Re: [CMLHope] Erythropoietin Injections

2017-09-06 Thread Marty Gartenberg
Dear Marcie, Yes i had and still have some major challenges but so have many others for that matter and guess what? *We *are still here and alive. I have an obligation to help others going through this, and it was a promise that i made to GOD almost 28 years ago while i was being wheeled into the

Re: [CMLHope] Erythropoietin Injections

2017-09-05 Thread 'Marcie Goodman' via CMLHope
Marty, Thanks so very much, my friend. I have some serious complications that could put me at huge risk with injections but I'm so glad to hear how well you did. If anyone knows complications I think it is you! And how are you doing? I haven't kept up too much with our group but I know you've

Re: [CMLHope] Erythropoietin Injections

2017-09-05 Thread Marty Gartenberg
Hi Marcie, Your talking to a person that used to live on Epogen as well as Procrit. Here is a list of "side effects" see the list below However i never experienced any one of them. Please let me explain why i had to use them. Twenty years ago i had CML. At that time there were no TKI's of any typ

[CMLHope] Erythropoietin Injections

2017-09-05 Thread 'Marcie Goodman' via CMLHope
Does anyone receive erythropoietin injections such as Procrit to combat decreasing red cells? If so, any side effects and how often do you need the injections? My red cells keep bottoming out and erythropoietin has been recommended with caution. I have some concerns about the risks, although I