Hi, I’m not seeing too many emails lately either. I think a lot of us have migrated to the Facebook groups! Tony
Sent from my iPhone On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope <[email protected]<mailto:[email protected]>> wrote: -----Original Message----- From: Joyce Mesnarich <[email protected]<mailto:[email protected]>> To: cmlhope <[email protected]<mailto:[email protected]>> Sent: Mon, Sep 16, 2019 2:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie. I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope <[email protected]<mailto:[email protected]>> wrote: Hello I am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com<http://cmlhope.com/> ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]<mailto:[email protected]> To unsubscribe from this group, send email to [email protected]<mailto:[email protected]> For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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