Re: [QUAD-L] Quad list
This is the 1st I've gotten in a while Littlequad Sent from Yahoo! Mail on Android
[QUAD-L] The List
Amy Thomas aka LittleQuad 33yrs old C 4,5,7 incomplete Injured 11/09/1998 Car wreck (I was passenger) Sent from Yahoo! Mail on Android
Re: [QUAD-L] The List
Tyler, Texas Sent from Yahoo! Mail on Android
Re: [QUAD-L] Digital Stimulation
I take 2 a day...plus Amitiza 24mg ~LittleQuad~ From: Dana Wray daa...@aol.com To: ~LittleQuad~ littleq...@yahoo.com Cc: Larry Willis lwillis82...@msn.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Thursday, October 11, 2012 8:42 PM Subject: Re: [QUAD-L] Digital Stimulation Have you tried MiraLAX, stool softeners or Sènna? Sent from my iPhone On Oct 11, 2012, at 10:55 AM, ~LittleQuad~ littleq...@yahoo.com wrote: Amitiza helps ~LittleQuad~ From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Tuesday, October 9, 2012 3:24 PM Subject: Fwd: [QUAD-L] Digital Stimulation Bill, when you find an answer to that question, let me know. Poop and pain pills just don't mix. Bowel and stomach problems are the curse of quadom, even without opiates. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Bill Lang blan...@verizon.net Date: October 9, 2012 3:49:31 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Digital Stimulation Hi EV1, I know this is a very delicate subject, (except here) but has anyone found a less traumatic way to stimulate the anus than the finger? I am hurting like heck down there, since my opiates joined the dietary party, slowing everything to a snail crapping pace. Been through the gamut: Magic Bullets, Enemeez, etc., but nothing comes down to the lower bowel. Outside of chewing on a tree trunk, my diet gets enough fiber IMHO. Looking for help, my anus is making my nurses wince when they inspect down there. Sent from Billy
Re: Fwd: [QUAD-L] Digital Stimulation
Amitiza helps ~LittleQuad~ From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Tuesday, October 9, 2012 3:24 PM Subject: Fwd: [QUAD-L] Digital Stimulation Bill, when you find an answer to that question, let me know. Poop and pain pills just don't mix. Bowel and stomach problems are the curse of quadom, even without opiates. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Bill Lang blan...@verizon.net Date: October 9, 2012 3:49:31 PM EDT To: quad-list quad-list@eskimo.com Subject: [QUAD-L] Digital Stimulation Hi EV1, I know this is a very delicate subject, (except here) but has anyone found a less traumatic way to stimulate the anus than the finger? I am hurting like heck down there, since my opiates joined the dietary party, slowing everything to a snail crapping pace. Been through the gamut: Magic Bullets, Enemeez, etc., but nothing comes down to the lower bowel. Outside of chewing on a tree trunk, my diet gets enough fiber IMHO. Looking for help, my anus is making my nurses wince when they inspect down there. Sent from Billy
Re: [QUAD-L] front-wheel drive vs mid-wheel drive
i hope to be going back to my mid-wheel chairturns better around corners and turns in circle in placei'll NEVER get another front wheel drive again as for cracks, it's more of what type of shocks you have.. ~LittleQuad~ From: daa...@aol.com daa...@aol.com To: wheelch...@aol.com; nlg52...@yahoo.com; bobbie...@aol.com; quad-list@eskimo.com Sent: Sunday, September 30, 2012 2:26 AM Subject: Re: [QUAD-L] front-wheel drive vs mid-wheel drive I tried out a mid-wheel drive, when I was ordering my new chair. I didn't feel I had as much control when I was going a block and a half away to my mom's house, which is part sidewalk and part street. I decided not to change from rear wheel drive to rear wheel. I got another Permobile 300 although I wanted a 500. It's so hard to know which chair to choose. I really don't like this one much better than my older one. They seem cheaply made. Dana In a message dated 9/26/2012 8:26:51 A.M. Central Daylight Time, wheelch...@aol.com writes: Wheelchairs of today can be much different then those from just 5 and 10 years ago. Today chair are designed and built with various combinations of wheels, casters and anti-tip devices. Suspension systems are equally different. Hence what might be desirable for one, may not be for another. Best Wishes In a message dated 9/25/2012 10:00:27 P.M. Central Daylight Time, nlg52...@yahoo.com writes: It is smoother, but more limiting as far as where you can go. It's great in tight spaces tho... I thought mid-wheel and center-wheel were the same.? Is there a difference? From: Bobbie Humphreys bobbie...@aol.com To: Nan nlg52...@yahoo.com; Quad-list@eskimo.com quad-list@eskimo.com Sent: Tuesday, September 25, 2012 9:12 PM Subject: Re: [QUAD-L] front-wheel drive vs mid-wheel drive Nan, How comfortable of a ride is the mid-wheel compared to center-wheel? I'm talking about sidewalk cracks, they bother my back now and I have rear-wheel drive and am considering mid-wheel. I'm also going to get air in tires so it will be more comfortable. Do you have air in your tires. Bobbie Sent from my iPad On Sep 24, 2012, at 11:14 PM, Nan nlg52...@yahoo.com wrote: I hate my mid-wheel chair. It's fine in the apartment, but gets stuck easily outside (in grass, dirt, uneven terrain, etc.). I just had a motor replaced in the newer chair, but I'm still in my old rear wheel drive chair. I am WAY more comfortable in it than I am in my newer chair. If you stay in your home and only go on sidewalks, paved surfaces, stores, etc. - the mid-wheel is ok. Nan From: robqua...@aol.com robqua...@aol.com To: quad-list@eskimo.com Sent: Monday, September 24, 2012 5:50 PM Subject: [QUAD-L] front-wheel drive vs mid-wheel drive I've started the process for a new power chair and I originally wanted front wheel drive like my current chair(an omegatrac), but am being encouraged to try mid-wheel chairs. Specifically Quickie's qm-710 and Permobil's m300. I'm concerned that they won't be able to get over curbs and thresholds due to the front casters. Also I use an ez lock and I'm sure that'll rob the chair of clearance. I'm trying to get away from the size and weight of the omegatrac, but want to keep as much curb hopping/rough terrain capability as I can. Anybody had any experience with either chair? Or a lot of experience with front wheel-drive vs. mid-wheel drive? Thanks, Robbie (incomplete c2-c3)
Re: [QUAD-L] severe spasms
My pump changed my life. I'm much better since it 10 yrs ago. Amye ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Don Price donpric...@yahoo.com Date: Sun, 16 Sep 2012 07:27:37 To: diannal...@aol.comdiannal...@aol.com; quad...@gmail.comquad...@gmail.com; quad-list@eskimo.comquad-list@eskimo.com Reply-To: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] severe spasms May I ask why you're against getting a Baclofen pump? I don't have one myself, but know many people who do. I've heard both good and bad about them. Don. From: diannal...@aol.com diannal...@aol.com To: quad...@gmail.com; quad-list@eskimo.com Sent: Saturday, September 15, 2012 10:45 PM Subject: Re: [QUAD-L] severe spasms Thank you for the response. Someone else suggested valium. I have it on hand but only used it for stiffness. I started taking 2 at night and 1 in the morning. I've been getting a tremendous relief. I hope it continues. Is it Dantrolene you write about? I'm going to ask the doctor about it as I've read other people take it. Dianna As for medication, I am presently taking 80 mg of baclofen, 5 mg of Valium and 75 mg of Datrolene (spelling) per day just for spasticity. Sometimes taking different types of medications does seem to work more effectively than just baclofen. I was never able to control my spasms well with just baclofen. -Original Message- From: Quadius quad...@gmail.com To: diannal767 diannal...@aol.com Cc: quad-list quad-list@eskimo.com Sent: Sat, Sep 15, 2012 4:24 pm Subject: Re: [QUAD-L] severe spasms This is definitely in my bailiwick Diana. I have had pretty bad spasms for all of 17 years I have been in the wheelchair and there was a time period where I was maxed out on baclofen and taking a substantial amount of Valium. I still had pretty bad spasms and what really helped me was when my caregivers did extensive range of motion with special emphasis on stretching my Achilles tendons. I was recently unable to do range of motion in hospital and my spasms were awful when I returned home. It took my caregivers about a week to get my body back in order, but occasionally I still slide backward into difficult balance with spasms. During that time. We just spend more time stretching them. As for medication, I am presently taking 80 mg of baclofen, 5 mg of Valium and 75 mg of Datrolene (spelling) per day just for spasticity. Sometimes taking different types of medications does seem to work more effectively than just baclofen. I was never able to control my spasms well with just baclofen. Take care and don't hesitate to write, Quadius PS hopefully there are too many errors in this e-mail. I am still trying to get used to my new microphone (a buddy desk microphone). On Thu, Sep 13, 2012 at 10:55 PM, diannal...@aol.com wrote: For about 6 wks I've been having unusual spasms and can't find anything wrong. i have an appointment with a spinal cord doctor but not until Oct. 30th. I wake up all night from my legs jumping like a fish out of water. during the day they're in my back. that feels like I'm ready to take off in a jet. My whole back stiffens at a small backwards angle. I maxed out on baclofen yrs ago and don't want a pump. Anyone go through this? I just want to sleep and drive during the day! I just had ultra-sounds on my kidneys bladder. One yr ago I had an M.R.I for stomach issues got a clean bill of health. I still have them after bm's, so no problem there. any new drugs other than baclofen? Dianna C6/ 22 yrs post.
Re: [QUAD-L] Is this inappropriate touching?
yes that is very wrong...she needs to be fired!! ~LittleQuad~ From: KK kkba...@yahoo.com To: quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wednesday, September 12, 2012 9:21 AM Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
Yes, everything W said! Except the crazy part!! Lq ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 12 Sep 2012 13:17:44 To: kkba...@yahoo.com; quad-list@eskimo.com; ericba...@gmail.com; lainieba...@yahoo.com; ms-qu...@yahoogroups.com Subject: Re: [QUAD-L] Is this inappropriate touching? You are crazy KK, but that is another issue (smiling) In the world of law, that action would be considered, assault. If the person touched you again after any sign of disapproval, those actions would be considered, assault and battery. This alone would lead to police intervention, a report, an arrest and money bond. The case would have to be heard by the court and a judgement. These actions would also lead to additional hearings, by the person's employment. These types of actions should not be tolerated by anyone, verbal or none verbal. Best Wishes -Original Message- From: KK kkba...@yahoo.com To: quad-list quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, Sep 12, 2012 9:21 am Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Unmasking Wheelchair
I second that!!! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Nan nlg52...@yahoo.com Date: Sun, 9 Sep 2012 15:17:49 To: wheelch...@aol.comwheelch...@aol.com; quad-list@eskimo.comquad-list@eskimo.com Reply-To: Nan nlg52...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I am counting on you to be around forever, W! Just sayin'. :) From: wheelch...@aol.com wheelch...@aol.com To: bobbie...@aol.com; littleq...@yahoo.com Cc: donpric...@yahoo.com; quad-list@eskimo.com Sent: Friday, September 7, 2012 9:06 PM Subject: Re: [QUAD-L] Unmasking Wheelchair Thanks Bobbie... and all. I am not perfect, just a work in progress. This allows me to share with all of you that which I have learned from others. I will continue as long as I can. Best Wishes In a message dated 9/7/2012 7:10:23 P.M. Central Daylight Time, bobbie...@aol.com writes: I have counted on Wheelchair for knowledgeable information about my van's plat form lift and my power w/c and he ALAWYS comes through. Thank-you Wheelchair for just being there! Bobbie Sent from my iPad On Sep 7, 2012, at 7:22 PM, ~LittleQuad~ littleq...@yahoo.com wrote: I don't think you could hurt him that!! ~LittleQuad~ Sent from my BlackBerry From: Don Price donpric...@yahoo.com Date: Fri, 7 Sep 2012 16:13:07 -0700 (PDT) To: littleq...@yahoo.comlittleq...@yahoo.com; Quad-list postquad-list@eskimo.com ReplyTo: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I agree. Wheelchair is an amazing asset to this group. I hope my email did not upset. I meant it in a playful way. I completely respect anyone's desire to remain anonymous here. Don.
Re: [QUAD-L] Unmasking Wheelchair
Yes, yes we do! Nan!!! Amye ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Nan nlg52...@yahoo.com Date: Sun, 9 Sep 2012 15:29:23 To: littleq...@yahoo.comlittleq...@yahoo.com; quad-list@eskimo.comquad-list@eskimo.com Reply-To: Nan nlg52...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair We always did have similar thinking, didn't we Amye?! :) PS (Sure wish I could type better so I could talk to you more. I'll send you my cell # in a private email.) From: ~LittleQuad~ littleq...@yahoo.com To: Nan nlg52...@yahoo.com; Wheelchair wheelch...@aol.com; Quad-list post quad-list@eskimo.com Sent: Sunday, September 9, 2012 6:22 PM Subject: Re: [QUAD-L] Unmasking Wheelchair I second that!!! ~LittleQuad~ Sent from my BlackBerry From: Nan nlg52...@yahoo.com Date: Sun, 9 Sep 2012 15:17:49 -0700 (PDT) To: wheelch...@aol.comwheelch...@aol.com; quad-list@eskimo.comquad-list@eskimo.com ReplyTo: Nan nlg52...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I am counting on you to be around forever, W! Just sayin'. :) From: wheelch...@aol.com wheelch...@aol.com To: bobbie...@aol.com; littleq...@yahoo.com Cc: donpric...@yahoo.com; quad-list@eskimo.com Sent: Friday, September 7, 2012 9:06 PM Subject: Re: [QUAD-L] Unmasking Wheelchair Thanks Bobbie... and all. I am not perfect, just a work in progress. This allows me to share with all of you that which I have learned from others. I will continue as long as I can. Best Wishes In a message dated 9/7/2012 7:10:23 P.M. Central Daylight Time, bobbie...@aol.com writes: I have counted on Wheelchair for knowledgeable information about my van's plat form lift and my power w/c and he ALAWYS comes through. Thank-you Wheelchair for just being there! Bobbie Sent from my iPad On Sep 7, 2012, at 7:22 PM, ~LittleQuad~ littleq...@yahoo.com wrote: I don't think you could hurt him that!! ~LittleQuad~ Sent from my BlackBerry From: Don Price donpric...@yahoo.com Date: Fri, 7 Sep 2012 16:13:07 -0700 (PDT) To: littleq...@yahoo.comlittleq...@yahoo.com; Quad-list postquad-list@eskimo.com ReplyTo: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I agree. Wheelchair is an amazing asset to this group. I hope my email did not upset. I meant it in a playful way. I completely respect anyone's desire to remain anonymous here. Don.
Re: [QUAD-L] Unmasking Wheelchair
I KNOW! I KNOW! but not tellingthat's W's choice ~LittleQuad~ From: Don Price donpric...@yahoo.com To: wheelch...@aol.com wheelch...@aol.com; diannal...@aol.com diannal...@aol.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Friday, September 7, 2012 2:59 PM Subject: [QUAD-L] Unmasking Wheelchair Wheelchair, She has a good point: how, exactly, do you know so much about wheelchairs (and related)?! Do you, or did you, work in the industry? I know I've been impressed with your encyclopedic knowledge on this list, but I don't remember any personal information from you, including your name. I may have simply missed or forgotten this info, but if not I know we'd all love a little peek under the mask that is the mighty Wheelchair. :) Rumor has it that, like the great and powerful Oz, there are computers involved. Is it true that you're actually a 'droid? Come to think of it, R2D2 had wheels. Hm. I'll anxiously await the reveal, unless, like the rock group Kiss, you feel your powers will be greatly diminished without your disguise. Another thought just occured to me: perhaps you're in the witness protection program after turning snitch on the seedy underside of the Medicare fraud industry. That WOULD explain a lot. Or maybe you're a pro wrestler? Don.
Re: [QUAD-L] Unmasking Wheelchair
Amazing assest and great friend!! LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net Date: Fri, 7 Sep 2012 14:50:11 To: quad-list@eskimo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I figure he either has a child thats a quad or is involved in the medical community, maybe both. He always takes the doctors side of things. In any case hes an asset to the list and Im glad hes here. Ron c7 From: ~LittleQuad~ littleq...@yahoo.com To: Don Price donpric...@yahoo.com; wheelch...@aol.com wheelch...@aol.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Fri, September 7, 2012 4:28:20 PM Subject: Re: [QUAD-L] Unmasking Wheelchair I KNOW! I KNOW! but not tellingthat's W's choice ~LittleQuad~ From: Don Price donpric...@yahoo.com To: wheelch...@aol.com wheelch...@aol.com; diannal...@aol.com diannal...@aol.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Friday, September 7, 2012 2:59 PM Subject: [QUAD-L] Unmasking Wheelchair Wheelchair, She has a good point: how, exactly, do you know so much about wheelchairs (and related)?! Do you, or did you, work in the industry? I know I've been impressed with your encyclopedic knowledge on this list, but I don't remember any personal information from you, including your name. I may have simply missed or forgotten this info, but if not I know we'd all love a little peek under the mask that is the mighty Wheelchair. :) Rumor has it that, like the great and powerful Oz, there are computers involved. Is it true that you're actually a 'droid? Come to think of it, R2D2 had wheels. Hm. I'll anxiously await the reveal, unless, like the rock group Kiss, you feel your powers will be greatly diminished without your disguise. Another thought just occured to me: perhaps you're in the witness protection program after turning snitch on the seedy underside of the Medicare fraud industry. That WOULD explain a lot. Or maybe you're a pro wrestler? Don.
