Fwd: [QUAD-L] Rested

[Bryce Willis]

The very worst part of my day is waking up in the morning. I’m always soaked in 
cold sweat and hurt all over.I dread going to bed just thinking about waking up 
in the morning. Quad life is such a joy...not.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Jeffrey Gaede >
Date: February 3, 2018 at 8:15:50 PM EST
To: Quad-list Post >
Subject: [QUAD-L] Rested
Reply-To: Jeffrey Gaede >

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

Fwd: [QUAD-L] Rested

[Bryce Willis]

The very worst part of my day is waking up in the morning. I’m always soaked in 
cold sweat and hurt all over.I dread going to bed just thinking about waking up 
in the morning. Quad life is such a joy...not.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Jeffrey Gaede >
Date: February 3, 2018 at 8:15:50 PM EST
To: Quad-list Post >
Subject: [QUAD-L] Rested
Reply-To: Jeffrey Gaede >

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

Fwd: [QUAD-L] Sleep During Day

[Bryce Willis]

I take three oxy 40s per day6am, 2pm, 11pm. I do have days that I cannot 
stay awake...like the last three days. I also take Paxil and ditropan. I assume 
these meds are the cause of my drowsiness but I don’t really know.
Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Bobbie Humphreys 
>
Date: October 12, 2017 at 8:55:44 PM EDT
To: greg >
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sleep During Day

I take 10mgs of morphine per day but am prescribed to take as much as 30mgs per 
day

I don't OD, but would like to, but sleep a lot!

I find it difficult to concentrate or have energy

I talked to my pain guy about getting off the morphine but he said "You didn't 
want to do that, believe me."

Bobbie

"Be the change you want to see in the world". Gandhi

On Oct 12, 2017, at 7:22 PM, greg > 
wrote:

I think its been a couple years now when I O.D. I was taking my pain meds and 
then started Baclofen. After a few days and the Baclofen built up in my system, 
no one could wake me up. I finely wake-up and the Fire Department and Aide Guys 
are there. Gave me Narcan. It basically is a narcotic antidote. That's how they 
know it's the meds.

Anyway, about 4 days a week, about 1 pm, I can not stay awake. At least people 
can wake me up. But I try and stay awake but I feel like I'm doped up. After an 
hour, I'm fine again. I would think its my pain meds, but I take then in the 
morning then at 2. So they are just about warn off by then.

I've stayed up all night, been super tired, but it still just seems different 
than normal tired. I don't think its meds. I would think it would be closer to 
when you took them.

Anyone else have this issue?

Greg

[QUAD-L] More crap

[Bryce Willis]

Well gang, another wonderful experience this morning. I woke up with a sore 
mouth. The corners of my mouth were cracked open and white. The inside of my 
mouth and throat was like a snowstorm. I have a fierce case of thrush. Oh boy. 
I have gargled with saltwater, biotene, 
Etc. still sore. Need diflucan I guess. Any suggestions? Damn it all.
Sent from my iPad

Fwd: [QUAD-L] Broken leg..

[Bryce Willis]

Well BJ, back in 93 I drove headlong into a tree in my van and shattered both 
legs. Both had to be in casts for several months. My knees were shattered all 
to pieces. A very ugly situation. I developed pressure sores everywhere the 
cast touched me. Heels, ankles, sides of knees. It took many months to 
recuperate. Make sure you cut a hole in the cast wherever it touches you.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: BeeJ >
Date: September 21, 2017 at 8:03:47 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Broken leg..

So I broke my leg Last Friday Night turning around in the dark with my power 
chair. The toe of my boot caught on my bed and I twisted it and heard a pop. So 
now I have a cast up to my knee that I can't feel. Anyone on here have any 
experience dealing with a broken bone below your level of injury? I'm a little 
worried about what's going on inside that cast.

-Bj

[QUAD-L] Driving

[Bryce Willis]

Have any of you had to give up driving simply because your arms and shoulders 
became too weak? I fear I am reaching that point. Larry

Sent from my iPad

[QUAD-L] Drooling

[Bryce Willis]

Well guys I have developed another unpleasant trait. I have begun to drool out 
the left side of my mouth even when I am awake and sitting up. Of course, when 
lying on my left side, I drool constantly. I have never drooled in my life. 
What in the world is causing this? Does any one else here share this wonderful 
trait? It makes me feel dirty and embarrassed.

Sent from my iPad

Fwd: [QUAD-L] Myrbetriq for bladder spasms

[Bryce Willis]

I have always used ditropan, but the side effects are awful. I also use Azo 
sometimes.


