Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

senthal > Miami, Florida > > On Sep 26, 2019, at 7:43 PM, sherri swanson > wrote: > > Hi Ken, > > Glad to hear your doing well. I too take Gleevec but take 600mg. Like you > I was DX in 2003 and have been on 600mg since then. My blood is almost > undetectable as we

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Hi Ken, Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I was DX in 2003 and have been on 600mg since then. My blood is almost undetectable as well. I guess the CML just wants to let me know it's there. I just let it know I'm still here too. Have a great weekend,

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

Hi Norm, I am glad to see that you are doing well. I have been having trouble with my heart too and the doctor thought it might be from the Gleevec, but I too have a history of heart issues in my family, and told the doctor I want to go with that. The god news, I have not had any heart attacks or

Re: [CMLHope] Re: Not getting any mail

Hi Jeanie, I'm still here too. Just been doing things and we, my husband and the dog moved this year. I'm getting to old for that moving stuff. My Gleevec is keeping my CML in check and has been for about 17 years. WOW, that's a long time. Hope everyone is doing well and has enjoyed the summer.

Re: [CMLHope] Got a sore won’t heal ?

Hi Jeanie, You should see the doctor. It sounds like something you should not fool around with. A year ago I got bit by a mosquito while walking the dog, and that bite made me so sick that I still have not fully recovered from it. This year I have been dealing with pneumonia and colds that won't

Re: [CMLHope] Hi Shaun question

018, at 9:52 PM, Marty Gartenberg wrote: > > Hi Sherri, > > This is Shaun. My family and I greatly appreciate your heartwarming > gift. Thank you so very much for that. My Mom (his wife, Rachelle) sends > her thanks, as well. > > Regards, > Shaun > > On Wed, Nov 1

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

and prayers. Marty will always be in my heart and on my mind. My heart is broken knowing I will not receive another message from Marty and we will no longer share share photos. *As long as we live, they too will live; for they are now are a part of us; as we remember them. * Regards, Sherri Swanson

Re: [CMLHope] Hello

Hi Marty, I'm still here. A little slower than I was before, a few more aliments, but that's okay too. Hope you're doing well. L'chaim Sherri On Fri, Mar 9, 2018 at 3:12 PM, Marty Gartenberg wrote: > Hello, hello... Is anyone out there? > > 18's, > > Marty > > -- > -- >

Re: [CMLHope] Right hand numb

You could you be pinching your nerve. I sometimes get that in my pinkie finger on my right hand. I also get it on my index finger too. Just a thought. Sherri On Wed, Sep 27, 2017 at 8:57 AM, 'Susan Zimmerman' via CMLHope < cmlhope@googlegroups.com> wrote: > Sorry Jeanie, > I have numbness in

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

daily. I'm like you > can't quit the tkis. Blessings. > > My Motto: > Faith and Pills > With Love > 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt C

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

I heard about this and when I was having some edema, my oncologist took me off my Gleevec as all of my doctors were sure that was the reason for my leg edema. I was off the Gleevec for 6 months and in that time my counts started going up. Slowly at first and then by the 6th month very quickly. My

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

I too have had terrible muscle cramps on Gleevec. I have also had every side effect that Gleevec lists in its product sheet. I've been on this medication for 14 years now and can not change do to other health issues. At this point all of the side effects just become part of my everyday life as

Re: [CMLHope] All zero club members

be number one in the Zavie Miller club it is you. It is an honor to be in the same club as you. I can't think of a better group of people to be with. Sherri On Wed, Sep 28, 2016 at 8:11 PM, sherri swanson <swanson.sherri...@gmail.com > wrote: > Hi Jeanie, > > My number is 1023 and

Re: [CMLHope] All zero club members

ace book. > > Join our club > > On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson < > swanson.sherri...@gmail.com> wrote: > >> To bad I'm not on facebook. I have a Zavie number. >> >> On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope < >&

Re: [CMLHope] All zero club members

To bad I'm not on facebook. I have a Zavie number. On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > Thanks. I'll let her know. > > My Motto: > Faith and Pills > With Love > 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009

Re: [CMLHope] Re: Medicare and presc drugs cost

Hi Penny, I have Part and I am on Gleevec. When I was looking for my carrier, I listed all my drugs and looked at the plans that gave me the best rate and the best price for the Gleevec. I wound up with a specialty pharm for the Gleevec and Walgreen's for everything else. The prices at the

Re: [CMLHope] Just checking in

MARTY It is so good to see your words. I'm sorry you're hurt and pray that you are better soon. Understand that it is a struggle to type us a message, just say hi to let us know you are OK and we won't worry. Please feel better soon as we all miss you and want you back when you are able.

