Andrea I am so sorry for the pain and suffering your husband and you are experiencing. I say you because even though it is your husband with TM, I know you suffer along with him. I am also a victim of TM and have been since 2008. Each one of us has different difficulties and pain. Some are very severe and like me it is always there but I have become used to it. I know so many people can't understand the pain as we may look very normal for the most part. Some are able to walk normally, and then some of us must use canes/walkers/wheelchairs.
Is he under the care of a neurologist or pain specialist? You may have to try several to find one who is able to help him. We welcome all caregivers here as you need our support just as much as your hubby. Please feel free to ask all and any questions you may have. There is nothing too embarassing to ask as we have people here who can relate and may have advice for you. We also have a private Facebook group with quite a few of people from the UK. If you are interested, please let me know. Patti in Wisconsin .On Mon, Oct 10, 2011 at 8:38 AM, Andrea <[email protected]>wrote: > Dear TM support group,**** > > ** ** > > My husband became ill with TM in May 2011 and his symptoms have remained > constant. He is in extreme pain from his chest down to his toes. The pain > can be burning, tingling, icy, stabbing… He is now saying that he wants to > end his life because he can no longer endure the suffering. He says that I > am no help and do not understand what he is going through. This is correct. > I do not understand. Because he looks normal, it is easy to forget that he > is in constant pain. This is why I went online to see if I can find a group > that does understand and can possibly provide hope for him. I realise there > is no guarantee that the symptoms will go away, but after reading your > online stories, it looks like it can be possible.**** > > ** ** > > Additionally, what can a spouse do to provide more support? He has had the > symptoms for almost 6 months and every day plays like a broken record. I ask > every day how he is and he unleashes a long list of painful symptoms. > Besides taking his meds, is there any other therapy I can arrange for him > that may provide relief? I feel useless. He is angry that I am not doing > more, but I do not know what I can do besides taking care of the home and > kids without burdening him with additional tasks.**** > > ** ** > > Any advice would be greatly appreciated.**** > > Warm regards,**** > > Andrea**** > > ** ** >