Sent from my iPad

Begin forwarded message:

Resent-From: >
From: >
Date: August 31, 2017 at 6:48:15 PM EDT
To: 'Paul Jacobson' >, 
'quad-list' >
Subject: RE: [QUAD-L] Myrbetriq for bladder spasms

I use it and like it.  I think it can raise blood pressure, though.

From: Paul Jacobson [mailto:pjacob...@san.rr.com]
Sent: Thursday, August 31, 2017 3:36 PM
To: quad-list >
Subject: [QUAD-L] Myrbetriq for bladder spasms

Has anyone ever used this for bladder spasms?  If so, thoughts?

  Myrbetriq is a once daily pill that mellows bladder spasms but 
doesn’t
  affect acetylcholine; instead it quiets the bladder by 
stimulating Beta 3
  receptors in the bladders muscle cells and doesn’t cause 
cognitive or
  other severe side effects that often accompany anticholinergics. 
It
  received approval by the FDA for treating overactive bladder.

Thanks!
Paul

[QUAD-L] Food

[Bryce Willis]

You guys ever feel like your food just stops at the top of your stomach ? Then 
it hurts and wants to come backup. I know my quadgut is probably the problem. 
So tiring. If I could in good conscience end thisquad life I would do it in a 
heartbeat. But got family and kids to consider. Larry Willis

Sent from my iPad

Fwd: [QUAD-L] New Chair

[Bryce Willis]

How about this. I got my new Invacare storm last November. About a month ago it 
started messing up. When you turn the power off it won't come back on. You have 
to disconnect the batteries. I think I described this earlier. Well the repair 
guy came by a couple of weeks ago and determined that the problem was in the 
joystick/control. I called them yesterday and they said they will not recognize 
the warranty because the unit had apparently been wet. This thing has never 
felt even a sprinkle! I have a strong desire to strike somebody with great 
force. What a bunch of crooks and liars! Any suggestions? Invacare wants my 
insurance to pay for it. Well of course they do. Bunch of greedy $);&:@! 
Any words of wisdom out there?

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: greg >
Date: August 15, 2017 at 8:48:51 PM EDT
To: >
Subject: [QUAD-L] New Chair

Been trying 6 months to get a new chair. First few months was mis 
communication. I was waiting for them to send me info, the rep thought he had 
and was waiting for me. Then arguing over what type of chair they could order. 
Now I get prescription to fix my old chair. They called and said they no longer 
work with my insurance group. I asked about the new chair we were working on. 
They said, Sorry, we didn't realize it was a different group name. So its 
starting all over.

The name of the chair place I get from my insurance.1 star rated, very bad BBB 
rating, 4 brands of chairs I've never heard of. I'm appealing to see if I can 
buy out of network. Can take another 15 days. What hassles.

Greg

Fwd: [QUAD-L] New Chair Prob

[Bryce Willis]

I have never had one but I have read several good reviews of them over the 
years.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Fragile >
Date: August 9, 2017 at 8:03:58 PM EDT
To: quad-list >
Subject: Re: [QUAD-L] New Chair Prob

What is the quality like on bounder (21st-century) power wheelchairs? Has 
anybody had any luck getting coverage for one through Medicaid?

On Thu, Aug 3, 2017 at 1:38 PM, Jeffrey Gaede 
> wrote:
BOUNDER POWER SEATING SYSTEMS



BOUNDER POWER SEATING SYSTEMS






From: greg >
To: quad-list@eskimo.com
Sent: Thursday, August 3, 2017 12:22 PM
Subject: [QUAD-L] New Chair Prob

Just heard from my chair rep.
They said you can not get seat raiser, legrest raiser, tilt, recline, and speed 
package all together.
They said speed package or seat raiser, not both.
Quantum Edge Z

Anyone know of a chair that goes 7.5+, and seat raiser?


Thx
Greg

Fwd: [QUAD-L] Movie

[Bryce Willis]

Rory O'Shea Was Here!  It's on Netflix!

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Larry Willis >
Date: August 8, 2017 at 9:48:04 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Movie

What is the movie about the young Irish lad who can only move one finger? He 
lives with a roommate that only he can understand. They have all kinds of crazy 
adventures together. It's a good one.

Sent from my iPad

[QUAD-L] Invacare more stuff

[Bryce Willis]

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Let me clarify a bit. When I hit the off button, the screen stays lit but says 
goodbye. I turn it back on but the chair still won't do anything until I 
disconnect and reconnect the batteries. The switch must be on when I plug it 
back in. Mucho frustrating.

