Re: [CMLHope] Thyroid issues

2018-12-30 Thread 'Jeanie' via CMLHope
tter!!! > Thinking of you... > > 18/s Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Fri, Dec 28, 2018 9:45 am > Subject: [CMLHope] Thyroid issues > > Hi Beth > I didn’t know you had thyroid issues. > Maybe you c

Re: [CMLHope] Thyroid issues

2018-12-28 Thread bkbarney via CMLHope
other issues.. Hope this is the year that you find some more answers and feel better!!! Thinking of you... 18/s Beth     -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Fri, Dec 28, 2018 9:45 am Subject: [CMLHope] Thyroid issues Hi BethI didn’t know you had thyroi

[CMLHope] Thyroid issues

2018-12-28 Thread 'Jeanie' via CMLHope
Hi Beth I didn’t know you had thyroid issues. Maybe you can help me. My tsh was high and the dr gave me Levo meds but they made it worse. How is yours being treated? Thanks Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started

Re: [CMLHope] Thyroid bad

2018-11-03 Thread 'Jeanie' via CMLHope
Hi Marty my friend What do you mean? Thanks 🌺🌺🌺 My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2

Re: [CMLHope] Thyroid bad

2018-10-01 Thread Marty Gartenberg
Jeanie iam in rehab right now and need to have talk with you about YOU why in haven don't you where a led lined neck brace the next time you get in touch with me i will tell you. 18s Marty On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope wrote: > Hi all I got my thyroid test back. The counts er

[CMLHope] Thyroid bad

2018-10-01 Thread 'Jeanie' via CMLHope
Hi all I got my thyroid test back. The counts err very high so went back to taking meds. Check it again in 6 weeks. I am sure it’s all these meds. Did you know even the X-rays from dentist can hurt thyroid. They say to asked for a protection mask. I have never heard about this in all my year

[CMLHope] Thyroid

2018-08-23 Thread 'Jeanie' via CMLHope
Hi all Can anyone give me their experience with thyroid problems? I’ve been in pill since mid July but can’t tell much difference. Thanks My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/200

Re: [CMLHope] Thyroid dosage?

2018-07-24 Thread Marty Gartenberg
It took about a month, but after a week or two it came back and lasted for another few weeks. It was very difficult to explain, the tingling was in my pinky and the inside side that touched my ring finger on it's side. But it never came back again... 18's, Marty On Tue, Jul 24, 2018 at 1:07 PM,

Re: [CMLHope] Thyroid dosage?

2018-07-24 Thread 'Jeanie' via CMLHope
Thanks Marty and everyone. How long did it take for tingling to go away? My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moff

Re: [CMLHope] Thyroid dosage?

2018-07-24 Thread Marty Gartenberg
Hi Jeanie and Joyce, First to Jeanie: I am very sorry that you are having this problem but you should know that this will be corrected very soon. And the fact that your having all of these problems especially about your swaeting and the temporary loss or tingling of one of your fingers. I am "happ

Re: [CMLHope] Thyroid dosage?

2018-07-24 Thread 'Jeanie' via CMLHope
Thank you Joyce Yes I was wrong about dosage. It was 0.05mg I took a whole 5o this morning but I’m sweating really bAd and shaking. So I’m going back to half. I woke up a few months ago and my right finger was numb. Anyone have that? My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to

Re: [CMLHope] Thyroid dosage?

2018-07-19 Thread Joyce Mesnarich
Jeanie, I would take the dosage your Dr advised. My husband is taking 150. He has been taking it so long that we can’t really remember how often he did blood tests when he first started. I think it was every 3 months. Now he gets tested every 6 months. That, evidently, is what Medicare will

Re: [CMLHope] Thyroid dosage?

2018-07-19 Thread Marty Gartenberg
Jeanie, I think that your getting micrograms verses milligrams mixed up??? 18's, Marty On Thu, Jul 19, 2018 at 2:29 PM, 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > > My dr gave me 50 mg but I am taking half. Should I take the full dose? > 18’s > How often to get tested? > My Mott

[CMLHope] Thyroid problems

2018-07-19 Thread 'Jeanie' via CMLHope
My t3 and t4 were normal My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 C

[CMLHope] Thyroid dosage?

2018-07-19 Thread 'Jeanie' via CMLHope
My dr gave me 50 mg but I am taking half. Should I take the full dose? 18’s How often to get tested? My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Exterm

[CMLHope] Thyroid issues hair loss?

2018-07-19 Thread 'Jeanie' via CMLHope
Yes that’s the drug I was put on. I had noticed my hair was falling out and I was so sleepy and tired. My PCd took a blood test and found it. Did your hair fall out and if it did did it start coming back in? Thanks 18’s My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Star

[CMLHope] Thyroid Problems

2010-07-03 Thread margood18
Hi Friends: I may have asked this before and if so I apologize but has anyone experienced thyroid problems resulting from either the CML or Gleevec? Best wishes to all for a happy, healthy and peaceful Independence Day! Marcie Baltimore -- [CMLHope] A support group of http://cmlhope.com

[CMLHope] Thyroid problems

2007-05-07 Thread loewen1
Hi Everyone, Last week I had extra blood work done to measure my lithium level which I also take. My psychiatrist called today after receiving the lab results and said I needed to see an endocrinologist right away because my thyroid numbers were off the chart. Well, after I got the appointmen