Hi all Got my blood results and check up today. Everything is good. Got some bad side effects from ponatinib. Vision problems and headaches the worst. Rough dry skin on thighs and some skin peeling. Just finished my 30 day supply of meds. No joint pain or cramps. Praying for Marty--hope we hear soon.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Feb 26, 2015, at 3:12 PM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > > So happy for you, Richard!!! Fuzzy vision is weird, never had that > myself.....but those leg and foot cramps, yeah! Now with my bosulif and only > on 100 mg, virtually no side effects. Your turn will come, I'm sure of it. > Either they'll find a real cure or you'll get to bosulif eventually. Even > going to 200 mg of gleevec would be great!!! I wish you the best for sure!!!! > > 18's, > Susan Z > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Feb 24, 2015 12:17 pm > Subject: [CMLHope] Doctor's Visit > > > I received my test results yesterday. It shows a major molecular reduction > down to 1.579% on the international scale. The side effects (a long list) > are minimal. The most aggravating are watery, fuzzy vision and leg, foot > cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 > days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg > Gleevec and it has been great so far. I have changed when I take Gleevec > from evening to midday, as it was causing indigestion at bedtime. I have > been able maintain my weight and have not shown any weight increase on 300mg > Gleevec. > > Richard H. > Dxd 2/2003 > 400mg Gleevec 3/2003 > Undetectable 11/03 > RT-PCR negative 11/04 > QT-PCR .003 11/05 > RBC 8. > Gleevec Vacation 11/06-6/07 > Iron infusion 11/06 > Transfusions 12/06-5/07 > QT-PCR .007 > Gleevec 1/08 -5/08 > Procrit 8/08-11/08 > Gleevec Vacation 7/08-12/11/14 > QT-PCR .003 4/09 > QT-PCR .0015 6/09 > QT-PCR .0021 9/09 > QT-PCR .0028 1/10 > QT-PCR .001 4/10 > QT-PCR .00468 10/10 > QT-PCR 1.049% 2/11 > QT-PCR .0612% 8/11 > QT-PCR 2.616 % 2/12 > QT-PCR 2.410% 8/12 > RT-PCR 9.183% 4/13 > RT-PCR 4.57% 6/13 > RT-PCR 10.183% 10/13 > RT-PCR 10.577% 2/14 > RT-PCR 16.050% 5/14 > RT-PCR Approx. 20% 10/14 > Restarted 400mg Gleevec 12/11/14 > Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days > Started 300 mg Gleevec 1/27/14 > QT-PCR 1.579% 2/15 > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