Sent from my iPad

Fwd: [QUAD-L] Battery

[Bryce Willis]

Sent from my iPad

Begin forwarded message:

From: lwillis82...@msn.com
Date: July 31, 2017 at 9:04:23 PM EDT
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Battery

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: glenn henry >
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com
Cc: greg >, 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Battery

If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds like
one may be burnt through.  If you need more info send email to 
ghen...@aol.com.

On Wed, Jul 19, 2017 at 6:48 AM, 
> wrote:
If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick.

I hope this helps.
Best Wishes

In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com writes:
My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair.

I found a joystick on Ebay. It seemed to fix it. But after a few weeks, its 
weird again. My charger works, tried 2 to be sure. But some days it charges 
full, some days none. Charged 2 nights not going anywhere, still only shows 1 
bar. Now when I drive, it will just jerk, stop cold, joystick flash “Recharge”. 
I drive a bit more, same thing. Does it when it says full or empty.

Its like a loose wire, but if loose, it would die, go black. Sometimes it feels 
like the electric breaks are one while driving. I put in mode 2, slow speed and 
it didn't seem to jerk stop as much.

Any ideas?
Hoping to gwt new chair soon, Greg

Fwd: [QUAD-L] Battery

[Bryce Willis]

Ok, here is another quandary.i have an 8 month old invacare storm. WHen I turn 
it off the screen says goodbye and nothing works. I have to break power to get 
it to reset. If I am alone and accidentally hit the off button, I am screwed. 
Strangely enough, my previous chair, a storm, did the very same thing. Never 
did figure it out.Anyone else have this problem?

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: glenn henry >
Date: July 30, 2017 at 1:34:36 PM EDT
To: wheelch...@aol.com
Cc: greg >, 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Battery

If it wasn't for only having one bar, I would suggest checking the brushes. It 
sounds like
one may be burnt through.  If you need more info send email to 
ghen...@aol.com.

On Wed, Jul 19, 2017 at 6:48 AM, 
> wrote:
If I may.  If this issue was an automobile, a dealer would hook up the auto to 
a computer to analyze the issue.  Electric wheelchairs users and dealers don't 
have that issue. But each chair has a control module that directs energy to 
each motor, from the energy of the combined batteries, using the joystick as 
the guide.  Motors, and Magnets Brakes, are the biggest users of energy on a 
wheelchair, so each motor and magnetic brake assembly must be tested before and 
during the operation of the chair to determine the high energy draw, rather 
than just replacing the batteries and joystick.

I hope this helps.
Best Wishes

In a message dated 7/18/2017 10:16:08 P.M. Central Daylight Time, 
g...@eskimo.com writes:
My chair is possessed. I had battery issues, so changed, twice. Still was 
getting about   5 blocks a charge. They tried getting a new joystick, but 
couldn't, to old. They were going to replace entire electronics, but then I 
would not be eligible for a new chair.

I found a joystick on Ebay. It seemed to fix it. But after a few weeks, its 
weird again. My charger works, tried 2 to be sure. But some days it charges 
full, some days none. Charged 2 nights not going anywhere, still only shows 1 
bar. Now when I drive, it will just jerk, stop cold, joystick flash “Recharge”. 
I drive a bit more, same thing. Does it when it says full or empty.

Its like a loose wire, but if loose, it would die, go black. Sometimes it feels 
like the electric breaks are one while driving. I put in mode 2, slow speed and 
it didn't seem to jerk stop as much.

Any ideas?
Hoping to gwt new chair soon, Greg

[QUAD-L] The Courier-Journal E-Edition Article

[Bryce Willis]

I don't know whether to be scared or excited by this!

Follow the link below to view the article.
louisvillecourierjournal.ky.newsmemory.com/publink.php?shareid=13cc213f7


Sent from my iPad

Fwd: [QUAD-L] Fell Forward, bad time

[Bryce Willis]

When my son was two, he and I were out tooling around in the neighbors 
backyard. It was about 90°. We were going at a pretty good clip when all of a 
sudden my front wheel found a pothole hiding beneath the grass. Like you my 
head was thrown between my knees. I could not get up nor yell. It scared my 
little son to death. It was a heck of a situation. Finally, he ran to the back 
door crying. My wife finally heard him and came looking for me. I was rescued 
at the last second. To be that hot, breathless, and helpless is something I 
never want to repeat again. Just another one of the hellish attributes of 
quadom. Thank God for my young son.
Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Larry Willis >
Date: July 21, 2017 at 09:27:25 EDT
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Fell Forward, bad time

Whew, that was a close one, Greg!  Let's not do that again, ok? The heat and AD 
together could have made for a very bad outcome.

