Hi Marty, I just saw your reply to Susan about having a stroke. When did this happen? I've been sick and did not have access to PLM so I didn't know you were ill. I'll say an extra prayer for you. I hope your feeling better.
L'chaim, Sherri On Thu, Jul 2, 2015 at 8:47 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > Hi. Susan > > unfortunately i had a stroke. getting better. > > 18's > > Marty > > > > > > > > > > > > > > On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Pete, >> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He >> is GREAT!!! >> >> 18'S, >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Pete Pabon <nyc...@hotmail.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Mon, Jun 15, 2015 12:36 am >> Subject: RE: [CMLHope] Platelets >> >> *Jeanie,who do you see at Moffitt?* >> >> >> >> ------------------------------ >> Date: Sun, 14 Jun 2015 20:23:18 -0700 >> From: rbhuffm...@gmail.com >> To: cmlhope@googlegroups.com >> Subject: Re: [CMLHope] Platelets >> >> I do understand Skip. I have a sister that has been anemic all her >> life, and she is doing fine at 5. I have been having problems every time I >> get close 7.9. Just again shows how we each find our spot that works for >> us. >> >> Richard H. >> >> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: >> >> >> I have had very low platelets and ANC and RBC and plus some others plus >> high Ferritin counts over 7000 most weeks I have critical platelets and >> white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 >> log reduction. I fell fine been doing this for 37 years I tell you this as >> I want all to know Low counts should looked but not to spoil your day >> Zevie was astounded when I send him on of my blood reports with 1.0 white >> 88 RBC 0zero platelets ANC of 0.20 >> hooe this helps >> Skip Dx 1977 >> Sent from Yahoo Mail on Android >> <https://overview.mail.yahoo.com/mobile/?.src=Android> >> ------------------------------ >> *From*:"'Icandoallttc' via CMLHope" < cml...@googlegroups.com> >> *Date*:Tue, May 19, 2015 at 9:01 AM >> *Subject*:Re: [CMLHope] Platelets >> >> I also have problems with platelets and WBC. They go way too high. >> Only on Tasigna did they drop too Lowe. Go figure. We are all unique in >> how we respond to the tkis. >> Moffitt tomorrow. I am hoping for good results. >> 5 months on ponatinib. >> >> Prayers & Blessings Jeanie [image: Fish] [image: Fish]18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> >> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < graga...@gmail.com> >> wrote: >> >> I have problems with platelet count. Diagnosed in 2012 Started with >> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started >> with 140mg per day and now taking 50mg per day. One moth of Sprycel >> medication and two months rest for platelet recovery. This is how current >> medication is going on. I take papaya leaf tea everyday to improve >> platelets. >> >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com> >> wrote: >> >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in >> a bar fight. Even a light scratch on my skin brings the blood to the >> surface. It is called Thrombocytopenia. My red cells also plummet and I had >> 6 blood transfusions last week. >> My confidence waivers a little as it seems they don't really know what >> to do about me. I have lots of complications. More specialists on the >> horizon, but every step forward is followed by 3 steps back. I am on >> massive prednisone for the moment. >> Can anyone share info on this? >> Angie in Canada.... >> Gleevec pioneer since 2001 >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------ ------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------ ------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