Re: [CMLHope] Re: About Marty

and Pills > With Love > 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Sep 8, 2016, at 1:22 PM, sherri swanson <swanson.sherri...@gm

Re: [CMLHope] Re: About Marty

Thank you so much for the update on Marty. I'm glad to know he is home and will reconnect when he is able. Let us know if there is an address that we can send cards and good wishes. Sherri On Thu, Sep 8, 2016 at 11:16 AM, Myvety2k via CMLHope < cmlhope@googlegroups.com> wrote: > Thank you so

Re: [CMLHope] Haven't gotten any e-mail notifications

All is well here in humid Illinois. I just got another dog so we are trying to learn each other. He is 8 years old and from a shelter. But he's a good boy. Hope everyone is doing well and enjoying the end of summer. We will be in the 90s for the next few days and then cool down. Wish we would

Re: [CMLHope] Anyone out there. Testing

> > Richard H. > > On Tuesday, July 12, 2016 at 8:30:43 PM UTC-5, Angie wrote: >> >> We're roasting in Canada! >> How hot is it? >> The chickens are laying hard boiled eggs. >> >> -- >> *From:* sherri swanson <swan

Re: [CMLHope] New BCR-ABL test in

Richard, That's great news! I just had my BCR/ABL on Monday so I don't know the results yet. Hope they are as good as yours. Sherri On Tue, Jul 12, 2016 at 11:03 PM, Richard H wrote: > I have another Good Report foe this 6 month test. My count is ..1% or > less. Great

Re: [CMLHope] Anyone out there. Testing

ing in Canada! >> How hot is it? >> The chickens are laying hard boiled eggs. >> >> -- >> *From:* sherri swanson <swanson@gmail.com> >> *To:* cml...@googlegroups.com >> *Sent:* Tuesday, July 12, 2016 8:06 PM >&

Re: [CMLHope] Anyone out there. Testing

Hi Jeanie, I'm out here in the heat & humidity trying to stay cool.  Sherri On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > > > My Motto: > Faith and Pills > With Love > 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna

Re: [CMLHope] About John Hopkins Cancer Update

Greenie, I'm so sorry to hear about the loss of your son. I'm glad to hear that Grace is back home and resting. I will keep you in my thoughts and prayers. Sherri in Illinois On Fri, Jun 17, 2016 at 3:42 PM, bkbarney via CMLHope < cmlhope@googlegroups.com> wrote: > Dear Greenie, > > So glad to

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER

Hi Marty, I too was in Zavie's Zero Club. My number is 1023. Do we know what happen to the numbers after what is on this list? Are we thinking about keeping the list going? If so, I would be glad to help. I've got time and great computer skills. Let me know if I can help in any way. Sherri On

Re: [CMLHope] Hey, what happened to everyone?

me it was the Gleevec. Sometimes it is really comical the things I hear that Gleevec causes. Stay well, Sherri On Wed, Mar 2, 2016 at 3:20 AM, sherri swanson <swanson.sherri...@gmail.com> wrote: > Hi Marty, > > My doctor put me on Furosemide 20mg & potassium as I have low p

Re: [CMLHope] Hey, what happened to everyone?

Hi Marty, My doctor put me on Furosemide 20mg & potassium as I have low potassium to begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg and still nothing. He switched me to a different drug Spironalactone, generic for Aldactone and still no trips to the bathroom and the

Re: [CMLHope] Re: Hey, what happened to everyone?

Hi Everyone. Sorry to have been so quite but I've been dealing with a lot of crazy health issues. I've been on Gleevec for 13 years and have had every side effect it can throw at me and have dealt with it. At the beginning of 2015 I began having some edema in my legs and I told my GP about and he

Re: [CMLHope] Heart valve replacement and TKIs

Hi Perry, I've been on Gleevec for 13 years and I just started having trouble with my heart. I am scheduled next week for some tests to rule out some things and hopefully help me with the issues that I am having. I do not have a diagnosis yet, so I can't say if it will be an aortic replacement.