Sent from my iPad

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: greg >
Date: July 20, 2017 at 21:55:19 EDT
To: >
Subject: [QUAD-L] Fell Forward, bad time

I was going out the back door and fell forward. Into my lap. Joystick jammed my 
shoulder, but kept me from going further forward. Outside, 100 degrees, record 
humidity. Hard to breath, overheated, etc. Pouring sweat from A.D. It was bad. 
I thought it was hours, but it was just over 1 hour. I had to dump cold water 
on my head, put ice packs on. No one could hear me. It was no fun. The thoughts 
that go though your head. Between the pain, overheating, breathing, etc. No 
more going without chest strap. Greg

[QUAD-L] Dna

[Bryce Willis]

Any of you guys done the ancestry.com DNA thing? I just 
got DNA analysis back from ancestry.com. I am 16% English, 
24% Irish, and 52% German. Yes I was surprised. Larry Willis
Sent from my iPad

Fwd: [QUAD-L] I would like to share this article with you guys

[Bryce Willis]

Wow, now that is pretty amazing!

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: "Ismael Cavazos" 
>
Date: July 9, 2017 at 9:17:03 PM EDT
To: "Blue" >
Subject: [QUAD-L] I would like to share this article with you guys

http://www.guinnessworldrecords.com/world-records/longest-living-quadriplegic-(incomplete)

Fwd: [QUAD-L] 51 years post SCI

[Bryce Willis]

Glenn, what a wonderful post! So much of it applies to me and my years of 
Quadom. I am 65 and am on year 46 of quad life. I never dreamed of being a 
teacher, nor getting married, having children, or even living this long. My 
health is declining now at a pretty fast rate, but both of us have exceeded 
expectation by a good number. And I too have many times visualized the big 
truck encounter. I do believe now, Glenn, that we have reached the point of 
adieu. We have lived the good life, and if the Lord is ready, so am I. But who 
knows? We may have a long stretch remaining! Whatever the future holds, God 
bless you my friend! We have both fought the good fight. We shall both rest 
when the race is run. Larry Willis

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: glenn henry >
Date: July 9, 2017 at 3:52:30 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] 51 years post SCI

 I sold the posting last week for 31 years, mine is 51 on July 10.

A lot of water has gone over the dam sinc the day, I married and remain so 
today, three  stepchildren, nine grandchildren and one dog.

When one door was slammed shut, it seemed that God would open another. I 
operated a successful electronics business for 30 years, acquired some rental 
properties, built a second home in the mountains and life was good.

It was good. I crossed the threshold about two years  ago and now I believe I 
have traded quality for quantity. I probably will be facing surgery in the 
future and I don't believe I could expect a good outcome.

I sometimes sit at a local Riverpark and think how easy it would be to roll 
down the windows of the van and drive into the drink. No, that won't happen. 
I've seen firsthand what suicide does to those left behind. My brother was a 
police officer and on his first solo patrol watched his best friend's father 
step out in front of the car an committed suicide. He could only watch it 
happen and couldn't do anything about it. The thinking back then from the 
police department, keep your mouth shut don't talk about it and it wil go away. 
It went away, or  more so  he did.

I've had a good life and don't regret much. I used to always make the statement 
if God would have only given me one good hand, how much farther I could've 
gone.   well, then I went to an  event, sat with a fellow quad and his wife 
needed to feed him. I promise God right there and then I would never make that 
statement again.

 Will I be here for 52, only God knows that. I do know that I made an influence 
on many people's lives and God used me in ways I could never have dreamed.

Take care and hang in there, let's see about 52.

Glenn Henry

Fwd: [QUAD-L] Molded backs

[Bryce Willis]

The invacare chair I got last year has molded sides. These are lateral supports 
that keep me from falling sideways. They have made driving my van much easier. 
However, they are in the way for other things such as transferring, leaning 
over to pick something up, etc.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Bobbie Humphreys 
>
Date: July 8, 2017 at 4:16:49 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Molded backs

Has anybody ever gotten a molded back on their chair? Did it help you?
I have an appointment to get one August 23rd because of my scoliosis.
Bobbie

"Be the change you want to see in the world". Gandhi

Fwd: [QUAD-L] I would like to share this article

[Bryce Willis]

Crock crock crock! I was bit by a recluse about ten years ago. Put me in the 
hospital and left a big hole in my side. Didn't do a $&)/$ thing for my legs. 
They are some bad critters.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: "Ismael Cavazos" 
>
Date: July 4, 2017 at 7:23:34 PM EDT
To: "Blue" >
Subject: [QUAD-L] I would like to share this article

http://geekologie.com/2009/03/real-life-spiderman-paralyzed.php

Re: [QUAD-L] question about contracting muscles atrophying, etc.

