[John S.]

Sure sounds like AD. Have you tried elevating your head and chest? Take 
something for pain and blood pressure? wrap a towel around your head? Maybe, 
sit on your commode a few minutes before getting in bed to release gas build up?
Just a suggestion. Try pain meds before getting back into bed. Give it time to 
work. The move into and out of the chair causes me a lot of pain I don't 
actually feel. My body does, though.

john

- Original Message 
From: Merrill Burghardt <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 2:42:10 PM
Subject: FW: [QUAD-L] PAIN

   

Forgot to mention.  Every night when I
lie down my body seems fine for about 30 minutes.  Regardless how warm it
is, I will be shivering while under a mountain of blankets.  I will
continue to shiver for several hours until falling asleep around 4:00am.
   
 I feel this might have something to do
with urinating but no idea what as I have a supra-pubic.  A similar period
was experienced years ago but included AD.  A deposit in my penis removed
resolved this for years.
   
 Merrill
   
 
From: MerrillBurghardt [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 200811:11 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN
 
  
 Remember most quadriplegics urinate
shortly after lying down.  The pressure is also more intense, so a small
blockage will be amplified.
   
 Merrill
   
 
From: William Willis[mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN
 
  
 That sounds like what I'm having
only mine is across my abdomen. It keeps me awake and eventually triggers AD.
Can't find the cause and it is wearing me down. It's not a uti.
 
Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN
 hey gang
 
 
 
i started having spasms in right side sat night. each time
i tried to take a breath in i spasmed which caused a horrible sharp pain under
right shoulder blade. the pain became continuous and literally took my breath
away.
 
 
 
i went to er yesterday am and they did nothing. imagine
that! no lift, couldn't or wouldn't transfer me - bunch of crap. sent me home
w/ lortab and flexeril. i have appt w/ dr tomorrow.
 
 
 
i wasn't dysreflexic so i'm really thrown off because i
know something is wrong. i'm asking for a head to toe check.
 
 
 
any ideas?
 
 
 
nicki 
 
 
 
 
 

You rock. That's why Blockbuster's offering you one month of Blockbuster Total 
Access, No Cost.
   
 
Going green? See the top 12 foods to eat organic.
 








  

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Re: [QUAD-L] Anybody nerve sensitive to noises?

[John S.]

A telephone ringing can cause me to spasm out of my chair. My telephone now 
just plays 3 blind mice.

john

- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 1:08:39 PM
Subject: Re: [QUAD-L] Anybody nerve sensitive to noises?

 I'm the same as you Tim.
 
Jim



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Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[John S.]

I'm sorry ladies but I read the letter. I don't think its just women that 
suffer from unilateral sweating or even the crying. For years I'd be bright red 
on one side and drenched in sweat just from transferring into my chair or back 
to the bed.   
Doctor X-rayed me and found I had advanced osteo-arthritis and my bone density 
was similar to chalk. We counted so many tiny fractures and spurs that the only 
total is at his office.
Pain can cause AD. 
Pain can also stimulate some of the wonderful glands that no longer function as 
they should. Thyroid, hypothalmus, pituitary, adrenal, etc. I'm pretty hooked 
on hydrocodone to control it. It is all I have tried that doesn't put me to 
sleep or make me "hard o' thinkin". Quads don't all age and get brittle at the 
same rate. I don't actually feel the pain I'm having but evidently, my body 
does. 
Bouts of crying and depression are not abnormal and you should mention it to 
your doctor even if you think its part of menopause. We are all different in 
that. If you cry because you missed Oprah, it could be time to talk.

john

- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 12:41:00 PM
Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

 Ladies,
   I was 17 when I was injured and didn't get my period for 4 months 
because your body is in shock-I was told. Then I had normal, for me, periods. 
When I turned 40 I started have crying spells and being extremely exasperated, 
I found out it was pre menopause. I had it for 10 years!
  Also, when I was first injured I would sweat like crazy. Sometimes just when 
I was in bed. I would have to sleep with towels all over my bed and my hair 
would be soaking wet. Then I went through a long spell when I only sweat when I 
was in my chair. I had to have my hair cut short and wear towel around my neck. 
I would need to change my top at least once a day.
   DATING WAS A CHALLENGE. I also went through college with sweat dripping on 
my term paper's. This was before computer's and if they got wet, I would have 
to type them all over again. I sweat like this from 1973 till 1988 when I had 
ryzodomy surgery. An uncredited side affect from the surgery was I never sweat 
again AT ALL.
   I hope this helps.
  
