Great day I Florida. Glad everyone is good. Happy dance to all. Jeanie 🐟
Sent from my iPhone > On Nov 18, 2014, at 9:04 AM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > > Thanks Marty and everyone for your kind words. I'm also gaining back energy > daily. > > Hey there, as a wrestler that Marty claims for me, I'm wrestling for all of > YOU to steadily move forward in your own healings or remissions, which means > I am praying for you to our precious heavenly Father, who knows your hearts. > Marty, we expect news soon of a kidney transplant happening for you!!! > Meanwhile all of our wishes are for you to feel well and have no problems > with dialysis and energy. > > Love and 18's, > > Susan F. Zimmerman > > > -----Original Message----- > From: Marty Gartenberg <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Nov 17, 2014 10:38 pm > Subject: Re: [CMLHope] Great NEWS > > Susan, > > Are you sure that in your former life you weren't a boxer or wrestler? You > beat the crap out of CML! Good for you! We are all doing the "happy dance" > for you. > > So now you really know the meaning of 18's. > > Marty > >> On Fri, Nov 14, 2014 at 12:18 AM, 'Susan Zimmerman' via CMLHope >> <[email protected]> wrote: >> Hello All, >> >> Great e-mail to the new "Sue", Marty!!! You are adorable and I love you. >> Welcome Sue from one to another....I have GREAT NEWS: >> You guessed it, I am MMR!!!!! My numbers are .04% after 8 months on lowest >> dose of bosulif. YAY, doing the happy dance for all He has done for me. I >> went 7 yrs and 2 mos. without any medication after being on gleevec 400 mg. >> for 2 yrs and 3 mos....had a brain hemmorhage, then another, so stopped >> gleevec for 7 yrs. Tried every other one and had some adverse bleeding >> effect that kept me from taking it. In 2010 had a major stroke, but doing >> fine now. Their only reasoning is I have cavernous malformations in my >> brain. Do you think this is any indication of the fact that I pride myself >> on being a little wacko??? Wanted to share how my numbers have plummeted: >> >> March 2014 - 23.5 Int'l. Scale BCR/ABL >> April 2014 - 9.0 Int'l Scale WITHOUT any meds >> May 2014 - 5.85 on bosulif 100 mg for only 30 days >> June 2014 - 3.7, 60 days on bosulif >> Oct. 2014 - .11% >> Nov. 2014 .04%, achieved MMR - hooray!!! >> >> Please continue praying that I have no bleeding side effects from 100 mg. >> They keep encouraging me to take 200 mg, but I say why rock the boat when >> this is working just fine? I am a rare bird, so don't try to copy what I >> do, anyone.....(about meds) >> >> Y'all are always in my prayers. I thank God for being able to know you and >> have the privilege of calling all of you my friends. Greenie and I met a >> few months ago, and it was wonderful! Try to enjoy every day as if it were >> your last, because we never know when He'll call us home! Just lost two >> good friends, and know they are in a better place. >> >> Love and 18's, >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Richard H <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Nov 13, 2014 11:45 pm >> Subject: Re: [CMLHope] newly diagnosed >> >> Safe Travels my Friend. >> >> Richard H. >> >>> On Wednesday, November 12, 2014 11:16:26 PM UTC-6, wa2yyx wrote: >>> Hi Marcie, >>> >>> We are all captains of our own ships because we steer our own ships in a >>> positive direction. Do you remember me saying that Leukemia is not only a >>> disease of one's body but their mind as well. It is how you handle yourself >>> that makes a big difference. If someone goes around with a terrible >>> attitude then that is what they will get. If someone goes around with a >>> good attitude then that is what they will have. >>> >>> Anyway, I have an appointment at Tampa Hospital for an annual exam for a >>> kidney transplant. It's just that I have to be current with everything just >>> in case it happens. >>> >>> The hospital is more then four hours away so I have to get some sleep now. >>> >>> 18's, >>> >>> Marty >>> >>>> On Wed, Nov 12, 2014 at 8:53 PM, 'Marcie Goodman' via CMLHope >>>> <[email protected]> wrote: >>>> Marty, >>>> >>>> What a lovely email to Sue. We are traveling together and I feel like you >>>> are the Captain of our ship! >>>> >>>> Thinking about you and keeping you in my prayers >>>> >>>> Love and 18s, >>>> >>>> Marcie >>>> >>>> Sent from my iPhone >>>> >>>> On Nov 12, 2014, at 8:34 PM, Marty Gartenberg <[email protected]> wrote: >>>> >>>>> Oh yes Sue, family. Well you know what they say? You can pick your >>>>> friends but your family is here to stay good or bad. No matter what you >>>>> can't change them. >>>>> >>>>> As my father used to say, "never argue with a moron, fool, idiot or liar >>>>> or someone that won't listen to what you have to say because no matter >>>>> what you try to tell them they will never change. >>>>> >>>>> But your focus shouldn't be on them but people that are willing to help >>>>> you. That is what this site is all about as you can see. >>>>> >>>>> When you travel on your journey all of us will be traveling along with >>>>> you. I really mean that, and you will see that your not alone but with >>>>> some very nice people that will be supporting you along. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>>> On Wed, Nov 12, 2014 at 4:25 PM, smgedit <[email protected]> wrote: >>>>>> Hi, >>>>>> First off, I love your terminology! (I'm a writer and editor by trade). >>>>>> Secondly, thanks for your support. I'm limiting who knows and who >>>>>> doesn't know what is going on for now but unfortunately one of the >>>>>> ignorant statements was by a family member. Oh well. I'm happy to have >>>>>> found this site and to be meeting nice people like you on it. Sue >>>>>> >>>>>>> Hi Sue, >>>>>>> >>>>>>> I read your post and just wanted to make some comments. Personally I >>>>>>> think that your hanging around with some people that I would classify >>>>>>> as Anal Orifices. And I only say that to be polite. Or even more >>>>>>> possible they suffer from Rectal Cranial Inversion (their head is up >>>>>>> their Azz. >>>>>>> >>>>>>> I have to tell you that if one of them had CML or any other type of >>>>>>> cancer then they would certainly have a different attitude. >>>>>>> >>>>>>> I hate to say this but sometimes you should keep some things to >>>>>>> yourself because of people like that. The less they know about you then >>>>>>> the better it will be for you. >>>>>>> >>>>>>> Anyway, now that is off my chest let me go into something more >>>>>>> important. First, you have come to right place. All of those that are >>>>>>> here are very compassionate and really care about each other. They have >>>>>>> already gone through this and will be very happy to help you out with >>>>>>> any questions and anything else they can and will help you with this. >>>>>>> >>>>>>> CML is not what it used to be because it is not a "death sentence" >>>>>>> anymore. There have been so many improvements in it's treatment, not >>>>>>> like in my day. I don't know what you may know about me but I am here >>>>>>> to help you out in any way that I can. >>>>>>> >>>>>>> If you have read any of my posts you will see what I mean. Remember any >>>>>>> time that you would like to post anything please feel free to do so. I >>>>>>> would like to welcome you to this site. >>>>>>> >>>>>>> Sue, whenever I end any of my posts I end it with two numbers 18 which >>>>>>> is the symbol for life. >>>>>>> >>>>>>> 18's to you Sue. >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>>> On Wed, Nov 12, 2014 at 10:23 AM, smgedit <[email protected]> wrote: >>>>>>>> I was diagnosed with CML a little over a month ago and had a bone >>>>>>>> marrow biopsy and started taking Gleevec last week. I'm trying to >>>>>>>> learn as much as I can about CML and my oncologist is great about >>>>>>>> giving detailed explanations and answering questions. But I was >>>>>>>> wondering if anyone else ever got what I consider a strange reaction >>>>>>>> from others about my news. In the past week, I've had people say the >>>>>>>> following things to me which upset me a lot. >>>>>>>> >>>>>>>> "So what's the big deal? So you have to take a pill...I have to take >>>>>>>> this antibiotic for my tooth infection this week too." >>>>>>>> >>>>>>>> "There is so a cure for leukemia. Plenty of people are cancer free. >>>>>>>> You don't know what you are talking about." >>>>>>>> (This after explaining about the drugs and "response," vs. >>>>>>>> "remission." etc.) >>>>>>>> >>>>>>>> "Well I hope you have a speedy recovery. Good luck." >>>>>>>> >>>>>>>> I know I can't put my energy into dealing with this right now but it >>>>>>>> is weighing on my mind anyway. It made me happy to find this group >>>>>>>> online where I know people can at least "get" it and where some of you >>>>>>>> have been living with CML for quite a while. >>>>>>>> >>>>>>>> Anyway, that's my first post. Nice to meet you. >>>>>>>> >>>>>>>> Sue >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email to [email protected]. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> 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