I agree with you, Jim, about the faith involved here, and that
knowledge is power.  I feel so much better since reading all the
responses to my post that it is an incredible change.  That worried
place is a dreadful place to be.

Renee

--- In [email protected], [EMAIL PROTECTED] wrote:
>  
> In a message dated 8/13/2005 1:15:00 A.M. Pacific Daylight Time,  
> [EMAIL PROTECTED] writes:
> 
> My  question is, why is he still on 400 mg of Gleevec?  It sure looks
> like  it has more than done its job!  I want the dose reduced, but  the
> office keeps telling us, no, wait till he sees her on Monday.  I  hate
> to sound like a raving paranoiac, but I sometimes wonder if he is  not
> just a guinea pig for this medicine, thankful as I am for  Gleevec.
> 
> Someone who has been there and done that, I would sure love to  hear
> from you!  It is 4 A.M., and I have not slept yet.  I  thought I had
> pretty strong personal faith, but this one is keeping me  awake.
> 
> 
> 
> I'm always glad to share what knowledge I have with someone  else.  The 
> recommended minimum dose of Gleevec is 400mg.  that's why  the
doctor is keeping 
> your son on that amount.  I was put on Gleevec  in 2001 at that dose
and am in 
> remission and still on that amount!
>  
> The other thing you mentioned is your faith.  Just as with other 
things in 
> life, at times ones faith is what carries them past troubled  time
such as 
> these!  Hang tough and try to find a support group where  you live
and go there.  
> It really helps when you are first dx'ed.   That's what my wife and
I did when 
> I got the news.  You can learn a lot  from the ones that have been
there for 
> awhile!
>  
> My best to you and your son,
>  
> Jim Rodeghier
> dx-1997
> total remission-  2002




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