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey



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You rock. That's why Blockbuster's offering you one month of Blockbuster Total 
Access, No Cost.  
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Re: [QUAD-L] PAIN

[John S.]

A  lot of us have bouts of abdominal pain. It can be very serious because it 
can cause AD. I'm not joking when I say, it is often gas. Some anti-gas seems 
to work. I try to sit on my commode chair each night for a few minutes before 
bed. I'm sure I loose a few liters at times.


john

- Original Message 
From: William Willis <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Monday, April 7, 2008 8:32:27 PM
Subject: FW: [QUAD-L] PAIN


.hmmessage P
{
margin:0px;padding:0px;}
body.hmmessage
{
FONT-SIZE:10pt;FONT-FAMILY:Tahoma;}
That sounds like what I'm having only mine is across my abdomen. It keeps me 
awake and eventually triggers AD. Can't find the cause and it is wearing me 
down. It's not a uti.

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang
 
i started having spasms in right side sat night. each time i tried to take a 
breath in i spasmed which caused a horrible sharp pain under right shoulder 
blade. the pain became continuous and literally took my breath away.
 
i went to er yesterday am and they did nothing. imagine that! no lift, couldn't 
or wouldn't transfer me - bunch of crap. sent me home w/ lortab and flexeril. i 
have appt w/ dr tomorrow.
 
i wasn't dysreflexic so i'm really thrown off because i know something is 
wrong. i'm asking for a head to toe check.
 
any ideas?
 
nicki 
 
 
You rock. That's why Blockbuster's offering you one month of Blockbuster Total 
Access, No Cost.
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Access, No Cost.  
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Re: [QUAD-L] MRSA

[John S.]

Your absolutely right and the war against bacteria and viruses will never end 
until they win. Sorry I tried to make light of it. I didn't mean to upset 
anyone. I know it is too close to home for a lot of us to laugh at so, I 
apologize.

john

- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: John S. <[EMAIL PROTECTED]>; quad-list@eskimo.com
Sent: Monday, April 7, 2008 7:31:32 PM
Subject: Re: [QUAD-L] MRSA

John, STAPH  has been around  for ages but MRSA is a newer more resistant 
strain, --bacteria's and diseases are mutating into new more drug resistant 
strains just like the AIDS virus does.   
  Dan H.

"John S." <[EMAIL PROTECTED]> wrote:
  It took a lawyer and a Doctor to come up with the term we know as 
MRSA. When it was first discovered you know there was a doctor at the table 
saying, "Lets call it Hospital Staph!". The fact is, this superbug has never 
hurt a perfectly healthy person! 
We do have a special interest in it because so many of us are dependent on the 
doctors and nurses that do so much to spread it. I do believe the insurance 
companies that have done so much to reduce the quality of care in order to 
increase profits should be held responsible. They are a direct source behind 
forcing the best doctors and nurses from the hospitals. In many cities across 
America corporations have been caught working with insurance companies to fix 
prices in local areas. This has driven the best doctors and nurses away from 
these markets. In Cincy they busted GE and P&G along with Ford and Anthem and 
Humana. After this grand conspiracy was exposed the whistle blower was fired 
and each of the corporations received a sharp tongue lashing from a federal 
judge that couldn't think of anyway to punish such an act fairly...the end. 
Once again proving that we need to nationalize health care if only to stop 
corporations from destroying our medical system for the profits.
See! You all knew it was political. 

john
  - Original Message 
From: Lori Michaelson <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, April 7, 2008 2:26:06 PM
Subject: Re: [QUAD-L] MRSA

  Using your answer/logic ... then all folks who've had it and died rather 
quickly (not to mention the thousands of cases we DON'T hear about) could have 
been easily and quickly put on a common antibiotic
 (vancomycin) and possibly a couple of others and no big deal.  They should not 
have had to be quarantined like they had leprosy or something and then just 
treated like many of the other superbugs out there (Proteus & Psedemonas for 2 
examples).
   
