I had a problem with urine leaking from the stoma in the first week or two, then my doc increased my Ditropan. Are you currently on this med?
Mandy On Nov 1, 2012, at 4:06 PM, Fragile <[email protected]> wrote: > For those who've had a supra pubic for years, have you ever had a problem > with it leaking? I'm afraid to go out into public. > > Do you lay on your side? I'm afraid of accidentally (spasm) rolling over and > tugging on the tube. I've kept it strapped to my leg where the urologist > placed it on the day of the operation (Oct 10). > > Before, I used an external cath for 15+ years, slightest infection was > cleared up with apple cider vinegar and cream of tarter. Been using > D-manoose the last few weeks as a preventative. > > On Thu, Nov 1, 2012 at 12:00 PM, Randal Rodgers <[email protected]> wrote: >> I had a bladder infection many times a year. My urologist recommended a >> supra pubic. I have had it now about 15 years and I love it. It also leaves >> "other" parts of your body available for what "they" were made for. I am a >> man and appreciate that part. BUT, do not think it is the end of your >> bladder problems! I drink a tall glass of water with 2 tablespoons of apple >> cider vinegar in the morning. The high ph level in the vinegar "burns" the >> walls of the bladder and any bateria in it. I do not recall the last bladder >> infection I had. >> >> >> From: Fragile <[email protected]> >> To: quad-list <[email protected]> >> Sent: Wednesday, October 31, 2012 2:13 PM >> Subject: Re: [QUAD-L] Suprapubic info >> >> Just had one done on Oct 10. The recovery has been rough. AD the first few >> days. I now have 0 energy, nausea. Drinking a ton of water, so just using >> the overnight drainage bag. >> >> >> On Wed, Oct 31, 2012 at 12:22 PM, Don Price <[email protected]> wrote: >> HAPPY HALLOWEEN, ALL! >> >> I know there's been lots of discussion here regarding suprapubics, but when >> something doesn't pertain to me it's my tendency to scan and delete. I >> apologize for the redundant question/topic. >> >> So, after 30 years of my neurogenic bladder emptying faithfully on its own >> (condom cath and legbag system), it has recently started to fail me. Tests >> show my bladder is stretched and retaining too much urine before emptying, >> which allows UTIs to form and also is not good for my bladder and kidneys. >> >> I see my urologist tomorrow and I would bet my last dollar he is going to >> recommend I go with the suprapubic catheter. Obviously, I'll do what's best >> for my long-term health, but I do have concerns about adding another hole to >> my body, so to speak. >> >> For those of you that have suprapubic caths, any of the following info would >> be appreciated: >> 1. what questions I should have for my urologist (alternatives? procedure?)? >> 2. what do you wish someone had told you before getting your suprapubic >> (good or bad)? >> 3. what system has worked best for you regarding urine collection (legbag? >> night bag? other?) >> 4. does your suprapube affect your sexual relations (good or bad)? >> 5. what to expect from the surgery and recovery period. >> 6. any other tips, warnings,. thoughts? >> >> Thank you in advance for your words of advice and experience. I truly >> appreciate it! >> >> Don. >> c5-6, 1982 diving accident >> Tempe, AZ >
