Hehe that's funny Greenie. I am a widow and live alone but my son and daughter take good care of me. Have a wonderful weekend!!
My Motto: Faith and Pills Jeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Nov 27, 2015, at 10:28 AM, Myvety2k via CMLHope <[email protected]> > wrote: > > Marty, I agree but I'm going to stay around long enough to drive my kids > crazy. They oh me big time. > > greenie > > In a message dated 11/27/2015 10:12:32 A.M. Eastern Standard Time, > [email protected] writes: > Oh don't you know me by now? I have to take part of your comments very > seriously because you mentioned "Time to reflect and give thanks for the > wonderful research that was done and is still ongoing that gave us our chance > to live a few more years. > > What's this? A few more years? Well people why only a few more years? if you > don't get into the way of a speeding bus then your good to go until GOD says > otherwise. That is my philosophy and has always been so and I am sure that > you must know it by now. So all of you still need to hang around and just > continue on. > > You know that saying, Life is good! And so it is, and right back at you > ππππππ > > My reminder to everyone... 18's > > Marty > >> On Thu, Nov 26, 2015 at 8:36 AM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Happy Thanksgiving. >> Time to reflect and give thanks for the wonderful research that was done and >> is still ongoing that gave us our chance to live a few more years. >> No matter the side effects we are having we are still waking up each day >> with another chance to praise our Lord. >> Thanks to all of you for helping me through these battles with leukemia. >> Putting pills in your mouth every day with the warning to wash your hands >> after is no easy task but we warriors so it daily. Faith and pills has >> carried me through for almost 12 years come this jan. >> Thanks and eat lots of turkey. >> Eat drink and be merryππππππ >> >> My Motto: Faith and Pills >> Jeanie ππ18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Nov 25, 2015, at 11:25 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Hi Everyone, >>> >>> It has been since February 24th that I had my kidney transplant as well as >>> many more health problems since. Now when I said my kidney transplant this >>> is on the positive side of anything that I had to go through, but I simply >>> try not to complain. >>> >>> I have been feeling quite well lately so I am really starting to get back >>> to my life as it was before all of this. >>> >>> Now it is time that I wish all of you to have a most healthy and happy >>> holiday season. >>> >>> And I will tell all of you no matter what you may be going through you are >>> living breathing wonderful people and I truly admire each and everyone for >>> fighting your battles. I know because I have already had my battles with >>> CML and I never let go no matter what I had to go through. >>> >>> Please let me repeat this because it is very important to me because of all >>> of you. >>> "Now it is time that I wish all of you to have a most healthy and happy >>> holiday season" >>> >>> And by now all of you know the meaning of those 18's I wish for all of you. >>> >>> !8's (LIFE) >>> >>> Marty >>> >>>> On Wed, Nov 25, 2015 at 2:13 PM, bkbarney via CMLHope >>>> <[email protected]> wrote: >>>> thanks Richard.... And happy Thanksgiving Day to everyone tomorrow.. I >>>> hope everyone here finds themselves in a place that is peaceful and >>>> lifegiving this holiday. I wish you all a feel good kind of day in every >>>> way.... >>>> >>>> off sprycel for 2.5 weeks thus far.. initially felt a lot better..but last >>>> couple of days..autoimmune...whatever is creeping in with that deep >>>> fatigue in my muscles etc....doing detox..thanks for the advice all..I am >>>> going to take some supplements I cannot take with sprycel in the hopes of >>>> cleaning and calming my system... >>>> >>>> will keep you all posted..thinking of each and everyone here.... >>>> >>>> group hug. Beth. >>>> -----Original Message----- >>>> From: Richard H <[email protected]> >>>> To: CMLHope <[email protected]> >>>> Sent: Thu, Nov 19, 2015 10:47 pm >>>> Subject: Re: [CMLHope] Test Day >>>> >>>> great news that you are getting a breather from the meds. I hope your >>>> counts stay low enough you get a few MONTHS instead of weeks. We are >>>> praying for that. >>>> >>>> Richard H. >>>> >>>>> On Thursday, November 19, 2015 at 7:27:26 PM UTC-6, Beth wrote: >>>>> Dear Susan, >>>>> >>>>> Concerned to hear your news...I know you wanted to hear better..It's so >>>>> hard when we hit an unexpected bump in the road....when are you coming >>>>> back to see your doc? I am in town except for Dec. 12-19th...would love >>>>> to meet you this time. And Greenie....will be in Fort Myers so hopefully >>>>> can see you and your sweetie..and my other cml buddies who live down >>>>> south...chemo brain...forgive me!. >>>>> >>>>> I have gone off everything...my BCR was good enough to take some time to >>>>> cleanse my body...was just too sick....will go back on in a few >>>>> weeks...enjoying GRAPEFRUIT!!! for a couple of weeks!. >>>>> >>>>> Love to all and a happy and healthy Thanksgiving to each and everyone of >>>>> you... >>>>> >>>>> 18's and love, Beth >>>>> >>>>> >>>>> -----Original Message----- >>>>> From: 'Susan Zimmerman' via CMLHope <[email protected]> >>>>> To: cmlhope <[email protected]> >>>>> Sent: Fri, Oct 30, 2015 8:26 am >>>>> Subject: Re: [CMLHope] Test Day >>>>> >>>>> Hi all, >>>>> >>>>> My bcr/abl results were not as great as I hoped. Last time I was >>>>> .012.....almost to zero. This time I expected to be zero, but alas I am >>>>> up to .348. So doc wants me to go to 300 mg bosulif, instead of 100 mg. >>>>> I am compromising and will go to 200 so I don't have to stay >>>>> in the bathroom all day. I was ready to get a local test next >>>>> time and forego going to Chicago every 3 months. Now she >>>>> wants to see me in one month after I up the dose. Ugh! So thankful I do >>>>> have a wonderful doc even if I do decide myself on my dosage. She does >>>>> not put me down about it, and supports me in every way. >>>>> >>>>> Beth, keeping my fingers crossed for you and saying a prayer. Marty, you >>>>> are so loved and hope your kidney stuff is getting better. Your pics >>>>> were beautiful. >>>>> >>>>> 18's and blessings, >>>>> Susan Z >>>>> >>>>> >>>>> -----Original Message----- >>>>> From: Marty Gartenberg <[email protected]> >>>>> To: cmlhope <[email protected]> >>>>> Sent: Thu, Oct 29, 2015 10:11 pm >>>>> Subject: Re: [CMLHope] Test Day >>>>> >>>>> Yes since everything has been going on I had leave my home in PA empty >>>>> for nearly two years, but let me tell you something about that crisp >>>>> clean air and simply beautiful colors of all of the trees that you can >>>>> see for miles. An example is route 97 which separates upstate NY from PA >>>>> with the Delaware river in between them. Route 97 goes from Port Jervis >>>>> all the way down to past Hancock NY, and is considered the most scenic >>>>> road it the United States. Right near Port Jervis there is route 97 >>>>> winding like a snake on the edge of the road and is about 1,000 feet >>>>> above the Delaware River. >>>>> >>>>> I have driven in that area and I wouldn't ever drive on it in the snow or >>>>> at night. If by chance your ever there and I am in PA it is only right >>>>> across the Robeling bridge which is actually a one lane wooden bridge >>>>> only allowing one way of traffic then once it stops then the other way. >>>>> >>>>> I am wishing you well with your results. >>>>> >>>>> Don't forget to let everyone know. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> >>>>> >>>>>> On Thu, Oct 29, 2015 at 6:31 PM, bkbarney via CMLHope >>>>>> <[email protected]> wrote: >>>>>> Hi all, >>>>>> >>>>>> Just saying hi! Wanted you all to know that I am thinking of you and >>>>>> sending everyone a big hug and happy fall wishes... I know some of you >>>>>> southern folks..will enjoy your 90 degree Florida temperatures coming >>>>>> down...but us up north are enjoying the beauty of fall..it's cold today, >>>>>> but should be back up in the 60's by Sunday....Indian summer.....I just >>>>>> love it... >>>>>> >>>>>> did BCR on Monday..waiting for results..then will decide plan for next >>>>>> few months... >>>>>> >>>>>> love, hugs and 18's to all, >>>>>> >>>>>> >>>>>> Beth >>>>>> >>>>>> >>>>>> -----Original Message----- >>>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>>> To: cmlhope <[email protected]> >>>>>> Sent: Sun, Oct 11, 2015 1:07 pm >>>>>> Subject: Re: [CMLHope] Test Day >>>>>> >>>>>> Hi Beth >>>>>> I can never go off the meds either. My counts will shoot up fast. >>>>>> Good luck >>>>>> β€οΈ >>>>>> >>>>>> My Motto: Faith and Pills >>>>>> Jeanie ππ18,s >>>>>> Dx 1/2004. CML Leukemia >>>>>> Started Gleevec 2/2004 >>>>>> Started Tasigna 9/2009 >>>>>> Started Sprycel 11/2009 >>>>>> Started Ponatinib January 2015 >>>>>> Dr Balducci Moffitt Cancer Center >>>>>> >>>>>> On Oct 11, 2015, at 1:43 AM, bkbarney via CMLHope >>>>>> <[email protected]> wrote: >>>>>> >>>>>> Dear Jeannie, Richard, Susan, Marty, et al...thanks very much for >>>>>> responding to my question. I am scared, but want to try something to >>>>>> help myself. We will see what