  So then why the big SCARE and AWARENESS of people dying or being quarantined 
(with an MRSA infection) when they could just be responsive to vancomycin and 
one other new antibiotics you mention?
  
We surely do not have to get into an argument about it ESPECIALLY because more 
of us can be at risk.  :-)
   
  Lori Michaelson
  Age - 43
  C4/5 complete quad, 28 years post
  Tucson, AZ
  
 
  On Sat, Apr 5, 2008 at 3:41 PM, <[EMAIL PROTECTED]> wrote:
  WRONG!  MRSA means it is RESISTANT to all cillin-like antibiotics.  MRSA 
usually responds to Vancomycin and a couple of other new antibiotics.
   
  Methicillin definition - Medical Dictionary definitions of popular medical 
ter 




   
In a message dated 4/5/2008 5:51:29 P.M. Eastern Daylight Time, [EMAIL 
PROTECTED] writes:
  The reason it is called methiline-resistant is because it is resistant to ALL 
antibiotics.  









You rock. That's why Blockbuster's offering you one month of Blockbuster 
Total Access, No Cost.






  

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Access, No Cost.  
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FW: [QUAD-L] PAIN

[Merrill Burghardt]

Forgot to mention.  Every night when I lie down my body seems fine for about
30 minutes.  Regardless how warm it is, I will be shivering while under a
mountain of blankets.  I will continue to shiver for several hours until
falling asleep around 4:00am.

 

I feel this might have something to do with urinating but no idea what as I
have a supra-pubic.  A similar period was experienced years ago but included
AD.  A deposit in my penis removed resolved this for years.

 

Merrill

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 08, 2008 11:11 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

  _  

You rock. That's why Blockbuster's offering you one month of Blockbuster
Total Access
 , No Cost.

 

  _  

Going green? See the top 12 foods to eat organic.
 

[QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[wheelchair]

Please read and save for the future, only if it applies to  you
Best Wishes
 
 
  

 From: SCI Injury
To: wheelchair
CC: [EMAIL PROTECTED]
Sent:  4/8/2008 10:46:23 A.M. Central Daylight Time
Subj: Re: [QUAD-L] Another  Ladies only question ! (Menopause and S.C.I.)



In a message dated 4/8/2008 4:53:35 A.M. Pacific Daylight Time,  wheelchair 
writes:
 
Hi,
 
You may find answers to your questions by contacting the Rehabilitation  
Institute of Chicago's Center for Women with Disabilities:  
_http://www.ric.org/conditions/community/women-disabilities-center/index.aspx_
 
(http://www.ric.org/conditions/community/women-disabilities-center/index.aspx)  
 

 
Mercedes

Mercedes Rauen
Executive Director
Spinal  Cord Injury Association of Illinois
1032 S LaGrange Road, Suite  5
LaGrange, IL 60525
708-352-6223 * Fax:  708-352-9065
[EMAIL PROTECTED] * _www.sci-illinois.org_ (http://www.sci-illinois.org/) 

The Spinal Cord Injury Association of  Illinois is looking for runners and 
wheelchair racers to take part in the  October 12, 2008 Chicago Marathon. Visit 
our website, send an e-mail, or call  for  information.





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FW: [QUAD-L] PAIN

[Merrill Burghardt]

Remember most quadriplegics urinate shortly after lying down.  The pressure
is also more intense, so a small blockage will be amplified.

 

Merrill

 

  _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 5:32 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] PAIN

 

That sounds like what I'm having only mine is across my abdomen. It keeps me
awake and eventually triggers AD. Can't find the cause and it is wearing me
down. It's not a uti.

  _  

Date: Mon, 7 Apr 2008 15:33:38 -0700
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] PAIN

hey gang

 

i started having spasms in right side sat night. each time i tried to take a
breath in i spasmed which caused a horrible sharp pain under right shoulder
blade. the pain became continuous and literally took my breath away.

 

i went to er yesterday am and they did nothing. imagine that! no lift,
couldn't or wouldn't transfer me - bunch of crap. sent me home w/ lortab and
flexeril. i have appt w/ dr tomorrow.

 

i wasn't dysreflexic so i'm really thrown off because i know something is
wrong. i'm asking for a head to toe check.

 

any ideas?

