Most of you will say "duh!" at this revelation of common sense, but as I have said before, I have been whacked with a stupid stick more than once. For over a year I have been awakened by bladder pain, a burning, stinging, stabbing pain that caused headache and cold sweats. My nose and eyes were also plastered shut so bad, I dreaded morning time. Now, for the last five days, I have awoken pain and sweat free. I made two changes. 1) I take a single benadryl at bedtime. 2) I eliminated the two diet Mountain Dews that I drank just about every day. I suspect the Dews were the main villain. The lesson learned -- quad bladders and soda pop are a bad combination. Yes they are.
Sent from my iPad Begin forwarded message: > Resent-From: [email protected] > From: KK <[email protected]> > Date: November 9, 2012 3:42:21 PM EST > To: Fragile <[email protected]>, [email protected] > Subject: Re: [QUAD-L] Suprapubic info > > I get checked every time my urine smells bad. There are going to be "things" > in the culture but they can tell if there is an infection starting. Your > body is trying to reject the rubber tube just like it does with heart or lung > transplant. > > Please do not wait to get it checked. AD & any infection can be deadly. > > KK > From: Fragile <[email protected]> > To: quad-list <[email protected]> > Sent: Fri, November 9, 2012 10:28:47 AM > Subject: Re: [QUAD-L] Suprapubic info > > AD decreased overnight, still a little uncomfortable. Hope I don't have to > go through this every time it's changed. > > They did irrigate, that hurt like hell too. They told me the only time I can > be checked for a UTI is immediately after the new tube is placed. Is this > what anyone else has been told? > > They did take a sample to culture, results on Monday. > > Thank you for the replies. > > On Thu, Nov 8, 2012 at 6:58 PM, Quadius <[email protected]> wrote: > I have to agree with Dave. When they changed your catheter did they irrigate > to make sure that everything is working okay? Also it is important that they > insert the catheter all the way in. It's easier than you would think to have > the catheter partway in. I had this happen once in the pain was horrific and > I did experience AD. > > In order to make sure it's in right, they should stop once the catheter > reaches the back of the bladder. Insert some fluid into the balloon and then > lightly pull on the catheter to make sure it moves in and out a little bit. > > Quadius > PS I did experience some pain off and on when I had mine changed, but the > only times I ever remember having AD involved the catheter not being in all > the way and once they put in a silicone catheter. > > > On Thu, Nov 8, 2012 at 5:10 PM, Dave Krehbiel <[email protected]> > wrote: > This could be a very big problem. Most of the time, I had no problems > whatsoever following a catheter changed. About four or five times, something > was wrong. In one case, the pain was so terrible I needed to go to the > hospital. Possibly the procedure was done incorrectly. Possibly the new > catheter is blocked or pinched. This might be a serious situation. Call your > nurse now. Insist that another catheter be installed. In an emergency, you > can also try flushing the catheter using a mild solution of distilled water > and vinegar. > > > > Dave Krehbiel > > (301) 924-4530 > > > > From: Fragile [mailto:[email protected]] > Sent: Thursday, November 08, 2012 4:54 PM > To: quad-list > Subject: Re: [QUAD-L] Suprapubic info > > > > Had my suprapubic changed for the first time about 5 hours ago and the > Autonomic Dysreflexia won't let up. Expected some AD, but not this long/bad. > How do you all treat/deal with this? > > On Wed, Nov 7, 2012 at 2:55 PM, Quadius <[email protected]> wrote: > > I had my SP for almost 17 years and had very little problem with leakage out > of the stoma. You might want to try to increase the amount of fluid in the > ball. If it's a 5 mL Foley, you can put up to 10 mL without too much > problem. I used to use around eight, because if I used anything lower it > might leak a little. > > Hopefully this helps you out. You can also wear a drain sponge around the SP. > Quadius > > >

