I have considered going to the supra-pubic indwelling foley many times but I never did because I figured why fix what is not broken? And it would be a great plus, like you, that would make sex easier.
None of my surgeries have gone well and, like you, I can't imagine an open stoma in my stomach for many, many, many reasons. There have been a lot of positive stories and just as many negative ones. I guess if they had done that initially... that is where I would be but it has been 28 years now so I doubt I will change. I always think about the dressings, the leakage, being exactly where my tight abdominal Binder is, etc. etc. etc. etc.. It would be just one more thing to take care of unless, as others have said, you get used to it. Just my thoughts. Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Nov 25, 2007 11:14 PM, <[EMAIL PROTECTED]> wrote: > I'm a c-5/6 quad incomplete with quite a bit of feeling. i had to stop > doing in-and-out cathing because it bcame painful and i was having to do it > too often. so i started doing the indwelling for about the past 3yrs. but > i can still get erections so i recently decided to go from the indewlling > through the penis to a supra pubic tube. it hasn't quite been a week since > i had my surgery but it's hard for me to look at it because i'm a little > freaked out knowing i have this tube going through my skin. also i've > always had really intense tone in my legs which makes my abs tighten up and > now that i have the tube it feels really funky when my muscles tighten. i > know its only been a short while since my surgery but there is a lot of > discomfort. does this go away? I go to see my doctor in a couple of weeks > and hope tell him that i'm doing well. > > Luke 7yrs post > ------------------------------ > Email and AIM finally together. You've gotta check out free AOL > Mail<http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/index.htm?ncid=AOLAOF00020000000970> > ! > -- Lori C4/5 complete quad, 27 years post Tucson, AZ