 

nicki 

 

 

  _  

You rock. That's why Blockbuster's offering you one month of Blockbuster
Total Access
 , No Cost.

 

  _  

Going green? See the top 12 foods to eat organic.
 

Re: [QUAD-L] Anybody nerve sensitive to noises?

[Jkrocks]

I'm the same as you Tim.
 
Jim



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Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

[Bobbie299]

Ladies,
   I was 17 when I was injured and didn't get my period for 4 months 
because your body is in shock-I was told. Then I had normal, for me, periods. 
When 
I turned 40 I started have crying spells and being extremely exasperated, I 
found out it was pre menopause. I had it for 10 years!
  Also, when I was first injured I would sweat like crazy. Sometimes just 
when I was in bed. I would have to sleep with towels all over my bed and my 
hair 
would be soaking wet. Then I went through a long spell when I only sweat when 
I was in my chair. I had to have my hair cut short and wear towel around my 
neck. I would need to change my top at least once a day.
   DATING WAS A CHALLENGE. I also went through college with sweat dripping on 
my term paper's. This was before computer's and if they got wet, I would have 
to type them all over again. I sweat like this from 1973 till 1988 when I had 
ryzodomy surgery. An uncredited side affect from the surgery was I never 
sweat again AT ALL.
   I hope this helps.
  
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey



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Re: FW: [QUAD-L] PAIN

[Bobbie299]

 
For me, the pain that was described was mostly alleviated after my 
gallbladder was removed.
 
I also had my gallbladder removed AFTER I had a stroke and was unable to 
speak. After it was removed the stroke symptoms alleviated. That was insanely 
scary.
   PAY ATTENTION TO YOUR WEIRD PAIN, IT'S YOUR BODY TELLING YOU SOMETHING IS 
WRONG.
   


Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey



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Re: [QUAD-L] Enemeez again

[Cullen]

I have been using enemeez for about a month and they have worked well for me.I use to use stool softeners , lactulose and stem  .  My routine  is the same as before  except  now I use enemeez instead fo stem.  It takes me about  30 min.  I use shower chair . I am  C3 Cullen  C3      --- On Wed, 4/2/08, Quadius <[EMAIL PROTECTED]> wrote:From: Quadius <[EMAIL PROTECTED]>Subject: [QUAD-L] Enemeez againTo: quad-list@eskimo.comReceived: Wednesday, April 2, 2008, 6:16 PMI know we've done some rather exhaustive comments on this in the past, but I just received my trial samples (10 of them) from the company.  I guess I missed the boat on the 30, but I'm willing to try.
About three or four years ago I think I tried this product, but after hearing about the success rate from several other people here, I decided to give it another try.
My question is for those of you who use Enemeez.  Do you do your bowel regimen in bed or in a shower chair?  How long does your procedure usually last?  Do you use digital stimulation still?  What level are you?
I am a C2-3, but functional as a C4.  I can use a shower chair, but it is definitely not comfortable and not conducive to be doing bowel care with the magic bullet.  If this procedure doesn't take as long with Enemeez I am more than willing to use my shower chair, but I don't want to sit in the chair for two hours.
Thanks everyone,Quadius

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Re: FW: [QUAD-L] PAIN

[Tod E. Santee]

Dana For me, the pain that was described was mostly alleviated after my 
gallbladder was removed.

That said, I admit have other neurogenic pains plus something that "seems like" 
sciatica (IMO) in that it's a sharp, shooting, firey, burning pain from just 
below my hip all the way down my leg.  I take 900mg Neurontin plus 4mg 
hydromorphone, both 3x/day.  That's for the combo of other pains I get... not 
that related to the gallbladder.

Best!
--Tod

 [EMAIL PROTECTED] wrote: 
> So sorry Todd and Diana for your pain.
> I know I have had sharp pains  somewhere in my back and stomach before.
> Dana

Re: [QUAD-L] Anybody nerve sensitive to noises?

[t crook]

Yes- big time; I feel as if I am going to jump out of my skin when something 
startles me. What is worse for me; is the spasm in waiting, the one that is 
building (you can feel it coming on) and bam just like that. That usually 
happens to me in public, or a function, when I am sitting still for to long 
trying not to be the spaz that I am.
   
