Re: FW: [QUAD-L] neurontin
Merrill, Yes, it is the same procedure with the Baclofen pump. It is refilled once every six months, and adjusted as needed. But of course it's filled with Baclofen instead of morphine. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Like Corie Jones ... I have tried everything but the pump without relief. And I have decided that I am not going to let another doctor messed around with my spinal cord anymore since the current pain than I have is probably directly related from the shunt surgery I had in 1995. I ended up having three surgeries that summer. The pain did not start until two years after the surgery but it is difficult to explain why that is the culprit. Like Stacy ... keeping busy and/or sleeping are the only two things that help my pain. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Mon, May 19, 2008 at 11:49 AM, Stacy Harim [EMAIL PROTECTED] wrote: I am in serious pain now from my back. I don't know if you know but I had 3 spinal surgeries last summer b/c i got osteomyelitis in my spinal column. A screw has popped through a vertebrea and has rubbed the one above it to a point that part of that bone is gone as well. I am getting another surgery to get more rods but I have to wait for the doctor to view the ct scan that i sent to set up the surgery. Anyhow I am in extreme pain that medicine is not helping. I personally manage pain pretty well by keeping myself busy. It's hard to fight through but I also have to live. I have a hard time meditating as well because of so many personal problems so I understand that is why I just keep myself busy to keep my mind off of it. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 2:39:32 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, don't you have to be in control of the pain before it starts getting bad? I have so much noise going on in my head, it has never been quiet enough to meditate. Constant ocean roar in both ears. -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: FW: [QUAD-L] neurontin
Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
Stacy, don't you have to be in control of the pain before it starts getting bad? I have so much noise going on in my head, it has never been quiet enough to meditate. Constant ocean roar in both ears.
Re: FW: [QUAD-L] neurontin
I am in serious pain now from my back. I don't know if you know but I had 3 spinal surgeries last summer b/c i got osteomyelitis in my spinal column. A screw has popped through a vertebrea and has rubbed the one above it to a point that part of that bone is gone as well. I am getting another surgery to get more rods but I have to wait for the doctor to view the ct scan that i sent to set up the surgery. Anyhow I am in extreme pain that medicine is not helping. I personally manage pain pretty well by keeping myself busy. It's hard to fight through but I also have to live. I have a hard time meditating as well because of so many personal problems so I understand that is why I just keep myself busy to keep my mind off of it. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 2:39:32 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, don't you have to be in control of the pain before it starts getting bad? I have so much noise going on in my head, it has never been quiet enough to meditate. Constant ocean roar in both ears.
RE: FW: [QUAD-L] neurontin
Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn _ From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis _ Wondering what's for Dinner Tonight? HYPERLINK http://food.aol.com/dinner-tonight?NCID=aolfod000301; \nGet new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
Re: FW: [QUAD-L] neurontin
I'm not sure I can give decent advice about pain. Whatever seems great at first, always fades away. Sometimes I feel as if I have pain under control, but most of the time, it has me by the short hairs. I sure hope and pray caging your spine helps, Stacy. You might live in a state that didn't spend it's Medicaid allotment to expand it's jail capacity. I wish I could remember where everyone is from, but I feel like I'm doing well remembering my address on days like today. (please, don't everybody write and tell me where they live.) Have you ever tried a pot cookie or brownie? Some herbal remedies work pretty well. It's no St John's Wort, but it won't aggravate any dry skin issues, either. Don't even bother with marijuana pills. They won't stay lit. Best wishes john - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
Re: FW: [QUAD-L] neurontin
Stacy, Thank you very much for your advice on pain management. I have tried meditation method, which was suggested by my psychiatrist, when I was in the hospital. It's extremely difficult for me to concentrate. Even when it is perfectly quiet in the room, it is extremely noisy and busy in my head. I also have a difficult time with prayer for the same reason. When I was on the steroids, it was even worse. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Mark, I have a Baclofen pump, which is surgically implanted. Have you ever heard of anyone receiving pain medication through their Baclofen pump? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Yes any drug that can enter you spinal cord can be put in there. Heard of someone who had a mix of drugs in theres.