Re: [QUAD-L] Unmasking Wheelchair
I don't think you could hurt him that!! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Don Price donpric...@yahoo.com Date: Fri, 7 Sep 2012 16:13:07 To: littleq...@yahoo.comlittleq...@yahoo.com; Quad-list postquad-list@eskimo.com Reply-To: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] Unmasking Wheelchair I agree. Wheelchair is an amazing asset to this group. I hope my email did not upset. I meant it in a playful way. I completely respect anyone's desire to remain anonymous here. Don.
Re: [QUAD-L] 46 years post SCI
I second that! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Bobbie Humphreys bobbie...@aol.com Date: Fri, 7 Sep 2012 20:27:59 To: gah17...@aol.comgah17...@aol.com Cc: quad-list@eskimo.comquad-list@eskimo.com Subject: Re: [QUAD-L] 46 years post SCI Glenn, I believe your an oldie but goodie. I think you deserve a medal! Bobbie Sent from my iPad On Sep 7, 2012, at 6:23 PM, gah17...@aol.com wrote: 63 years old, feel 110 today. Glenn Henry
Re: [QUAD-L] Wheelchair supplier problems. ~ HELP ~
Just the fact that they hollered at ya'll and used the F word is enough to drop them and file complaint with BBB. Call around, someone will most likely be able to fix chair. That's unacceptable!!! Amy ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Bobbie Humphreys bobbie...@aol.com Date: Sat, 1 Sep 2012 16:17:25 To: Quad-list@eskimo.comquad-list@eskimo.com Subject: [QUAD-L] Wheelchair supplier problems. ~ HELP ~ Quad Squad Help! I'm having problems with my potentiometer, it turns on even when I'm not tilting or reclining. So I went to CMC, the company I got my chair from 8 years ago but been having a lot of problems with them the last 12 or more years, so I'm seriously considering switching suppliers. Before I go on , last Thursday I went to Kessler to their wheelchair clinic to get fitted for a new chair by a different supplier, Wilpage. Standing right next to me was Eahn, a rep from CMC. Yesterday Pete and I dropped in on CMC (their only 5 miles away and don't mind drop-in's) to get my potentiometer adjusted/fixed, a repair man was working on my chair when a voice called him away. CMC is run by a husband and wife team. Patti, the wife, came storming out from the back without the repair man and began YELLING at me and Pete about how they are not going to fix my chair because she heard I was ordering a chair from another supplier. I told her I hadn't quite decided which supplier I was going to use and was going through the possess to gather information. And I reminded her that I HAD a sales rep from CMC, her company, at my home 3 months before and I had questions but the sales rep never got back to to date. Patti asked why I was considering using another supplier Pete (my husband) said communication I told her that an employe, Dana, NEVER returns my calls or follows through on a RX or repair request. Patti said OH, we got rid of her because we have been getting a lot of complaints about her. Patti went in the back (we heard F this and F that) when she returned she said she had just gotten off the phone with Kessler and yes it was true that I was on a fact finding mission and that she was now SO VERY SORRY. Yes, of course we will fix the potentiometer, will'll even do it for free if you order your chair from us. THEN Patti disappeared again in the back room and reappeared with Dana the employee that she JUST said they had let go we just moved her to another desk she now says, you will never deal with her again, and then Dana apologized. Now Patti is begging and pleading with us not to go to another supplier when Carlos, her husband, appears YELLING at Pete and me about how we should have written a letter to them explaining the communication problem. Why are the husband and wife, Patti Carlos, yelling at us of hey was us to stay with them? We leave not promising anything We need to think about all of this. me and Pete say … which is very true. As soon as we went directly home, which took 10 minutes, the phone rang and it was the sales rep apologizing, never asking why I was trying to get a hold of him for 3 months. The next day I decided to find put how much this part will cost out-of-pocket instead of waiting 10 to 14 days, $325 is all. So I want to pay and get reimbursed because I have an appointment at wheelchair clinic again September 13th and I'm most likely NOT going to use CMC with whom I've gotten my last chair from. BUT the supplier I'm going to go with Wilpage, I've NEVER delt with before. But a quad up-stairs, SCI, has used them for years and years and she LOVES them. Wilpage comes to her place to do repairs and is very good at returning phone calls … communication. One more thing. I still am not sure who will repair the chair I'm sitting in now until I get my new chair, which can take 6 to 7 months after ordering. What do I do? Bobbie Sent from my iPad
Re: [QUAD-L] Re: [quad] list. Being a quad
that's a little offensive..statement and language :/ ~LittleQuad~ From: Bobbie Humphreys bobbie...@aol.com To: Larry Willis lwillis82...@msn.com Cc: quad-list@eskimo.com quad-list@eskimo.com Sent: Saturday, August 25, 2012 2:46 PM Subject: Re: [QUAD-L] Re: [quad] list. Being a quad Fuck the shit It could be worse crap! As long as there are quads living in this world .… then that is PROOF that there in NO FUCKING god Sent from my iPad On Aug 25, 2012, at 10:54 AM, Larry Willis lwillis82...@msn.com wrote: The old adage that It could be worse is so very true. However, that doesn't mean we shouldn't grieve our loss or vent our frustrations. All of us on the list drew the short straw and I imagine all of us get mad as hell over the unfairness of it all. I appreciate the little movement I have but I don't feel blessed because some other poor soul is in worse shape. Quadom is a bit of hell that simply varies in degree. I wouldn't wish it on my worst enemy (if I had one). Thanks, my friends, for letting me rant. Have a great day. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Joan Anglin poaj...@sbcglobal.net Date: August 25, 2012 12:10:30 AM EDT To: 'Toby Ausbun' toby.aus...@yahoo.com, quad-list@eskimo.com Subject: RE: [QUAD-L] Re: [quad] list. Being a quad Hi Toby I didn’t take it as complaining but more as a statement of fact and wishing for more. We have been talking about our limitations and frustrations for many years for some of us on this list. I only have shoulder shrugs as a C4 complete, but do know of other C4 completes that have more. So we use what we can and learn to make do and have shared many unusual fixes and adaptions over the years which have helped each other. This is one place we can whine and know that somebody out there has been in the same spot and can have some empathy for what we have and what we have lost. I have always wished for one arm and a somewhat working hand, and to heck with ever walking again because I never need to look for a chair to sit in. JEach of us wants different things, and each of us mourns about different things but we’re all united by our handicaps in some way. Thank goodness for each of our uniqueness. Good to see you on the list. Joan C4 1990 in smoky Reno Nevada due to the California fires
Re: [QUAD-L] Amitiza
yes it is new i'm on methanam hipparex* to prevent uti's i don't have a blockage just very difficult digestive system ~LittleQuad~ From: daa...@aol.com daa...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Monday, August 20, 2012 1:08 AM Subject: Re: [QUAD-L] Amitiza Hi Amy, I have never heard of this. Is this something new on the market? I noticed when reading about that it is not to be taken if you think you have a bowel blockage. I guess you wouldn't know unless you had an x-ray because sometimes it's hard to tell, as I have had several. I usually use the MiraLax and I also use the prune juice and milk of magnesium if I fear a blockage. While I was at KU and May I learned about an old remedy using a half a cup of molasses + I have a cup of milk and warming in the microwave for 30 seconds and using as a enema. It seems to really work if you appear to be having a bowel blockage. It is called the last resort. I just read about gastropresis and I had never heard of this. I'm glad they have a treatment for this. I just got out of the hospital with a UTI. They seem to always wanted treatment they IV. They will starting me on Mandelamine to prevent UTIs. Does anyone else on the list take this medication and how does it work for them. Dana In a message dated 8/19/2012 10:37:45 A.M. Central Daylight Time, littleq...@yahoo.com writes: I have gastropresis and I was having constipation problems. So my doctor prescribed Amitiza and it has helped a LOT. I also take a dulcolox stool softner everyday. Right now I'm on antibiotics for a UTI so I'm doubling up on the Amitiza and dulcolox. I've noticed drinking water all day long helps. Amye ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Amitiza
I have gastropresis and I was having constipation problems. So my doctor prescribed Amitiza and it has helped a LOT. I also take a dulcolox stool softner everyday. Right now I'm on antibiotics for a UTI so I'm doubling up on the Amitiza and dulcolox. I've noticed drinking water all day long helps. Amye ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Stomach Exercises
Thanks! I've got pretty toned arms. Just need work on tummy. Last few months it looks like I've put on weight in tummy area. Doesn't make me happy! Haha Amye ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Lissette Whitehead lissw...@hotmail.com Date: Sat, 11 Aug 2012 21:25:23 To: moo_on_whe...@yahoo.com; littleq...@yahoo.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Stomach Exercises I do the same as Mandy, in my bed as well as in my chair. If your chair tilts, it's easy to find the right angle, you can play with the tilt and see how far back you can go where you're still able to crunch forward, you can do the same with a hospital bed, I just do as many as I can, I don't always count them. Always try to think about sucking in your belly while doing them, even if you can't it helps just to think about it. I also do some a bit sideways, but don't do it if you have no trunk control at all unless someone is there to spot you. These have gotten a lot easier for me with time. I've also been working out my arms by tilting my chair back and crunching myself up but using my arms, I just hold on to the arm rests and do like bicep curls, my arms are getting pretty toned now. I recommend that too! Try it! Lissette Whitehead 1177 Broadway Ste. 18, apt. 127 Chula Vista, CA 91911 www.lwgripgloves.com Date: Sat, 11 Aug 2012 17:09:17 -0700 From: moo_on_whe...@yahoo.com Subject: Re: [QUAD-L] Stomach Exercises To: littleq...@yahoo.com; quad-list@eskimo.com I do- if you have a bed that raises and lowers the head you can sit at an incline and try to pull yourself up and lower slowly. My PT told me to find an incline that works where you can do 12-15 and do 2 or 3 sets every 3 days to strt. If it doesn't cause any negative symptoms to flare up you can either do more reps, decrease the incline, or do more days per week. I like to do these with help to keep me in line and focused. It takes a lot of concentration to hit the correct muscles rather than cheating with my arms/shoulders and possibly straining something without knowing it. Best, Mandy c5-7From: ~LittleQuad~ littleq...@yahoo.com To: Quad-list post quad-list@eskimo.com Sent: Saturday, August 11, 2012 4:45 PM Subject: [QUAD-L] Stomach Exercises Does anyone do any? If so what and how? ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Stomach Exercises
Does anyone do any? If so what and how? ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] quadriciser
I saw this at the abilities expo in houstoni really want one anyone else have one or used one? http://www.quadriciser.com/ ~LittleQuad~
Re: [QUAD-L] quadriciser
It was amazing to watch!!! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Daniel Espinoza da...@immortaldesigns.co Date: Wed, 8 Aug 2012 11:26:18 To: '~LittleQuad~'littleq...@yahoo.com; 'Quad-list post'quad-list@eskimo.com Reply-To: da...@immortaldesigns.co Subject: RE: [QUAD-L] quadriciser Wow cool! :D I've never seen or used one but I've used other stuff at the Craig gym. nothing like this though. Danny From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Wednesday, August 08, 2012 11:13 AM To: Quad-list post Subject: [QUAD-L] quadriciser I saw this at the abilities expo in houstoni really want one anyone else have one or used one? http://www.quadriciser.com/ ~LittleQuad~
Re: [QUAD-L] Injury Anniversary
I always celebrate with family going to eat or something! I'm happy to be alive and be able to do what I do!! Of course any reason to celebrate Amye ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Don Price donpric...@yahoo.com Date: Sun, 5 Aug 2012 19:02:50 To: quadlistquad-list@eskimo.com Reply-To: Don Price donpric...@yahoo.com Subject: [QUAD-L] Injury Anniversary Next week will mark the 30th anniversary of my spinal cord injury. I've never really 'celebrated' or recognized the date each year--in fact, I had to ask my parents what day it happened. I'm just curious how some of you commemorate your accident date, or if you prefer to forget it. I'm remembering mine because it's also my 30th high school reunion. Don. C5-6 Tempe, AZ
Re: [QUAD-L] Injury Anniversary
I think so!! I also have a 14 year old son I enjoy living to see grow up!!! LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: jume9...@comcast.net Date: Mon, 6 Aug 2012 15:38:00 To: quad-list@eskimo.com Subject: Re: [QUAD-L] Injury Anniversary Hi all, I'm sorry for those of you who feel bad on your anniversary. I acknowledge mine (31 yrs June 20) but I try not to dwell on it. What is the alternative? It gets better with time, don't you think? Meredith Tomorrow is my 41st anniversary. Diving accident. I tend to replay the day With a lot of what if's and if only's. I also tend to ruminate on what my life might have been had that day turned out differently. In my younger days, my mom would bake a cake for me. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Don Price donpric...@yahoo.com Date: August 5, 2012 10:02:50 PM EDT To: quadlist quad-list@eskimo.com Subject: [QUAD-L] Injury Anniversary Reply-To: Don Price donpric...@yahoo.com blockquote Next week will mark the 30th anniversary of my spinal cord injury. I've never really 'celebrated' or recognized the date each year--in fact, I had to ask my parents what day it happened. I'm just curious how some of you commemorate your accident date, or if you prefer to forget it. I'm remembering mine because it's also my 30th high school reunion. Don. C5-6 Tempe, AZ /blockquote
Re: [QUAD-L] sore
Keep all pressure off of it at night. Put little pads where it won't be on bed. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Eric W Rudd c5sc...@gmail.com Date: Sat, 28 Jul 2012 23:39:19 To: quad-list@eskimo.com Subject: Re: [QUAD-L] sore find the source relieve it Eric W Rudd c5sc...@gmail.com From: Patrick Kenneally Sent: Saturday, July 28, 2012 6:24 PM To: quad-list@eskimo.com ; ppac...@comcast.net Subject: Re: [QUAD-L] sore Hi Paul, I had one last year and kept it elevated during sleep. Irrigated it with saline between showers. I used Bacitracin one day and Dermawound the next. I also keep it elevated since at night as a precaution. Patrick C6-7 22yrs --- On Sat, 7/28/12, ppac...@comcast.net ppac...@comcast.net wrote: From: ppac...@comcast.net ppac...@comcast.net Subject: [QUAD-L] sore To: quad-list@eskimo.com Date: Saturday, July 28, 2012, 2:25 PM Hi Everyone, I just had a small pressure sore open up on my right ankle.I would like to ask you all which is your first line of defense when this happens? Thank you! Paul
Re: [QUAD-L] Coumadin - Purple Toe Syndrome
Yes ma'am. Very dangerous and serious. I'm talking to my docs on Thurs and Fri. Plus I'm having some discoloration on left hand. I'm not real happy. Amye. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: nichole rohling zoocr...@windstream.net Date: Tue, 24 Jul 2012 19:45:35 To: littleq...@yahoo.com; Quad-List@Eskimo. Comquad-list@eskimo.com Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome my feet have turned purple on occasion but had no idea it could be related!! -Original Message- From: Daniel Espinoza [mailto:da...@immortaldesigns.co] Sent: Tuesday, July 24, 2012 3:33 PM To: littleq...@yahoo.com; 'Quad-list post' Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome Sorry I haven't -Danny -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Tuesday, July 24, 2012 8:29 AM To: Quad-list post Subject: [QUAD-L] Coumadin - Purple Toe Syndrome Have any of you that take Coumadin ever had the symptoms of Purple Toe syndrome?? I'm experiencing it badly. Have Dr. appointment Thursday and going to discuss it with her. I'm getting concerned... Amye ~ LQ ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Cell phones
