On Monday, July 27, 2015, Suzieq wrote:
>
> Thanks everyone. I do hope Skip is doing okay.
>
> Keep Looking up!,
>
> Suzieq
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed
For some reason i didn't see Skips email to this group. Maybe i missed it
but let me re-post it.
!8's,
Marty
Skipd
7:04 PM (1 hour ago)
to CMLHope Unsubscribe
/just want to say hi to all you cml'ers and to let you know I am still on
the green side was talking to Marty he told me to get on
In
Glad you are good.
Blessings
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Aug 4, 2016, at 5:35 PM, 'rszim0...@aol.com' via CMLHope
> wro
Good luck susieq. I haven't heard from Skip.
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
> On Jul 24, 2015, at 2:17 PM, Suzieq wrote:
>
Hi Suzieq,
I also haven't heard from Skip. I tried contacting him trough skype but
nothing yet.
I will keep tiring.
18's
Marty
On Fri, Jul 24, 2015 at 2:17 PM, Suzieq wrote:
> Was just wondering if anyone has heard from Skip in a while? I know I
> haven't been very faithful here lately and
I don't always post, but I check the messages pretty much everyday and have not
seen anything from Skip. I was thinking about him, too, and wondering why we
have not heard anything from him. Skip, we are missing you.
Joyce in IL
On Jul 24, 2015, at 1:17 PM, Suzieq wrote:
> Was just wo
Was just wondering if anyone has heard from Skip in a while? I know I
haven't been very faithful here lately and may have missed any reports
about him or posts from him. The reason I am asking, I've met a woman who
is a 20 or 22 year survivor with CML and apparently none of the TKI's
worked
o
t his so I have no room t gripe skipd
Sent from Yahoo Mail on And
From: ICANDOALLTTC via CMLHope ;
To: ;
Subject: [CMLHope] skip blood trasfusion jaw pain? pinatinib warning
Sent: Fri, Sep 5, 2014 12:15:56 PM
Hi Skip and great to hear from
You sure have had your fill of problems I have been lucky .I k now of which you
speak .on my pole I have bag of desferol a bag benadryl platelets and red
cells and I have t drag all t hat washroom I have tp use spec bathroom as I
have low immune system with we below 1.7 but I am well e nought
Hi Skip and great to hear from you. As you know, I have had many trials
and tribulations with my blood counts. In taking Tasigna, I had to have
those bags of platelets also. It wasn't so bad, they give you a little
private space with a tv and hook you up to stay all day. They will bring
-
From: Marty Gartenberg
To: cmlhope
Sent: Wed, Jul 3, 2013 6:35 pm
Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug
Skip, your like the rock of Gibralter!
18's
Marty
On Wed, Jul 3, 2013 at 9:29 AM, Skip Duffie wrote:
.Hello all
thanks for includi
fatigue yes, but not this..so try
> not to worry, I am an odd bird when it comes to drug sensitivity..
> have many issues others don't. Just the luck of the draw...I do most of
> the things you suggest already,bu trwill try castor oil and see if that
> helps..thanks so much for y
Hi Beth and thanks for the update. I do suffer from ongoing right side
pain but don't know what it is. I thought the group might like this to
understand your cpks
CPK isoenzymes testEmail this page to a friendShare on facebookShare on
twitterBookmark & SharePrinter-friendly version
The CP
t the luck of the draw...I do most of
the things you suggest already,bu trwill try castor oil and see if that
helps..thanks so much for your note, be well Jeannie, Beth
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Tue, Jul 2, 2013 7:54 am
Subject: Re: [CMLHope] Skip
e draw...I do most of the
>things you suggest already,bu trwill try castor oil and see if that
>helps..thanks so much for your note, be well Jeannie, Beth
>
>
>-Original Message-
>From: ICANDOALLTTC
>To: cmlhope
>Sent: Tue, Jul 2, 2013 7:54 am
>Subject: Re: [CMLH
CANDOALLTTC
To: cmlhope
Sent: Tue, Jul 2, 2013 7:54 am
Subject: Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug
Hi Beth, I am on Sprycel and it was the only drug that put me in PCRU.
I battled with Gleevec for almost 5 years and then on Tasi for a few months. I
was on 100 mgs d
know. I can handle the rashes, migraines, muscle wasting/fatigue/ weakness,
But this one is new, ongoing and the greatest challenge yet.
thanks for yoru help.
Beth
-Original Message-
From: gene and guy Larcher
To: cmlhope
Sent: Fri, Apr 19, 2013 10:49 am
Subject: [CMLHope] Skip
Old traditions are great! I wish we still had some of ours. The old
timey family parties and etc. Put a note in for me and all our CML'ERS. We
need all the help we can get. Have a wonderful trip and we will pray for you
and your trip also.
Jeanie<3
In a message dated 4/21/2013 1:03:
dle again
Thanks Marty
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Saturday, April 20, 2013 12:48:21 AM
Subject: Re: [CMLHope] Skip Duffie
Hi Beth,
I just have one thing to say in answer to your post. You wrote "Isolation
and fear are powerful tools"
I am thinking of you MIllie and hope you get good diagnostics to help you
address whatever is going on so you can feel better. I will send prayers your
way. Beth
-Original Message-
From: C.M. Houtz
To: cmlhope
Sent: Wed, Apr 24, 2013 10:38 pm
Subject: Re: [CMLHope] Skip Duffie
Hi
has a lot of
issues, but keeps on going.
