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It sounds like he has good results in a short time. Patients have to
continue taking Gleevec in the same way that diabetics have to take insulin and
others who take medication for chronic conditions. That is what keeps their
counts under control. 400 mg is the minimum dose to receive effective results.
In most patients the side effects will diminish over a period of time as the
body adjusts to the Gleevec.
Rob
----- Original Message -----
Sent: Saturday, August 13, 2005 3:14
AM
Subject: [CML] New To This, Confused,
Trying Not To Be Panicky
Okay, my 19 yo son was Dx on July 4, 2005. At the
time, he had been
admitted to the hospital with suspected meningitis, but
it was his wbc
that got him into a cancer treatment center, with the CML
diagnosis.
The highest his wbc got was 110,000. He went on Gleevec
July 8, with
a wbc of 41,000. He was only on oral chemo for about two
weeks,
becuase his wbc dropped to 7,900 pretty fast. It stayed there
for a
week, then went to 3,900, then to 3,200, and today, 2,200. When
we
call the doctor's office,the nurse confers with her, then calls
us
back, and tells us to continue with the 400 mg. of Gleevec,
especially
since we are scheduled to see the doctor in three days, Monday,
the
15th of August. Meanwhile, they tell us the rest of his
bloodwork
looks good. To me, it does not. He is anemic--and we
were told, in
the hospital, that would take care of itself, as his wbc went
down.
This has not happened. He is bummed out and tired, due to go
back to
his sophomore year of college in one week--thank God, he is only
a
half hour away, but does live in the dorms, due to his
scholarships
and his R.A. position there--and he is slightly
depressed.
My question is, why is he still on 400 mg of Gleevec?
It sure looks
like it has more than done its job! I want the dose
reduced, but the
office keeps telling us, no, wait till he sees her on
Monday. I hate
to sound like a raving paranoiac, but I sometimes
wonder if he is not
just a guinea pig for this medicine, thankful as I am
for Gleevec.
Someone who has been there and done that, I would sure
love to hear
from you! It is 4 A.M., and I have not slept yet.
I thought I had
pretty strong personal faith, but this one is keeping me
awake.
Thanks in advance,
Renee,slightly
tearful
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