[Bryce Willis]

About the best treatment is exercise/movement that keeps the joints and muscles 
from becoming stiff. The hard part is finding someone to do this everyday. It 
has to begin before the stiffness sets in. It's very hard to reverse the 
process.

Sent from my iPad

On Jun 11, 2017, at 6:06 PM, Dave Krehbiel 
> wrote:

Regarding contraction, while in a nursing home, I had a similar problem to a 
lesser extent. In order to straighten my arms, they attached some sort of a 
pillow or a brace to each arm to try to straighten each arm and to help hold it 
straight. This sounds to me like a job for a physical therapist or occupational 
therapist. It helped me. After using the device, I have become a better 
extending and straightening my arms while in bed.

In the long-term, you might consider e-stim. If your biceps are contracted, 
that means that your triceps are extending and lengthening. You can 
electrically stimulate your triceps, and other muscles, to help them contract 
and strengthen. If you have partial control over your triceps, this can help 
you increase that control.

If you Google estim, unfortunately, you will find a number of sexually related 
devices.

But here is a place you can start: http://www.lgmedsupply.com/tensproducts.html

after the system has been selected and configured and placed on the appropriate 
muscles, is relatively easy for people who are not physical therapists to 
attach the pads and device.

Has anyone else tried this? How did this work for you?

Take care,

Dave Krehbiel
Olney, MD


From: DEBRA DEW [mailto:n14...@hotmail.com]
Sent: Sunday, June 11, 2017 11:01 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] question about contracting muscles atrophying, etc.


my arms and legs are contracted at about a   45° angle,, which makes sitting in 
a wheelchair rather awkward with my legs..





I've seen pictures of long-term paralysis patients, aand eventually their knees 
are touching their bottom and there hands are touching their chin. Looks very 
uncomfortable and like a pretzel. Years ago I inquired about what could be done 
 to stop the progression, and I was told they would have to put braces on me 
that are very bulky and uncomfortable, so I  decided not to do that. It's hard 
enough to maintain comfort now without that, on top of it.



My life expectancy is about another 20 years, and I really do wonder what's 
going to happen to my body with these contractions  of my muscles. Please share 
whatever knowledge you possess about this.  And I wonder if I had physical 
therapy, If it would have done anything  to make me more comfortable.  I have 
one CNA that moves my arms  ggently to open them  and it does feel good while 
she is doing it.  I had physical therapy for a few months, that my insurance 
stopped paying for it quite quickly  (Medicaid).. Is there any way to force 
Medicaid to provide for physical therapy?





I found this in an encyclopedia:Even with "complete" injuries, in some rare 
cases, through intensive rehabilitation, slight movement can be regained 
through "rewiring" neural 
connections, as in the case 
of the late actor Christopher 
Reeve.[9]







Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

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Virus-free. 
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Fwd: [QUAD-L] Fun Story, My Photos

[Bryce Willis]

Greg"that is a damn fine article. Proud of you, man! Larry Willis
Sent from my iPad

Begin forwarded message:

Resent-From: >
From: greg >
Date: May 29, 2017 at 12:02:56 PM EDT
To: >
Subject: [QUAD-L] Fun Story, My Photos

I mentioned the other day I won a local photo contest. The local news came out 
to do a story. They did not know I was a quad when they came out, but they 
mentioned my Gofundme, how cool. A bit embarassed. They played the award up, 
made it sound bigger than it was. But thats the news. But fun...

http://www.azfamily.com/story/35537018/paralyzed-photographer-from-chandler-wins-awards


Greg

Fwd: [QUAD-L] Who cares for the family caregivers?

[Bryce Willis]

I'm pretty sure there is a Facebook group for caregivers.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: "Dave Krehbiel" 
>
Date: May 19, 2017 at 8:51:02 AM EDT
To: >
Subject: [QUAD-L] Who cares for the family caregivers?

I have been a quadriplegic for nearly 10 years now, and as a consequence, my 
wife has taken on the role of being a family caregiver for almost 10 years.

She needs help. I have some ideas about setting up an organization to help 
support family caregivers, and right now I am doing some research.

Are you aware of any helpful programs or resources or information or 
organization supporting family caregivers?