Re: [CMLHope] New Insurance

Hi Suzie, Back in June of this year, I need to get my Gleevec refilled. When I went to pick it up I was told my total would be $ 18,987.00 for one month. I take 600mg a day. I almost fell on the floor right there at the counter. It just so happens, my husbands insurance decided they were changing

Re: [CMLHope] Oct BCR-ABL

Richard, So sorry to heard about your wife's fall. Sending her healing wishes. With regards to your CML, stable is a wonderful thing. May you stay a long time. L'chaim Sherri On Wed, Aug 26, 2015 at 6:28 PM, bkbarney via CMLHope cmlhope@googlegroups.com wrote: Richard, I am so sorry to

Re: [CMLHope] Thanks

as to Ann Arbor. We are very happy with Dr Talpaz..just looking ahead to the time when either our health or our finances prevent us from the travel. Joyce in IL On Aug 22, 2015, at 8:21 AM, sherri swanson wrote: Hi Joyce, I just saw that you go to Ann Arbor to see Dr. Talpaz

Re: [CMLHope] Thanks

Hi Joyce, I just saw that you go to Ann Arbor to see Dr. Talpaz for your husband and live in Southern Illinois. Have you checked out the CML specialist that replaced Dr. Tallman at Northwestern in Chicago? I have not seen her, but my oncologist has hinted that he will send me to her should I need

Re: [CMLHope] Re: 12 years old boy with CML

from them. 18's and L'chaim Marty On Sun, Jul 26, 2015 at 11:56 AM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Marty, As you can guess, it is Sunday. You are correct when you say that Gleevec is a terrible taste but I don't have to much of a choice. I did stop it for awhile

Re: [CMLHope] Re: 12 years old boy with CML

that is what my dentist tells me. I would much rather swallow the pill but due to my paralyzed stomach, I can no longer do that. So what did Cyclosporine taste like? I can't image that it was very tasteful. L'chaim On Thu, Jul 23, 2015 at 3:25 AM, sherri swanson swanson.sherri...@gmail.com

Re: [CMLHope] Re: 12 years old boy with CML

on Gleevec can you tell me what does it taste? On Fri, Jul 17, 2015 at 2:32 PM, sherri swanson swanson.sherri...@gmail.com wrote: No problem. It is strange to tell someone that you don't eat solid food and still take Gleevec. Or whenever I say that my stomach is paralyzed I get the funniest

Re: [CMLHope] Re: 12 years old boy with CML

Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 16, 2015, at 2:43 PM, sherri swanson swanson.sherri...@gmail.com wrote: Hi everyone, While it is true we are not to take PPI's and we are to take our Gleevec

Re: [CMLHope] Re: 12 years old boy with CML

Hi everyone, While it is true we are not to take PPI's and we are to take our Gleevec with a meal, I happen to be the exception to that rule. I've been on Gleevec since 2002. I have not taken my Gleevec with any solid food in 6 years. I have a paralyzed stomach and I can no longer digest solid

Re: [CMLHope] Platelets

Hi Marty, I just saw your reply to Susan about having a stroke. When did this happen? I've been sick and did not have access to PLM so I didn't know you were ill. I'll say an extra prayer for you. I hope your feeling better. L'chaim, Sherri On Thu, Jul 2, 2015 at 8:47 PM, Marty Gartenberg

Re: [CMLHope] Today's Doctor visit

Richard, Good Job![?] Sherri On Thu, May 28, 2015 at 9:54 AM, Joyce Mesnarich joy...@htc.net wrote: Richard, So happy to hear your good news!! Joyce in IL On May 27, 2015, at 10:44 PM, Richard H wrote: I know I am and I'm lovin every minute of it. Life is so much more fun

[CMLHope] A bit of good news today

Hi Everyone! In the mist of all the bad news I've been getting lately, I got some good news this afternoon. My Onc called me to tell me that my BCR/ABL was undetectable. So with that that good news still ringing in my ears, I went for walk. AS I was walking it started to rain. I just didn't

Re: [CMLHope] CML visit

is good. John are you still off med? Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Mar 11, 2015, at 5:27 AM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Susan You're right

