Karen may have been in blast crisis, that would warrant a transplant. On Sat, Jul 23, 2011 at 6:30 AM, Richard H <[email protected]>wrote:
> I am also curious why you chose a transplant. Susan: Congratulations > on 4 Years vacation. I am at 3 years and Feb. My reaing was .5 and > my threashold is 1. before I have to make a decision. My next test is > in Aug I am quite hopeful with recent history showing an increase of > only .1 every six months. > > Richard H. > dxd 2/2003 > 400mg Gleevec 3/2003 > Undetectable 11/03 > RT-PCR negative 11/04 > QT-PCR .003 11/05 > RBC 8. > Gleevec Vacation 11/06-6/07 > Iron infusion 11/06 > Transfusions 12/06-5/07 > QT-PCR .7 > Gleevec 1/08 -5/08 > Procrit 8/08-11/08 > Gleevec Vacation 7/08-Present > QT-PCR .03 4/09 > QT-PCR .015 6/09 > QT-PCR .021 9/09 > QT-PCR .028 1/10 > QT-PCR .01+ 4/10 > QT-PCR .0438 10/10 > QT-PCR .05 2/11 > Next test Aug. > > > > On Jul 22, 10:59 pm, Susan Zimmerman <[email protected]> wrote: > > Dear Qtk98: > > > > I am curious why you went with a transplant two times instead of gleevec? > or did you use gleevec or sprycel? I have been without gleevec for over > four years now and I need testing again to see how advanced the amount of > cells have gotten in my system. Last October they were over 1.0 on the log > reduction thing....I risk a brain bleed with any CML medication, so have not > gotten back on, against the doc's wishes. > > > > Thanks for any further information. > > Susan (Indiana) > > > > > > > > -----Original Message----- > > From: Susan Zimmerman <[email protected]> > > To: cmlhope <[email protected]> > > Sent: Fri, Jul 22, 2011 7:30 pm > > Subject: Re: [CMLHope] Transplants > > > > Dear Qtk98: > > > > I am curious why you went with a transplant two times instead of gleevec? > or did you use gleevec or sprycel? I have been without gleevec for over > four years now and I need testing again to see how advanced the amount of > cells have gotten in my system. Last October they were over 1.0 on the log > reduction thing....I risk a brain bleed with any CML medication, so have not > gotten back on, against the doc's wishes. > > > > Thanks for any further information. > > Susan (Indiana) > > > > -----Original Message----- > > From: Qtk98 <[email protected]> > > To: cmlhope <[email protected]> > > Sent: Fri, Jul 22, 2011 3:39 pm > > Subject: Re: [CMLHope] Transplants > > > > I had 2 transplants for CML, both of which failed. I had the > non-myloablative transplants, which means the conditioning chemo used before > each transplant was not as harsh as a full blown transplant. I have been > told by a recent 2nd opinion doctor that I needed a full blown transplant > from day one because the amount of CML cells in my marrow prior to > transplant supported that a mini-transplant would not work. I am currently > seeking a 3rd transplant, which is probably my last shot at transplant, so I > need to be sure this is done right. I hope this information helps you and > good luck with your kidney transplants. > > > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > [email protected] > > For more options, visit this group athttp:// > groups.google.com/group/CMLHope > > > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > [email protected] > > For more options, visit this group athttp:// > groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [email protected] www.LearntoBallroomDanceOnline.com -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
