Hi Beth, I think Marty had the transplant and I'm praying all is going well for him. How are you feeling? You are such a positive, joyful person and I always look forward to your posts.
Best wishes, Marcie Sent from my iPad > On Feb 26, 2015, at 5:01 AM, sherri swanson <[email protected]> > wrote: > > Hi Beth, > > I was think the same thing you were. I've been sending all the good thoughts > I could find to Marty and since we've not heard from him, it must have been a > match. Let's just keep praying that the kidney was a match and everything > goes well. He is such a wonderful person. > > Have a good day. > > L'chaim, > > Sherri > >> On Wed, Feb 25, 2015 at 4:37 PM, bkbarney via CMLHope >> <[email protected]> wrote: >> Hi all. I think our not hearing from Marty, is a sign that the kidney was a >> match. otherwise he would have posted that it did not work out and he is >> still waiting? Does anybody think the same? If this is true,then he would >> have had his surgery...so lets all keep sending healing energy and good >> thoughts, love, his way. >> >> I am wondering, if anyone who has been on sprycel, has developed any other >> forms of cancer while on it? Thanks, Beth >> >> >> -----Original Message----- >> From: ICANDOALLTTC via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Wed, Feb 25, 2015 8:10 am >> Subject: Re: [CMLHope] Doctor's Visit >> >> Hi Richard and good to hear from you. >> I had the worst side effects on Gleevec than any other TKI I have taken, >> except for the one I am on now, Ponatinib. Boils, cramps, nausea and etc. >> Yes and eye bleeds. Also and infected eye that never seemed to heal. >> Ponatinib is hitting me with everything its got. I am seeing lights that >> aren't there and things in my side vision that aren't there. When I close >> my eyes at night, the things are still there. I was never on LSD but this >> feels like something like it. Going for blood check up tomorrow; pray that >> it comes out ok. >> Has anyone heard from Marty? Pray that he is ok. >> Blessings >> Jeanie<3 >> >> In a message dated 2/24/2015 1:09:55 P.M. Eastern Standard Time, >> [email protected] writes: >> Richard, that is great news! I pray that the Gleevec will continue to work >> well and the side effects will stay away. So nice to hear good tidings! >> Marcie >> >> >> -----Original Message----- >> From: Richard H <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Tue, Feb 24, 2015 12:17 pm >> Subject: [CMLHope] Doctor's Visit >> >> >> I received my test results yesterday. It shows a major molecular reduction >> down to 1.579% on the international scale. The side effects (a long list) >> are minimal. The most aggravating are watery, fuzzy vision and leg, foot >> cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 >> days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg >> Gleevec and it has been great so far. I have changed when I take Gleevec >> from evening to midday, as it was causing indigestion at bedtime. I have >> been able maintain my weight and have not shown any weight increase on 300mg >> Gleevec. >> >> Richard H. >> Dxd 2/2003 >> 400mg Gleevec 3/2003 >> Undetectable 11/03 >> RT-PCR negative 11/04 >> QT-PCR .003 11/05 >> RBC 8. >> Gleevec Vacation 11/06-6/07 >> Iron infusion 11/06 >> Transfusions 12/06-5/07 >> QT-PCR .007 >> Gleevec 1/08 -5/08 >> Procrit 8/08-11/08 >> Gleevec Vacation 7/08-12/11/14 >> QT-PCR .003 4/09 >> QT-PCR .0015 6/09 >> QT-PCR .0021 9/09 >> QT-PCR .0028 1/10 >> QT-PCR .001 4/10 >> QT-PCR .00468 10/10 >> QT-PCR 1.049% 2/11 >> QT-PCR .0612% 8/11 >> QT-PCR 2.616 % 2/12 >> QT-PCR 2.410% 8/12 >> RT-PCR 9.183% 4/13 >> RT-PCR 4.57% 6/13 >> RT-PCR 10.183% 10/13 >> RT-PCR 10.577% 2/14 >> RT-PCR 16.050% 5/14 >> RT-PCR Approx. 20% 10/14 >> Restarted 400mg Gleevec 12/11/14 >> Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days >> Started 300 mg Gleevec 1/27/14 >> QT-PCR 1.579% 2/15 >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
