antony steiner <[EMAIL PROTECTED]> wrote:
Hi Teresa,My friend just got diagnosed with cml and i would like to chat abt. the same....which is a good time? i have aded u on the messenger list.
teresa abushaban <[EMAIL PROTECTED]> wrote:Hi Susan,Thanks for the calcium suggestion we will try it immediately! As far as his dose, his dr. said they would try the lowest dose first and work from there, He seemed to think 300 mg was the losest dose---I have no idea but is'nt it great for us all to be able to compare notes like this! This is also his second go round with gleevec and he was on 300 mg last time. He had 2 years of clean bmb on this dose and unfortunatley his dr. took him off and basically told us he was done and cured---not so, we found out within a year it was back and here we are, hoping to have the same luck with gleevec this time around. We also got a new Doc! Thanks again Susan, hope you are doing well with your treatment.Teresa
Susan Loewenkamp <[EMAIL PROTECTED]> wrote:Teresa,
I left out two important points about achey joints and bones. Calcium is
very important -- take at least 1200 mg a day but not within 2 hours of
taking Gleevec. Also, there are creams like Ben-Gay, etc. and also stick-on
patches with heat generating gel on it that last for 8 hours that you can
wrap around a wrist, elbow, knee, put on your back, etc.
Try these, too.
Susan L
----- Original Message -----
From: "tkabushaban" <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Sunday, July 10, 2005 2:02 PM
Subject: [CML] achy joints and bones
> Hi Everyone, I was wondering if anyone out there on gleevec is or has
> had trouble with achy joints and bones. My husband is on 300mg/day and
> there is times when he feels pretty good and other times he gets very
> achy. Just wondering if anyone knows what causes this and what to do
> to make him feel better other than taking ibuprofen. thanks,
> Teresa
>
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