Re: [CMLHope] Checking in/ to all my CML friends

Hi Joyce, I'll be glad to send down when we get it back. LOL Right now it is only in the 40s here. Not exactly as warm as it was, but as soon as those 70s come back, I'll be sure to send it down your way. As for the sun shinning, we had that hit or miss. Yesterday, it was out late in the day

Re: [CMLHope] CML visit

Hi Susan You're right about it being great news that we get up every day. And now that spring is in sight and the days are getting longer, that makes getting up even brighter. Our snow here in northern Illinois is melting fast too. It is going to be in the upper 50s most of this week also. Hey

Re: [CMLHope] CML visit

Hi Greenie, I've had all those tests and the colonscopy prep is the hardest part. I know what you mean about not needing another cancer, I had to have a FNA (Fine Needle Aspiration) on my thyroid in January as there is a pretty good size mass on my right thyroid. The good news is it is benign,

Re: [CMLHope] CML visit

Richard, That is great news about the your haemoglobin. I also think it's great that your drs are talking to one another. That is so important. Last week, I had to get a transfusion as my counts were so low. I went to my onc and he did the usual blood draw and my WBC was 2.4. That was enough to

Re: [CMLHope] U[PDATE FOR MARTY

Take your time and rest. We'll all be waiting here for you upon your return. We're so happy for you. [?] L'chaim, Sherri On Sat, Feb 28, 2015 at 11:52 PM, Richard H rbhuffm...@gmail.com wrote: How great to receive your post. May you heal quickly. Richard H. On Saturday, February 28,

Re: [CMLHope] U[PDATE FOR MARTY

This is wonderful news!!! Here is a prayer for Marty that is said in the synagogue for those who are ill or recovering from illness or accidents. May the One who blessed our ancestors -- Patriarchs Abraham, Isaac, and Jacob, Matriarchs Sarah, Rebecca, Rachel, and Leah -- bless and heal the

Re: [CMLHope] Doctor's Visit

Hi Beth, I was think the same thing you were. I've been sending all the good thoughts I could find to Marty and since we've not heard from him, it must have been a match. Let's just keep praying that the kidney was a match and everything goes well. He is such a wonderful person. Have a good day.

Re: [CMLHope] Re: Kidney transplant

Marty, That is great news. Please let it be a match. Just to let you know, I'm still praying. L'Chaim Sherri On Mon, Feb 23, 2015 at 11:08 PM, Richard H rbhuffm...@gmail.com wrote: Great news MartyMy prayers are with you.. This was a great day, I also received good news today. Will

Re: [CMLHope] Greenie and all

Hey Greenie, Sorry to hear that you are having so much trouble with nausea. I too suffer with that everyday. My doctor gave me a patch that I wear when it gets really bad as I have a very hard time swallowing pills because of my thyroid issue. As a matter of fact, I even dissolve the Gleevec in

Re: [CMLHope] Big test today

but you go in there as a winner! 18's, Marty On Thu, Jan 22, 2015 at 4:25 AM, sherri swanson swanson.sherri...@gmail.com wrote: Hi everyone! This morning I'm having an Ultrasound Guided Fine Needle Aspiration done on my thyroid. One of my doctors found a mass on my thyroid

Re: [CMLHope] Big test today

and let me tell you that it is no where close to having a BMB which I had 17 of them. I wish you the very best of luck and I know that your frightened and it's difficult to not worry but you go in there as a winner! 18's, Marty On Thu, Jan 22, 2015 at 4:25 AM, sherri swanson swanson.sherri

[CMLHope] Big test today

Hi everyone! This morning I'm having an Ultrasound Guided Fine Needle Aspiration done on my thyroid. One of my doctors found a mass on my thyroid that is about half the size of my right lobe and sent me for a regular ultrasound with the hopes that he would be able to see something. Well, me being

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

wrote: Hi it's not me who lost their dad-- I lost mine many years ago. I am still so nauseas. Hanging in there. Doing Bma fri. Blessings Jeanie Sent from my iPhone On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote: Jeanie, I'm so sorry for your loss. You

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

not me who lost their dad-- I lost mine many years ago. I am still so nauseas. Hanging in there. Doing Bma fri. Blessings Jeanie Sent from my iPhone On Jan 13, 2015, at 4:06 AM, sherri swanson swanson@gmail.com wrote: Jeanie, I'm so sorry for your loss. You will always have them

