Re: [Felvtalk] Treatment Protocols
-Original Message- From: Lance lini...@fastmail.fm Sent: Jun 9, 2013 1:14 PM To: felvtalk@felineleukemia.org Subject: Re: [Felvtalk] Treatment Protocols .ImmunoRegulin - I believe I spoke to Dr. Thomas (an article about her use of IR is listed on that page) about ImmunoRegulin. If I remember right, she hasn't used the drug for cats in a long time, but I don't think this was due to any problem with it. She still said it had done some good. I contacted Dr. Thomas in March about IR, and she seems to feel it's the best way to go with a symptomatic cat. By the time I got the IR that, Gribble was improving, so we are holding that in reserve. I'm still trying to figure out why there isn't more info about treating FeLV. The usual volume of research I can dig up on a disease/condition just isn't there. Because nothing works? Because most Vets and owners don't treat? Because FeLV isn't often diagnosed in cats that are healthy enough to warrant treatment? I don't know. I'll try to remember to ask my Vet today. I don't know that she's ever tried to treat FeLV before. Margo ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols
Hi everyone, this is Michele from South America. Margo, I just wanted to share my thoughts about your mail. Everything you said is frustratingly true. But for us here in the south of the continent, it's even worst. In Ecuador, they haven't even allowed the FeLV vaccine yet, so no vet can offer it to patients. We have no formal treatment for FeLV, so the cats end up using the same medication that is given to AIDS patients. The name of the medicine is Isoprinosine (Immunovir), and according to my research, it works as ImmunoRegulin but for $12 dollars a bottle: http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/immune/antivirals-and-immunemodulators/treating-chronic-fatigue-syndrome-isoprinosine-immunovir-by-cort-johnson(that's the only info in English I could find). My FeLV + cat was on Isoprinosine for a month and a half and now he's completely asymptomatic, he displays high levels of energy, is playful and always hungry. I hope he continues to improve, he's only one year old and I suspect he was recently infected with the FeLV virus when I rescued him. I'm following closely the research for RetroMAD1, the so called wonder drug from Malasya. It's still not approved by the FDA but the research continues and maybe we will have it soon. I'm trying to get my vet interested to see if he wants to be a part of the research team, as the scientist who's conducting the investigation is apparently searching for vets in other countries that might want to try the medicine with their symptomatic patients in a medicine for data exchange program. I can't understand why there is no more research being done when our beloved pets are dying every year because of FeLV and Fiv, Ecuador is just an example of how behind we are in everything regarding this illness, and it's not an isolated case, several countries here in the south are in the same situation. The only test we have to diagnose if a cat is positive is the Elisa, there's nothing more available. Big hugs to everyone, and thanks for sharing. Michéle Date: Mon, 10 Jun 2013 07:20:22 -0400 From: toomanykitti...@earthlink.net To: felvtalk@felineleukemia.org Subject: Re: [Felvtalk] Treatment Protocols -Original Message- From: Lance lini...@fastmail.fm Sent: Jun 9, 2013 1:14 PM To: felvtalk@felineleukemia.org Subject: Re: [Felvtalk] Treatment Protocols .ImmunoRegulin - I believe I spoke to Dr. Thomas (an article about her use of IR is listed on that page) about ImmunoRegulin. If I remember right, she hasn't used the drug for cats in a long time, but I don't think this was due to any problem with it. She still said it had done some good. I contacted Dr. Thomas in March about IR, and she seems to feel it's the best way to go with a symptomatic cat. By the time I got the IR that, Gribble was improving, so we are holding that in reserve. I'm still trying to figure out why there isn't more info about treating FeLV. The usual volume of research I can dig up on a disease/condition just isn't there. Because nothing works? Because most Vets and owners don't treat? Because FeLV isn't often diagnosed in cats that are healthy enough to warrant treatment? I don't know. I'll try to remember to ask my Vet today. I don't know that she's ever tried to treat FeLV before. Margo ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols
I'm sorry, I meant Lance, not Margo :S From: atomicbetti...@hotmail.com To: felvtalk@felineleukemia.org Date: Mon, 10 Jun 2013 08:45:55 -0500 Subject: Re: [Felvtalk] Treatment Protocols Hi everyone, this is Michele from South America. Margo, I just wanted to share my thoughts about your mail. Everything you said is frustratingly true. But for us here in the south of the continent, it's even worst. In Ecuador, they haven't even allowed the FeLV vaccine yet, so no vet can offer it to patients. We have no formal treatment for FeLV, so the cats end up using the same medication that is given to AIDS patients. The name of the medicine is Isoprinosine (Immunovir), and according to my research, it works as ImmunoRegulin but for $12 dollars a bottle: http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/immune/antivirals-and-immunemodulators/treating-chronic-fatigue-syndrome-isoprinosine-immunovir-by-cort-johnson(that's the only info in English I could find). My FeLV + cat was on Isoprinosine for a month and a half and now he's completely asymptomatic, he displays high levels of energy, is playful and always hungry. I hope he continues to improve, he's only one year old and I suspect he was recently infected with the FeLV virus when I rescued him. I'm following closely the research for RetroMAD1, the so called wonder drug from Malasya. It's still not approved by the FDA but the research continues and maybe we will have it soon. I'm trying to get my vet interested to see if he wants to be a part of the research team, as the scientist who's conducting the investigation is apparently searching for vets in other countries that might want to try the medicine with their symptomatic patients in a medicine for data exchange program. I can't understand why there is no more research being done when our beloved pets are dying every year because of FeLV and Fiv, Ecuador is just an example of how behind we are in everything regarding this illness, and it's not an isolated case, several countries here in the south are in the same situation. The only test we have to diagnose if a cat is positive is the Elisa, there's nothing more available. Big hugs to everyone, and thanks for sharing. Michéle Date: Mon, 10 Jun 2013 07:20:22 -0400 From: toomanykitti...@earthlink.net To: felvtalk@felineleukemia.org Subject: Re: [Felvtalk] Treatment Protocols -Original Message- From: Lance lini...@fastmail.fm Sent: Jun 9, 2013 1:14 PM To: felvtalk@felineleukemia.org Subject: Re: [Felvtalk] Treatment Protocols .ImmunoRegulin - I believe I spoke to Dr. Thomas (an article about her use of IR is listed on that page) about ImmunoRegulin. If I remember right, she hasn't used the drug for cats in a long time, but I don't think this was due to any problem with it. She still said it had done some good. I contacted Dr. Thomas in March about IR, and she seems to feel it's the best way to go with a symptomatic cat. By the time I got the IR that, Gribble was improving, so we are holding that in reserve. I'm still trying to figure out why there isn't more info about treating FeLV. The usual volume of research I can dig up on a disease/condition just isn't there. Because nothing works? Because most Vets and owners don't treat? Because FeLV isn't often diagnosed in cats that are healthy enough to warrant treatment? I don't know. I'll try to remember to ask my Vet today. I don't know that she's ever tried to treat FeLV before. Margo ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols
On Jun 10, 2013, at 6:20 AM, Margo toomanykitti...@earthlink.net wrote: I'm still trying to figure out why there isn't more info about treating FeLV. The usual volume of research I can dig up on a disease/condition just isn't there. Because nothing works? Because most Vets and owners don't treat? Because FeLV isn't often diagnosed in cats that are healthy enough to warrant treatment? I don't know. Historically, I think most owners and vets didn't treat. It was considered a death sentence until recently (last 10-15 years?). There are still vets who see it that way. And, as you said, it's probably also because FeLV is often seen in cats who are not doing well, which was the case of our FeLV+, Sadie. The vet urged euthanasia. If owners don't treat, then there isn't much money in it, and independent studies seem to need lots of money, even if they're modest. Companies also have to bother to perform studies themselves, and if they can skate by with just a provisional nod from the proper body, they can sell their drug, and the cash may be the only thing they really care about. T-Cyte is a good example of a company that, from what we can tell, doesn't seem to care to set up full trials. I'm fairly sure that Virbac have not paid for the required trials in the US, and that this is why Virbagen Omega isn't available here. If it we could get VO here, American FeLV+ owners could get it cheaper and faster (we wouldn't have to clear it through the FDA, and we wouldn't have to have it shipped overnight from England). ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] Treatment Protocols
Hello All, I've came across this website with treatments for Felv, and was wondering if anyone ever tried anything (I know some members tried Interferon Alpha)? The link is http://www.felineleukemia.org/treatmnt.shtml Best, Kasia___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols
Of those on the list, I've only used inteferon alpha and Dimethylglycine (DMG). Interferon is fairly affordable, while DMG is cheap and available in a number of formats (liquid, powder, treat). I can't vouch for whether or not they work. We have no studies that I know of for DMG use on FeLV+ cats, and interferon alpha studies show possible help, but nothing that says it will definitely improve anything. ImmunoRegulin - I believe I spoke to Dr. Thomas (an article about her use of IR is listed on that page) about ImmunoRegulin. If I remember right, she hasn't used the drug for cats in a long time, but I don't think this was due to any problem with it. She still said it had done some good. Acemannan - Ember's first vet to treat her for FeLV had tried using this drug on cats a long time ago, and he didn't see any use in it. Lymphocyte T-Cell Immune Modulator - This is a relatively new product, and my understanding is that adequate studies have not been conducted. My vet wasn't impressed. A cat in town is getting it for something related to sneezing, and the owner is happy with the cat's progress. I don't know anything about the case; just that my vet talked to another vet here about it. It shouldn't hurt, and I'm considering it. Staph Protein A - I know nothing about this one and don't know that I've ever heard of anyone using it. Baypamun - http://www.felineleukemia.org/baypamun.html You can search the list archives for this, but I'm not sure it's even available. That page on the site hasn't been updated in quite awhile. How is Jack doing today? Lance On Jun 9, 2013, at 11:24 AM, kasia mosko kasia...@yahoo.com wrote: Hello All, I've came across this website with treatments for Felv, and was wondering if anyone ever tried anything (I know some members tried Interferon Alpha)? The link is http://www.felineleukemia.org/treatmnt.shtml Best, Kasia ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols
Hi Kasia, Well, that's the website for this list, so that's where I got a lot my info from, at least as a starting point. Both my positive boys on the Interferon 7 days on, 7 days off. My Vet is holding ImmunoRegulin for me, for possible future use. That's about it, for now. Gribble was very sick at diagnosis some kind of URI (which we now think is herpes) andan extremely high fever, which then went very low. His WBCwas 2.7, but everything else was WNL.We decided then only thing to do was to treat symptomatically, so we basically threw thebook at him.Hewas treated with Zenequin, Naxcel, Ketoprofen, and later famciclovir. DMG and Interferon were added as soon as we got it. Something worked, and after a couple of weeks, he was doing much better. For now he and Mako (also FeLV positive) are getting the Interferon and famciclovir, because the URI seemed to be starting again. All my cats are currently on L-Lysine for the herpes, but it is not always 100% effective with the immune compromised ones. Does seem to help, though. I hope others will be able to add more. HTH, Margo -Original Message- From: kasia mosko <kasia...@yahoo.com>Sent: Jun 9, 2013 12:24 PM To: "felvtalk@felineleukemia.org" <FELVTALK@FELINELEUKEMIA.ORG>Subject: [Felvtalk] Treatment Protocols Hello All, I've came across this website with treatments for Felv, and was wondering if anyone ever tried anything (I know some members tried Interferon Alpha)? The link is http://www.felineleukemia.org/treatmnt.shtml Best, Kasia ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols-Lance
Hi Lance, Of those on the list, I've only used inteferon alpha. ***Did you start using it before your cat has shown any symptoms? How is Jack doing today? *** So far Jack has been doing really good. It took him only two days to get back to normal, and the fluid in his chest stopped building up as well. He eats soo much; much more than he used to, but it is ok, because he is only over 6 pounds now. It is his second week on chemo and no side effects so far; hopefully it will stay this way. Lance On Jun 9, 2013, at 11:24 AM, kasia mosko kasia...@yahoo.com wrote: Hello All, I've came across this website with treatments for Felv, and was wondering if anyone ever tried anything (I know some members tried Interferon Alpha)? The link is http://www.felineleukemia.org/treatmnt.shtml Best, Kasia ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Treatment Protocols-Lance
Yes, the vet who confirmed Ember's status started her on interferon immediately, which was a bit over seven years ago. DMG requires no prescription, and people give it to healthy animals that have no illnesses. If you're considering it, I would recommend discussing DMG with your vet, just to be on the safe side. Glad to hear that Jack is doing well. The folks on the lymphoma list seem to have had pretty good results with chemo. On Jun 9, 2013, at 10:41 PM, kasia mosko kasia...@yahoo.com wrote: Hi Lance, Of those on the list, I've only used inteferon alpha. ***Did you start using it before your cat has shown any symptoms? How is Jack doing today? *** So far Jack has been doing really good. It took him only two days to get back to normal, and the fluid in his chest stopped building up as well. He eats soo much; much more than he used to, but it is ok, because he is only over 6 pounds now. It is his second week on chemo and no side effects so far; hopefully it will stay this way. Lance ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
