Thanks to all for the good wishes. Just for the record after 5 years on Gleevec I was having severe leg cramps and transfusions every 3 weeks. That was the the major reasons I suggested a vacation until the CML counts touched the danger point. When I reached 16.050% the Dr. said it was time too start exploring my options. My HMG has dropped some and next visit He has ordered a thyroid test as I have my Dad and Daughter that has low thyroid function.
18's Richard H. On Tuesday, February 24, 2015 at 1:01:03 PM UTC-6, greenie wrote: > > Richard H. I've been on Gleevec for over 15 years. I started in a > study in Chicago Jan. 10, 2000 at 400 mg and receive the Gleevec rash. > They dropped me down to 300 mg, at that time they had the clue as to what > was going on. That was before it was approved in 2001. Fuzzy vision, leg > cramps on legs, hand, fingers, etc. is part of Gleevec, now I'm having some > fluid retention around my ankles will see the doctor here next Wed. Next > time I see my cancer in Chicago in June I'm going to try and talk her into > 200 mg and see what she says. Time will tell. Good luck on taking the 300 > mg that should help for you. > > greenie > > In a message dated 2/24/2015 12:17:31 P.M. Eastern Standard Time, > [email protected] <javascript:> writes: > > > I received my test results yesterday. It shows a major molecular > reduction down to 1.579% on the international scale. The side effects (a > long list) are minimal. The most aggravating are watery, fuzzy vision > and leg, foot cramps from twinges to a pain level 3. I started on 400mg > Gleevec and in 20 days I had gained 10 lbs. I stopped Gleevec for 7 > days. I restarted 300mg Gleevec and it has been great so far. I have > changed when I take Gleevec from evening to midday, as it was causing > indigestion at bedtime. I have been able maintain my weight and have not > shown any weight increase on 300mg Gleevec. > > Richard H. > Dxd 2/2003 > > 400mg Gleevec 3/2003 > > Undetectable 11/03 > > RT-PCR negative 11/04 > > QT-PCR .003 11/05 > > RBC 8. > > Gleevec Vacation 11/06-6/07 > > Iron infusion 11/06 > > Transfusions 12/06-5/07 > > QT-PCR .007 > > Gleevec 1/08 -5/08 > > Procrit 8/08-11/08 > > Gleevec Vacation 7/08-12/11/14 > > QT-PCR .003 4/09 > > QT-PCR .0015 6/09 > > QT-PCR .0021 9/09 > > QT-PCR .0028 1/10 > > QT-PCR .001 4/10 > > QT-PCR .00468 10/10 > > QT-PCR 1.049% 2/11 > > QT-PCR .0612% 8/11 > > QT-PCR 2.616 % 2/12 > > QT-PCR 2.410% 8/12 > > RT-PCR 9.183% 4/13 > > RT-PCR 4.57% 6/13 > > RT-PCR 10.183% 10/13 > > RT-PCR 10.577% 2/14 > > RT-PCR 16.050% 5/14 > > RT-PCR Approx. 20% 10/14 > > Restarted 400mg Gleevec 12/11/14 > > Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days > > Started 300 mg Gleevec 1/27/14 > > QT-PCR 1.579% 2/15 > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
