Marcia, the answer to your question is yes, and I have been suffering 5 years. If you will go back through the most recent posts, I tell my story. It is under subject title, More Questions. Please feel free to email me if you would prefer. Love,Peace,Hope & Prayers, Pat
On Feb 27, 9:16 pm, Marcia Beaudry <[email protected]> wrote: > Hello CML Friends, I have been battling CML for 9 years now. And I still gett > very ill from gleevec. Nausea daily, bone pain, chills and my vision has > changed drastically. I am on 600mg. I am thankful to be here, but am > wondering if any 8 year veterans experience the same side effects like I do? > Hoping you all are having a great week-end! Love & Good Health, Marcia in MN > > ________________________________ > From: Suzieq <[email protected]> > To: CMLHope <[email protected]> > Sent: Sat, February 27, 2010 12:59:57 PM > Subject: [CMLHope] Re: Paying the donor of Bone Marrow > > Marty: > I was diagnosed in late January of 2004. Put on Gleevec about three > weeks afterwards as the lab where I went then kept losing tests & I > would have to go through all the testing again. The first BMB was > done in doc's office with nothing but local and he was unable to > retrieve any bone marrow, but did get the sliver of bone. I left him > about a week later and transferred to Siteman Cancer Center in St. > Louis & have been much happier with there and how they do things. I > feel more confident in their set up of lab and treatment centers as > well as their doctors that I've seen. > My last visit a month ago, she told me that since I show a very low > level of the CML still after six years, I most likely will have to > stay on the Gleevec for life as it would just come right back in full > force if I went off of it as some are now who've been PCRU negative > for some time. > > Thank you, Marty for all your answers and help for those of us who > survive this disease......you have a great story as some others who've > paved the way before us. May God continue to bless your life. Will > keep you in my prayers leading up to the possible kidney transplant. > Keep us posted. > > Keep Looking Up, > Suzieq > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
