It helps to be heard, so perhaps a support group would be helpful.
I found the most comfort from people who said "it's horrible, unfair and awful"
vs. those who inanely suggested that I cheer up, buck up, or for example
sent me videos of limbless people dancing.
I'm in a wheelchair and can't walk, and or move my legs
-- but that doesn't mediate the utter insensitivity of so many,
they don't know that on top of all this cann not, is a burning hell
of pain, it HURTS constantly and unremittingly
So it must be super hard for your husband with no external "tell".
Meditation has helped me, not even meditation to be honest, but
reading about meditation
and deep breathing. At onset, I could barely sleep for pain. I found
pain relief
in LDN -- low dose naltrexone. It's my only TM related drug and I'm
very grateful for it.
You're in the UK a place that I think has better and more thorough
health care than
has been my experience. Physical therapy, when I've gotten it, has
been helpful.
Acupuncture relieved pain.
If i could walk, I would go swimming five times a week,
I would sauna and hot tub/whirlpool -- a therapy inaccessible to me.
Neuromuscular stimulation may help.
Magnets may help.
I think oxygen would help me, but I've yet to convince any physician
to order it for me.
You husband is fortunate to have a partner and family that cares.
I don't. OTOH, I can imagine the daily rub of living with others
who have your old self thier mind and expectations, expectations that
you can no longer meet. So there is a daily psychological pain
in disappointing others -- that's the only thing my aloneness spares me.
I commend you for caring and reaching out on his behalf.
May we all heal and be well.
Akua
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