HI all, I agree with Marcie, and Sherri. I think the kidney was a match or we would have heard...so lets all keep sending up lots of prayers and light and joy and laughter to our favorite "18"s man...he's been through a lot waiting for this kidney and these things are not easy......but he is a trooper with a fantastic attitude, And I we need him...
I am hanging in there, thanks for asking, struggling, but feel closer to some answers coming my way of what is going on and how to treat it....should know more in the next couple of weeks. Not doing BCR until March 16th, so no results until the 26th or so...will feel much better when I have clarity that at least that is going back in the right direction. All of you stay well. Take good care and stay close. 18's Love, Beth -----Original Message----- From: 'Marcie Goodman' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Feb 26, 2015 10:49 am Subject: Re: [CMLHope] Doctor's Visit Hi Beth, I think Marty had the transplant and I'm praying all is going well for him. How are you feeling? You are such a positive, joyful person and I always look forward to your posts. Best wishes, Marcie Sent from my iPad On Feb 26, 2015, at 5:01 AM, sherri swanson < [email protected]> wrote: Hi Beth, I was think the same thing you were. I've been sending all the good thoughts I could find to Marty and since we've not heard from him, it must have been a match. Let's just keep praying that the kidney was a match and everything goes well. He is such a wonderful person. Have a good day. L'chaim, Sherri On Wed, Feb 25, 2015 at 4:37 PM, bkbarney via CMLHope <[email protected]> wrote: Hi all. I think our not hearing from Marty, is a sign that the kidney was a match. otherwise he would have posted that it did not work out and he is still waiting? Does anybody think the same? If this is true,then he would have had his surgery...so lets all keep sending healing energy and good thoughts, love, his way. I am wondering, if anyone who has been on sprycel, has developed any other forms of cancer while on it? Thanks, Beth -----Original Message----- From: ICANDOALLTTC via CMLHope < [email protected]> To: cmlhope < [email protected]> Sent: Wed, Feb 25, 2015 8:10 am Subject: Re: [CMLHope] Doctor's Visit Hi Richard and good to hear from you. I had the worst side effects on Gleevec than any other TKI I have taken, except for the one I am on now, Ponatinib. Boils, cramps, nausea and etc. Yes and eye bleeds. Also and infected eye that never seemed to heal. Ponatinib is hitting me with everything its got. I am seeing lights that aren't there and things in my side vision that aren't there. When I close my eyes at night, the things are still there. I was never on LSD but this feels like something like it. Going for blood check up tomorrow; pray that it comes out ok. Has anyone heard from Marty? Pray that he is ok. Blessings Jeanie<3 In a message dated 2/24/2015 1:09:55 P.M. Eastern Standard Time, [email protected] writes: Richard, that is great news! I pray that the Gleevec will continue to work well and the side effects will stay away. So nice to hear good tidings! Marcie -----Original Message----- From: Richard H < [email protected]> To: cmlhope < [email protected]> Sent: Tue, Feb 24, 2015 12:17 pm Subject: [CMLHope] Doctor's Visit I received my test results yesterday. It shows a major molecular reduction down to 1.579% on the international scale. The side effects (a long list) are minimal. The most aggravating are watery, fuzzy vision and leg, foot cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg Gleevec and it has been great so far. I have changed when I take Gleevec from evening to midday, as it was causing indigestion at bedtime. I have been able maintain my weight and have not shown any weight increase on 300mg Gleevec. Richard H. Dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-12/11/14 QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 % 2/12 QT-PCR 2.410% 8/12 RT-PCR 9.183% 4/13 RT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 RT-PCR 16.050% 5/14 RT-PCR Approx. 20% 10/14 Restarted 400mg Gleevec 12/11/14 Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days Started 300 mg Gleevec 1/27/14 QT-PCR 1.579% 2/15 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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