Thanks so much, and take care,

Dave Krehbiel
Olney, MD

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Virus-free. 
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Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[Bryce Willis]

You are right Greg. Since the advent of chain stores, the wonderful old Main 
Street shops have disappeared. The old country stores that used to dot the 
landscape are also gone.I have such beautiful memories of those places. 
Walmart, Target et.al. are just community killers. Now add Amazon to that list. 
I must say, though, they saved our little community. We had a huge Fruit of the 
Loom plant here that closed shop and moved to Central America in the late 
'90's. They put over 4,000people out of work. Amazon stepped in and used their 
old facilities to open a huge distribution center. They are still growing. Sure 
wish I could have bought stock then. It was about $12 a share. Now it is in the 
hundreds. Wow!

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: greg >
Date: April 9, 2017 at 7:01:36 PM EDT
To: >
Subject: Re: Fwd: [QUAD-L] Amazon to hire 30,000 virtual customer service 
workers | Jesse Jones  - KIRO TV

Amazon is great for us, but it put a lot of little guys out who can't compete 
with prices. But I use them a lot. And with prime, free shipping on most thing. 
Same day shipping on a lot. Just last week I needed a cord for something, had 
it free shipping by dinner time. And free returns, pick at house. Great place 
to do business with.
Greg


> Amazon is the most amazing outfit I have ever seen. They have
> everything and do everything.Bezos is a genius. If only I had
> invested a few bucks in it about 12 years ago. WaitI've never
> had a few bucks! Lol A fellow can always dream.

Fwd: [QUAD-L] Sleepy

[Bryce Willis]

Do drinks like Ensure help? What about Vitamins? I know I have a lousy diet, 
but if I eat very much my stomach hurts. I can eat a big hamburger and suffer 
for days.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: "Carrie Pinter" >
Date: March 29, 2017 at 8:21:04 PM EDT
To: "'Larry Willis'" >, 
>
Subject: RE: [QUAD-L] Sleepy

Yeah, it’s probably safe to say that generally, quads do not get restful sleep 
at night, which affects everything else, physically, mentally, and ultimately, 
emotionally.

From: Larry Willis [mailto:lwillis82...@gmail.com]
Sent: Wednesday, March 29, 2017 12:43 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Sleepy

Same here. I stay tired. Some days worse than others.

Sent from my iPad

Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: Jeffrey Gaede >
Date: March 28, 2017 at 10:34:50 PM EDT
To: greg >, 
"quad-list@eskimo.com" 
>
Subject: Re: [QUAD-L] Sleepy
Reply-To: Jeffrey Gaede >
I rarely feel rested for any decent length of time. I think it' a quad thing


From: greg >
To: quad-list@eskimo.com
Sent: Tuesday, March 28, 2017 7:30 PM
Subject: [QUAD-L] Sleepy

Ever have those days were no matter what you do you can not stay awake. It's 
like I took a box of sleeping pills. Fall asleep drinking coffee. Some days its 
so bad, I wonder if my time-release pain meds were cracked and it all came out 
at once.

Greg

Fwd: [QUAD-L] Power wheelchair getting stuck on oriental rug.

[Bryce Willis]

Try backing onto the rug and while you are on it. Works for me.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: greg >
Date: March 10, 2017 at 12:35:26 PM EST
To: >
Subject: Re: [QUAD-L] Power wheelchair getting stuck on oriental rug.

Same issue..I have wood floors and it happens most on a rug by the front door, 
because I have to turn a bit to open it. I double back taped a rubber / 
plastic, chair mat for office rug / chairs. A lot have spikes to they don't 
move, but you can find big flat ones. If you don't mind a slight bump, a 1/8 
sheet of plywood works too. You don't see it much.



> We have hardwood floors, and in one room we have an oriental rug.
> At first I was able to drive my chair into the room without any
> problems. But lately, my wheelchair seems to be grabbing the
> Oriental rug, and the rug and up wrapped around my drive wheels.
>
> Maybe it is because the rug is getting older. Maybe it is because
> I'm driving a different wheelchair. But I'm wondering, has anyone
> else had this problem? I'm considering buying one of those clear
> plastic mats people buy to put under their desks in office spaces,
> and to use that as a sort of a pathway for bridge onto the rug.
>
> Does anyone have any experience or suggestions or ideas?
>
> Thanks so much, and take care,
>
> Dave Krehbiel

Fwd: [QUAD-L] Bd

[Bryce Willis]

I hear you, guys. I shake and shiver and then wake up later burning up. Must be 
a common quad ailment. I wake up every morning in a miserable cold sweat. Fun 
times.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: greg >
Date: January 26, 2017 at 9:30:59 PM EST
To: >
Subject: [QUAD-L] Bd

I hate going to bed. I freeze the first half hour no matter how warm I get my 
room.
Shake like I'm convulsing.
I'd stay in my chair 24/7 if I could.
Plus I just hate not being able to move around.
Greg

[QUAD-L] Tech question

[Bryce Willis]

Hey peeps. Tech question -- I need a program to add text to my photos. Got any 
good suggestions? Larry Willis

Sent from my iPad

Fwd: [QUAD-L] What did fellow quads get for christmas?

