I am also curious why you chose a transplant.  Susan:  Congratulations
on 4 Years vacation.  I am at 3 years and Feb.  My reaing was .5 and
my threashold is 1. before I have to make a decision.  My next test is
in  Aug I am quite hopeful with recent history showing an increase of
only .1 every six months.

  Richard H.
dxd 2/2003
400mg Gleevec 3/2003
Undetectable 11/03
RT-PCR negative 11/04
QT-PCR .003 11/05
RBC 8.
Gleevec Vacation 11/06-6/07
Iron infusion 11/06
Transfusions 12/06-5/07
QT-PCR .7
Gleevec 1/08 -5/08
Procrit 8/08-11/08
Gleevec Vacation 7/08-Present
QT-PCR .03 4/09
QT-PCR .015 6/09
QT-PCR .021 9/09
QT-PCR .028 1/10
QT-PCR .01+ 4/10
QT-PCR .0438 10/10
QT-PCR .05 2/11
Next test Aug.



On Jul 22, 10:59 pm, Susan Zimmerman <[email protected]> wrote:
> Dear Qtk98:
>
> I am curious why you went with a transplant two times instead of gleevec?  or 
> did you use gleevec or sprycel?  I have been without gleevec for over four 
> years now and I need testing again to see how advanced the amount of cells 
> have gotten in my system.  Last October they were over 1.0 on the log 
> reduction thing....I risk a brain bleed with any CML medication, so have not 
> gotten back on, against the doc's wishes.  
>
> Thanks for any further information.
> Susan (Indiana)
>
>
>
> -----Original Message-----
> From: Susan Zimmerman <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Fri, Jul 22, 2011 7:30 pm
> Subject: Re: [CMLHope] Transplants
>
> Dear Qtk98:
>
> I am curious why you went with a transplant two times instead of gleevec?  or 
> did you use gleevec or sprycel?  I have been without gleevec for over four 
> years now and I need testing again to see how advanced the amount of cells 
> have gotten in my system.  Last October they were over 1.0 on the log 
> reduction thing....I risk a brain bleed with any CML medication, so have not 
> gotten back on, against the doc's wishes.  
>
> Thanks for any further information.
> Susan (Indiana)
>
> -----Original Message-----
> From: Qtk98 <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Fri, Jul 22, 2011 3:39 pm
> Subject: Re: [CMLHope] Transplants
>
> I had 2 transplants for CML, both of which failed.  I had the 
> non-myloablative transplants, which means the conditioning chemo used before 
> each transplant was not as harsh as a full blown transplant.  I have been 
> told by a recent 2nd opinion doctor that I needed a full blown transplant 
> from day one because the amount of CML cells in my marrow prior to transplant 
> supported that a mini-transplant would not work.  I am currently seeking a 
> 3rd transplant, which is probably my last shot at transplant, so I need to be 
> sure this is done right.  I hope this information helps you and good luck 
> with your kidney transplants.
>
> --
> [CMLHope]
> A support group ofhttp://cmlhope.com
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to 
> [email protected]
> For more options, visit this group athttp://groups.google.com/group/CMLHope
>
> --
> [CMLHope]
> A support group ofhttp://cmlhope.com
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to 
> [email protected]
> For more options, visit this group athttp://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to [email protected]
To unsubscribe from this group, send email to 
[email protected]
For more options, visit this group at http://groups.google.com/group/CMLHope

Reply via email to