Hi Marcia, Have you spoken to your doctor about switching to a different TKI. I believe that you can have a much better QOL on one of the other TKIs. You just need to find the right one.
Zavie On Sat, Feb 27, 2010 at 10:16 PM, Marcia Beaudry <[email protected]>wrote: > > Hello CML Friends, I have been battling CML for 9 years now. And I still > gett very ill from gleevec. Nausea daily, bone pain, chills and my vision > has changed drastically. I am on 600mg. I am thankful to be here, but am > wondering if any 8 year veterans experience the same side effects like I do? > Hoping you all are having a great week-end! Love & Good Health, Marcia in > MN > ------------------------------ > *From:* Suzieq <[email protected]> > *To:* CMLHope <[email protected]> > *Sent:* Sat, February 27, 2010 12:59:57 PM > *Subject:* [CMLHope] Re: Paying the donor of Bone Marrow > > Marty: > I was diagnosed in late January of 2004. Put on Gleevec about three > weeks afterwards as the lab where I went then kept losing tests & I > would have to go through all the testing again. The first BMB was > done in doc's office with nothing but local and he was unable to > retrieve any bone marrow, but did get the sliver of bone. I left him > about a week later and transferred to Siteman Cancer Center in St. > Louis & have been much happier with there and how they do things. I > feel more confident in their set up of lab and treatment centers as > well as their doctors that I've seen. > My last visit a month ago, she told me that since I show a very low > level of the CML still after six years, I most likely will have to > stay on the Gleevec for life as it would just come right back in full > force if I went off of it as some are now who've been PCRU negative > for some time. > > Thank you, Marty for all your answers and help for those of us who > survive this disease......you have a great story as some others who've > paved the way before us. May God continue to bless your life. Will > keep you in my prayers leading up to the possible kidney transplant. > Keep us posted. > > Keep Looking Up, > Suzieq > > > > > > > > > > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to > [email protected]<http://us.mg4.mail.yahoo.com/dc/mailto%3A%25e%25> > To unsubscribe from this group, send email to > [email protected]<http://us.mg4.mail.yahoo.com/dc/mailto%3A%25e%25> > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: [email protected] Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 Yahoo ID: zaviem -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