[Bryce Willis]

The new CDs by John prine and Rolling Stones, cheese box from Figis, and some 
much needed new clothes.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Lori Michaelson >
Date: December 27, 2016 at 2:40:08 PM EST
To: RONALD L PRACHT >, 
quad-list >
Subject: Re: [QUAD-L] What did fellow quads get for christmas?

* Chocolate (I couldn't live without it... LOL).

* Omaha Steaks gift that included 2 filet mignon steaks, chicken, and other 
foods to make a meal with meat.

* Money.

* Gift cards.

* A super soft lap blanket or bed blanket very rich in colors with dogs all 
over it since I love dogs.

* A full life-sized stuffed Golden retriever that looks SO real that every time 
I go buy it and out of the corner of my eye and think it is my Golden 
(retriever) daughter!

* Christmas ornaments

That's all I needed.  Will pass along photos soon.

On Tue, Dec 27, 2016 at 9:17 AM, RONALD L PRACHT 
> wrote:
I got a portable dvd player for my table by my bed. An Atari portable to relive 
my childhood games. A hobby mat to work on my r/c models. Other misc junk.

How about you?

Ron



--
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

[QUAD-L] Pain

[Bryce Willis]

My neck and shoulders hurt so bad last night I wanted to dig a hole and pull 
the dirt in over me. When I woke up I thought I was buried in concrete. My neck 
and right shoulder still hurt. Any solutions? Larry

Sent from my iPad

[QUAD-L] Pain, sleep, and other trivia

[Bryce Willis]

Hey guys. For the last two months my neck and shoulders have hurt so much I 
can't sleep at night. I don't know if it's arthritis or sleeping like a 
pretzel. Anyone else have this problem? Hope everyone had a great day! Larry 

Sent from my iPad

Fwd: [QUAD-L] Need a toe truck!

[Bryce Willis]

Check this out. I think this might work. www.alimed.com<http://www.alimed.com>
Look for foot extenders.

Sent from my iPad

Begin forwarded message:

From: "carrie pinter" <cpinte...@comcast.net<mailto:cpinte...@comcast.net>>
Date: November 7, 2016 at 7:29:08 PM EST
To: "'Bryce Willis'" <lwillis82...@msn.com<mailto:lwillis82...@msn.com>>
Subject: RE: [QUAD-L] Need a toe truck!

I have a new Pride J6 and so many vital features about it make life more
difficult. Same footrest issue as you. I am considering extending the

Carrie


-Original Message-
From: Bryce Willis [mailto:lwillis82...@msn.com]
Sent: Monday, November 07, 2016 3:15 PM
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: [QUAD-L] Need a toe truck!

Hey guys. I need your knowledge and guidance. I have an Invacare power
chair. The footrests are typical Invacare -- too small. My feet stick out
several inches beyond the pedal. I keep ramming my toes into things. I have
destroyed my big toe and the two adjacent toes. I need bigger pads like the
ones E & J used to make so my toes won't be floating in air. Any
suggestions?

Sent from my iPad

[QUAD-L] Need a toe truck!

[Bryce Willis]

Hey guys. I need your knowledge and guidance. I have an Invacare power chair. 
The footrests are typical Invacare -- too small. My feet stick out several 
inches beyond the pedal. I keep ramming my toes into things. I have destroyed 
my big toe and the two adjacent toes. I need bigger pads like the ones E & J 
used to make so my toes won't be floating in air. Any suggestions?

Sent from my iPad

Fwd: [QUAD-L] Groin rash

[Bryce Willis]

Sounds like an outdated cable and maybe a case of wornouts. Try some diflucan. 
Purty sure its a cure

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Lissette Whitehead >
Date: October 19, 2016 at 2:54:55 PM EDT
To: >
Subject: RE: [QUAD-L] Groin rash

Hello everyone,

I hardly ever write here but I read the emails frequently. This time I need 
help though.
I've had a terrible rash in my groin/inner thigh area for about 2 months now. I 
have tried different ointments, corn starch,
Chamomile and nothing works. I'm 10 years post injury and this has never 
happened to me before. I have no feeling there but
when I'm being cleaned my body get pain reactions, strong spasms, chills and my 
face gets really hot.
Anything someone could recommend? Do I need to see a doctor?

