On Mon, Oct 10, 2011 at 12:08 PM, Barbara H. <[email protected]> wrote:
> Dear Andrea, > > I'm so sorry to hear that your family is going through this. It definitely > takes a while to adjust. I would echo what others have said about seeing a > neurologist to let him know whatever meds he is on aren't helping with the > pain. It may lessen over time -- for me pain was only an occasional thing, > not constant, but after 16+ years it's not a regular problem any more. > Physical therapy helped me immensely with movement and balance -- I don't > know if help in those areas would help with pain as well. > > I mainly just wanted to encourage you not to take his anger personally. > Different people react differently to TM, and anger can be a stage of grief > in adjusting to what he has lost. Should he take it out on you? No, and > hopefully some day soon he will see that. But you are the closest person to > him and the one with whom he can most easily let down his guard, so you tend > to be the recipient. > > We're here for you -- whether you have questions or just need to vent. > > Barbara H. > http://barbarah,wordpress.com > > > On Mon, Oct 10, 2011 at 9:38 AM, Andrea <[email protected]>wrote: > >> Dear TM support group,**** >> >> ** ** >> >> My husband became ill with TM in May 2011 and his symptoms have remained >> constant. He is in extreme pain from his chest down to his toes. The pain >> can be burning, tingling, icy, stabbing… He is now saying that he wants to >> end his life because he can no longer endure the suffering. He says that I >> am no help and do not understand what he is going through. This is correct. >> I do not understand. Because he looks normal, it is easy to forget that he >> is in constant pain. This is why I went online to see if I can find a group >> that does understand and can possibly provide hope for him. I realise there >> is no guarantee that the symptoms will go away, but after reading your >> online stories, it looks like it can be possible.**** >> >> ** ** >> >> Additionally, what can a spouse do to provide more support? He has had the >> symptoms for almost 6 months and every day plays like a broken record. I ask >> every day how he is and he unleashes a long list of painful symptoms. >> Besides taking his meds, is there any other therapy I can arrange for him >> that may provide relief? I feel useless. He is angry that I am not doing >> more, but I do not know what I can do besides taking care of the home and >> kids without burdening him with additional tasks.**** >> >> ** ** >> >> Any advice would be greatly appreciated.**** >> >> Warm regards,**** >> >> Andrea**** >> >> ** ** >> > >
