Thank you ,Rob, for everything you do. I am getting the hang of this, I think; it helps to ask ask ask, because so many people are so helpful.
Renee --- In [email protected], "Rob" <[EMAIL PROTECTED]> wrote: > It sounds like he has good results in a short time. Patients have to continue taking Gleevec in the same way that diabetics have to take insulin and others who take medication for chronic conditions. That is what keeps their counts under control. 400 mg is the minimum dose to receive effective results. In most patients the side effects will diminish over a period of time as the body adjusts to the Gleevec. > > Rob > > ----- Original Message ----- > From: Renee Bush > To: [email protected] > Sent: Saturday, August 13, 2005 3:14 AM > Subject: [CML] New To This, Confused, Trying Not To Be Panicky > > > Okay, my 19 yo son was Dx on July 4, 2005. At the time, he had been > admitted to the hospital with suspected meningitis, but it was his wbc > that got him into a cancer treatment center, with the CML diagnosis. > The highest his wbc got was 110,000. He went on Gleevec July 8, with > a wbc of 41,000. He was only on oral chemo for about two weeks, > becuase his wbc dropped to 7,900 pretty fast. It stayed there for a > week, then went to 3,900, then to 3,200, and today, 2,200. When we > call the doctor's office,the nurse confers with her, then calls us > back, and tells us to continue with the 400 mg. of Gleevec, especially > since we are scheduled to see the doctor in three days, Monday, the > 15th of August. Meanwhile, they tell us the rest of his bloodwork > looks good. To me, it does not. He is anemic--and we were told, in > the hospital, that would take care of itself, as his wbc went down. > This has not happened. He is bummed out and tired, due to go back to > his sophomore year of college in one week--thank God, he is only a > half hour away, but does live in the dorms, due to his scholarships > and his R.A. position there--and he is slightly depressed. > > My question is, why is he still on 400 mg of Gleevec? It sure looks > like it has more than done its job! I want the dose reduced, but the > office keeps telling us, no, wait till he sees her on Monday. I hate > to sound like a raving paranoiac, but I sometimes wonder if he is not > just a guinea pig for this medicine, thankful as I am for Gleevec. > > Someone who has been there and done that, I would sure love to hear > from you! It is 4 A.M., and I have not slept yet. I thought I had > pretty strong personal faith, but this one is keeping me awake. > > Thanks in advance, > > Renee,slightly tearful > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. 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