I'm happy to hear from you Sherri, glad that your doing so good with your CML. The only problem with staying here year round is that it does get hot during the summer but then it's better then snow and cold in Northwest Indiana 40 min from Chicago. I will be flying in on the 6th of Nov to see my cancer Doctor get blood work and my meds. Derek's widow will pick me up at Midway and take me there and I get a chance to see his boys. I still can't believe that he's gone, I'll never get over that. Now at 80 as my Aunt used to say now it's one day at a time. I don't like getting old can't do the things that I used to do. Please take care of yourself and keep in touch. greenie
-----Original Message----- From: sherri swanson <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Sep 19, 2019 9:19 pm Subject: Re: [CMLHope] Not getting any mail Hi Greenie, I am so glad to hear from you. I know what you mean about the snow birds. I had family that lived in Florida and I would go and see them from time to time and if we wanted to go somewhere or do something it always had to be early so we didn't have to wait and we were able to get a parking space. I finally said I would only come in the summer so we could go and do things without the wait. I can hardly believe I have had CML for 17 years. It has been a shock to the system but I never let it get me down. I fight right back and that and Gleevec have worked for me. It's funny, I still get side effects from the Gleevec after all this time. I guess it wants me to know that it is doing its job. I'm glad that you are watching the grass grow and enjoying your days. I too am watching things grow. Hope you enjoy the photo. Sherri On Thu, Sep 19, 2019 at 4:24 PM 'icandoallttc' via CMLHope <[email protected]> wrote: Good to hear from you Greenie. Wonderful summer. Stay safe. Jeanie My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal On Sep 16, 2019, at 4:51 PM, myvety2k via CMLHope <[email protected]> wrote: That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -----Original Message----- From: Joyce Mesnarich <[email protected]> To: cmlhope <[email protected]> Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope <[email protected]> wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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