I don't use a bag. We intermittenly cath. Even with all my meds I wake up and can't go back to sleep. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: John S. alcibiat...@yahoo.com Date: Tue, 24 Jul 2012 20:17:40 To: quad-list@eskimo.com Reply-To: John S. alcibiat...@yahoo.com Cc: Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Cell phones At 2 am, I sleep! I use a 7yld cassio it functions and its almost impossible to harm. Verizon. Sisters family plan. 10.00 a month. A diaper could work. What about hooking your cath to a bed beg and taping iy yo you're inner thigh? Just my ideas. Nitey nite. john From: ~LittleQuad~ littleq...@yahoo.com To: Don Price donpric...@yahoo.com; da...@immortaldesigns.co da...@immortaldesigns.co Cc: Quad-list post quad-list@eskimo.com Sent: Tuesday, July 24, 2012 10:24 AM Subject: Re: [QUAD-L] Cell phones My issue is when phone locks out. I can't hit the button at night laying down to turn it on, slide it to unlock then find the # of who I want to call at 2am to cath. How do you deal with that LQ ~LittleQuad~ Sent from my BlackBerry From: Don Price donpric...@yahoo.com Date: Mon, 23 Jul 2012 18:46:08 -0700 (PDT) To: littleq...@yahoo.comlittleq...@yahoo.com; da...@immortaldesigns.coda...@immortaldesigns.co ReplyTo: Don Price donpric...@yahoo.com Cc: Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Cell phones I have an LG Droid through Virgin Mobile. It has both a touch-screen and a slide-out keyboard. Now that I'm used to the touchscreen I never use the keyboard anymore. The voice-to-text feature works pretty well but I type with my thumb for most applications. My phone is nothing spectacular, but the BEST FEATURE is this: $30/month! That includes 300 minutes and unlimited data AND insurance. Can't beat that deal! Virgin's coverage area is not as extensive as the big names, but if you live in a city you might want to look into Virgin Mobile. Don. From: ~LittleQuad~ littleq...@yahoo.com To: da...@immortaldesigns.co Cc: Quad-list post quad-list@eskimo.com Sent: Monday, July 23, 2012 1:13 PM Subject: Re: [QUAD-L] Cell phones When it goes off how do u turn it back on with no finger dexterity? I need to use my phone at night and I can't hit that button. LQ --Original Message-- From: Daniel Espinoza To: littleq...@yahoo.com To: Quad-list post ReplyTo: da...@immortaldesigns.co Subject: RE: [QUAD-L] Cell phones Sent: Jul 23, 2012 1:46 PM Right now I've got a Droid-x but I plan on getting an iphone 5 with Siri -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Monday, July 23, 2012 10:46 AM To: Quad-list post Subject: [QUAD-L] Cell phones What kind do ya'll use? Issues/dislikes with them? I use a Blackberry and LOVE it but seems company may end up belly up :( So I may have to find new kind in September when my contract runs out, sigh. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Coumadin - Purple Toe Syndrome
I got sunburned too Nicole. But the burn is gone. My toes are not changing colors. Plus my hand too. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: nichole rohling zoocr...@windstream.net Date: Wed, 25 Jul 2012 10:53:34 To: littleq...@yahoo.com; Quad-List@Eskimo. Comquad-list@eskimo.com Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome my discoloration has been after I've gotten my feet sunburned. please let us know what you find out. -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Wednesday, July 25, 2012 9:24 AM To: nichole rohling; Quad-list post Subject: Re: [QUAD-L] Coumadin - Purple Toe Syndrome Yes ma'am. Very dangerous and serious. I'm talking to my docs on Thurs and Fri. Plus I'm having some discoloration on left hand. I'm not real happy. Amye. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: nichole rohling zoocr...@windstream.net Date: Tue, 24 Jul 2012 19:45:35 To: littleq...@yahoo.com; Quad-List@Eskimo. Comquad-list@eskimo.com Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome my feet have turned purple on occasion but had no idea it could be related!! -Original Message- From: Daniel Espinoza [mailto:da...@immortaldesigns.co] Sent: Tuesday, July 24, 2012 3:33 PM To: littleq...@yahoo.com; 'Quad-list post' Subject: RE: [QUAD-L] Coumadin - Purple Toe Syndrome Sorry I haven't -Danny -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Tuesday, July 24, 2012 8:29 AM To: Quad-list post Subject: [QUAD-L] Coumadin - Purple Toe Syndrome Have any of you that take Coumadin ever had the symptoms of Purple Toe syndrome?? I'm experiencing it badly. Have Dr. appointment Thursday and going to discuss it with her. I'm getting concerned... Amye ~ LQ ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] lack of energy
Drinking a Boost nutrional drink or daily vitamins may help! Amy aka LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Quadius quad...@gmail.com Date: Wed, 25 Jul 2012 17:50:33 To: robqua...@aol.com Cc: quad-list@eskimo.com\quad-list@eskimo.com Subject: Re: [QUAD-L] lack of energy You mentioned your bowels. Well, the method used to do your bowel treatment can leave quite a bit of stool in the bowels, because it doesn't irritate the bowels like the magic bullet. What you describe is pretty much what happened to me a couple of weeks ago. They couldn't figure out what was wrong. They thought I had an infection, but that didn't pan out. When I went home later that night, I did my normal bowel care. I knew I felt bloated and I mentioned that to the doctor, but they didn't seem to think it was a problem. Well, my bowels were definitely fall. In fact, I had started to have some stool come out of my rectum, which hasn't happened to me in more than 10 years. Once my bowel care was completed, I felt like eating, I was no longer nauseated and I had energy. I'm not suggesting you change your bowel care method, but I would think about using more stool softener in order to try to expel as much fecal matter as possible during your normal bowel care. Just FYI. Quadius PS I sometimes don't have energy and it is that I'm feeling down. I have, however, had pretty good results with drinking quite a bit of green tea. I usually make it like Ice-T, without sugar and it seems to give me the extra incentive to do more than I would without it. That's what works for me. On Wed, Jul 25, 2012 at 4:26 PM, robqua...@aol.com wrote: Thanks for the reply. I recently had my doc check thyroid and testosterone levels. Testosterone was 400 something(I'm 26) and thyroid was dead center in normal range. I know that testosterone in the 400s is slightly low, but well within the normal range I believe. I'm sure it is a combination of things and I'm confident diet is one of them, but I've slowly been eating better for several months with very little improvement. Drinking juices, gatorade or anything with caffeine gives me a quick boost, but very short lived(as expected). On Wed, Jul 25, 2012 at 3:57 PM, Don Price donpric...@yahoo.com wrote: Robbie, The symptoms you describe could be a lot of things or even a combination of things: -low testosterone -thyroid problems -onset of diabetes -poor nutrition -low blood pressure -infection etc., etc. Have your Dr give you a full physical, including blood work. Don. c5/6 From: robqua...@aol.com robqua...@aol.com To: quad-list@eskimo.com Sent: Wednesday, July 25, 2012 12:05 PM Subject: [QUAD-L] lack of energy Do any of you guys struggle with being tired/weak all the time? Over the last few years it's gotten pretty bad where sometimes I can barely move(what movement I actually have). I think it's in large part due to diet. I don't get hungry very often so I usually end up forgetting/skipping lunch. I've been thinking about trying meal replacement bars(easier than shakes and don't have to be very hungry to get one down) and was wondering if you guys might have some suggestions? Also another possible cause I thought of was slow bowels. I do a bowel program every other night using enemeez and take miralax as needed, but every time I get a KUB(get kidney stones regularly) they point out that my bowels are full even if a did a bowel program the night before. The only time I feel like I'm starving is after a massive blowout(definitely not worth it). Dehydration could also be a cause, because some morning and early afternoons my kidneys are in overdrive. This lack of energy definitely hinders me and I'm open to suggestions. Thanks, Robbie very incomplete C2
Re: [QUAD-L] Cell phones
I have people in the house but the rooms aren't close or I can't yell loud enough. But I don't want to do that because my 14 year old's room is next to mine. Thanks for everyone's advice. I'll just wait until Sept. and see what is available. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Joan Anglin poaj...@sbcglobal.net Date: Wed, 25 Jul 2012 15:11:32 To: 'John S.'alcibiat...@yahoo.com; 'Quad-list post'quad-list@eskimo.com Subject: RE: [QUAD-L] Cell phones Intermittent catherization is not only for people who can do it themselves. I am a complete C4 and I used intermittent catherization for 17 years. I was lucky enough to be able to go 6-8 hours at night, but I was able to call someone in the house if I did have a problem. According to the urologist it made a world of difference in my bladder and kidney functions. After 17 years my bladder was still within the normal shape, size, and functionality of other women of my age. I still do not use a balloon catheter, and we make sure that I have a break of a couple of hours every morning and up to 3 hours every evening with the catheter clamped off to allow my bladder to function somewhat normally. I began using a night bag during the night when it was not possible to have somebody available in my home. I usually have it in for 9 plus hours. During the day I also use a leg bag just to have the freedom to be active without worrying about finding a place to cath. It has worked for me and I have had very few UTIs over the years and my urologist feels that it is partly due to intermittent catherization and not having a indwelling catheter for all these years. Whatever works for you is what you should do as we are each so very different. Joan From: John S. [mailto:alcibiat...@yahoo.com] Sent: Wednesday, July 25, 2012 1:51 PM To: Quad-list post Subject: Re: [QUAD-L] Cell phones thats why I said tape them in place. Consider it a long intermittent cath. If you can't cath yourself, your Dr. is a dingaling. Ask them to show you how you can do it? Intermittent cath is for people who can do it. If you really want to continue it, take enough ditropan to paralyze your bladder. It is all I can think of LQ. Best wishes, john From: ~LittleQuad~ littleq...@yahoo.com To: John S. alcibiat...@yahoo.com; Quad-list post quad-list@eskimo.com Sent: Wednesday, July 25, 2012 12:12 PM Subject: Re: [QUAD-L] Cell phones I don't use a bag. We intermittenly cath. Even with all my meds I wake up and can't go back to sleep. LQ ~LittleQuad~ Sent from my BlackBerry From: John S. alcibiat...@yahoo.com Date: Tue, 24 Jul 2012 20:17:40 -0700 (PDT) To: quad-list@eskimo.com ReplyTo: John S. alcibiat...@yahoo.com Cc: Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Cell phones At 2 am, I sleep! I use a 7yld cassio it functions and its almost impossible to harm. Verizon. Sisters family plan. 10.00 a month. A diaper could work. What about hooking your cath to a bed beg and taping iy yo you're inner thigh? Just my ideas. Nitey nite. john From: ~LittleQuad~ littleq...@yahoo.com To: Don Price donpric...@yahoo.com; da...@immortaldesigns.co da...@immortaldesigns.co Cc: Quad-list post quad-list@eskimo.com Sent: Tuesday, July 24, 2012 10:24 AM Subject: Re: [QUAD-L] Cell phones My issue is when phone locks out. I can't hit the button at night laying down to turn it on, slide it to unlock then find the # of who I want to call at 2am to cath. How do you deal with that LQ ~LittleQuad~ Sent from my BlackBerry From: Don Price donpric...@yahoo.com Date: Mon, 23 Jul 2012 18:46:08 -0700 (PDT) To: littleq...@yahoo.com mailto:littleq...@yahoo.com%3clittleq...@yahoo.com littleq...@yahoo.com; da...@immortaldesigns.co mailto:da...@immortaldesigns.co%3cda...@immortaldesigns.co da...@immortaldesigns.co ReplyTo: Don Price donpric...@yahoo.com Cc: Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Cell phones I have an LG Droid through Virgin Mobile. It has both a touch-screen and a slide-out keyboard. Now that I'm used to the touchscreen I never use the keyboard anymore. The voice-to-text feature works pretty well but I type with my thumb for most applications. My phone is nothing spectacular, but the BEST FEATURE is this: $30/month! That includes 300 minutes and unlimited data AND insurance. Can't beat that deal! Virgin's coverage area is not as extensive as the big names, but if you live in a city you might want to look into Virgin Mobile. Don. From: ~LittleQuad~ littleq...@yahoo.com To: da...@immortaldesigns.co Cc: Quad-list post quad-list@eskimo.com Sent: Monday, July 23, 2012 1:13 PM Subject: Re: [QUAD-L] Cell phones When it goes off how do u turn it back on with no finger dexterity? I need to use my phone at night and I can't hit that button. LQ --Original Message-- From: Daniel Espinoza To: littleq...@yahoo.com To: Quad-list post ReplyTo: da
Re: [QUAD-L] Cell phones
My issue is when phone locks out. I can't hit the button at night laying down to turn it on, slide it to unlock then find the # of who I want to call at 2am to cath. How do you deal with that LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Don Price donpric...@yahoo.com Date: Mon, 23 Jul 2012 18:46:08 To: littleq...@yahoo.comlittleq...@yahoo.com; da...@immortaldesigns.coda...@immortaldesigns.co Reply-To: Don Price donpric...@yahoo.com Cc: Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Cell phones I have an LG Droid through Virgin Mobile. It has both a touch-screen and a slide-out keyboard. Now that I'm used to the touchscreen I never use the keyboard anymore. The voice-to-text feature works pretty well but I type with my thumb for most applications. My phone is nothing spectacular, but the BEST FEATURE is this: $30/month! That includes 300 minutes and unlimited data AND insurance. Can't beat that deal! Virgin's coverage area is not as extensive as the big names, but if you live in a city you might want to look into Virgin Mobile. Don. From: ~LittleQuad~ littleq...@yahoo.com To: da...@immortaldesigns.co Cc: Quad-list post quad-list@eskimo.com Sent: Monday, July 23, 2012 1:13 PM Subject: Re: [QUAD-L] Cell phones When it goes off how do u turn it back on with no finger dexterity? I need to use my phone at night and I can't hit that button. LQ --Original Message-- From: Daniel Espinoza To: littleq...@yahoo.com To: Quad-list post ReplyTo: da...@immortaldesigns.co Subject: RE: [QUAD-L] Cell phones Sent: Jul 23, 2012 1:46 PM Right now I've got a Droid-x but I plan on getting an iphone 5 with Siri -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Monday, July 23, 2012 10:46 AM To: Quad-list post Subject: [QUAD-L] Cell phones What kind do ya'll use? Issues/dislikes with them? I use a Blackberry and LOVE it but seems company may end up belly up :( So I may have to find new kind in September when my contract runs out, sigh. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Coumadin - Purple Toe Syndrome
Have any of you that take Coumadin ever had the symptoms of Purple Toe syndrome?? I'm experiencing it badly. Have Dr. appointment Thursday and going to discuss it with her. I'm getting concerned... Amye ~ LQ ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Cell phones
What kind do ya'll use? Issues/dislikes with them? I use a Blackberry and LOVE it but seems company may end up belly up :( So I may have to find new kind in September when my contract runs out, sigh. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Cell phones
When it goes off how do u turn it back on with no finger dexterity? I need to use my phone at night and I can't hit that button. LQ --Original Message-- From: Daniel Espinoza To: littleq...@yahoo.com To: Quad-list post ReplyTo: da...@immortaldesigns.co Subject: RE: [QUAD-L] Cell phones Sent: Jul 23, 2012 1:46 PM Right now I've got a Droid-x but I plan on getting an iphone 5 with Siri -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Monday, July 23, 2012 10:46 AM To: Quad-list post Subject: [QUAD-L] Cell phones What kind do ya'll use? Issues/dislikes with them? I use a Blackberry and LOVE it but seems company may end up belly up :( So I may have to find new kind in September when my contract runs out, sigh. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] UTIs and multivitamins?
