tter!!!
> Thinking of you...
>
> 18/s Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope
> To: cmlhope
> Sent: Fri, Dec 28, 2018 9:45 am
> Subject: [CMLHope] Thyroid issues
>
> Hi Beth
> I didn’t know you had thyroid issues.
> Maybe you c
other issues..
Hope this is the year that you find some more answers and feel better!!!
Thinking of you...
18/s Beth
-Original Message-
From: 'Jeanie' via CMLHope
To: cmlhope
Sent: Fri, Dec 28, 2018 9:45 am
Subject: [CMLHope] Thyroid issues
Hi BethI didn’t know you had thyroi
Hi Beth
I didn’t know you had thyroid issues.
Maybe you can help me. My tsh was high and the dr gave me Levo meds but they
made it worse. How is yours being treated? Thanks Jeanie
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Christian
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started
Hi Marty my friend
What do you mean?
Thanks
🌺🌺🌺
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2
Jeanie iam in rehab right now and need to have talk with you about YOU why
in haven don't you where a led lined neck brace the next time you get in
touch with me i will tell you. 18s Marty
On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope
wrote:
> Hi all I got my thyroid test back. The counts er
Hi all I got my thyroid test back. The counts err very high so went back to
taking meds. Check it again in 6 weeks.
I am sure it’s all these meds. Did you know even the X-rays from dentist can
hurt thyroid. They say to asked for a protection mask. I have never heard
about this in all my year
Hi all
Can anyone give me their experience with thyroid problems? I’ve been in pill
since mid July but can’t tell much difference.
Thanks
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/200
It took about a month, but after a week or two it came back and lasted for
another few weeks. It was very difficult to explain, the tingling was in my
pinky and the inside side that touched my ring finger on it's side. But it
never came back again...
18's,
Marty
On Tue, Jul 24, 2018 at 1:07 PM,
Thanks Marty and everyone. How long did it take for tingling to go away?
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moff
Hi Jeanie and Joyce,
First to Jeanie: I am very sorry that you are having this problem but you
should know that this will be corrected very soon. And the fact that your
having all of these problems especially about your swaeting and the
temporary loss or tingling of one of your fingers. I am "happ
Thank you Joyce
Yes I was wrong about dosage. It was 0.05mg
I took a whole 5o this morning but I’m sweating really bAd and shaking.
So I’m going back to half.
I woke up a few months ago and my right finger was numb.
Anyone have that?
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to
Jeanie,
I would take the dosage your Dr advised. My husband is taking 150. He has
been taking it so long that we can’t really remember how often he did blood
tests when he first started. I think it was every 3 months. Now he gets
tested every 6 months. That, evidently, is what Medicare will
Jeanie,
I think that your getting
micrograms verses milligrams mixed up???
18's,
Marty
On Thu, Jul 19, 2018 at 2:29 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:
>
> My dr gave me 50 mg but I am taking half. Should I take the full dose?
> 18’s
> How often to get tested?
> My Mott
My t3 and t4 were normal
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired
0 C
My dr gave me 50 mg but I am taking half. Should I take the full dose?
18’s
How often to get tested?
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Exterm
Yes that’s the drug I was put on. I had noticed my hair was falling out and I
was so sleepy and tired. My PCd took a blood test and found it.
Did your hair fall out and if it did did it start coming back in? Thanks
18’s
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Star
Hi Friends:
I may have asked this before and if so I apologize but has anyone
experienced thyroid problems resulting from either the CML or Gleevec?
Best wishes to all for a happy, healthy and peaceful Independence Day!
Marcie
Baltimore
--
[CMLHope]
A support group of http://cmlhope.com
Hi Everyone,
Last week I had extra blood work done to measure my lithium level which I also
take. My psychiatrist called today after receiving the lab results and said I
needed to see an endocrinologist right away because my thyroid numbers were off
the chart. Well, after I got the appointmen
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