Hi Richard and good to hear from you. I had the worst side effects on Gleevec than any other TKI I have taken, except for the one I am on now, Ponatinib. Boils, cramps, nausea and etc. Yes and eye bleeds. Also and infected eye that never seemed to heal. Ponatinib is hitting me with everything its got. I am seeing lights that aren't there and things in my side vision that aren't there. When I close my eyes at night, the things are still there. I was never on LSD but this feels like something like it. Going for blood check up tomorrow; pray that it comes out ok. Has anyone heard from Marty? Pray that he is ok. Blessings Jeanie<3 In a message dated 2/24/2015 1:09:55 P.M. Eastern Standard Time, [email protected] writes:
Richard, that is great news! I pray that the Gleevec will continue to work well and the side effects will stay away. So nice to hear good tidings! Marcie -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Feb 24, 2015 12:17 pm Subject: [CMLHope] Doctor's Visit I received my test results yesterday. It shows a major molecular reduction down to 1.579% on the international scale. The side effects (a long list) are minimal. The most aggravating are watery, fuzzy vision and leg, foot cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg Gleevec and it has been great so far. I have changed when I take Gleevec from evening to midday, as it was causing indigestion at bedtime. I have been able maintain my weight and have not shown any weight increase on 300mg Gleevec. Richard H. Dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-12/11/14 QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 % 2/12 QT-PCR 2.410% 8/12 RT-PCR 9.183% 4/13 RT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 RT-PCR 16.050% 5/14 RT-PCR Approx. 20% 10/14 Restarted 400mg Gleevec 12/11/14 Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days Started 300 mg Gleevec 1/27/14 QT-PCR 1.579% 2/15 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