Many hugs,
Millie
- Original Message -
From: bkbar...@aol.com
To: cmlhope@googlegroups.com
Sent: Tuesday, April 23, 2013 7:47 PM
Subject: Re: [CMLHope] Skip Duffie
Thank you so much for your post Millie. I am sorry that you are up at
hank you so much for this generous and thoughtful gesture. That you are able
> to get to Israel..what a blessing!!!
>
> Beth
>
>
> -Original Message-
> From: Marcie Goodman
> To: cmlhope
> Cc:
> Sent: Sun, Apr 21, 2013 12:04 am
> Subject: Re: [CMLHope] Ski
Thanks Marty. Beth
-Original Message-
From: Skip Duffie
To: cmlhope
Sent: Sun, Apr 21, 2013 9:03 am
Subject: Re: [CMLHope] Skip Duffie
Great advice Marty, white count down to 1.9 and ANC still down to less the 300
once we bring them up I will back in the saddle again
Thanks Marty
Cc:
Sent: Sun, Apr 21, 2013 12:04 am
Subject: Re: [CMLHope] Skip Duffie
Hi Beth and Fellow Warriors:
I pray for all of us to do well and live long, happy, pain free lives. What
Millie wrote is so true. People who don't have CML or those who aren't related
or very close to a C
x27;s experience
with CML is different, but finding words, or experiences that mirror your
own..I find it comforting.
spring will come...!!!
Write soon. take care, Beth
-Original Message-
From: C.M. Houtz
To: cmlhope
Sent: Sat, Apr 20, 2013 3:05 am
Subject: Re: [CMLHope] Skip Duffie
Hi
Marty, consider it done. Thanks for the hebrew and mother's names. I will also
say a mishaberach for you. You will remain on my prayer list, as I am part of a
tehillim prayer group.
Sent from my iPad
On Apr 21, 2013, at 11:03 AM, Marty Gartenberg wrote:
> Dear Marcie,
>
> I too have been to
Dear Marcie,
I too have been to Israel and also placed several "notes" into the cracks
of the Western Wall for others suffering from cancer.
I would very much like if you could place a piece of paper in one of the
cracks of that wall.
My email address is wa2...@juno.com. If you would kindly cont
>Subject: Re: [CMLHope] Skip Duffie
>
>
>
>Hi Beth,
>
>I just have one thing to say in answer to your post. You wrote "Isolation and
>fear are powerful tools" Indeed they are, but do you want to know a much more
>powerful tool? It's your Mind.
>
>18&#
Hi Beth and Fellow Warriors:
I pray for all of us to do well and live long, happy, pain free lives. What
Millie wrote is so true. People who don't have CML or those who aren't related
or very close to a CML patient don't get it. My sister is in from Florida
because our 92 year old father had a
Hi Beth,
I know you struggle with your meds and that you have had so many side effects.
I'm so sorry that this new drug has caused you such problems. I am not
sleeping well tonight, so decided to get up and do some things on here that
I've been meaning to do. I wanted to print out some patt
ny suggestions about muscle
> spasticity, please let me know. I can handle the rashes, migraines, muscle
> wasting/fatigue/ weakness, But this one is new, ongoing and the greatest
> challenge yet.
>
> thanks for yoru help.
>
> Beth
>
> -Original Message-
> From:
ow. I can handle the
rashes, migraines, muscle wasting/fatigue/ weakness, But this one is new,
ongoing and the greatest challenge yet.
thanks for yoru help.
Beth
-Original Message-
From: gene and guy Larcher
To: cmlhope
Sent: Fri, Apr 19, 2013 10:49 am
Subject: [CMLHope] Skip D
Dear Skip:
So good to hear from you after quite some time.
Very sorry to hear you have been so poorly but the good news is that you
are getting better.
You, along with Marty, have given tremendous hope to the rest of us and
shown how to bear long illness with good spirits.
Dear old warrior -
Good luck and God Bless Skip
--
[CMLHope]
A support group of http://cmlhope.com
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You received this message because you are subscribed to the Google Groups
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My prayers are with Skip.
Date: Tue, 24 Nov 2009 18:49:19 -0800
From: maggy...@bellsouth.net
Subject: Re: [CMLHope] Skip Duffie
To: cmlhope@googlegroups.com
Sending a prayer out to Skip !
--- On Sat, 11/21/09, Zavie Miller wrote:
From: Zavie Miller
Subject: [CMLHope] Skip
Sending a prayer out to Skip !
--- On Sat, 11/21/09, Zavie Miller wrote:
From: Zavie Miller
Subject: [CMLHope] Skip Duffie
To: c...@yahoogroups.com, CMLHope@googlegroups.com
Date: Saturday, November 21, 2009, 1:09 PM
Hi all,
I spoke with Skip this morning and he asked me report on
Hi all,
I spoke with Skip this morning and he asked me report on how he is doing.
When I spoke to him a couple of weeks ago he was in really bad shape. I
didn't think he was going to make it. Today sounded well and back to his old
self.
At the moment he is off all medications waiting for what i
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