Re: [CMLHope] Jeanie's relapse

, sherri swanson swanson.sherri...@gmail.com wrote: Hi Richard, If it's one thing I got, It's Attitude! At least that's what my mom would tell me when I was a teenager. LOL Sorry to hear about the car. This cold weather can be brutal on a car's battery. Glad you were able to get a new

Re: [CMLHope] Night Sweats

centers will usually not use total body radiation any more unless it is really needed. 18's, Marty On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson swanson@gmail.com wrote: Hi Marty, The doctors are trying to treat the different illnesses that are included in my condition

Re: [CMLHope] Night Sweats

to fail and that is probably why most transplant centers will usually not use total body radiation any more unless it is really needed. 18's, Marty On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Marty, The doctors are trying to treat the different

Re: [CMLHope] Bad need

, 2015 at 5:19 AM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Marty, Happy New Year. I hope you are well. Thanks for the research I enjoyed article. I could only wish it was as simple as being as side effect of my TKI. In my case, nothing is ever simple LOL. What I have is called

Re: [CMLHope] Night Sweats

years for my kidneys to fail and that is probably why most transplant centers will usually not use total body radiation any more unless it is really needed. 18's, Marty On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Marty, The doctors are trying

Re: [CMLHope] Night Sweats

, Marty On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson swanson.sherri...@gmail.com wrote: Hi Marty, Happy New Year. I hope you are well. Thanks for the research I enjoyed article. I could only wish it was as simple as being as side effect of my TKI. In my case, nothing is ever simple LOL

Re: [CMLHope] Night Sweats

Hello, I've had CML for 12 years and I've taken Gleevec for those 12 years. I've also experienced night sweats for many years. At first I was told that it was due to menopause because of my age at the time. Go figure. When that was no longer an option, the only thing left was the Gleevec. Since

Re: [CMLHope] My surgery is over

Marty, L'shana tova to you and all who celebrate the new year. I hope you get the transplant very soon. I will continue to pray for you everyday my friend. I agree with you Marty that someday we will see a cure for CML. The reference you make to polio hits close to home for me as my husband had

Re: [CMLHope] Explanation of PCRU

Hi Jeanie, Ive, had many EDG's and never had any problems. As for the colonoscopy, I agree with Greenie, the prep is the worst part of the procedure. Drinking that gallon of liquid is a real downer. I start my drink at like 2 p.m. so I can take a little longer to drink it than what the

Re: [CMLHope] Re: insurance coverage

Hello, I have Anthem and use them for my drugs all the time. I take Gleevec 600mg everyday. My out of pocket for the 400mg for 3 months $150.00. So, it's a little higher than what you're paying now per month. I've been with Anthem for about 6 years and have had no issues with getting the

Re: [CMLHope] Side effects

Hey Greenie, I Have to agree that it depends on what I eat if I get nauseous or not with my Gleevec. I know I can not eat soup and take the Gleevec as that will cause me to throw up for sure. But, if I eat some bread with it I'm okay. For a while I could not eat pizza at all as I was so nauseous

Re: [CMLHope] My latest test results!

That is great news! I'm still waiting on my results. I hate waiting. On Wed, Feb 8, 2012 at 8:08 AM, margoo...@aol.com wrote: Congratulations! That is wonderful news and inspirational for those of us still on Gleevec. Keep up the good work. Marcie Baltimore -Original Message-

Re: [CMLHope] Eye Bleeds

Okay, I have a silly question. Every once in awhile I wake up with my right or left eye in the corner all blood shot. It looks terrible and like I've been in a fight. It does not hurt or itch and usually goes away in a few days. Is this what you are calling eye bleeds? Thanks On Mon, May 9,

Re: [CMLHope] Re: New to the group

Sheila, I use to take long rides. We would be gone for 8 hours or more. I really miss that. My husband took his bike out yesterday for the first time this year. When I saw him ride off, I was in envy of him. But then I got back in the house and started doing other things and forgot all about it.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 5 Messages in 1 Topic

Hi Sue, So glad to know that I have a book-end! You have described me to a tee. I am cold a summer and wear long sleeves and a light sweater. I never wear shorts or open toe shoes as my feet are like ice cubes. In the summer I have a blanket on and the ceiling fan going for my husband. I do

