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New Message on Pituitary Chat

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From: PT3688041
Message 19 in Discussion

I appologize for what sounded like a snarky reoly - I definitely did not mean 
it to be. I am going to have cyberknife treatment next week for my residual 
tumor and was reminded how important it is to have an experienced team. My MRI 
was done locally. The report stated that no tumor could be visualized and there 
was no significant change since my last MRI. The neuroendocrinologist insisted 
that he see the MRI. I kept putting it off as the report indicated that there 
was no change. I finally sent the MRI to the endocrinologist for review. Low 
and behold, he saw a tumor. He then reviewed the MRI with the neurosurgeon. 
They even discussed the findings at the tumor board. The endo and neurosurgeon 
both e-mailed me with the findings and the recommendation that I consider 
cyberknife. Today, I met with the neurosurgeon and the radiation oncologist - 
how the tumor was missed by the original radiologist is beyond me - pops right 
out of the MRI when you look in the correct place. Anyway, I am trying to 
emphasize the need for a speicalized team who seem to have the patient's best 
interests in mind as they organize treatment. The center is almost 3 hours from 
my house but worth every minute of the trip.

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