Too many vitamins can also cause yeast infections in women AND men! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Thu, 19 Jul 2012 13:22:28 To: bmatt...@earthlink.net; quad-list@eskimo.com Subject: Re: [QUAD-L] UTIs and multivitamins? Yes I have, maybe a different reason. Too many vitamins and the body stops making its own natural vitamins. Some Vits contain more then the daily requirement and more doesn't equate into better. Best Wishes In a message dated 7/19/2012 12:17:38 P.M. Central Daylight Time, bmatt...@earthlink.net writes: My urologist just told me to stop taking a daily multivitamin because it could be contributing to frequent UTIs. Anybody ever heard of this before? __ Ben Mattlin _www.BenMattlin.com_ (mip://08994d98/www.BenMattlin.com) www.MiracleBoyGrowsUp.com
Re: [QUAD-L] New to list
LOL ask Wheelchair!! ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Bobbie Humphreys bobbie...@aol.com Date: Thu, 19 Jul 2012 14:40:49 To: jume9...@comcast.netjume9...@comcast.net Cc: quad-list@eskimo.comquad-list@eskimo.com Subject: Re: [QUAD-L] New to list Hi Meredith, Welcome back! I'm Bobbie C-4,5,6,7 39 years post motor cross accident living in Northern New Jersey 25 miles from NYC living with my S/O and full-time 24/7 HHA/PSA Sweet Pete. What is the P.I.E. System? Sent from my iPad On Jul 19, 2012, at 11:27 AM, jume9...@comcast.net wrote: Hi everyone, I was on this list about 15 yrs ago, but got off due to work, now I'm unemployed. I'm a c-5/6 quad of 31 yrs.Just wanted to say Hi. Also, I have a question. Does anyone here use the P.I.E. system? Meredith
Re: [QUAD-L] PCA Duties and Responsibilities
my caseworker and i collaborated on it and came up with this the person will start at $8.50 hr ~LittleQuad~ From: wheelch...@aol.com wheelch...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Sunday, July 15, 2012 9:52 AM Subject: Re: [QUAD-L] PCA Duties and Responsibilities Hiya Little Quad, What is the difference between an agreement and a contract? Just how binding would your understanding be if they were actually challenged? The Home Healthcare Industry is one of the fastest growing industries in our country as they seek employees to perform some or most of those duties you listed. And yet, even with those understandings, agreements and contracts, they continue to find themselves before the government by unhappy employees who feel their employers, went too far. I've seen several employee contracts that are 5-10 pages listing what is expected of those who work for various Health Care Agencies. When issues becomes intolerable for either party... everyone begins to read between the lines. Private party caregivers can be more involved then agency, and how does one know when they have crossed the line? Will both parties agree to binding arbitration should there be issues? Often, what begins as a molehill, can develop into mountains. Hence, what I consider to be normal and reasonable here, might be totally unacceptable in California. Just how enforceable would your written understanding be? How many documented strikes would be required before dismissal? Its tough to be an employer these days as the deck of cards are stacked against YOU. If your private work rules are tougher then the industry... you are going to have a difficult finding employees. If your work rules are too lax... then you will find ample aids, waiting to take advantage of your lack of knowledge. Its not easy and I wish you a load of Luck and Good Fortune! Best Wishes In a message dated 7/14/2012 12:39:38 P.M. Central Daylight Time, littleq...@yahoo.com writes: Would ya'll mind reading my list and letting me know if i should make any changes? Thanks, LQ ~LittleQuad~ PCA Duties and Responsibilities.docx Description: application/vnd.openxmlformats-officedocument.wordprocessingml.document
Re: [QUAD-L] PCA Duties and Responsibilities
Yes thanks Danny. I also know how dependent on this job she is. Which is why I haven't fired her and I'm trying to compromise by creating a list of duties. It is partially my fault for becoming too friendly. Thanks everyone for the advice. I will amend the phone rules slighty. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Danny Espinoza da...@immortaldesigns.co Date: Sat, 14 Jul 2012 17:46:24 To: ~LittleQuad~littleq...@yahoo.com Reply-To: da...@immortaldesigns.co Cc: Don Pricedonpric...@yahoo.com; Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] PCA Duties and Responsibilities X.X that sucks, sorry to hear that On 7/14/2012 5:37 PM, ~LittleQuad~ wrote: The ID is just in case we get stopped...or at pharmacywhen meds need get picked up my aide is 55 and her children are grown, except she has 21 yr old daughter who she texts all the time...she's trying to get job...broke and homeless... my aide is raising her 21month old son...he's with her husband all day... i pay for her lunch every day, which when i started i figured after 2 weeks she would take over. she makes $11 an hr/ 35 hrs week... i've been very relaxed the last 2 years but i got rid of one aide bcuz she was on phone 30hrs week... ~LittleQuad~ *From:* Don Price donpric...@yahoo.com *To:* ~LittleQuad~ littleq...@yahoo.com; Quad-list post quad-list@eskimo.com *Sent:* Saturday, July 14, 2012 5:53 PM *Subject:* Re: [QUAD-L] PCA Duties and Responsibilities It's your care. As Eric said, you have the right to ask for everything and anything you want/need. Whether you can find someone who agrees to those terms at the pay being offered is another story. If you're paying $100/hr you could get people to do anything, but if you're offering minimum wage it's another story. Most of your requests seemed reasonable except a few: -not sure why they'd need I.D. at ALL times. Maybe the first time you meet them or so, but after that requiring them to carry I.D. seems heavy-handed. Most likely they'll have I.D. with them anyhow. -not allowing them personal cell use seems a bit harsh, especially if they have children. You may be better saying limited personal cell use and give them a warning if they start to abuse the policy. -always wearing scrubs? Is there a need for this? Just asking. Remember, even though they're your employee they are still human beings. Set firm policies at first, but if you come across as overly controlling you may miss out on some good caregivers. Sometimes a bit of compromise goes a long way, as long as it's not taken advantage of. I wish you success in your search. Don. *From:* ~LittleQuad~ littleq...@yahoo.com *To:* Quad-list post quad-list@eskimo.com *Sent:* Saturday, July 14, 2012 10:38 AM *Subject:* [QUAD-L] PCA Duties and Responsibilities Would ya'll mind reading my list and letting me know if i should make any changes? Thanks, LQ ~LittleQuad~
[QUAD-L] PCA Duties and Responsibilities
Would ya'll mind reading my list and letting me know if i should make any changes? Thanks, LQ ~LittleQuad~ PCA Duties and Responsibilities.docx Description: application/vnd.openxmlformats-officedocument.wordprocessingml.document
Re: [QUAD-L] PCA Duties and Responsibilities
Well other jobs don't allow it. plus my current aide is driving me nuts with the phone, she's texting or walking out on me to talk without saying do u need anything before i go. while sitting in doctor office the other day he phone rane and she talked loudly for 10 minutes before doctor came in. and if she's on the phone in house and my phone rings she keeps yapping away... as far as scrubs, she isn't required...that was just precautionary for new hire, don't want short shorts tight shirts... well mine thinks she gets to sit in a chair in my room and watch tv...she doesn't like cleaning the rest of the house bcuz i'm not in their everyday, plus she thinks that my mom should do it. my mom works 40+ hours a week and gets up with me a night, as does my bf I know if i say anything she'll complain about it...so i'm making a list to have my caseworkers approve it and let them bring it to next meeting... this week. ~LittleQuad~ From: Danny Espinoza da...@immortaldesigns.co To: Don Price donpric...@yahoo.com Cc: quadlist quad-list@eskimo.com Sent: Saturday, July 14, 2012 6:43 PM Subject: Re: [QUAD-L] PCA Duties and Responsibilities I've had to talk with my caregivers about it a couple times... They spent time playing games and texting when there was plenty to do.. My rule is that they can as long as it doesn't interfere with work. They are both my age 29, the caregiver that does my showers doesn't have that problem but she only uses her phone to call her family I'm assuming when she's not busy. Danny http://www.facebook.com/DannyLNX On 7/14/2012 4:25 PM, Don Price wrote: Obviously the phone isn't to be used while the client is in the shower or during a transfer or other times when a fall is a potential. But why can't a caregiver check on their child while you're eating your cheerios? All I'm saying is be reasonable and use common sense. Don. From: KK mailto:kkba...@yahoo.com To: Don Price mailto:donpric...@yahoo.com; Ann Newman mailto:squirtbloss...@gmail.com; Bill McCartney mailto:hotwh...@optonline.net; Christina Rouse mailto:chris31...@msn.com; Christine Wolf mailto:browneyedgirl1...@sbcglobal.net; Elizabeth mailto:elizabet...@comcast.net; Ellen Mintzer mailto:emint...@wans.net; Ellie mailto:eom...@optonline.net; Joan Haino mailto:ha...@webtv.net; Kimberly mailto:iod...@cableone.net; mackm...@gmail.com Sent: Saturday, July 14, 2012 4:13 PM Subject: Re: [QUAD-L] PCA Duties and Responsibilities Phone use is important when they are supposed to be taking care of you, phone is out of the question. Who will be there if you fall when she is talking on the phone? In a normal work place it is put up with they aren't caring for anyone. The ID I don't understand. Are you talking about drivers license or agency ID papers? KK From: Don Price mailto:donpric...@yahoo.com To: ~LittleQuad~ mailto:littleq...@yahoo.com; Quad-list post mailto:quad-list@eskimo.com Sent: Sat, July 14, 2012 5:54:15 PM Subject: Re: [QUAD-L] PCA Duties and Responsibilities It's your care. As Eric said, you have the right to ask for everything and anything you want/need. Whether you can find someone who agrees to those terms at the pay being offered is another story. If you're paying $100/hr you could get people to do anything, but if you're offering minimum wage it's another story. Most of your requests seemed reasonable except a few: -not sure why they'd need I.D. at ALL times. Maybe the first time you meet them or so, but after that requiring them to carry I.D. seems heavy-handed. Most likely they'll have I.D. with them anyhow. -not allowing them personal cell use seems a bit harsh, especially if they have children. You may be better saying limited personal cell use and give them a warning if they start to abuse the policy. -always wearing scrubs? Is there a need for this? Just asking. Remember, even though they're your employee they are still human beings. Set firm policies at first, but if you come across as overly controlling you may miss out on some good caregivers. Sometimes a bit of compromise goes a long way, as long as it's not taken advantage of. I wish you success in your search. Don. From: ~LittleQuad~ mailto:littleq...@yahoo.com To: Quad-list post mailto:quad-list@eskimo.com Sent: Saturday, July 14, 2012 10:38 AM Subject: [QUAD-L] PCA Duties and Responsibilities Would ya'll mind reading my list and letting me know if i should make any changes? Thanks, LQ ~LittleQuad~
Re: [QUAD-L] PCA Duties and Responsibilities
The ID is just in case we get stopped...or at pharmacywhen meds need get picked up my aide is 55 and her children are grown, except she has 21 yr old daughter who she texts all the time...she's trying to get job...broke and homeless... my aide is raising her 21month old son...he's with her husband all day... i pay for her lunch every day, which when i started i figured after 2 weeks she would take over. she makes $11 an hr/ 35 hrs week... i've been very relaxed the last 2 years but i got rid of one aide bcuz she was on phone 30hrs week... ~LittleQuad~ From: Don Price donpric...@yahoo.com To: ~LittleQuad~ littleq...@yahoo.com; Quad-list post quad-list@eskimo.com Sent: Saturday, July 14, 2012 5:53 PM Subject: Re: [QUAD-L] PCA Duties and Responsibilities It's your care. As Eric said, you have the right to ask for everything and anything you want/need. Whether you can find someone who agrees to those terms at the pay being offered is another story. If you're paying $100/hr you could get people to do anything, but if you're offering minimum wage it's another story. Most of your requests seemed reasonable except a few: -not sure why they'd need I.D. at ALL times. Maybe the first time you meet them or so, but after that requiring them to carry I.D. seems heavy-handed. Most likely they'll have I.D. with them anyhow. -not allowing them personal cell use seems a bit harsh, especially if they have children. You may be better saying limited personal cell use and give them a warning if they start to abuse the policy. -always wearing scrubs? Is there a need for this? Just asking. Remember, even though they're your employee they are still human beings. Set firm policies at first, but if you come across as overly controlling you may miss out on some good caregivers. Sometimes a bit of compromise goes a long way, as long as it's not taken advantage of. I wish you success in your search. Don. From: ~LittleQuad~ littleq...@yahoo.com To: Quad-list post quad-list@eskimo.com Sent: Saturday, July 14, 2012 10:38 AM Subject: [QUAD-L] PCA Duties and Responsibilities Would ya'll mind reading my list and letting me know if i should make any changes? Thanks, LQ ~LittleQuad~
Re: [QUAD-L] Blood clot
Yes sir! I follow directions!!! LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 4 Jul 2012 17:50:11 To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot Great. It sounds like you are on top of this issue. Be sure to ask the doctor about the normal length of time it would/should/could take for the clot to disappear or if it will, in YOUR case. Best Wishes In a message dated 7/4/2012 1:32:05 P.M. Central Daylight Time, littleq...@yahoo.com writes: I just started the Cipro today. Doc did call and I gave them my symptoms. That's why it could wait. You told me to call Friday and I did!!! They are going to do quick check at labs tomorrow. Then decide about if need more indepth check. LQ ~LittleQuad~ Sent from my BlackBerry From: wheelch...@aol.com Date: Wed, 4 Jul 2012 14:09:37 -0400 (EDT) To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot And that is good. I'm surprised that you needed an appointment for the doctor. If it was truly serious, they doctor's office would/could/should have called you immediately and advised you. My guess is a non-serious reaction to the uti meds. Have you looked up the long sheet on the effects of Cipro? Be Safe Best Wishes In a message dated 7/4/2012 11:43:15 A.M. Central Daylight Time, littleq...@yahoo.com writes: I did W. I have an appointment next week. I'm just askibg ya'll opinion if you've dealt with it. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry From: wheelch...@aol.com Date: Wed, 4 Jul 2012 12:21:45 -0400 (EDT) To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot I'm truly surprised that you haven't contacted your primary and advised them of your symptoms issue. I offer the same advice to Mothers and their newborns. Call your doctor's office on the phone and leave a message like, This is LittleQuad our patient. You prescribed some meds for me and I'm taking those meds as described. I'm having this affect and not sure if its normal or creating other issues. Can You Advise. Now the ball is in your doctor's court and they have to respond to you. Its just that simple. Best Wishes In a message dated 7/3/2012 5:48:21 P.M. Central Daylight Time, littleq...@yahoo.com writes: How long does it take for blood clots to disappear? My foot and calf still swollen and I injured it May 7th and found out about it 3 half weeks ago. I was on Lovenox injections for a week plus Coumadin and my blood got too thin. Now I'm on Coumadin 3mg M-T and 5mg FSS. Also my toes are RED. Is that something bad? Only first knuckle down. Thanks LittleQuad ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Little quad blood clot
Well I'm on Cipro right now for a UTI. Do you think that'll help? Thanks ~LittleQuad~ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Larry Willis lwillis...@yahoo.com Date: Wed, 4 Jul 2012 10:08:03 To: quad-list@eskimo.com Subject: [QUAD-L] Little quad blood clot You could possibly have developed cellulitis in your foot/leg. It causes redness and swelling and is treated with antibiotics. Good luck. Sent from my iPad
Re: [QUAD-L] Blood clot
I did W. I have an appointment next week. I'm just askibg ya'll opinion if you've dealt with it. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 4 Jul 2012 12:21:45 To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot I'm truly surprised that you haven't contacted your primary and advised them of your symptoms issue. I offer the same advice to Mothers and their newborns. Call your doctor's office on the phone and leave a message like, This is LittleQuad our patient. You prescribed some meds for me and I'm taking those meds as described. I'm having this affect and not sure if its normal or creating other issues. Can You Advise. Now the ball is in your doctor's court and they have to respond to you. Its just that simple. Best Wishes In a message dated 7/3/2012 5:48:21 P.M. Central Daylight Time, littleq...@yahoo.com writes: How long does it take for blood clots to disappear? My foot and calf still swollen and I injured it May 7th and found out about it 3 half weeks ago. I was on Lovenox injections for a week plus Coumadin and my blood got too thin. Now I'm on Coumadin 3mg M-T and 5mg FSS. Also my toes are RED. Is that something bad? Only first knuckle down. Thanks LittleQuad ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Little quad blood clot
No lines or streak, but thanks for info on Cipro. I go for blood tests tomorrow. I'll be sure to mention it and ask what to do! I thought the swelling would go down rapidly. Wishful thinking. You know us younger generation we want it NOW!! I'm 32 and 13.5 yrs post SCI. Thanks again, LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Bob Vogel rhvsh...@pacbell.net Date: Wed, 4 Jul 2012 09:36:09 To: littleq...@yahoo.com Cc: Larry Willislwillis...@yahoo.com; Quad-list postquad-list@eskimo.com Subject: Re: [QUAD-L] Little quad blood clot Hi LittleQuad, A couple of things--I'm a T10 para, 27 years post--I've had two blood clots over the years, both in a vein in my right thigh. The first one slowly went away over a period of 4 months. The 2nd one never went away--it isn't a complete blockage but it never dissipated. My hematologist told me that usually, with coumadin (warfarin) a blood clot will dissipate within 3-6 months, but sometimes they don't at all. He also said it is important to be followed regularly in the acute stage and any additional swelling or redness should be seen right away. A BIG WORD OF CAUTION--Cipro increases the action of coumadin/warfarin meaning that taking the two together could make your blood too thin which can be very dangerous. I'm on a permanent low dose of warfarin and when I need to take Cipro for a UTI I have been instructed to lower the dose of coumadin/warfarin and go in for weekly blood draws to make sure my blood doesn't get too thin. Larry's suggestion was right on as well, you could have developed cellulitis. If the swelling gets worse, or if the redness starts to spread or streak (especially if the redness starts to spread or streak over a period of hours and or if you develop a fever) you should be seen in urgent care or the ER. I've also had cellulitis--anytime I have redness I take a magic marker and draw an area around the redness--usually it is on my toes or foot. If the redness spreads out or streaks I head to the ER. Hope this isn't the case. Bob On Jul 4, 2012, at 9:22 AM, ~LittleQuad~ wrote: Well I'm on Cipro right now for a UTI. Do you think that'll help? Thanks ~LittleQuad~ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Larry Willis lwillis...@yahoo.com Date: Wed, 4 Jul 2012 10:08:03 To: quad-list@eskimo.com Subject: [QUAD-L] Little quad blood clot You could possibly have developed cellulitis in your foot/leg. It causes redness and swelling and is treated with antibiotics. Good luck. Sent from my iPad
