I drink probably 40-70oz of Coke everyday and never drink water, have not had any uti's, pain, discomfort in over 20 years. I also take zero medications for pain/spasms, etc.
I use external leg bag, condom cath. Hope you feel better, whatever works for you I say do it. Todd C6 On Nov 9, 2012, at 5:51 PM, Danny Hearn <[email protected]> wrote: > Yes, and I love soda but many times after I drink it I get bad pain and > bladder spasms--then zI need oxybutinal to calm it back down, so I try to > only drink about 3 or 4 sodas a week. Dan** > > From: Larry Willis <[email protected]> > To: [email protected] > Sent: Fri, November 9, 2012 4:26:03 PM > Subject: [QUAD-L] Soda bladder > > Most of you will say "duh!" at this revelation of common sense, but as I have > said before, I have been whacked with a stupid stick more than once. For over > a year I have been awakened by bladder pain, a burning, stinging, stabbing > pain that caused headache and cold sweats. My nose and eyes were also > plastered shut so bad, I dreaded morning time. Now, for the last five days, I > have awoken pain and sweat free. I made two changes. 1) I take a single > benadryl at bedtime. 2) I eliminated the two diet Mountain Dews that I drank > just about every day. > I suspect the Dews were the main villain. The lesson learned -- quad > bladders and soda pop are a bad combination. Yes they are. > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: [email protected] >> From: KK <[email protected]> >> Date: November 9, 2012 3:42:21 PM EST >> To: Fragile <[email protected]>, [email protected] >> Subject: Re: [QUAD-L] Suprapubic info >> >> I get checked every time my urine smells bad. There are going to be >> "things" in the culture but they can tell if there is an infection starting. >> Your body is trying to reject the rubber tube just like it does with heart >> or lung transplant. >> >> Please do not wait to get it checked. AD & any infection can be deadly. >> >> KK >> From: Fragile <[email protected]> >> To: quad-list <[email protected]> >> Sent: Fri, November 9, 2012 10:28:47 AM >> Subject: Re: [QUAD-L] Suprapubic info >> >> AD decreased overnight, still a little uncomfortable. Hope I don't have to >> go through this every time it's changed. >> >> They did irrigate, that hurt like hell too. They told me the only time I >> can be checked for a UTI is immediately after the new tube is placed. Is >> this what anyone else has been told? >> >> They did take a sample to culture, results on Monday. >> >> Thank you for the replies. >> >> On Thu, Nov 8, 2012 at 6:58 PM, Quadius <[email protected]> wrote: >> I have to agree with Dave. When they changed your catheter did they >> irrigate to make sure that everything is working okay? Also it is important >> that they insert the catheter all the way in. It's easier than you would >> think to have the catheter partway in. I had this happen once in the pain >> was horrific and I did experience AD. >> >> In order to make sure it's in right, they should stop once the catheter >> reaches the back of the bladder. Insert some fluid into the balloon and >> then lightly pull on the catheter to make sure it moves in and out a little >> bit. >> >> Quadius >> PS I did experience some pain off and on when I had mine changed, but the >> only times I ever remember having AD involved the catheter not being in all >> the way and once they put in a silicone catheter. >> >> >> On Thu, Nov 8, 2012 at 5:10 PM, Dave Krehbiel <[email protected]> >> wrote: >> This could be a very big problem. Most of the time, I had no problems >> whatsoever following a catheter changed. About four or five times, >> something was wrong. In one case, the pain was so terrible I needed to go >> to the hospital. Possibly the procedure was done incorrectly. Possibly the >> new catheter is blocked or pinched. This might be a serious situation. Call >> your nurse now. Insist that another catheter be installed. In an emergency, >> you can also try flushing the catheter using a mild solution of distilled >> water and vinegar. >> >> >> >> Dave Krehbiel >> >> (301) 924-4530 >> >> >> >> From: Fragile [mailto:[email protected]] >> Sent: Thursday, November 08, 2012 4:54 PM >> To: quad-list >> Subject: Re: [QUAD-L] Suprapubic info >> >> >> >> Had my suprapubic changed for the first time about 5 hours ago and the >> Autonomic Dysreflexia won't let up. Expected some AD, but not this >> long/bad. How do you all treat/deal with this? >> >> On Wed, Nov 7, 2012 at 2:55 PM, Quadius <[email protected]> wrote: >> >> I had my SP for almost 17 years and had very little problem with leakage out >> of the stoma. You might want to try to increase the amount of fluid in the >> ball. If it's a 5 mL Foley, you can put up to 10 mL without too much >> problem. I used to use around eight, because if I used anything lower it >> might leak a little. >> >> Hopefully this helps you out. You can also wear a drain sponge around the >> SP. >> Quadius >> >> >>
