Most of you will say "duh!" at this revelation of common sense, but as I have 
said before, I have been whacked with a stupid stick more than once. For over a 
year I have been awakened by bladder pain, a burning, stinging, stabbing pain 
that caused headache and cold sweats. My nose and eyes were also plastered shut 
so bad, I dreaded morning time. Now, for the last five days, I have awoken pain 
and sweat free. I made two changes.  1) I take a single benadryl at bedtime.  
2) I eliminated the two diet Mountain Dews that I drank just about every day.
I suspect the Dews were the main villain. The lesson learned --  quad bladders 
and soda pop are a bad combination. Yes they are.

Sent from my iPad

Begin forwarded message:

> Resent-From: [email protected]
> From: KK <[email protected]>
> Date: November 9, 2012 3:42:21 PM EST
> To: Fragile <[email protected]>, [email protected]
> Subject: Re: [QUAD-L] Suprapubic info
> 

> I get checked every time my urine smells bad.  There are going to be "things" 
> in the culture but they can tell if there is an infection starting.  Your 
> body is trying to reject the rubber tube just like it does with heart or lung 
> transplant.
> 
> Please do not wait to get it checked.  AD & any infection can be deadly.
> 
> KK
> From: Fragile <[email protected]>
> To: quad-list <[email protected]>
> Sent: Fri, November 9, 2012 10:28:47 AM
> Subject: Re: [QUAD-L] Suprapubic info
> 
> AD decreased overnight, still a little uncomfortable.  Hope I don't have to 
> go through this every time it's changed.
> 
> They did irrigate, that hurt like hell too.  They told me the only time I can 
> be checked for a UTI is immediately after the new tube is placed.  Is this 
> what anyone else has been told?  
> 
> They did take a sample to culture, results on Monday.
> 
> Thank you for the replies.
> 
> On Thu, Nov 8, 2012 at 6:58 PM, Quadius <[email protected]> wrote:
> I have to agree with Dave.  When they changed your catheter did they irrigate 
> to make sure that everything is working okay?  Also it is important that they 
> insert the catheter all the way in.  It's easier than you would think to have 
> the catheter partway in.  I had this happen once in the pain was horrific and 
> I did experience AD.
> 
> In order to make sure it's in right, they should stop once the catheter 
> reaches the back of the bladder.  Insert some fluid into the balloon and then 
> lightly pull on the catheter to make sure it moves in and out a little bit.
> 
> Quadius
> PS I did experience some pain off and on when I had mine changed, but the 
> only times I ever remember having AD involved the catheter not being in all 
> the way and once they put in a silicone catheter.
> 
> 
> On Thu, Nov 8, 2012 at 5:10 PM, Dave Krehbiel <[email protected]> 
> wrote:
> This could be a very big problem. Most of the time, I had no problems 
> whatsoever  following a catheter changed. About four or five times, something 
> was wrong. In one case, the pain was so terrible  I needed to go to the 
> hospital. Possibly the procedure was done incorrectly. Possibly the new 
> catheter is blocked or pinched. This might be a serious situation. Call your 
> nurse now. Insist that another catheter be installed. In an emergency, you 
> can also try flushing the catheter using a mild solution of distilled water 
> and vinegar.
> 
>  
> 
> Dave Krehbiel
> 
> (301) 924-4530
> 
>  
> 
> From: Fragile [mailto:[email protected]] 
> Sent: Thursday, November 08, 2012 4:54 PM
> To: quad-list
> Subject: Re: [QUAD-L] Suprapubic info
> 
>  
> 
> Had my suprapubic changed for the first time about 5 hours ago and the 
> Autonomic Dysreflexia won't let up.  Expected some AD, but not this long/bad. 
>  How do you all treat/deal with this?
> 
> On Wed, Nov 7, 2012 at 2:55 PM, Quadius <[email protected]> wrote:
> 
> I had my SP for almost 17 years and had very little problem with leakage out 
> of the stoma.  You might want to try to increase the amount of fluid in the 
> ball.  If it's a 5 mL Foley, you can put up to 10 mL without too much 
> problem.  I used to use around eight, because if I used anything lower it 
> might leak a little.
> 
> Hopefully this helps you out.  You can also wear a drain sponge around the SP.
> Quadius
> 
> 
> 

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