Re: [QUAD-L] Push Girls
Yes I did. My BF and I watch it weekly. I of course like Angela the best. I agree with Chelsea about not giving up on walking. I was appalled at Auti's atttude and disappointed in Mia too. Yes we're in wheelchairs and need to accept that but never lose hope or crush someone else's! I wish the US had the stem cell surgery that Angela had. I think I would benefit from it but I'm not going abroad! LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: Bobbie Humphreys bobbie...@aol.com Date: Mon, 2 Jul 2012 23:24:56 To: quad-list@eskimo.comquad-list@eskimo.com Subject: [QUAD-L] Push Girls Hi All, Monday night, 7/2/12 episode of Push Girls was the best to date. They talked a lot about stem cell therapy and all 5 to 6 girls expressed their views on the subject. I'm still looking forward to seeing some guys, para's and quad's, on the show at some time OR their own show. Did anybody else see it, what did you think? Bobbie Sent from my iPad
Re: [QUAD-L] Blood clot
I just started the Cipro today. Doc did call and I gave them my symptoms. That's why it could wait. You told me to call Friday and I did!!! They are going to do quick check at labs tomorrow. Then decide about if need more indepth check. LQ ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 4 Jul 2012 14:09:37 To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot And that is good. I'm surprised that you needed an appointment for the doctor. If it was truly serious, they doctor's office would/could/should have called you immediately and advised you. My guess is a non-serious reaction to the uti meds. Have you looked up the long sheet on the effects of Cipro? Be Safe Best Wishes In a message dated 7/4/2012 11:43:15 A.M. Central Daylight Time, littleq...@yahoo.com writes: I did W. I have an appointment next week. I'm just askibg ya'll opinion if you've dealt with it. Thanks, LQ ~LittleQuad~ Sent from my BlackBerry From: wheelch...@aol.com Date: Wed, 4 Jul 2012 12:21:45 -0400 (EDT) To: littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Blood clot I'm truly surprised that you haven't contacted your primary and advised them of your symptoms issue. I offer the same advice to Mothers and their newborns. Call your doctor's office on the phone and leave a message like, This is LittleQuad our patient. You prescribed some meds for me and I'm taking those meds as described. I'm having this affect and not sure if its normal or creating other issues. Can You Advise. Now the ball is in your doctor's court and they have to respond to you. Its just that simple. Best Wishes In a message dated 7/3/2012 5:48:21 P.M. Central Daylight Time, littleq...@yahoo.com writes: How long does it take for blood clots to disappear? My foot and calf still swollen and I injured it May 7th and found out about it 3 half weeks ago. I was on Lovenox injections for a week plus Coumadin and my blood got too thin. Now I'm on Coumadin 3mg M-T and 5mg FSS. Also my toes are RED. Is that something bad? Only first knuckle down. Thanks LittleQuad ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Blood clot
How long does it take for blood clots to disappear? My foot and calf still swollen and I injured it May 7th and found out about it 3 half weeks ago. I was on Lovenox injections for a week plus Coumadin and my blood got too thin. Now I'm on Coumadin 3mg M-T and 5mg FSS. Also my toes are RED. Is that something bad? Only first knuckle down. Thanks LittleQuad ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Red toes
Does anyone else have red toes? It's mainly around the toenails, except my pinky toe, it is red all over. I know I have a fungus and I'm going to have all my toenails removed, except big toes they've already been done. I just have to wait until coumadin level is balanced or I'm off it completely. They itch and burn all the time. Thanks gang! ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Red toes
No, I'm not a Diabetic. ~LittleQuad~ From: Ismael Cavazos ismael.cava...@att.net To: littleq...@yahoo.com Sent: Thursday, June 28, 2012 2:26 PM Subject: RE: [QUAD-L] Red toes My question to you, argue a diabetic -Original Message- From: ~LittleQuad~ [mailto:littleq...@yahoo.com] Sent: Thursday, June 28, 2012 1:07 PM To: Quad-list post Subject: [QUAD-L] Red toes The Quad pick what Does anyone else have red toes? It's mainly around the toenails, except my pinky to pick what e, it is red all over. I know I have a fungus and I'm going to have all my toenails removed, except big toes they've already been done. I just have to wait until coumadin level is balanced or I'm off it completely. They itch and burn all the time. Thanks gang! ~LittleQuad~ Sent from my BlackBerry
Re: [QUAD-L] Red toes
No W, I don't do pedicures. I will mention it to my PCP. I just noticed it on all the toes, but pinky toes have been for years. The only new medicine I've started is the Coumadin. ~LittleQuad~ From: wheelch...@aol.com wheelch...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Thursday, June 28, 2012 1:34 PM Subject: Re: [QUAD-L] Red toes Little Quad, have you advised your primary doctor, regarding your toes. It could be the medicine, rather then a personal health condition. Have you recently had a pedicure? Best Wishes In a message dated 6/28/2012 1:09:49 P.M. Central Daylight Time, littleq...@yahoo.com writes: Does anyone else have red toes? It's mainly around the toenails, except my pinky toe, it is red all over. I know I have a fungus and I'm going to have all my toenails removed, except big toes they've already been done. I just have to wait until coumadin level is balanced or I'm off it completely. They itch and burn all the time. Thanks gang! ~LittleQuad~ Sent from my BlackBerry
[QUAD-L] Pain meds
~LittleQuad~ Sent from my Verizon Wireless BlackBerry -Original Message- From: ~LittleQuad~ littleq...@yahoo.com Date: Wed, 27 Jun 2012 18:42:50 To: whe...@cvn.net Reply-To: littleq...@yahoo.com Subject: Pain meds I'm a C4/5 C5/6 Quad inc. 13 yrs post. I don't take narcotics but I take Celebrex for arthritis. ~LittleQuad~ Sent from my Verizon Wireless BlackBerry
[QUAD-L] Attendant troubles
Do you have a list of requirements or duties? Do's and Don'ts? Do you give warnings if so how many and what do you say? If you decide to let them go, do you give them notice? Any other help or advice LQ
Re: [QUAD-L] Obamacare
I hardly think any non-Mormon can say anything about someone not understanding our religion. If you're so upset about al of it, write them letters and leave the mud-slinging off the quad-list. we were doing just fine until that comment was made. there are plenty political groups you can post too. --- On Mon, 6/18/12, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Obamacare To: quad-list@eskimo.com Cc: Quad-list post quad-list@eskimo.com Date: Monday, June 18, 2012, 12:58 PM I feel the same way about any high ranking religous person. I wouldn't vote for Pat Robertson, or a catholic bishop. He just happens to be a mormon. He was born wealthy and his father set him up so no matter what he did he'd grow richer by the day. This guy has no concept of what it is to be poor or handicapped in America. I wouldn't have voted for obama if i thought he was a member of a black power movement. From what I've read, Romney doesn't understand his own religion yet he makes no appologies for any mistakes he has ever made. He backed the governor of Ohio in blaming teachers, cops and civil servants for bankrupting the state. How stupid does that sound. He compares it to reagan busting air traffic contollers. None of these ppl have walked off, they just want union representation and keeping the state from stealing their retirement funds. The inability to appologize is so rock solid in the republican party that they have changed their name to THE NEW MAJORITY PARTY. Now they had nothing to do with spending 10.5 trillion dollars under bush and 4.5 trillion under Obama. Most Americans believe the president controls spending. The fact is that the congress says so on every last penny. No, I'm not prejudice against Mormons. But I do hate Liars. From: Don Price donpric...@yahoo.com To: Don Price donpric...@yahoo.com; ~LittleQuad~ littleq...@yahoo.com; John S. alcibiat...@yahoo.com Cc: Quad-list post quad-list@eskimo.com Sent: Wednesday, June 13, 2012 9:54 PM Subject: Re: [QUAD-L] Obamacare They say you should always wait a while before sending any email when you're upset. So, I just want to clarify that I don't know John and wasn't intending to say he is a bigot. I'm sure John is a great guy. My apology if it came across otherwise. Don.
Re: [QUAD-L] mini vans
I do, 2011 Honda Odyssey, in-floor ramp. --- On Mon, 6/18/12, Julie ju...@jlar.org wrote: From: Julie ju...@jlar.org Subject: [QUAD-L] mini vans To: quad-list@eskimo.com Date: Monday, June 18, 2012, 11:38 AM Hello, Does anyone own a Honda Odyssey or a Toyota Sienna conversion van? Thanks for any input!
Re: [QUAD-L] Push Girls Episode 3 Monday 6/11/12
Yes, i have some function better than her and i was APPALLED at the mother!! c 4/5 c 5/6 incomplete 13 yrs 5 months post --- On Tue, 6/12/12, Bobbie Humphreys bobbie...@aol.com wrote: From: Bobbie Humphreys bobbie...@aol.com Subject: [QUAD-L] Push Girls Episode 3 Monday 6/11/12 To: Quad-list@eskimo.com quad-list@eskimo.com Date: Tuesday, June 12, 2012, 4:08 PM Hi All, In this episode one of the para's that had a blood clot in her spine when she was 15 was having her Mother visit her after not seeing her for over 2 years. Their bond was not very good and the very first thing the Mother said to her after her disabled daughter opened the door was ..… your still in the wheelchair? Also, to the camera the Mother stated that .… I wish she had died when she got sick. This brought to mind how the girl up-stairs, Dawn, is with her own Mother. Dawn's Mother constantly told her that … you've ruined everything. and wouldn't ever let her sit at the kitchen table or any dining table because … it looks awful Now, after 29+ years they are close. But the Mother has only been to her apartment maybe 3 or 4 times since 1995 and she lives about 20 miles away. Also, I was reading on the internet that the one girl who is a C-4,5 quad had stem cell surgery within 24 hours of her car accident giving her, what looks like C-5,6 quad results. Bobbie Sent from my iPad
Re: [QUAD-L] Obamacare
i'm a Mormon and maybe you shouldn't confuse religion with politics --- On Mon, 6/11/12, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Obamacare To: quad-list@eskimo.com Cc: quad-list@eskimo.com quad-list@eskimo.com Date: Monday, June 11, 2012, 7:07 PM every year since I became a quad I've been answering dumbas* Q's. Obamacare doesn't even begin untll 2014. i'd rather pay a few dollars to cover my paperwork each year than consider medicare broke by 2020. The romney sh*t is going to tax ppl with insurance, forcing more to loose insurance and become a greater healthcare burden. Under Obama everyone with a job purchases insurance. No Q's like age, previous conditions, etc. those of us like me wont be affected at all. I was wiped out with my accident 36 years ago. I live on whats under the table, like 1/4 of the economy. The rich own the insurance companies and hate obama. Its ggood enough for me. Think of it like this, a billionaire mormon bishop running the most powerfull country on earth. lol, i cant vote for that. From: gah17...@aol.com gah17...@aol.com To: todd.daughe...@gmail.com Cc: quad-list@eskimo.com Sent: Wednesday, May 2, 2012 9:57 AM Subject: [QUAD-L] Obamacare Pray that Obamacare is overturned. I'm already seeing new requirements when I go into the doctor office that scare me. Have you ever had your doctor ask, why are you on medicare? Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 5/1/2012 11:22:16 P.M. Eastern Daylight Time, todd.daughe...@gmail.com writes: As much as I would like to have more accessibility to healthcare, the more I look at the financial implications of his plan, the more I feel like as a whole it will be more detrimental to the country than helpful. Forcing insurance companies to take people with pre-existing conditions, fines for companies and individuals who don't get coverage. Private insurance premiums will most certainly be raised for those that have it. How can expanding coverage to over 30 million new people possibly lower costs? 27 billion of new taxes on drug companies, 20 billion on medical device makers. Those costs will just pass through to us in my opinion. Total of 18 new taxes estimating 503 billion in revenue. New taxes may bring revenue but they will also (also my opinion) slow economic growth which we desperately need right now. I listened to the oral arguments on the Supreme Court website and it seemed the justices were pretty skeptical of the constitutionality of it. Cheers, Todd C/6 On May 1, 2012, at 10:39 PM, Bobbie Humphreys bobbie...@aol.com wrote: Obama's plan will be forever tweaked till the end of time. Bobbie Sent from my iPad On May 1, 2012, at 6:20 PM, Greg g...@eskimo.com wrote: I think we need just a national Medicare, with extra insurance for those who want, need, or who can afford more. Those who are so against it say they don’t was the government making decisions. But that means they would prefer an insurance company who is for profit, who gets bonuses for denying medical procedures, and who can cancel you after you get sick/injured. I still have not heard 1 good reason not to have national health care. This Obama thing is too confusing. Greg --- It's enough to make even a quad kick ass and throw fists. But I am not surprised. The slightest medical problem results in bills for things and from people you never even heard of. To say that the whole thing is an immoral, unethical racket is an understatement. A lifetime of savings can be wiped out in one week. A simple hello from the doctor can cost $300. Your experience is all too common. I don't have a clue if Obama's plan will be better, but I certainly hope so. =
Re: [QUAD-L] minvan ramps
i LOVE my in-floor ramp...the fold up took up too much space on the inside of van... LQ --- On Mon, 6/11/12, Derrick whe...@cvn.net wrote: From: Derrick whe...@cvn.net Subject: [QUAD-L] minvan ramps To: quadlist quad-list@eskimo.com Date: Monday, June 11, 2012, 1:26 PM i am looking at new dodge minvans and i need to decide on fold out ramp or in-floor ramp? does anyone have problems with either?pros vs cons? this would be for a dodges side door. i live in cold weather PA which has snow. i heard in the past it could cause problems in the in-floor ramp. thanks derrick
Re: [QUAD-L] DVT in calf
I don't know...I'm not sure how bad it is. i go to the doctor in the morning. it seems the docs may not think it's thaaat bad... not sure? LQ --- On Fri, 6/8/12, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: Re: [QUAD-L] DVT in calf To: wheelch...@aol.com, littleq...@yahoo.com, quad-list@eskimo.com Date: Friday, June 8, 2012, 11:20 AM yes, hope you get better soonin rehab I had one in my leg and was on blood thinner too---cant remember the lenth of time, but seeed like a month or 2 maybe. They put a greenfield filter in my groin leg area...and said that should keep any more from getting to my lungs or heart. Yours may have been caused by the dentist and leg accident thing--good luck ! Dan H. *** From: wheelch...@aol.com wheelch...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Fri, June 8, 2012 11:08:08 AM Subject: Re: [QUAD-L] DVT in calf Amye, are you a good candidate for an Everclear filter that is implanted in the leg to filter and prevent clots? Just asking Best Wishes In a message dated 6/8/2012 11:02:15 A.M. Central Daylight Time, littleq...@yahoo.com writes: Hey gang! My right calf and foot have been swollen and numb feeling (I have great sensation in whole body). So Tuesday I was able to see my rehab doc, he thought the symptoms showed a DVT. I couldnt think of why I would have one. So the Wednesday I went to get ultrasound. Yep, the front left vein has a clot. They wouldn't let me leave the hospital until the doctors had a plan. So I'm on 5mg Coumadin a day and a shot of Enoxaparin Sodium every 12 hours. Yesterday when I was getting up I looked down at my right chin, i remembered a scab that I've had a while and it dawned on me...on May 7th I went to the dentist and while under nitrous and my hand control turned to the side, I decided to reaarange my chair. In doing so I rammed my leg into a table. Thank goodness I had on jeans and a blanket because it scraped my leg to chin bone. It never dawned on me i could have given myself a DVT. Yet when I look at the now scar and where my sensation starts changing it's the same area. Now I've got to watch out more closely!! Anyone else ever have one? How long was treatment? Amye - LQ
Re: [QUAD-L] Obamacare
