Marty:

You've confused me with Russel who is the one who responded that he
had the bone marrow transplant and was looking for ways to thank his
donor.  I still have the CML and on 400mgs of Gleevec which is keeping
the CML at a very low range & I've done fine on it since being dx'ed
in Jan. '04.  As long as it is working, I have no thoughts of doing
anything different.  He is also the one who spoke of "selling to the
highest bidder",  not me.  I only wrote the article I read in the
paper.  I have no qualms with the way they would like to pay.....I
think it would be a commendable way of trying to generate more donors
rather than just giving the donor money free and clear.  I think this
brings up some very good issues with those of us who might one day
face this possibility of having a BMT as some of you have already had.

And, Marty, you are so right about the 1 in 4 percent range of a
sibling match.  I have two older brothers...neither of which matched
me. (smile)  I told my husband that I felt pretty sure that my perfect
match lies in the grave yard back where I'm from.  He was an older
brother who was hit by a car and killed at six years old (I wasn't
quite 1 year old at that time).  The National Registry found twenty
four 6 for 6 matches to me back when I was first dx'ed.  That was the
best they could do........at that time, I didn't even know what that
meant.  And after reading up on how they did BMT's,  I told my husband
then that I would never want to put someone through that unless it was
the last option I had.

By the way, Marty,  do you still have to take the "anti-rejection"
medication?   I was just wondering if that was a "for life" thing once
it was done.

Thanks,
Suzieq

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[CMLHope]
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