Just another note, Grace and I moved from Northwest Indiana 10 years ago to 
live in South Fort Myers but moved to Sebring a year ago.  There were just to 
many people living there and the snow birds made it to hard to move around.  
Nothing again snow birds also, they have there right also. With you wanted to 
go out for dinner you would have to be there by 4 p.m. or wait for and hour or 
two.  Way to many cars, a 5 min. drive to Lowe's would take me 5 min but in the 
winter it would take 15 to 20 min.  We lived about 10 min from the beach so you 
would have to leave by 7 a.m. if you wanted to find a parking place. So now, we 
get to watch the grass grow now.
greenie

-----Original Message-----
From: myvety2k via CMLHope <[email protected]>
To: cmlhope <[email protected]>
Sent: Wed, Sep 18, 2019 1:31 pm
Subject: Re: [CMLHope] Re: Not getting any mail

Sherri I'm so glad that you have CML in check after 17 years.  I started STI571 
(Gleevec) the first week in Jan. 2000 and still going strong.  I was in a study 
with 200 other people in the United States before it was approved by the FDA. I 
was the only one from Indiana and the rest were from the Chicago land area.   
Hope to keep it that way.


-----Original Message-----
From: sherri swanson <[email protected]>
To: cmlhope <[email protected]>
Sent: Tue, Sep 17, 2019 3:35 pm
Subject: Re: [CMLHope] Re: Not getting any mail

Hi Jeanie, 

I'm still here too. Just been doing things and we, my husband and the dog moved 
this year. I'm getting to old for that moving stuff.  

My Gleevec is keeping my CML in check and has been for about 17 years. WOW, 
that's a long time. 

Hope everyone is doing well and has enjoyed the summer. 

Sherri 
Northern  Illinois

On Tue, Sep 17, 2019 at 8:49 AM [email protected] 
<[email protected]> wrote:

Hi Jeanie,
I received my CML medicine from Acaria in the past with no issues. I think many 
insurance providers are requiring that patients go through mail order 
pharmacies like Acaria to save money. 

On Monday, September 16, 2019 at 8:52:38 AM UTC-7, icandoallttc wrote:
HelloI am not receiving any mail from group. Has this group shut down.  Anyway 
Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from 
now on. I never heard from them and think it’s fraud. Anyone else heard this. 
Hope everyone is great.  
My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt 
Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx 
with thyroid disease tsh 13T4-normal t3-normal
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