Hi Beth and all Yes I think we would have heard from Marty. He's a fighter so I know he's fighting. Prayers to all. No I didn't develop cancer in sprycel. I was in it for almost 6 years.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Feb 25, 2015, at 5:37 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Hi all. I think our not hearing from Marty, is a sign that the kidney was a > match. otherwise he would have posted that it did not work out and he is > still waiting? Does anybody think the same? If this is true,then he would > have had his surgery...so lets all keep sending healing energy and good > thoughts, love, his way. > > I am wondering, if anyone who has been on sprycel, has developed any other > forms of cancer while on it? Thanks, Beth > > > -----Original Message----- > From: ICANDOALLTTC via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Wed, Feb 25, 2015 8:10 am > Subject: Re: [CMLHope] Doctor's Visit > > Hi Richard and good to hear from you. > I had the worst side effects on Gleevec than any other TKI I have taken, > except for the one I am on now, Ponatinib. Boils, cramps, nausea and etc. > Yes and eye bleeds. Also and infected eye that never seemed to heal. > Ponatinib is hitting me with everything its got. I am seeing lights that > aren't there and things in my side vision that aren't there. When I close my > eyes at night, the things are still there. I was never on LSD but this feels > like something like it. Going for blood check up tomorrow; pray that it comes > out ok. > Has anyone heard from Marty? Pray that he is ok. > Blessings > Jeanie<3 > > In a message dated 2/24/2015 1:09:55 P.M. Eastern Standard Time, > [email protected] writes: > Richard, that is great news! I pray that the Gleevec will continue to work > well and the side effects will stay away. So nice to hear good tidings! > Marcie > > > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Feb 24, 2015 12:17 pm > Subject: [CMLHope] Doctor's Visit > > > I received my test results yesterday. It shows a major molecular reduction > down to 1.579% on the international scale. The side effects (a long list) > are minimal. The most aggravating are watery, fuzzy vision and leg, foot > cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 > days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg > Gleevec and it has been great so far. I have changed when I take Gleevec > from evening to midday, as it was causing indigestion at bedtime. I have > been able maintain my weight and have not shown any weight increase on 300mg > Gleevec. > > Richard H. > Dxd 2/2003 > 400mg Gleevec 3/2003 > Undetectable 11/03 > RT-PCR negative 11/04 > QT-PCR .003 11/05 > RBC 8. > Gleevec Vacation 11/06-6/07 > Iron infusion 11/06 > Transfusions 12/06-5/07 > QT-PCR .007 > Gleevec 1/08 -5/08 > Procrit 8/08-11/08 > Gleevec Vacation 7/08-12/11/14 > QT-PCR .003 4/09 > QT-PCR .0015 6/09 > QT-PCR .0021 9/09 > QT-PCR .0028 1/10 > QT-PCR .001 4/10 > QT-PCR .00468 10/10 > QT-PCR 1.049% 2/11 > QT-PCR .0612% 8/11 > QT-PCR 2.616 % 2/12 > QT-PCR 2.410% 8/12 > RT-PCR 9.183% 4/13 > RT-PCR 4.57% 6/13 > RT-PCR 10.183% 10/13 > RT-PCR 10.577% 2/14 > RT-PCR 16.050% 5/14 > RT-PCR Approx. 20% 10/14 > Restarted 400mg Gleevec 12/11/14 > Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days > Started 300 mg Gleevec 1/27/14 > QT-PCR 1.579% 2/15 > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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