Re: FW: [QUAD-L] neurontin
I was hoping with you being in a similiar situation. I came down with ADEM suddenly memorial weekend 2001. A lot of my pain is due to paralysis but there is so much more going on in my body that even the doctors can't get a grip on. I have a busy head as well. It's very hard to concentrate with a lot of problems and frustrations. Maybe you can find out some about methadone. Like I said, it helped me emensly. It's worth finding out more about it. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 5:49:53 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, Thank you very much for your advice on pain management. I have tried meditation method, which was suggested by my psychiatrist, when I was in the hospital. It's extremely difficult for me to concentrate. Even when it is perfectly quiet in the room, it is extremely noisy and busy in my head. I also have a difficult time with prayer for the same reason. When I was on the steroids, it was even worse. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
I considered a baclofen pump. WE thought it was a pressure sore making me have so many spasms but it turned out to be the osteomyelitis. Anyhow if the spasms weren't to get any better, I wanted the pump. My pain specialist puts them in and then the spasticity clinic maintains them. My pain doc said that he could put the pain meds in as well instead of having to take them orally. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 5:52:50 PM Subject: Re: FW: [QUAD-L] neurontin Mark, I have a Baclofen pump, which is surgically implanted. Have you ever heard of anyone receiving pain medication through their Baclofen pump? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
I am considering it if I dont get relief from this next surgery. I'm just freaking out because more rods. At least 3 more levels. They are already from T7 all the way into my pelvis so now we are talking about T 4. I'm so nervous. I was a quad and got better and now I feel like I am going backwards. It's hard to know you are going to lose it instead of just losing it without knowing. I am so afraid of losing idenpendence. I know a lot of you have caregivers but I honestly cant stand anyone around me for very long every day. They have to come at least for 5 hours because they come from 30 to 40 miles away. They also have a habit of not showing up and that freaks me out. I can't imagine getting stuck either in my bed or in my chair. Anyhow I jumped off subject. I will definatly look into it if I don't get relief but I think I will since I had relief when I first had this fusion. I only hurt if I did too much. Now everything is too much but I still keep getting up because I don't want to have to lay in bed all day and let my life go by on me. I do what I can as carefully as I can for now. Thanks for the advice, Stacy - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
Re: FW: [QUAD-L] neurontin
Thanks John, I live in MD. they aren't spending crap on jails here. My brother is in prison and he says its terrible. We have overcrowding and understaffing and they just shut down a prison so those prisoners went to the others in the state. It's a nightmare. I know weed helps but it has a poor effect on me now that I am a bit older. It makes me want to eat and sleep. I live alone so I cant be that lazy and I don't want to gain weight. Plus I can't afford it. Its a good idea though. Stacy - Original Message From: John S. [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, May 19, 2008 4:36:37 PM Subject: Re: FW: [QUAD-L] neurontin I'm not sure I can give decent advice about pain. Whatever seems great at first, always fades away. Sometimes I feel as if I have pain under control, but most of the time, it has me by the short hairs. I sure hope and pray caging your spine helps, Stacy. You might live in a state that didn't spend it's Medicaid allotment to expand it's jail capacity. I wish I could remember where everyone is from, but I feel like I'm doing well remembering my address on days like today. (please, don't everybody write and tell me where they live.) Have you ever tried a pot cookie or brownie? Some herbal remedies work pretty well. It's no St John's Wort, but it won't aggravate any dry skin issues, either. Don't even bother with marijuana pills. They won't stay lit. Best wishes john - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
FW: [QUAD-L] neurontin
I know this drug is helping people as is its other name by Gabapantin. I also know that it is hard on the kidneys. What I do not understand is why doctors prefer it rather than say time released morphine which granted is addictive but whatever works you are going to use. Neurontin did not appear to work for me but I stopped taking after the required dose was high, like 4 4x a day. Luckily I get the morphine which works 60mg X 2 daily. Merrill _ From: KK [mailto:[EMAIL PROTECTED] Sent: Saturday, May 17, 2008 1:19 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] neurontin It is the dry mouth caused by the drug. It is so bad my teeth stick to my lips. GROSS! KK _ Wondering what's for Dinner Tonight? Get new http://food.aol.com/dinner-tonight?NCID=aolfod000301 twists on family favorites at AOL Food.
