Hello, I have also found that I have problems with drinking...Sprycel has had quite an effect on my blood pressure and when I have just one drink or even half a drink, my face, neck and ears turn bright red and my head hurts, I get dizzy and nauseous. It also happens with caffeine and pain meds with codeine! (boy do I miss my Starbucks!)
I have also gained a lot of fluid weight with Sprycel which explains some of the blood pressure issues, but not the spikes. I see my primary doc tomorrow, so maybe she can come up with another blood pressure med or send me to a heart doctor. Anyway, I totally understand wanting to feel "normal" and just go out and have some fun. Maybe you could try a fruity drink or one with milk. It might not be a gassy! You're right, it's all about trial and error!! Lenda ----- Original Message ----- From: "kellyelise" <[email protected]> To: "CMLHope" <[email protected]> Sent: Tuesday, November 3, 2009 8:23:35 AM GMT -06:00 US/Canada Central Subject: [CMLHope] Re: Gleevec I"m on Sprycel also Hello, I thought I would add, as an afterthought.........having a few drinks with my friends helps me feel "normal" and it seems to alleviate the worries of my friends....you know how they walk on eggshells with the dreaded "cancer" word. I have found just recently, I cannot drink beer AT ALL now. The heartburn is so intense I have to go home and lie down even after downing numerous TUMS. My mother told me that beer is so gassy, it's no wonder. I can live without alcohol - no problem, but I would rather find something else I can drink that doesn't tear my stomach up so bad so I don't have to give up those monthly parties! Trial and error, eh? Give it all you've got! Kelly On Oct 28, 5:29 pm, [email protected] wrote: > Hi to all, I think a glass of wine would never hurt anyone. > Not having it and missing it would be worse. > Good luck, > Jeanie<3 > > In a message dated 10/23/2009 11:29:15 A.M. Eastern Daylight Time, > > [email protected] writes: > > Hi Tom: > > I am on Sprycel, too. With regards to alcohol....what's a glass of > wine? I go out with my girlfriends about once a month and have a few > beers/drinks right along with them. I have not noticed any side > effects. It's probably not the healthiest thing I do, but, I have > given up so much already due to this disease, I feel I am "entitled" > to a good time relaxing with my friends. Just about every script I > have says "Do not take with alcohol," so, I guess that makes me a > noncompliant patient. I did the same thing while on the Gleevec - > blah! Talk about feeling like crap! The fact of the matter is, I was > dx'd 2 weeks before my dad died of pancreatic cancer, whom I was > living with and helping care for. I thought I was going to die real > soon, too. So, I decided I was going to live what was left of my life > on my terms. If I was a closet alcoholic, that would probably kill me > faster than the CML. One glass of wine per day is probably healthier > than 4 to 6 drinks once a month (yes, I get a buzz on....did I say 4 > to 6?...hmm...don't really count). So, kick me in the pants. I enjoy > the laughs. We all have the right to make our own choices, regardless > of the outcome. Does that sound defensive? > > Kelly --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