  ~peace~
   
  Tim
  www.geocities.com/onemofortom
  

Paul Jacobson <[EMAIL PROTECTED]> wrote:
DIV {   MARGIN: 0px  }All loud and sudden  noises sets me back 10 
minutes at
  least.
   
  Paul
  c5/6 complete
- Original Message - 
  From: Stacy Harim 
  To: Merrill Burghardt ; quad-list@eskimo.com 
  Sent: Monday, April 07, 2008 6:37 PM
  Subject: Re: [QUAD-L] Anybody nerve sensitive to noises?
  

I can feel it in my legs of all places and it hurts.  I sometimes have 
sensation which is weird but so is the reason why I am paralyzed.  
   
  Stacy


  - Original Message 
From: Merrill Burghardt <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Monday, April 7, 2008 7:55:46 PM
Subject: FW: [QUAD-L] Anybody nerve sensitive to noises?

So many times there would be a sudden sound which hardly anyone 
would notice, but I JUMP inside as if to blast out of my skin.  Even if I am 
prepared for a sound, my startle reflex is so strong but of course I¢m C/5 and 
do not move.
   
  Merrill
   

-
  
  From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 07, 2008 4:20 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Anybody nerve senitive to noises?

   
Sudden loud noises like that seem to go directly into my bladder area in my 
lower abdomen, it hurts== I guess it has to do with our  nervous system.


   Dan H.

[EMAIL PROTECTED] wrote:

  Hi All,

  Dose it bother anybody else when someone else drops like sissor's on 
a tile floor? It goes right down my spine. Even someone crumpling up a piece of 
paper.

   Bobbie

  


  
-
  
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-
  You rock. That's why Blockbuster's offering you one month of Blockbuster 
Total Access, No Cost.

   
-
You rock. That's why Blockbuster's offering you one month of Blockbuster Total 
Access, No Cost.

Re: [QUAD-L] MRSA

[MikeyBird3]

I don't know what they were given.  One of my MRSA infections  was 
successfully treated with Vancomycin.  Another with  Keflon.
 
 
In a message dated 4/8/2008 4:34:48 A.M. Eastern Daylight Time, DAANOO  
writes:

Were all  these people given vancomycin that came close to dying ?  

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg,  FL
Very funny, Scotty. Now beam up my  clothes.





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[QUAD-L] Fwd: Council E-News - April 8, 2008

[wheelchair]

 
  

 From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: 4/8/2008 7:14:40  A.M. Central Daylight Time
Subj: Council E-News - April 8, 2008


COUNCIL E-NEWS- April 8 2008
We  hope Council E-News will provide resources and information about 
disability  issues that will educate and empower advocates to form their own 
views on  
issues and advocate according to their personal needs and those of their  
communities. If you have comments or ideas to submit, contact Christine  
Dahlberg 
at [EMAIL PROTECTED]
10 ITEMS OF INTEREST
1. TELL US ABOUT  VOTING IN INDIANA! 
2. WOULD YOU LIKE TO HAVE A 6FT TALL STANDING 08 MARCH  AWARENESS MONTH 
POSTER?
3. FREE 2008 INSPIRING ABILITIES EXPO RESCHEDULED  FOR APRIL 12 IN GREENFIELD
4. INFO RE SSA MEDICARE PRESCRIPTION DRUG  ASSISTANCE TERMINATION LETTERS
5. 2008 NATIONAL ADA SYMPOSIUM, EXPO AND AT  FAIR IN ST LOUIS MAY 12-14
6. THREE INDIANA NURSING HOMES MAKE WORST OF THE  WORST LIST
7. FREE ADA AUDIO CONFERENCE APRIL 15TH - THERE ARE NO IEP'S IN  COLLEGE
8. NEW WAYS TO APPLY FOR PUBLIC ASSISTANCE
9. SURVEY FOR INDIANA  CONSUMERS ON DIRECT SUPPORT STAFF
10. "MUSIC WITHIN" DVD IS NOW  AVAILABLE

