I really doin't know why it is set at 1.0. I have always ASSumed it was place the doctors felt confortable getting every back under control. I have never had a blast phase so that is another plus. Richard H.
On Jul 23, 11:05 am, Susan Zimmerman <[email protected]> wrote: > Thanks very much Karen and Richard for your help. Congrats Richard on being > off as well, and why did you (or they) set 1.0 as your time to go back on? > Any particular reason? What areas also do each of you live in? Doctors in > Tampa at Moffitt are great where I came from. Now I'm in Indiana where it's > not as great. > > Thanks, > Susan > > > > -----Original Message----- > From: Richard H <[email protected]> > To: CMLHope <[email protected]> > Sent: Sat, Jul 23, 2011 9:30 am > Subject: Re: Fwd: [CMLHope] Transplants > > I am also curious why you chose a transplant. Susan: Congratulations > > on 4 Years vacation. I am at 3 years and Feb. My reaing was .5 and > > my threashold is 1. before I have to make a decision. My next test is > > in Aug I am quite hopeful with recent history showing an increase of > > only .1 every six months. > > Richard H. > > dxd 2/2003 > > 400mg Gleevec 3/2003 > > Undetectable 11/03 > > RT-PCR negative 11/04 > > QT-PCR .003 11/05 > > RBC 8. > > Gleevec Vacation 11/06-6/07 > > Iron infusion 11/06 > > Transfusions 12/06-5/07 > > QT-PCR .7 > > Gleevec 1/08 -5/08 > > Procrit 8/08-11/08 > > Gleevec Vacation 7/08-Present > > QT-PCR .03 4/09 > > QT-PCR .015 6/09 > > QT-PCR .021 9/09 > > QT-PCR .028 1/10 > > QT-PCR .01+ 4/10 > > QT-PCR .0438 10/10 > > QT-PCR .05 2/11 > > Next test Aug. > > On Jul 22, 10:59 pm, Susan Zimmerman <[email protected]> wrote: > > > Dear Qtk98: > > > I am curious why you went with a transplant two times instead of gleevec? > > or > > did you use gleevec or sprycel? I have been without gleevec for over four > years > > now and I need testing again to see how advanced the amount of cells have > gotten > > in my system. Last October they were over 1.0 on the log reduction thing....I > > risk a brain bleed with any CML medication, so have not gotten back on, > against > > the doc's wishes. > > > Thanks for any further information. > > > Susan (Indiana) > > > -----Original Message----- > > > From: Susan Zimmerman <[email protected]> > > > To: cmlhope <[email protected]> > > > Sent: Fri, Jul 22, 2011 7:30 pm > > > Subject: Re: [CMLHope] Transplants > > > Dear Qtk98: > > > I am curious why you went with a transplant two times instead of gleevec? > > or > > did you use gleevec or sprycel? I have been without gleevec for over four > years > > now and I need testing again to see how advanced the amount of cells have > gotten > > in my system. Last October they were over 1.0 on the log reduction thing....I > > risk a brain bleed with any CML medication, so have not gotten back on, > against > > the doc's wishes. > > > Thanks for any further information. > > > Susan (Indiana) > > > -----Original Message----- > > > From: Qtk98 <[email protected]> > > > To: cmlhope <[email protected]> > > > Sent: Fri, Jul 22, 2011 3:39 pm > > > Subject: Re: [CMLHope] Transplants > > > I had 2 transplants for CML, both of which failed. I had the > > non-myloablative > > transplants, which means the conditioning chemo used before each transplant > was > > not as harsh as a full blown transplant. I have been told by a recent 2nd > > opinion doctor that I needed a full blown transplant from day one because the > > amount of CML cells in my marrow prior to transplant supported that a > > mini-transplant would not work. I am currently seeking a 3rd transplant, > which > > is probably my last shot at transplant, so I need to be sure this is done > right. > > I hope this information helps you and good luck with your kidney transplants. > > > -- > > > [CMLHope] > > > A support group ofhttp://cmlhope.com > > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > > To post to this group, send email to [email protected] > > > To unsubscribe from this group, send email to > > [email protected] > > > For more options, visit this group athttp://groups.google.com/group/CMLHope > > > -- > > > [CMLHope] > > > A support group ofhttp://cmlhope.com > > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > > To post to this group, send email to [email protected] > > > To unsubscribe from this group, send email to > > [email protected] > > > For more options, visit this group athttp://groups.google.com/group/CMLHope > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > [email protected] > > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