Dr.Druker has to say. In the mean time, >>>>>> what I do know, having been off of sprycel for months at a time to deal >>>>>> with major surgeries several times, is that I always come out of >>>>>> remission, and quickly. I don't hold without the sprycel. Usually the >>>>>> cells are showing at very low numbers, but it means that without the >>>>>> agent that keeps them in check, cancer grows. I wish this were not so. >>>>>> And I know it's not for some lucky folks. Maybe with time, this will >>>>>> change for me. For now I am developing a plan..will keep you all posted. >>>>>> >>>>>> love and 18's Beth >>>>>> >>>>>> >>>>>> -----Original Message----- >>>>>> From: Marty Gartenberg <[email protected]> >>>>>> To: cmlhope <[email protected]> >>>>>> Sent: Thu, Oct 8, 2015 5:56 am >>>>>> Subject: Re: [CMLHope] Test Day >>>>>> >>>>>> Hi Jeannie, Beth, Richard as well as everyone on this site, >>>>>> >>>>>> I have a friend (not had a friend, and still have this friend) who had >>>>>> CML a little while after I had my transplant. At the time there were no >>>>>> TKI's but there were only two things available. One was a bone marrow >>>>>> transplant which was in it's infancy at the time and the other was Alpha >>>>>> interferon but on an early study basis which actually was a blind study. >>>>>> Depending on if those in this study would be receiving this Alpha >>>>>> Interferon or a placebo. >>>>>> >>>>>> Even before my friend I had to chose the Interferon or the placebo in >>>>>> this blind study. I spoke with a lot of oncologists about what to do. >>>>>> However there were no concise answers because on one hand there was >>>>>> something that was still in a blind study and who would know if that >>>>>> would even be given to this patient or would the BMT be the way to go? >>>>>> >>>>>> However, since there were no matching donors, but one, his brother who >>>>>> refused, and I could never understand that, but since there were no >>>>>> other choices he had no other choice but to try that >>>>>> blind study. Well he was lucky enough to be accepted. And I have to tell >>>>>> you that he really suffered some really bad side effects for years >>>>>> afterwards. >>>>>> >>>>>> Eventually they were unable to detect any more CML, but he still refused >>>>>> to go off of the Alpha Interferon and I suppose this was a crutch in his >>>>>> life so he still remained on it for many years. So I guess that he >>>>>> finally decided to go off of it. Once that happened his life took a >>>>>> dramatic turn. No more side effects and no more CML, and he is still >>>>>> alive and doing remarkably well today. >>>>>> >>>>>> As far as me, well my only choice was the BMT because of two reasons. >>>>>> Since my white blood counts were at the time over 486,000 and doubtful >>>>>> that I would survive, but basically the same thing with the BMT but at >>>>>> least I had my sister as a donor who just happened to be >>>>>> a perfect HLA match. So I tried the BMT, and it worked. >>>>>> >>>>>> But yet there is still more to this story and some of you might remember >>>>>> Zavie Miller and all three of us used to get together, and called >>>>>> ourselves The Three Musketeers. This was well after Zavie got to know >>>>>> Dr. Druker and he was started on STI-571 which when approved by the FDA >>>>>> turned into >>>>>> Gleevec. >>>>>> >>>>>> So after that we all turned into The Three Musketeers. All of this is >>>>>> ancient history but my point is that whether to go off or continue on >>>>>> the TKI's because you may be actually "cured" of CML but you may still >>>>>> hold the touch of the crutch. So you see that there are different >>>>>> strokes for different people. >>>>>> >>>>>> Fortunately I don't have to make the choice because I already did and >>>>>> believe me I really did suffer, but in the end it was worth it. >>>>>> >>>>>> Now knowing what I would do if my circumstances were different I think >>>>>> that I would be off these TKI's and live my life, and if something >>>>>> happens then you will have to deal with it, and you will. Remember a >>>>>> crutch is a terrible thing to have. >>>>>> >>>>>> I spend a lot of time trying to help, and your all very special people >>>>>> to me as I am to you. >>>>>> >>>>>> Those are my words of wisdom and please never forget what 18's stands >>>>>> for. It is life yours and mine! >>>>>> >>>>>> 18's >>>>>> >>>>>> Marty >>>>>> >>>>>> >>>>>> i >>>>>> >>>>>>> On Thu, Oct 8, 2015 at 12:24 AM, Richard H <[email protected]> wrote: >>>>>>> Just a quick glimpse about a med break. The end of March when I went >>>>>>> to the hospital with Vertigo, The short break I had on medicine did >>>>>>> wonders for me. Found some I shouldn't have been taking, stopped some >>>>>>> all together. I have felt so much better that I would do it again >>>>>>> under total control. Worried? Yes, but I realized afterwards it should >>>>>>> have been done earlier. >>>>>>> >>>>>>> Richard H. >>>>>>> >>>>>>>> On Wednesday, October 7, 2015 at 4:27:30 PM UTC-5, Beth wrote: >>>>>>>> >>>>>>>> HI Jeannie and all, ...I am due for BCR abl testing so should get it >>>>>>>> in the next two weeks, results two weeks later...so I will update when >>>>>>>> I know more...Had a consult today at the Block Center here in >>>>>>>> Illinois.People tend to love him or hate him... I really like him. He >>>>>>>> thinks all my issues are sprycel related. Thinks I should go off >>>>>>>> everything and have drug holiday to give my autoimmune system a >>>>>>>> rest....steroids briefly to try and lower cpk so I can move better >>>>>>>> without such a severe boomerang effect. Back issues are no worse. >>>>>>>> That's good news from my end....since there have been several of my >>>>>>>> fellow warriors here who have lost there remissions spontaneously >>>>>>>> after years of successful treatment with their TKI's. I am scared to >>>>>>>> go off, unless I have to ...ie. like I did for past >>>>>>>> surgeries....however, I am thinking about it...perhaps I am just too >>>>>>>> toxic, and time off would help me to rebuild and repair, and tolerate >>>>>>>> better the TKI"s when I re-uptake in the future......so I am sitting >>>>>>>> with this decision..Not sure what I am going to do...except pray, and >>>>>>>> listen to other's words of wisdom....I know if I ask Dr. Druker, he >>>>>>>> would be fine with my taking a drug holiday..but I emailed >>>>>>>> anyway......thoughts from my friends here???? >>>>>>>> >>>>>>>> >>>>>>>> Love and 18;s, Beth >>>>>>>> >>>>>>>> -----Original Message----- >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>>>>> To: cmlhope <[email protected]> >>>>>>>> Sent: Wed, Oct 7, 2015 12:59 pm >>>>>>>> Subject: Re: [CMLHope] Test Day >>>>>>>> >>>>>>>> Hi Beth and how are you?? >>>>>>>> Would love to have an update on all. Thanks!! β€οΈβ€οΈ >>>>>>>> >>>>>>>> My Motto: Faith and Pills >>>>>>>> Jeanie ππ18,s >>>>>>>> Dx 1/2004. CML Leukemia >>>>>>>> Started Gleevec 2/2004 >>>>>>>> Started Tasigna 9/2009 >>>>>>>> Started Sprycel 11/2009 >>>>>>>> Started Ponatinib January 2015 >>>>>>>> Dr Balducci Moffitt Cancer Center >>>>>>>> >>>>>>>> On Oct 7, 2015, at 11:35 AM, bkbarney via CMLHope >>>>>>>> <[email protected]> wrote: >>>>>>>> >>>>>>>> Dear Richard, >>>>>>>> Sounds like good news all the way around. Hope your counts continue to >>>>>>>> hold well and the November visit to the onc is a positive one! Your >>>>>>>> wife is healing well..slow and steady. Thanks for sharing the good >>>>>>>> news....Keeping you both in my thoughts and prayers. Beth >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> -----Original Message----- >>>>>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>>>>> To: cmlhope <[email protected]> >>>>>>>> Sent: Wed, Oct 7, 2015 9:26 am >>>>>>>> Subject: Re: [CMLHope] Test Day >>>>>>>> >>>>>>>> Hi Richard and happy you are better. I hope your wife will be home >>>>>>>> soon. >>>>>>>> Prayers always. >>>>>>>> >>>>>>>> My Motto: Faith and Pills >>>>>>>> Jeanie ππ18,s >>>>>>>> Dx 1/2004. CML Leukemia >>>>>>>> Started Gleevec 2/2004 >>>>>>>> Started Tasigna 9/2009 >>>>>>>> Started Sprycel 11/2009 >>>>>>>> Started Ponatinib January 2015 >>>>>>>> Dr Balducci Moffitt Cancer Center >>>>>>>> >>>>>>>> On Oct 7, 2015, at 12:01 AM, Richard H <[email protected]> wrote: >>>>>>>> >>>>>>>> All is good at this house. Saw Kidney Dr. and my tests have improved >>>>>>>> the last 3 times. Took my CBC and I am keeping my Hem. is holding at >>>>>>>> 10. I hope it stays there until the end of Nov. when I visit my ONC. >>>>>>>> >>>>>>>> My wife is improving, and will see the Dr. Oct. 21st to see if she can >>>>>>>> start putting weight on the right side. Shoulder seems to be healing >>>>>>>> nicely. She has the healing knot on the shoulder and is feeding >>>>>>>> herself with her right hand and is raising the upper arm to almost >>>>>>>> shoulder height without pain. We are hoping she can come home in Nov. >>>>>>>> when she can get out of the wheel chair and up and down without help. >>>>>>>> Due to heart surgery and a pacemaker all I can due is call for help if >>>>>>>> she has a problem. >>>>>>>> >>>>>>>> 18's >>>>>>>> >>>>>>>> Richard H. >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an 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To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