Thank you Don! FDR would have been called all kinds of names. Just as Obama was criticized. LQ --- On Wed, 6/13/12, Don Price donpric...@yahoo.com wrote: From: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] Obamacare To: ~LittleQuad~ littleq...@yahoo.com, John S. alcibiat...@yahoo.com Cc: Quad-list post quad-list@eskimo.com Date: Wednesday, June 13, 2012, 6:06 PM I'm not a Mormon, but I too found that offensive. Politics is one thing, but can we leave race, gender, ethnicity and religion out of it? Oh, and disability? Had people known FDR was in a wheelchair much of the time I could imagine them making a similar statement about him [substitute cripple as the bigot point.] Don. From: ~LittleQuad~ littleq...@yahoo.com To: John S. alcibiat...@yahoo.com Cc: Quad-list post quad-list@eskimo.com Sent: Wednesday, June 13, 2012 12:10 PM Subject: Re: [QUAD-L] Obamacare i'm a Mormon and maybe you shouldn't confuse religion with politics --- On Mon, 6/11/12, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Obamacare To: quad-list@eskimo.com Cc: quad-list@eskimo.com quad-list@eskimo.com Date: Monday, June 11, 2012, 7:07 PM every year since I became a quad I've been answering dumbas* Q's. Obamacare doesn't even begin untll 2014. i'd rather pay a few dollars to cover my paperwork each year than consider medicare broke by 2020. The romney sh*t is going to tax ppl with insurance, forcing more to loose insurance and become a greater healthcare burden. Under Obama everyone with a job purchases insurance. No Q's like age, previous conditions, etc. those of us like me wont be affected at all. I was wiped out with my accident 36 years ago. I live on whats under the table, like 1/4 of the economy. The rich own the insurance companies and hate obama. Its ggood enough for me. Think of it like this, a billionaire mormon bishop running the most powerfull country on earth. lol, i cant vote for that. From: gah17...@aol.com gah17...@aol.com To: todd.daughe...@gmail.com Cc: quad-list@eskimo.com Sent: Wednesday, May 2, 2012 9:57 AM Subject: [QUAD-L] Obamacare Pray that Obamacare is overturned. I'm already seeing new requirements when I go into the doctor office that scare me. Have you ever had your doctor ask, why are you on medicare? Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 5/1/2012 11:22:16 P.M. Eastern Daylight Time, todd.daughe...@gmail.com writes: As much as I would like to have more accessibility to healthcare, the more I look at the financial implications of his plan, the more I feel like as a whole it will be more detrimental to the country than helpful. Forcing insurance companies to take people with pre-existing conditions, fines for companies and individuals who don't get coverage. Private insurance premiums will most certainly be raised for those that have it. How can expanding coverage to over 30 million new people possibly lower costs? 27 billion of new taxes on drug companies, 20 billion on medical device makers. Those costs will just pass through to us in my opinion. Total of 18 new taxes estimating 503 billion in revenue. New taxes may bring revenue but they will also (also my opinion) slow economic growth which we desperately need right now. I listened to the oral arguments on the Supreme Court website and it seemed the justices were pretty skeptical of the constitutionality of it. Cheers, Todd C/6 On May 1, 2012, at 10:39 PM, Bobbie Humphreys bobbie...@aol.com wrote: Obama's plan will be forever tweaked till the end of time. Bobbie Sent from my iPad On May 1, 2012, at 6:20 PM, Greg g...@eskimo.com wrote: I think we need just a national Medicare, with extra insurance for those who want, need, or who can afford more. Those who are so against it say they don’t was the government making decisions. But that means they would prefer an insurance company who is for profit, who gets bonuses for denying medical procedures, and who can cancel you after you get sick/injured. I still have not heard 1 good reason not to have national health care. This Obama thing is too confusing. Greg --- It's enough to make even a quad kick ass and throw fists. But I am not surprised. The slightest medical problem results in bills for things and from people you never even heard of. To say that the whole thing is an immoral, unethical racket is an understatement. A lifetime of savings can be wiped out in one week. A simple hello from the doctor can cost $300. Your experience is all too common. I don't have a clue if Obama's plan will be better, but I certainly hope so.=
Re: [QUAD-L] Push Girls
LOVE ITmy bf and I enjoy it! --- On Tue, 6/5/12, Bobbie Humphreys bobbie...@aol.com wrote: From: Bobbie Humphreys bobbie...@aol.com Subject: [QUAD-L] Push Girls To: Quad-list@eskimo.com quad-list@eskimo.com Date: Tuesday, June 5, 2012, 10:39 PM Hi Everybody, Monday night was the first reality show called Push Girls on the Sundance channel. Did anybody see it? There are 3 para's and 1 quad. They discuss relationship's, sex, having children, dating and compete in a dance competition. It's on every Monday night at 10:00pm Eastern time on the Sundance channel. It's done VERY well. Bobbie
Re: [QUAD-L] My Anniversary
HAPPY HAPPY ANNIVERSARY!! --- On Thu, 6/7/12, Nan nlg52...@yahoo.com wrote: From: Nan nlg52...@yahoo.com Subject: [QUAD-L] My Anniversary To: quad-list@eskimo.com quad-list@eskimo.com Date: Thursday, June 7, 2012, 9:15 PM Today was my 44th Quanniversary, 15 days ago was my 60th birthday. I WAS going to celebrate, go out, have a nice dinner, etc. but that all changed when I woke up to find my whole apartment flooded. The water heater blew up. I have to stay in another apartment for a week+. Half my stuff here, half there (my OCD is kicking in big time) They have to replace all of my carpeting, possibly some drywall, paint, etc., etc., etc. This other apartment reeks of smoke - it's disgusting!!! Yuck. Now I get to go through all of my boxes to see what's been damaged. So far I've found one photograph by a favorite artist and several old (1882 - 1902) books that have extensive water damage. Very sad. So I have my work cut out for me this week. But, I made it through another year. So I guess it's not all bad news! YAY ME! :)
[QUAD-L] DVT in calf
Hey gang! My right calf and foot have been swollen and numb feeling (I have great sensation in whole body). So Tuesday I was able to see my rehab doc, he thought the symptoms showed a DVT. I couldnt think of why I would have one. So the Wednesday I went to get ultrasound. Yep, the front left vein has a clot. They wouldn't let me leave the hospital until the doctors had a plan. So I'm on 5mg Coumadin a day and a shot of Enoxaparin Sodium every 12 hours. Yesterday when I was getting up I looked down at my right chin, i remembered a scab that I've had a while and it dawned on me...on May 7th I went to the dentist and while under nitrous and my hand control turned to the side, I decided to reaarange my chair. In doing so I rammed my leg into a table. Thank goodness I had on jeans and a blanket because it scraped my leg to chin bone. It never dawned on me i could have given myself a DVT. Yet when I look at the now scar and where my sensation starts changing it's the same area. Now I've got to watch out more closely!! Anyone else ever have one? How long was treatment? Amye - LQ
Re: [QUAD-L] DVT in calf
Thanks for the input --- On Fri, 6/8/12, Danny Espinoza da...@immortaldesigns.co wrote: From: Danny Espinoza da...@immortaldesigns.co Subject: Re: [QUAD-L] DVT in calf To: ~LittleQuad~ littleq...@yahoo.com Cc: Quad-list post quad-list@eskimo.com Date: Friday, June 8, 2012, 4:58 PM On 6/8/2012 9:02 AM, ~LittleQuad~ wrote: Hey gang! My right calf and foot have been swollen and numb feeling (I have great sensation in whole body). So Tuesday I was able to see my rehab doc, he thought the symptoms showed a DVT. I couldnt think of why I would have one. So the Wednesday I went to get ultrasound. Yep, the front left vein has a clot. They wouldn't let me leave the hospital until the doctors had a plan. So I'm on 5mg Coumadin a day and a shot of Enoxaparin Sodium every 12 hours. Yesterday when I was getting up I looked down at my right chin, i remembered a scab that I've had a while and it dawned on me...on May 7th I went to the dentist and while under nitrous and my hand control turned to the side, I decided to reaarange my chair. In doing so I rammed my leg into a table. Thank goodness I had on jeans and a blanket because it scraped my leg to chin bone. It never dawned on me i could have given myself a DVT. Yet when I look at the now scar and where my sensation starts changing it's the same area. Now I've got to watch out more closely!! Anyone else ever have one? How long was treatment? Amye - LQ I had one and am now on a low dose of a blood thinner for preventative care. When my accident originally happened I had a greenfield filter put in so if any clots broke free they wouldn't make it to my lungs/heart or up, the filter is good for 3 to 5 years and then you need it replaced -Danny
RE: [QUAD-L] DVT in calf - Nicki
wow Nicki, that's scary. Mine would have gone undiagnosed if it didn't irritate me so much! Gld you made it through! LQ --- On Fri, 6/8/12, nichole rohling zoocr...@windstream.net wrote: From: nichole rohling zoocr...@windstream.net Subject: RE: [QUAD-L] DVT in calf To: Quad-List@Eskimo. Com quad-list@eskimo.com Date: Friday, June 8, 2012, 12:02 PM Yes, I had one in 2008. Had no idea until it started breaking loose and going to my lungs. Short of breath on a Saturday night……….ER on Sunday but it went undiagnosed……..back to ER by ambulance Tuesday morning. Had the DVT and many pulmonary embolisms………5 days in the hospital and Coumadin for life J Nicki aka One Lucky Girl From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Friday, June 08, 2012 11:21 AM To: wheelch...@aol.com; littleq...@yahoo.com; quad-list@eskimo.com Subject: Re: [QUAD-L] DVT in calf yes, hope you get better soonin rehab I had one in my leg and was on blood thinner too---cant remember the lenth of time, but seeed like a month or 2 maybe. They put a greenfield filter in my groin leg area...and said that should keep any more from getting to my lungs or heart. Yours may have been caused by the dentist and leg accident thing--good luck ! Dan H. *** From: wheelch...@aol.com wheelch...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Fri, June 8, 2012 11:08:08 AM Subject: Re: [QUAD-L] DVT in calf Amye, are you a good candidate for an Everclear filter that is implanted in the leg to filter and prevent clots? Just asking Best Wishes In a message dated 6/8/2012 11:02:15 A.M. Central Daylight Time, littleq...@yahoo.com writes: Hey gang! My right calf and foot have been swollen and numb feeling (I have great sensation in whole body). So Tuesday I was able to see my rehab doc, he thought the symptoms showed a DVT. I couldnt think of why I would have one. So the Wednesday I went to get ultrasound. Yep, the front left vein has a clot. They wouldn't let me leave the hospital until the doctors had a plan. So I'm on 5mg Coumadin a day and a shot of Enoxaparin Sodium every 12 hours. Yesterday when I was getting up I looked down at my right chin, i remembered a scab that I've had a while and it dawned on me...on May 7th I went to the dentist and while under nitrous and my hand control turned to the side, I decided to reaarange my chair. In doing so I rammed my leg into a table. Thank goodness I had on jeans and a blanket because it scraped my leg to chin bone. It never dawned on me i could have given myself a DVT. Yet when I look at the now scar and where my sensation starts changing it's the same area. Now I've got to watch out more closely!! Anyone else ever have one? How long was treatment? Amye - LQ
Re: [QUAD-L] Anniversary - LQ
NO Linda, I dont have to stay in bed...thank goodness!!! I'd go nuts!!
LQ
--- On Fri, 6/8/12, linda...@comcast.net linda...@comcast.net wrote:
From: linda...@comcast.net linda...@comcast.net
Subject: [QUAD-L] Anniversary
To: quad-list quad-list@eskimo.com
Date: Friday, June 8, 2012, 11:20 AM
#yiv711079436 p {margin:0;}
Happy Anniversary Nan!!
Sorry to hear about the flood, good luck om cleanup.
Lil Quad hope your leg will be ok. You don't have to stay in bed?
Lindaf
Re: [QUAD-L] DVT in calf
Thanks Dan! I don't know how long I'll be on blood thinners :( --- On Fri, 6/8/12, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: Re: [QUAD-L] DVT in calf To: wheelch...@aol.com, littleq...@yahoo.com, quad-list@eskimo.com Date: Friday, June 8, 2012, 11:20 AM yes, hope you get better soonin rehab I had one in my leg and was on blood thinner too---cant remember the lenth of time, but seeed like a month or 2 maybe. They put a greenfield filter in my groin leg area...and said that should keep any more from getting to my lungs or heart. Yours may have been caused by the dentist and leg accident thing--good luck ! Dan H. *** From: wheelch...@aol.com wheelch...@aol.com To: littleq...@yahoo.com; quad-list@eskimo.com Sent: Fri, June 8, 2012 11:08:08 AM Subject: Re: [QUAD-L] DVT in calf Amye, are you a good candidate for an Everclear filter that is implanted in the leg to filter and prevent clots? Just asking Best Wishes In a message dated 6/8/2012 11:02:15 A.M. Central Daylight Time, littleq...@yahoo.com writes: Hey gang! My right calf and foot have been swollen and numb feeling (I have great sensation in whole body). So Tuesday I was able to see my rehab doc, he thought the symptoms showed a DVT. I couldnt think of why I would have one. So the Wednesday I went to get ultrasound. Yep, the front left vein has a clot. They wouldn't let me leave the hospital until the doctors had a plan. So I'm on 5mg Coumadin a day and a shot of Enoxaparin Sodium every 12 hours. Yesterday when I was getting up I looked down at my right chin, i remembered a scab that I've had a while and it dawned on me...on May 7th I went to the dentist and while under nitrous and my hand control turned to the side, I decided to reaarange my chair. In doing so I rammed my leg into a table. Thank goodness I had on jeans and a blanket because it scraped my leg to chin bone. It never dawned on me i could have given myself a DVT. Yet when I look at the now scar and where my sensation starts changing it's the same area. Now I've got to watch out more closely!! Anyone else ever have one? How long was treatment? Amye - LQ
Re: [QUAD-L] First trip to Disneyland
If you are flying, tape the arm rests down on your chair and take the headrest off...the airline will store it below and they wont treat it tenderly! Took me a year to get the airline to pay for repairs they did to my chair. Keep plenty of fluids with you. Make sure you have enough meds to cover you in case you decide to stay longer. Have a blast and let us know how it when!! LQ --- On Thu, 5/31/12, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] First trip to Disneyland To: donpric...@yahoo.com, quad-list@eskimo.com Date: Thursday, May 31, 2012, 1:11 PM Congrats Don! I know that you will enjoy your trip and adventures while on Disney Properties...as so many others before you have. Remember that Disney Properties were designed around KIDS and parents are allowed. And then the lawsuits by individual who wanted to drive their private Segways on the crowded sidewalks and streets inside the Theme Parks. And the one Quad, who was stuck in a boat ride on water that was broke down. He wanted to be the first removed over the children. Disney Properties continues to be the number 1 place for children with disAbilities to go when sponsored as guests of Make A Wish and StarLite Foundations. Hope you take plenty of pictures, while you enjoy your stay. Best Wishes In a message dated 5/30/2012 3:26:19 P.M. Central Daylight Time, donpric...@yahoo.com writes: I'll be making my first-ever trip to Disneyland [CA] in two weeks. Does anyone have any advice or must-do adventures for a powerchair user? Thanks, Don.
Re: [QUAD-L] back
Welcome back! Glad it ended well!! LQ --- On Thu, 5/31/12, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] back To: quad...@gmail.com, quad-list@eskimo.com Date: Thursday, May 31, 2012, 7:06 AM Welcome Back Quadius! You will heal faster then you think. Best Wishes In a message dated 5/30/2012 9:02:14 P.M. Central Daylight Time, quad...@gmail.com writes: I just got home from the hospital yesterday. The surgery was a success, but it definitely took longer than I thought, not to mention was a little more involved than I thought it would be. I'm still pretty weak, so I probably won't be on the list for a while. Thanks for your thoughts and prayers , Quadius PS for those of you who can't remember, I had an ileovesicostomy performed. Basically now I have an urostomy now instead of a suprapubic.
Re: [QUAD-L] welcome back - LQ
I've been busy with school and other things. Now that school is over for the
summer I thought that I'd see how everyone is! I'm well other than a sore on my
heal...from rubbing on my foot pillows the wrong way. Just about the same spot
the last one was. Every since my heel surgery I've had problems with it!!
LQ
--- On Mon, 5/28/12, t crook onemofor...@yahoo.com wrote:
From: t crook onemofor...@yahoo.com
Subject: Re: [QUAD-L] welcome back
To: ~LittleQuad~ littleq...@yahoo.com
Cc: quad-list@eskimo.com quad-list@eskimo.com
Date: Monday, May 28, 2012, 8:34 AM
Lil'- how is it goin' girl, long time no here from? I am one to talk, I
too am just now trying to get back and catch up.
Tim c5-c6
From: ~LittleQuad~ littleq...@yahoo.com
To: linda...@comcast.net
Cc: quad-list@eskimo.com; Wheelchair Wally Carson wheelch...@aol.com
Sent: Thursday, May 10, 2012 3:45 PM
Subject: Re: [QUAD-L] welcome back
thank you, thank youlife slowed down some so i have time to spread my whole
13.5 years of quadhood knowledge... lol
amye or lq or lttlequad
--- On Wed, 5/9/12, linda...@comcast.net linda...@comcast.net wrote:
From: linda...@comcast.net linda...@comcast.net
Subject: Re: [QUAD-L] Stage 4 pressure sore
To: ~LittleQuad~ littleq...@yahoo.com
Cc: quad-list@eskimo.com, Wheelchair Wally Carson wheelch...@aol.com
Date: Wednesday, May 9, 2012, 2:51 PM
#yiv1703048673 p {margin:0;}
Welcome back Amye! Happy you are here.
Lindaf
Re: [QUAD-L] welcome back
thank you, thank youlife slowed down some so i have time to spread my whole
13.5 years of quadhood knowledge... lol
amye or lq or lttlequad
--- On Wed, 5/9/12, linda...@comcast.net linda...@comcast.net wrote:
From: linda...@comcast.net linda...@comcast.net
Subject: Re: [QUAD-L] Stage 4 pressure sore
To: ~LittleQuad~ littleq...@yahoo.com
Cc: quad-list@eskimo.com, Wheelchair Wally Carson wheelch...@aol.com
Date: Wednesday, May 9, 2012, 2:51 PM
#yiv270635041 p {margin:0;}
Welcome back Amye! Happy you are here.
Lindaf
Re: [QUAD-L] blood tests
i still get checked every few months for the dozen pills i'm on LOL
have fasting lab in 2 weeks actually...
--- On Wed, 5/9/12, wheelch...@aol.com wheelch...@aol.com wrote:
From: wheelch...@aol.com wheelch...@aol.com
Subject: Re: [QUAD-L] The main causes of liver damage
To: littleq...@yahoo.com, quad-list@eskimo.com, c5sc...@gmail.com
Date: Wednesday, May 9, 2012, 10:02 AM
Yes it does, in passing the liver. That was a marketing feature of the pump.
Also the pump uses minute amounts by comparison the pill approach. I think you
are safer, but again... that is between you and your primary.
Best Wishes
In a message dated 5/9/2012 9:33:37 A.M. Central Daylight Time,
littleq...@yahoo.com writes:
i have a bacolofen pump, goes directly into spine...bypass liver damage, i hope
--- On Tue, 5/8/12, Eric W Rudd c5sc...@gmail.com wrote:
From: Eric W Rudd c5sc...@gmail.com
Subject: Re: [QUAD-L] The main causes of liver damage
To: quad-list@eskimo.com
Date: Tuesday, May 8, 2012, 8:10 PM
I take baclofen dantrium, have my liver tested once a yr due to dantrium.
Eric W Rudd
c5sc...@gmail.com
From: wheelch...@aol.com
Sent: Tuesday, May 08, 2012 12:45 PM
To: diannal...@aol.com ; quad-list@eskimo.com
Subject: Re: [QUAD-L] The main causes of liver damage
I would refer you back to your primary doctor for the right answer for you.
The chemicals I'm thinking of is Bacleofen and Loreasel. There could also be
others.
Best Wishes
In a message dated 5/8/2012 11:10:38 A.M. Central Daylight Time,
diannal...@aol.com writes:
I have blood tests every 6 mos because of some of the medicines I take. Now you
have me wondering how effective these are compared to ultra sounds. I also take
Milk Thisle for liver function.
I for one agree with you Diannal! Environment, Chemicals and Virus. For
those taking meds, this is the reason your doctor wants an ultra sound every
3-5 years... to check your liver. A liver that has up to 75% will still
function in making bile and possible for it to repair itself. Chronic liver
failure often means the liver is subjected to conditions beyond the 75%.
Best Wishes
-Original Message-
From: wheelchair wheelch...@aol.com
To: diannal767 diannal...@aol.com; r.pracht r.pra...@sbcglobal.net;
quad-list quad-list@eskimo.com
Sent: Tue, May 8, 2012 12:00 pm
Subject: Re: [QUAD-L] The main causes of liver damage
I for one agree with you Diannal! Environment, Chemicals and Virus. For
those taking meds, this is the reason your doctor wants an ultra sound every
3-5 years... to check your liver. A liver that has up to 75% will still
function in making bile and possible for it to repair itself. Chronic liver
failure often means the liver is subjected to conditions beyond the 75%.
