Hello CML Friends, I have been battling CML for 9 years now. And I still gett very ill from gleevec. Nausea daily, bone pain, chills and my vision has changed drastically. I am on 600mg. I am thankful to be here, but am wondering if any 8 year veterans experience the same side effects like I do? Hoping you all are having a great week-end! Love & Good Health, Marcia in MN
________________________________ From: Suzieq <[email protected]> To: CMLHope <[email protected]> Sent: Sat, February 27, 2010 12:59:57 PM Subject: [CMLHope] Re: Paying the donor of Bone Marrow Marty: I was diagnosed in late January of 2004. Put on Gleevec about three weeks afterwards as the lab where I went then kept losing tests & I would have to go through all the testing again. The first BMB was done in doc's office with nothing but local and he was unable to retrieve any bone marrow, but did get the sliver of bone. I left him about a week later and transferred to Siteman Cancer Center in St. Louis & have been much happier with there and how they do things. I feel more confident in their set up of lab and treatment centers as well as their doctors that I've seen. My last visit a month ago, she told me that since I show a very low level of the CML still after six years, I most likely will have to stay on the Gleevec for life as it would just come right back in full force if I went off of it as some are now who've been PCRU negative for some time. Thank you, Marty for all your answers and help for those of us who survive this disease......you have a great story as some others who've paved the way before us. May God continue to bless your life. Will keep you in my prayers leading up to the possible kidney transplant. Keep us posted. Keep Looking Up, Suzieq -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