1. TELL US ABOUT VOTING IN INDIANA!
The 2008 Indiana  Disability Poll is focusing on the timely topics of voting 
and civic  participation this year. We want to hear from people with 
disabilities and  their family members about important topics such as voting, 
barriers 
to  voting, the accessibility of polling places, volunteering for political  
parties, and participation in other community policymaking activities. Once  
all the responses are collected, they will be summarized and used to assure  
that the voices of people with disabilities are heard during the fall  
elections 
and that their vote counts! Please go online and respond to this  year's 
Disability Poll: A Survey on Voting and Civic Engagement: Go to this  web 
address: 
_www.thepollingplace.org_ (http://www.thepollingplace.org/) 

If you would  prefer a paper-and-pencil version of the Disability Poll or one 
in alternative  formats, please contact Vicki Pappas at [EMAIL PROTECTED] or 
by calling  812-85506508.
The Indiana Disability Poll is a joint annual activity of The  Governor's 
Planning Council for People with Disabilities, The Indiana  Protection and 
Advocacy Services Commission, and the Indiana Institute on  Disability and 
Community.
**

2. WOULD YOU LIKE A 6FT TALL  STANDING 2008 MARCH AWARENESS MONTH POSTER?
As part of MDAM outreach,  each Simon mall displayed a standing poster. These 
posters are available to  anyone who would like to pick one up on a first 
come first served basis. The  posters measure six feet tall, four feet wide, 
and 
the base projects one foot.  They could be placed against a wall or used for a 
divider. They are being held  until the end of April at Eastland Mall in 
Evansville, Muncie Mall in Muncie,  University Park Mall in Mishawaka, and 
Tippecanoe Mall in Lafayette. If you  are interested in having one let me know 
and I 
will give you details on how to  pick them up. [EMAIL PROTECTED] 317-232-7774
**

3. FREE  2008 INSPIRING ABILITIES EXPO RESCHEDULED FOR APRIL 12 IN  GREENFIELD
March weather necessitated the rescheduling of the 2008  Inspiring Abilities 
Expo. We hope that the new date will work well for  families. FUSE invites 
families of children with disabilities and the  professionals who work with 
them 
to attend the free 2008 Inspiring Abilities  Expo! The expo is an opportunity 
for families to connect with service  providers, non-profit and public service 
agencies, plus vendors of products  and services that may benefit your child. 
Browse booths for a few hours, or  stay for the day! Pre-registration will 
help us with planning. For more  details or to register online go to: 
_www.fuseinc.org_ (http://www.fuseinc.org/) . Walk-ins are also  welcome.
Saturday, April 12, 2008- 9:00 am - 3:00 pm, Mt. Comfort United  Methodist 
Church, 3179 N. 600 West, Greenfield IN (Mt. Comfort Road, just  north of I-70)
Featuring: Large Vendor Display Area; Door prizes, Fabulous  Speaker 
Schedule!, Child care available for attendees (by reservation  please!), Lunch 
will 
also be available for a nominal charge on site.  


4. SSA MEDICARE PRESCRIPTION DRUG ASSISTANCE NOTICE OF  TERMINATION LETTERS
Informational Alert From The Fifth Freedom Network:  Courtesy of Social 
Security Administration (SSA)
A small group of Medicare  beneficiaries currently receiving the Low-Income 
Subsidy (LIS) will be  receiving a "SSA Medicare Prescription Drug Assistance 
Notice of Termination"  letter during the first half of March. These 
beneficiaries will no longer  receive Extra Help as of April 1 because they did 
not 
provide information  about their continued eligibility for the program. 
Beneficiaries should  contact SSA right away if they wish to appeal; only those 
that 
appeal within  the first 10 days of April will continue to rec

Re: [QUAD-L] Book & Movies that are very real

[DAANOO]

What virus was the demon in the freezer about?
Dana
All those books  sound really good.




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Re: [QUAD-L] MRSA

[DAANOO]

Were all these people given vancomycin that came close to dying ? 
 

  
I think the news reports are making more people aware of how easily  they can 
help prevent MRSA infections by frequent hand washes and using gloves  and 
masks when changing caths, dressing wounds, etc.  However, some news  reports 
have sensationalized it to the point that it's beyond being  rational.
 
 
In a message dated 4/7/2008 2:26:21 P.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

So then why the big SCARE and AWARENESS of people dying or  being quarantined 
(with an MRSA infection) when they could just be  responsive to vancomycin 
and one other new antibiotics you mention?  

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg,  FL
Very funny, Scotty. Now beam up my  clothes.





 

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(http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316) .




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