Best Wishes
In a message dated 5/8/2012 10:56:37 A.M. Central Daylight Time,
diannal...@aol.com writes:
i thought it was alcohol chemicals. in my 30+ yrs of livingthis one is a
new one! :-)
-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Tue, May 8, 2012 2:05 am
Subject: RE: [QUAD-L] The main causes of liver damage
i dont believe this ad...anyway, as a quad what you think will bring you
down probally wont be the case, we have a 1000 ways to kill us and give extra
trouble.all you can do is the best you can and take one day at a time.
ron c7
--- On Mon, 5/7/12, Daniel Espinoza da...@immortaldesigns.co wrote:
From: Daniel Espinoza da...@immortaldesigns.co
Subject: RE: [QUAD-L] The main causes of liver damage
To: 'HOSNI AL-KHATIB' hosnialkha...@hotmail.com, quad-list@eskimo.com
Date: Monday, May 7, 2012, 6:51 PM
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p.yiv1660197799msonormal, #yiv1660197799
#yiv1660197799aolmsgpart_1_087837c3-d085-49cb-a46f-1a003428d695
Re: [QUAD-L] Stage 4 pressure sore
Thanks for the hook-up W! --- On Thu, 5/3/12, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] Stage 4 pressure sore To: littleq...@yahoo.com, quad-list@eskimo.com, daa...@aol.com Date: Thursday, May 3, 2012, 12:16 PM Welcome Back, LiL Quad ! Now where's Naughty Nan? Best Wishes In a message dated 5/3/2012 12:03:29 P.M. Central Daylight Time, littleq...@yahoo.com writes: lots of proteins are great too! some people need to be scared into reality...very sad --- On Fri, 4/27/12, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] Stage 4 pressure sore To: littleq...@yahoo.com, quad-list@eskimo.com Date: Friday, April 27, 2012, 12:30 PM Hi Amy, What a great idea. Amy. Way to go. The guy who lost his leg up to his hips was at Craig for further pressure problems. He was a paraplegic and could do his own weight shifts.. It's hard to believe what some people can't understand their own bodies. I wonder if she went to rehab. It is amazing how quickly sores can go from stage I to stage 3. I also take pictures with my digital camera so I can see the wound maybe she can not understand because she cannot see the wound.. The nurse for the wound care. Dr. gave me a list of foods I need to promote healing, and also they told me to take L Argentine. It is a generic.I know that spelling is wrong. You can get it through your pharmacy. They did not have in stock, so they ordered for me. It's much cheaper than the drink I have taken in the past. I'm also drinking a high protein drink by Insure. It only has 2 1/2 g of fat and 9 g of protein. Thethe regular Insurer have 9 g of fat. My rehab doctor also said to take a high dosage of zinc, I take 225 mg twice a day by prescription. Dana, it would be great if there was Utube, about what happens when sores are neglected. It would be so useful for cases such as hers. I use a high profile QuadraRoho cushion. I have used Roho since 1978 with great results, other than a few times it became deflated and I did not know. I I think they are wonderful, I did not like the J cushion. They allowed me to return. . . In a message dated 4/27/2012 9:31:27 A.M. Central Daylight Time, littleq...@yahoo.com writes: find pics on web showing her what it looks like, introduce her to someone who had leg amputated due to sorejust to start --- On Thu, 4/26/12, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] Stage 4 pressure sore To: bobbie...@aol.com, quad-list@eskimo.com Date: Thursday, April 26, 2012, 12:03 AM Hi Bobbie, I am so thankful that you are trying to help her. Don't give up. She may one day listen to you before her source serious bone infection or loss of limbs. When I was incorrect hospital, I met a guy who had both of his legs removed because of bed sores. He had to get around on a cart and I believe he was a paraplegic. I don't think he took very good care of himself. His legs were cut above the top of the leg. The minute I see a red spot. I go to my wound care and begin treatment. They are really good about healing them. One guy showed me his wound vacuum as I have never got to see one before. I think the wound has to be a stage III to get Medicare dressing. Dana. In a message dated 4/25/2012 9:26:15 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, I have a neighbor upstairs, Dawn, who is C - 6,7 21 years post at 17 She has never had a sore .… until now - a stage 4 Pete and I can not seam to get her to take it seriously. It's located under her thigh where her seat cushion meets her leg (obviously). Dawn told us about 6 months ago that she had a red spot on her leg, but she didn't do anything about it the beginning of March when she went to a wound center. They told her that she needed a wound-vac, keep her leg elevated and to get a new cushion. I'll bet you anything, they told her to stay in bed too … but she would never tell us that. She also told us that the Doctor said …by using the wound-vac that the sore will heal within 1 1/2 months. Her insurance wouldn't pay for the wound-vac or wheelchair clinic so she could get a new cushion. By doing an appeal she now has the wound-vacn, after a 4 week delay. To date she has not gotten a new cushion. We keep telling her … forget about insurance, go out and buy yourself a cushion. she can afford it. BTW ~ her nutrition is hideous and she said her other thigh is now getting red too. I want to ask you guys, what can we do to convince her just how serious this is? Isn't stage 4 to the bone? She actually had a neighbor across the hall from her, quad C - 4,5 who lost his leg due to a pressure sore on his leg. Bobbie Sent from my iPad=
Re: [QUAD-L] The main causes of liver damage
i have a bacolofen pump, goes directly into spine...bypass liver damage, i hope
--- On Tue, 5/8/12, Eric W Rudd c5sc...@gmail.com wrote:
From: Eric W Rudd c5sc...@gmail.com
Subject: Re: [QUAD-L] The main causes of liver damage
To: quad-list@eskimo.com
Date: Tuesday, May 8, 2012, 8:10 PM
I take baclofen dantrium, have my liver tested once a yr due to dantrium.
Eric W Rudd
c5sc...@gmail.com
From: wheelch...@aol.com
Sent: Tuesday, May 08, 2012 12:45 PM
To: diannal...@aol.com ; quad-list@eskimo.com
Subject: Re: [QUAD-L] The main causes of liver damage
I would refer you back to your primary doctor for the right answer for you.
The chemicals I'm thinking of is Bacleofen and Loreasel. There could also be
others.
Best Wishes
In a message dated 5/8/2012 11:10:38 A.M. Central Daylight Time,
diannal...@aol.com writes:
I have blood tests every 6 mos because of some of the medicines I take. Now you
have me wondering how effective these are compared to ultra sounds. I also take
Milk Thisle for liver function.
I for one agree with you Diannal! Environment, Chemicals and Virus. For
those taking meds, this is the reason your doctor wants an ultra sound every
3-5 years... to check your liver. A liver that has up to 75% will still
function in making bile and possible for it to repair itself. Chronic liver
failure often means the liver is subjected to conditions beyond the 75%.
Best Wishes
-Original Message-
From: wheelchair wheelch...@aol.com
To: diannal767 diannal...@aol.com; r.pracht r.pra...@sbcglobal.net;
quad-list quad-list@eskimo.com
Sent: Tue, May 8, 2012 12:00 pm
Subject: Re: [QUAD-L] The main causes of liver damage
I for one agree with you Diannal! Environment, Chemicals and Virus. For
those taking meds, this is the reason your doctor wants an ultra sound every
3-5 years... to check your liver. A liver that has up to 75% will still
function in making bile and possible for it to repair itself. Chronic liver
failure often means the liver is subjected to conditions beyond the 75%.
Best Wishes
In a message dated 5/8/2012 10:56:37 A.M. Central Daylight Time,
diannal...@aol.com writes:
i thought it was alcohol chemicals. in my 30+ yrs of livingthis one is a
new one! :-)
-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Tue, May 8, 2012 2:05 am
Subject: RE: [QUAD-L] The main causes of liver damage
i dont believe this ad...anyway, as a quad what you think will bring you
down probally wont be the case, we have a 1000 ways to kill us and give extra
trouble.all you can do is the best you can and take one day at a time.
ron c7
--- On Mon, 5/7/12, Daniel Espinoza da...@immortaldesigns.co wrote:
From: Daniel Espinoza da...@immortaldesigns.co
Subject: RE: [QUAD-L] The main causes of liver damage
To: 'HOSNI AL-KHATIB' hosnialkha...@hotmail.com, quad-list@eskimo.com
Date: Monday, May 7, 2012, 6:51 PM
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Re: [QUAD-L] Stage 4 pressure sore
lots of proteins are great too! some people need to be scared into reality...very sad --- On Fri, 4/27/12, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] Stage 4 pressure sore To: littleq...@yahoo.com, quad-list@eskimo.com Date: Friday, April 27, 2012, 12:30 PM Hi Amy, What a great idea. Amy. Way to go. The guy who lost his leg up to his hips was at Craig for further pressure problems. He was a paraplegic and could do his own weight shifts.. It's hard to believe what some people can't understand their own bodies. I wonder if she went to rehab. It is amazing how quickly sores can go from stage I to stage 3. I also take pictures with my digital camera so I can see the wound maybe she can not understand because she cannot see the wound.. The nurse for the wound care. Dr. gave me a list of foods I need to promote healing, and also they told me to take L Argentine. It is a generic.I know that spelling is wrong. You can get it through your pharmacy. They did not have in stock, so they ordered for me. It's much cheaper than the drink I have taken in the past. I'm also drinking a high protein drink by Insure. It only has 2 1/2 g of fat and 9 g of protein. Thethe regular Insurer have 9 g of fat. My rehab doctor also said to take a high dosage of zinc, I take 225 mg twice a day by prescription. Dana, it would be great if there was Utube, about what happens when sores are neglected. It would be so useful for cases such as hers. I use a high profile QuadraRoho cushion. I have used Roho since 1978 with great results, other than a few times it became deflated and I did not know. I I think they are wonderful, I did not like the J cushion. They allowed me to return. . . In a message dated 4/27/2012 9:31:27 A.M. Central Daylight Time, littleq...@yahoo.com writes: find pics on web showing her what it looks like, introduce her to someone who had leg amputated due to sorejust to start --- On Thu, 4/26/12, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] Stage 4 pressure sore To: bobbie...@aol.com, quad-list@eskimo.com Date: Thursday, April 26, 2012, 12:03 AM Hi Bobbie, I am so thankful that you are trying to help her. Don't give up. She may one day listen to you before her source serious bone infection or loss of limbs. When I was incorrect hospital, I met a guy who had both of his legs removed because of bed sores. He had to get around on a cart and I believe he was a paraplegic. I don't think he took very good care of himself. His legs were cut above the top of the leg. The minute I see a red spot. I go to my wound care and begin treatment. They are really good about healing them. One guy showed me his wound vacuum as I have never got to see one before. I think the wound has to be a stage III to get Medicare dressing. Dana. In a message dated 4/25/2012 9:26:15 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, I have a neighbor upstairs, Dawn, who is C - 6,7 21 years post at 17 She has never had a sore .… until now - a stage 4 Pete and I can not seam to get her to take it seriously. It's located under her thigh where her seat cushion meets her leg (obviously). Dawn told us about 6 months ago that she had a red spot on her leg, but she didn't do anything about it the beginning of March when she went to a wound center. They told her that she needed a wound-vac, keep her leg elevated and to get a new cushion. I'll bet you anything, they told her to stay in bed too … but she would never tell us that. She also told us that the Doctor said …by using the wound-vac that the sore will heal within 1 1/2 months. Her insurance wouldn't pay for the wound-vac or wheelchair clinic so she could get a new cushion. By doing an appeal she now has the wound-vacn, after a 4 week delay. To date she has not gotten a new cushion. We keep telling her … forget about insurance, go out and buy yourself a cushion. she can afford it. BTW ~ her nutrition is hideous and she said her other thigh is now getting red too. I want to ask you guys, what can we do to convince her just how serious this is? Isn't stage 4 to the bone? She actually had a neighbor across the hall from her, quad C - 4,5 who lost his leg due to a pressure sore on his leg. Bobbie Sent from my iPad=
Re: [QUAD-L] Disappointment
did she respond?? LOL --- On Wed, 1/14/09, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] Disappointment To: onemofor...@yahoo.com, wheelch...@aol.com, quad-list@eskimo.com Date: Wednesday, January 14, 2009, 6:03 PM It was well explained and worded, you're quite elegant in your answers to questions on this list. Thank you Wheelchair.. Dana In a message dated 1/14/2009 11:42:16 A.M. Central Standard Time, onemofor...@yahoo.com writes: Way to lay it out W- you should run for public office (ahahahaha) no really! We as quads have less feeble minds than probably most AB's; we use our minds more to compensate where we lack in physical abilities. So don't let anyone ever limit the power of your mind; for some, that may be one of the few abilities they have I OPPOSE THOUGHT CONTROL! Tim c5-c6, 20 yrs. post WhoopieKat.com this should be the best and correct response. god bless you wheelchair.i like it - Original Message - From: wheelch...@aol.com To: fl...@roadrunner.com ; quad-list@eskimo.com Sent: Tuesday, January 13, 2009 6:32 PM Subject: Re: [QUAD-L] Disappointment You are most correct Floreen. Quads should just be quiet and say nothing. Quads are not capable of making political decisions and discuss the subject. They should be more concerned with their feeding tubes, diapers and caths. Speaking politics might expose them to fodder as well. I wish both you and Jason the very best and hope you can protect Jason from further political and self improvement discussions from other boards as well. Maybe its just me, but I haven't seen a political discussion on this board since before December 2008, but you may have read different. Please also be aware that if people like Justin Dart, Ed Roberts, Judith Humann, Steve Gold, and Christopher Reeve has not participated in such lively political discussions, that your Jason might not have some of those Human Rights, that he shares today. After all those rights did not fall from the heavens in favor of those with disAbilities. Bless you darlin and Bless your Jason. Politics is involved in every breath you and I take. Most the most of it and .. Best Wishes! In a message dated 1/13/2009 9:17:29 A.M. Central Standard Time, fl...@roadrunner.com writes: Dear Quad-List, I happen to be very disappointed about the political emails going on in this group. For some reason when I signed up for this group I didn’t think Politics had anything to do with it, unfortunately they have lately. I know that everyone is entitled to their own opinion but aren’t there other groups online for sharing political views? Since this issue in this group has arisen I would like to unsubscribe to the group. Thanks for all your help now and then. Sincerely, Floreen Thurston wife to Jason c5-6 incomplete diving accident in 2004 A Good Credit Score is 700 or Above. See yours in just 2 easy steps! A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
Re: [QUAD-L] signals?
thx everyone who responded.i started back to school on the 20th, cramming 16 wks into 8 wks.my brain is obviously on the fritz i'm going for my BA in sociology now, then straight for masters...going to be a voc rehab counselor..my last one scked, told him thursday when accidently saw him that i was going to get his job LOLhe's retiring/getting let go, no masters degree... he was absolutely shocked i said it so loud in front of other pplveryone of them LOL'd i'll be here lurking, have to make an A in this class..SOCI 1301 - intro to sociology.. --- On Tue, 10/21/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: [QUAD-L] signals? To: [EMAIL PROTECTED] Date: Tuesday, October 21, 2008, 3:17 AM Congratulations Amye. I hope you continue to get improvement. That is a great accomplishment at the 10 -year mark. Dana New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!
