This is a wonderful response to Gleevec. I was diagnosed in 2/03 and was on Hydrea for about 3 weeks to reduce my wbc of 97,000 and then started 400mg of Gleevec. About 2-3 weeks my white cells became too low so I went a a coupleof weeks without Gleevec (vacation) while everything stabilized and returned to 400mg dosage and have never had to look back. I was PCRU (undetectable) in June 03. I know this is scary for you, my wife (caretaker) worries everytime there is the least little change, but have faith and if the Doctor is monitoring is blood counts weekly or bi-weekly right now that is great. If the Dr. has other CML patients that is also a big plus. My ONC has two other patients so he does consult with MD Anderson and follows their guidelines. You will find this support group will respond to any questions you have. We know each of us respond differently to Gleevec, so a broad base of simular answers will help your son to make informed decisions about living with CML. Hopefully, sometime in the near future they will find the cure but it is so comforting to know that we have many treatments available after only 5 short years.
Richard H. dxd 2/03 Gleevec 3/03 PCRU 6/03 --- In [email protected], "Renee Bush" <[EMAIL PROTECTED]> wrote: > Okay, my 19 yo son was Dx on July 4, 2005. At the time, he had been > admitted to the hospital with suspected meningitis, but it was his wbc > that got him into a cancer treatment center, with the CML diagnosis. > The highest his wbc got was 110,000. He went on Gleevec July 8, with > a wbc of 41,000. He was only on oral chemo for about two weeks, > becuase his wbc dropped to 7,900 pretty fast. It stayed there for a > ------------------------ Yahoo! Groups Sponsor --------------------~--> <font face=arial size=-1><a href="http://us.ard.yahoo.com/SIG=12k8tsvdr/M=362335.6886443.7839732.1589681/D=grphealth/S=1705061628:TM/Y=YAHOO/EXP=1123967149/A=2894365/R=0/SIG=1322kcnmd/*http://www.networkforgood.org/topics/health/?source=YAHOO&cmpgn=GRP&RTP=http://groups.yahoo.com/";>Has someone you know been affected by illness or disease? Network for Good is THE place to support health awareness efforts</a>.</font> --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