Re: [CMLHope] Re: New to the group

Hi Laura, I sleep in an extra large men's tee shirt and it works great. I had long bone pain when I first stated with the Gleevec back in 2003, but now I have pain in the Hip joint and don't know if it is related to the Gleevec or not. But I got through the bone pain in 2003 and the other side

Re: [CMLHope] New to the group

I can understand how you could love that vette. And of course your wife was right! We are always right! LOL. That gas mileage is great for a car that takes 93 octane. I drive a Rav4 and it gets about 30mpg in the city on regular. And you are correct, you can always replace the car, you can never

Re: [CMLHope] Re: New to the group

Hey Suzieq, Nothing wrong with Harley's or riding on the back. My favorite Harley is a Fat Boy. I just love the way those look. I like that solid wheel. And the fact that I am short, that is the only bike that fits me. :) Do you guys do much riding? SS On Sat, Apr 30, 2011 at 11:20 AM, Suzieq

Re: [CMLHope] New to the group

Sounds like you have a great thing going on. No grass cutting to worry about. And a place for the Vette. Who could ask for more! I would be in the pool every chance I got. My dad, rest his soul, use to say I was a fish. Every time I saw water I would try to swim in it. When I was in school, I was

Re: [CMLHope] New to the group

People here don't see them either. That is their favorite saying when an accident happens. Oh, I didn't see you. I never understood that. When I was riding, I always made myself as visible as I could. I wore bright colors and such. My oncologist and neurologist both told me to give up riding. It

Re: [CMLHope] New to the group

My brother always had Vette's. He would buy a new one seems like every year. Then he moved up to Mercedes Bends. I miss miss my brother. He passed away this past June. He was only 66. He was always buying a new car. I had a Vulcan 750. That was my first bike. Best bike I ever rode. It was my

Re: [CMLHope] New to the group

Dr. Altman is the who I see when I need to go to Northwestern. Looks like we have something in common besides CML. Both of my husbands daughters live in Chicago. The oldest works at Dury Lane Theater in the production department. She oversees all the plays that they do. And the youngest one is in

Re: [CMLHope] New to the group

Hey Greenie, I know where Porter, IN is. I would agree that the winter of 2010 was just awful. I live about 1/4 mile from the lake and we had all that snow. My husband and I watch it snow and wait for it to stop in February. It took us about an hour or more to get all of the snow removed from our

Re: [CMLHope] Druker in Smithsonian Magazine

I had seen that article before but it was nice to read it again. Thanks to Dr. Druker and the CML Research team for all their hard work! Sherri On Tue, Apr 26, 2011 at 8:25 AM, marcon mar...@enter.net wrote: The May 2011 issue of Smithsonian Magazine features Dr. Druker the cml research.

Re: [CMLHope] New to the group

Hey Greenie, The only time I was happy about being cold was when I was getting hot flashes. That is when my poor husband and I would have the discussion about it being to warm in the house and I would threaten to turn the thermostat down to cool off the house. But living in Chicago and being

Re: [CMLHope] Re: New to the group

Hey Suzieq, Thanks for the advice and the welcome. I've been sleeping in a t-shirt for a long time. I thought that would help. But, I wake up freezing in the meddle of the night from the sweat. LOL The rash was on my arms and the oncologist gave me some cream to use and cleared up in a few

Re: [CMLHope] New to the group

Hi Millie, Thanks for the kind words. They mean a lot. So far everyone in the group has been helpful and fourth coming with advice. Hope you do well on Tasigna. Stay in touch. Sherri On Thu, Apr 21, 2011 at 2:22 PM, C.M. Houtz ho...@ptd.net wrote: Hi Sherri...I didn't have the hot flashes on

Re: [CMLHope] New to the group

Beth, Fortunately I'm not in Peri-menopause I'm in full blown menopause hooray! The shivering and the sweating are just nuts and you're right, it is like your thermometer is broken. I would look for the heaviest blanket I could find to wrap up in and still shake. My face doesn't flush or get

Re: [CMLHope] New to the group

Hey Marcie, Glad to know that someone else has to change there sheets too! I woke up the other night and my pillowcase was just soaking wet with sweat. There I was at 3:00 a.m. waking my husband so I could change the sheets. How nice of me. :) I am going to talk to my onc when I see him at my