Re: [QUAD-L] SP stoma bleeding
my stoma always looks red, had it 4 years now. --- On Sat, 10/18/08, Tim Syfert [EMAIL PROTECTED] wrote: From: Tim Syfert [EMAIL PROTECTED] Subject: [QUAD-L] SP stoma bleeding To: quad-list@eskimo.com Date: Saturday, October 18, 2008, 6:06 PM I had my supra pubic done about 2 months ago now but get a little occational bleeding around the stoma opening. I'm sure it's just some irritation from the folley. Would this be concidered normal? Do the stomas ever fully heal up so there is no occational bleeding __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[QUAD-L] signals?
someone explain this to me and give me suggestions.PLEASE... well i'm coming up on 10 yr anniversay and i'm getting strong sighnals down both legs, started moving toes left foot last few months, very slight but they move. right foot toes started 3 yrs ago. now you can put hand on foot arch, calf muscle and thigh muscle and FEEL the muscles twitching.. had my left wrist fused in may 09.now can send signals to some fingers there,after 9+ years my right wtist has great grasp and wiggle 2 fingers for 6-7 years --- On Wed, 10/15/08, David O'Connell [EMAIL PROTECTED] wrote: From: David O'Connell [EMAIL PROTECTED] Subject: [QUAD-L] Brain signals revive paralyzed muscles in monkeys To: Quad quad-list@eskimo.com Date: Wednesday, October 15, 2008, 3:16 PM More tiny steps. Now if we could just live long enough to enjoy the spoils http://news.yahoo.com/s/ap/20081015/ap_on_he_me/sci_bypassing_paralysis -- AZDAVE @ DAVEOCONNELL.COM __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] signals?
i used one 9 yrs ago in rehab, my legs would kick up ...had triangle cushion under them. i coulda punted a ball..haha --- On Mon, 10/20/08, John S. [EMAIL PROTECTED] wrote: From: John S. [EMAIL PROTECTED] Subject: Re: [QUAD-L] signals? To: quad-list@eskimo.com Date: Monday, October 20, 2008, 4:24 PM Get a tens unit and attach it every way you can imagine,, you sound like a great candidate for FES! (Functional electric stimulation) john From: ~LittleQuad~ [EMAIL PROTECTED] To: Quad quad-list@eskimo.com; David O'Connell [EMAIL PROTECTED] Cc: Amy Elizabeth [EMAIL PROTECTED] Sent: Monday, October 20, 2008 5:16:00 PM Subject: [QUAD-L] signals? someone explain this to me and give me suggestions.PLEASE... well i'm coming up on 10 yr anniversay and i'm getting strong sighnals down both legs, started moving toes left foot last few months, very slight but they move. right foot toes started 3 yrs ago. now you can put hand on foot arch, calf muscle and thigh muscle and FEEL the muscles twitching.. had my left wrist fused in may 09.now can send signals to some fingers there,after 9+ years my right wtist has great grasp and wiggle 2 fingers for 6-7 years --- On Wed, 10/15/08, David O'Connell [EMAIL PROTECTED] wrote: From: David O'Connell [EMAIL PROTECTED] Subject: [QUAD-L] Brain signals revive paralyzed muscles in monkeys To: Quad quad-list@eskimo.com Date: Wednesday, October 15, 2008, 3:16 PM More tiny steps. Now if we could just live long enough to enjoy the spoils http://news.yahoo.com/s/ap/20081015/ap_on_he_me/sci_bypassing_paralysis -- AZDAVE @ DAVEOCONNELL.COM __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] BACHOFLEN PUMP INFECTED
my site opened about 8 weeks after initial surgery from not closing correctly but not like yours. sorry so much trouble 4 you, i know you're usually as active as i am. sorry about your dad. hope all works out safely quickly!! --- On Fri, 9/19/08, Veranda Escobar [EMAIL PROTECTED] wrote: From: Veranda Escobar [EMAIL PROTECTED] Subject: [QUAD-L] BACHOFLEN PUMP INFECTED To: quad-list@eskimo.com Date: Friday, September 19, 2008, 8:13 PM OK SORRY GUYS MY COMP IS ACTING WEIRD SO I AM HAVING TO WRITE IN CAPS :( I HAD TO WRITE ANYONE WHO WILL LISTEN. I AM SO FUSSY ABOUT RIGHT NOW. NOT TO MENTION DEPRESSED (OK I SAID IT). IN AUG,07 I HAD BACHOFLEN PUMP REPLACED I WAS IN BAD PAIN A WEEK LATER THEY DISCOVERED I HAD A HEMATITE IN THE SURGERY SITE. SO THEY WENT BACK IN TOOK OUT . UNFORTUNATELY 2 DAYS LATER MY FATHER PASSED SO I WAS UP WHOLE WEEK MAKING ARRANGEMENT'S PLUS FUNERAL (NO HEALING TIME). FOR 8 MONTHS I WAS IN SEVERE BACK PAIN ON JULY 2ND I WOKE UP TO A POOL OF BLOOD THE SITE SLIT RIGHT OPEN WAS RUSHED TO ER W/INFECTION TO SITE. PUMP WAS TAKEN OUT AFTER A TWO WK STAY I WAS RELEASED. WHILE THERE CONTRACTED C-DIFF AND A BAD UTI. WENT HOME ON ORAL BACHOFLEN WAS IN HORRIBLE PAIN WAS RUSHED BACK 2 WKS LATER AFTER A 36 HOUR FIGHT OF NO SLEEP, SEVERE SPASMING, VOMITING, DELUSIONAL,NO FOOD, DIARRHEA. STAY TWO MORE WKS PUMP WAS REPLACED AFTER THEY GOT THE OK'S THAT ALL INFECTIONS WERE GONE. WENT TO REHAB 2 MORE WKS. NOW HOME DOING OUTPATIENT THERAPY. I FEEL SO SICK STILL, VERY WEAK, NO APPETITE. I HAVE TO KNOW IF ANYONE ELSE HAS GONE THRU THIS? AND FOR ANYONE ELSE PLS TELL ME AFTER THEIR OWN HOSPITAL STAYS HOW LONG WAS IT BEFORE THEY EVEN FELT BETTER? I PLANNED TO GO BK TO WK THIS WEEK, BUT WAS TO WEAK TO EVEN TRY. VERANDA C6-C7 INC
Re: [QUAD-L] Checking in after Ike
some people in town 20 miles from me still have no elec i'm blessed. --- On Tue, 9/16/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: [QUAD-L] Checking in after Ike To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED], Quad-list post quad-list@eskimo.com Date: Tuesday, September 16, 2008, 5:26 PM Yikes! I guess 20 hours isn't as bad as two to three weeks. I'm glad to hear you're okay. I was sure frightened that bad storm might actually hit Florida, but my relief was someone else's misery. Take care, Quadius On Mon, Sep 15, 2008 at 11:33 AM, ~LittleQuad~ [EMAIL PROTECTED] wrote: all's well my house, 20 hours no electricty --- On Sun, 9/14/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: [QUAD-L] Checking in after Ike To: quad-list@eskimo.com Date: Sunday, September 14, 2008, 8:13 PM I know we have a few people here that are in the Texas area, just checking in to see if everyone is OK, after hurricane Ike? PENNY Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. -- Quadius C2-3 incomplete 13 years post injury
Re: [QUAD-L] serious health questions
I didn't drop offline, just been lurking.. my doc switched my BP med and 90% of fainting has stopped! tx DARS has new program where you have to be working or actively looking for work or they won't help convert van! after i've been waiting 4 yrs!!! if i work i lose my disability benfits and don't make enough to cover medical needs..catch 22, god bless america! so i get to continue having someone drive me around till i finish my BA.. well i hope everyone else has great week! --- On Mon, 8/4/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: quad-list@eskimo.com Cc: [EMAIL PROTECTED] Date: Monday, August 4, 2008, 7:30 AM Hiya Amye! Missed your postings while you were absent. Glad to read you back and hope the family is doing well. 10 years old now?? How time flys or flies Regarding your blood pressure... I wish that I had the answer, but I don't. Besides the binder and morning exercise before getting out of bed in the morning, I am stump'd. Perhaps the guys at the Miami Project and Dr Green or Young may be in a better position to advise you on the research, regarding the blood pressure syndrome of those with spinal cord injuries. I'm hoping for you. Best Wishes In a message dated 8/1/2008 9:08:45 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos.
[QUAD-L] Attendant duty list
do any of you have lists of duties for attendants? i hav a new one to train and need some ideas of structure for her.please send any.thanks
Re: [QUAD-L] serious health questions
haha, 84 lbs nowi take 10mg 3 times day. t crook [EMAIL PROTECTED] wrote:Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
[QUAD-L] Baclofen pump
I received your email on pumps. i was 26 when i got mine, 2 yrs ago and 8 yrs post sci. if i had had that when 1st injured.wow my life would have been so much easier. every move or touch wouldnt have made me spasm everywhere. at night there wouldnt have been spasms ALL night every time i moved to adjust causing me to wake someone and readjust my legs. it is a life-changing small instrument. please tell them to have the baclofen pump trial, if it will work they will notice quickly. best wishes littlequad
Re: [QUAD-L] dizzy spells
i only eat small meals, i pass out tilted back too or trying to tilt back to stop it...trust me i know my hormones are imbalanced..i am woman? John S. [EMAIL PROTECTED] wrote: Do you folks not have tilt-in-space on your chairs? When you get dizzy, tilt back. All quads have low blood pressure. It is from hormonal imbalances and muscle atrophy and laying in bed too much. Don't eat big meals. Remember, small portions. :D I do wish you all the best. john - Original Message From: Debbie Hamilton [EMAIL PROTECTED] To: Quad-list@eskimo.com Cc: quad-list@eskimo.com Sent: Saturday, August 2, 2008 2:50:38 PM Subject: Re: [QUAD-L] dizzy spells It happens every time I eat. I just take a midodrine about 15 minutes before I eat a big meal and works great. Debbie C4 incomplete/April 2005 --- On Fri, 7/18/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: [QUAD-L] dizzy spells To: Dwain Powell [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Friday, July 18, 2008, 2:39 PM I also suffer from this malady and have so for the majority of the 13 years I have spent in this chair. The first three years of my chairbound existence was largely spent lying back in my wheelchair. My problem is especially acute when I stay down for an entire day and then get up and try to eat a heavy meal. It usually takes me an hour and a half to get my blood pressure up to a level where I can go into my office to work. I also find it extremely difficult to eat within an hour or so of getting up and then get into my Van to be driven around. Here are my suggestions: 1. Have someone take your blood pressure when this is transpiring to get a good idea how low it is actually going. 2. Start wearing an abdominal Binder if you are not already doing so. In doing so helps contract the diaphragm and increases the blood pressure, at least in my case. 3. If your BP is going to low, you might want to talk to your physician about having ephedrine on hand for really difficult times. 4. If it is at all possible, you need to eat lighter meals. For me this is impractical as I am alone most of the day and need to maintain my blood sugar, but I try to factor in that I will usually have to sit back for anywhere from 30 minutes to one hour before getting on with my normal daily activities. 5. I also had a doctor suggests that I sleep with my head inclined at a 30° angle. I haven't been able to do this too much, but when I do I have noticed I am able to get going much quicker. I hope this helps. Also make sure you take a look at all the other responses as they additionally have a lot of experience dealing with issues like this. Quadius On 7/16/08, Dwain Powell [EMAIL PROTECTED] wrote: Hi, I am new at this so I really don't know how this works, so here it goes. I am a 49 yr. old C 3-4 quad. I can not move anything below my shoulders but I am not on a vent. I am going on my 24th year. The past 2 to 2 1/2 years I have been having dizzy spells to where if I don't tilt back in my w/c I will pass completely out. It happens after I eat a meal. I have been to different Dr.'s about this and the only thing they can tell me is that my blood is going into my digestion system. The only problem is it doesn't happen every time I eat. Has anyone ever heard of a problem like this? I also have scoliosis bad. My spine curves bad right in between my shoulders. Could this have anything to do with it? Any reply would be helpful. - Time for vacation? WIN what you need. Enter Now!
[QUAD-L] serious health questions
i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
[QUAD-L] Unidentified subject!
I'VE GTG FOR COUPLE WEEKS WHILE MY SON IS GONE AND DO MAJOR HOMEWORK CRUNCHING. LUV YA GUYS!
[QUAD-L] amitiza
who wanted the amitiza? write asap plz.
Re: [QUAD-L] the powerchair 'CLANK'
my quickie 626 had loud onemy new quantum6000 doesn't have AS loud...i can sneak up on people lol Tim Syfert [EMAIL PROTECTED] wrote:Does anyone have a powerchair that does not have the loud metal clank sound when activating the motor or coming to a stop? My chair is a Quickie 525 and the clank has always been rather irritating. Tim - Get the free Yahoo! toolbar and rest assured with the added security of spyware protection.
Re: FW: FW: [QUAD-L] How One Can live Alone
did you teach the dog to pull blankets? mine likes to go under cover and
usually pulls down with her, the little hog, i mean dog...
Merrill Burghardt [EMAIL PROTECTED] wrote:v\:*
{behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);} w\:*
{behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
I room board with my caregiver but try not bothering her especially at
night.
Water Solution: I keep a round Britta water filter picture at bedside.
Inserted is the cut off tube from a new bedside urine bag.
Pills: Tape pain meds or anything else to end of tube.
Blanket: My service dog will pull them up or down. Fan heater are on ECU.
I have a C5 injury requiring morning and go to bed care. I want a more
independent setting but this works temporarily as I told myself for 7 years.
For years I thought marriage was my solution but at 55 years old, never married
I do not think it is going to happen. I used to think a relationship with a
migrant would be a win win situation. Care for green card. Same situation as
marriage is I think it is not going to happen/ I have always heard 75% of
marriages are usually divorced with an SCI.
mb
-
From: Quadius [mailto:[EMAIL PROTECTED]
Sent: Sunday, June 10, 2007 2:29 PM
To: quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] How One Can live Alone
I have been living by myself for three or four years now. Similar to Mike, I
rely on an ECU and have quite a few things I can do while I am in bed. I sleep
on an air mattress now, but I used to have a lateral rotational mattress.
Since I have always slept on a specialty mattress, this wasn't a problem when I
decided to go it alone. My biggest concern was how to get medication when no
one was here. Well, having access to an ECU and a hospital bed which will move
up and down with that ECU, I only had to figure out how to get something to
hold the medication so I could get it when I wanted.
Well, I had an old microphone stand with a boom on it (like a piano boom),
which I purchased from RadioShack, so, using paper tape I managed to get one of
those plastic film covers affixed to the edge of the boom so that I could get
that with my tongue and let the medicine fall into my mouth.
In my particular case, however, I have a really good support system with very
trusted caregivers. I couldn't do it otherwise. I also have pretty good
neighbors around here, albeit they're not as good as my previous neighborhood.
Quadius
Re: [QUAD-L] Transfers
do your chair brakes need a tune-up? [EMAIL PROTECTED] wrote: i have wood floors. i put a skinny rug by the bed and tucked the edge of the rug under the bed. a rug with a rubber back works well too if you keep the floor really clean of dust and dog hair. dave In a message dated 6/12/2007 5:02:45 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: My Mom has hard wood floors and when I transfer my chair moves. We purchased rugs to correct it but the problem continues. Has anyone had this problem? What did you do to correct it? Thank you have a wonderful day! Shelly Loss 10 month incomplete c6-c7 - Check Out the new free AIM(R) Mail -- 2 GB of storage and industry-leading spam and email virus protection. Dave Visit My Home Page - See what's free at AOL.com.
Re: [QUAD-L] used wheelchair
what kind do you need? Mack Johnson [EMAIL PROTECTED] wrote: Hi, is there a website for used chairs for sale, need a backup. Mack Johnson [EMAIL PROTECTED] http://macknezjohnson.com
Re: [QUAD-L] cushion
i'd stick with the roho if you've had good 1 so farsometimes change isn't good. Dylan [EMAIL PROTECTED] wrote: Hi Fellow Quads, I'm about to get a new cushion with my new chair. I am asking you quads, particularly c5/6 or above complete (and if there are any of u out there who, like me, are thin/tall and have a hard time putting on weight, it would be helpful), who can give me some input/advice on a worthy cushion to meet my needs. I wish I could have one with a pressure gauge and perhaps even a sort of pressure mapping device built in. That would be awesome. The best cushion I have had to date has been the high profile Quatro Roho. Any advice or suggestions? Thank you in advance for your time, Dylan
Re: [QUAD-L] Any eBay sellers
postage is where most sellers make their money mark it up 20% above cost to ship... Quadius [EMAIL PROTECTED] wrote: I am selling a few odds and ends around my house it would eventually like to do something on eBay to make some additional money, but I'm wondering if anyone on here has any advice, regarding eBay. The biggest problem I have is trying to figure out how much to charge for shipping. Thanks, Quadius
Re: [QUAD-L] Gas
don't think it all gas, could be acid build-up from sodas or carbonated water. [EMAIL PROTECTED] wrote: EWWW On May 19, 2007, at 11:59 PM, Merrill Burghardt wrote: Gas , and not from the gas pump. I complained of my stomach bloating. Worst is the pain! So I take Prilosec, Renetadine, and anti-acid. Still the two issues persist and the SCI doctor said, it is part of the injury for quads to bloat. I can not accept this to be true. Any other gas problems? Merrill
Re: [QUAD-L] Gas
don't think it all gas, could be acid build-up from sodas or carbonated water. [EMAIL PROTECTED] wrote: EWWW On May 19, 2007, at 11:59 PM, Merrill Burghardt wrote: Gas , and not from the gas pump. I complained of my stomach bloating. Worst is the pain! So I take Prilosec, Renetadine, and anti-acid. Still the two issues persist and the SCI doctor said, it is part of the injury for quads to bloat. I can not accept this to be true. Any other gas problems? Merrill
Re: [QUAD-L] Chest sores
wow did they prop anything on you?? did anything spill? i'd be right back up there and asking the salon!!! Quadius [EMAIL PROTECTED] wrote: I was having a pretty stressful time and luckily had an appointment scheduled to get a facial. I don't have these very often, usually every year or two, but this one felt great considering how bad I was doing emotionally at that time. The sad thing is that night I ended up with two rather large spots on my chest there were ozzing. Well, I had my caregivers use 4x4s to get rid of the discharge and then the next day did the same thing. However, the following day I decided to put on a dressing and needed to shave my really hairy chest in order to accomplish this. Once we saw how nasty these things look after the shaving (I used the trimmer that wouldn't take off any excess skin) I immediately decided to go in and see the doctor. I just thought I would get advice on how to dress the wounds properly, but he was extremely concerned. He thought it was a bacterial infection or something else. He tried to call dermatology, but they wouldn't see me, even though I have an appointment coming up this Tuesday. Now I am at home with an antibiotic and dressing the wound three times a day. We still don't know if there was something that was transferred during the facial, but I find it difficult to believe that something used on my face could cause so much damage on my chest. Especially when you know that my facial skin is extraordinarily sensitive. I'll let you know what the verdict is when I get back from dermatology on Tuesday. Needless to say, I needed to get a few things off my chest. Quadius
