Okay, my 19 yo son was Dx on July 4, 2005. At the time, he had been admitted to the hospital with suspected meningitis, but it was his wbc that got him into a cancer treatment center, with the CML diagnosis. The highest his wbc got was 110,000. He went on Gleevec July 8, with a wbc of 41,000. He was only on oral chemo for about two weeks, becuase his wbc dropped to 7,900 pretty fast. It stayed there for a week, then went to 3,900, then to 3,200, and today, 2,200. When we call the doctor's office,the nurse confers with her, then calls us back, and tells us to continue with the 400 mg. of Gleevec, especially since we are scheduled to see the doctor in three days, Monday, the 15th of August. Meanwhile, they tell us the rest of his bloodwork looks good. To me, it does not. He is anemic--and we were told, in the hospital, that would take care of itself, as his wbc went down. This has not happened. He is bummed out and tired, due to go back to his sophomore year of college in one week--thank God, he is only a half hour away, but does live in the dorms, due to his scholarships and his R.A. position there--and he is slightly depressed.
My question is, why is he still on 400 mg of Gleevec? It sure looks like it has more than done its job! I want the dose reduced, but the office keeps telling us, no, wait till he sees her on Monday. I hate to sound like a raving paranoiac, but I sometimes wonder if he is not just a guinea pig for this medicine, thankful as I am for Gleevec. Someone who has been there and done that, I would sure love to hear from you! It is 4 A.M., and I have not slept yet. I thought I had pretty strong personal faith, but this one is keeping me awake. Thanks in advance, Renee,slightly tearful ------------------------ Yahoo! Groups Sponsor --------------------~--> <font face=arial size=-1><a href="http://us.ard.yahoo.com/SIG=12ksked87/M=362335.6886443.7839732.1589681/D=grphealth/S=1705061628:TM/Y=YAHOO/EXP=1123928069/A=2894365/R=0/SIG=1322kcnmd/*http://www.networkforgood.org/topics/health/?source=YAHOO&cmpgn=GRP&RTP=http://groups.yahoo.com/";>Has someone you know been affected by illness or disease? Network for Good is THE place to support health awareness efforts</a>.</font> --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