Thanks in advance and best regards to all.


From: g...@eskimo.com
To: quad-list@eskimo.com
Date: Tue, 18 Oct 2016 16:47:43 -0700
Subject: [QUAD-L] Internet

I've been having very bad internet problems, so I had them come out. I've been 
paying for fast cable internet. I found out the modem / router they put in a 
long time ago can't handle those speeds. So Its been slower than it should 
be... Good news is, our area is one of the first with Gigablast. 1gbps. And its 
less than I pay now. Can't wait. Greg

Fwd: [QUAD-L] BP

[Bryce Willis]

Mine usually runs about 80-90/60. In times of pain or stress, it will spike to 
about 160/120 or higher. I just live with it and pray I don't explode!

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Gail Overton >
Date: October 13, 2016 at 5:39:18 PM EDT
To: Jeffrey Gaede >, 
"quad-list@eskimo.com" 
>
Subject: RE: [QUAD-L] BP

My husband's BP is typically 90 to 100 over 60 to 70, much lower than when he 
was physically able, but they said a new normal. He doesn't take any blood 
pressure meds. But 54 is really LOW; my father was hospitalized when his went 
to 80/50 and he needed a pacemaker.

What do we do for fun? Nothing yet; we are still in the physical therapy stage, 
but after two years, not much progress. We plan to move back to the desert and 
get my husband an off-road wheelchair so he can get back outside. We haven't 
really had time to have fun yet.

From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Wednesday, October 12, 2016 9:19 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] BP

My BP has been a steady 90/60 for years. Sorry to break up all this talk about 
pills and blood pressure but what do you guys do for fun? What do you do to 
feel a part of the world that certainly wasn't made for the disabled? What do 
you do to get by and not feel like that's all you're doing - getting b


From: Danny Espinoza >
To: Bobbie Humphreys 
>; 
quad-list@eskimo.com
Sent: Wednesday, October 12, 2016 8:51 PM
Subject: RE: [QUAD-L] BP

Not that low but mine is 90's over 60/70's sometimes
-Danny
 Original Message 
Subject: [QUAD-L] BP
From: "Bobbie Humphreys" 
>
Date: Wed, October 12, 2016 7:40 pm
To: >

I went to the Doctors today and my BP was 54 over 48
Anybody else have low BP?
Bobbie

"You must fail in order to succeed"

Fwd: [QUAD-L] Wound FYI

[Bryce Willis]

John, how in the world can you take in 140 grams a day? Larry Willis

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: alcibiates2 >
Date: August 7, 2016 at 1:47:52 PM EDT
To: Lori Michaelson >, 
William Lang >, quad-list 
>
Subject: Re: [QUAD-L] Wound FYI

I do know the hospital blue boots, but quite frankly, I believe that they have 
saved my boney feet and ankles from many sores over the years.
In healing sores,  I've found that a high protein diet is essential. A sore 
will drain protein from your system like nothing else.
Don't turn your nose up to those nasty drinks. Just give in and choke it down. 
At least 140 grams per day.
Best Wishes,
John s.


 Original message 
From: Lori Michaelson >
Date: 08/05/2016 5:02 PM (GMT-05:00)
To: William Lang >, quad-list 
>
Subject: Re: [QUAD-L] Wound FYI

Hey William,

I am sorry to hear about your ongoing problems, but this type of thing seems to 
be running rampant this past year, with many of us on this list no matter how 
hard we try for the breakdowns not to happen!

I have never had a Roho cushion as I have always used a rotating air mattress. 
but I posted a couple of weeks ago or a little bit longer what is going on with 
me as a result of a careless nurse ruining my urethra. By stretching it. This 
leads to urine draining around the catheter, which I have never had in my life, 
which gives a Domino effect of skin breakdown -- most of which was causing my 
old battle wounds that I had between 2009 and 2012, whereby that very fragile 
skin will never get back to as strong as it was.

To add insult to injury, and for the first time in my life a wound opened deep 
in the crease of my groin and for my safety [so any wrong movement or urinary 
bacteria by getting up in my chair] I have been staying in bed. It has been a 
little over 3 weeks now. They are both now closed but fragile, so I will wait a 
few more days to give it a chance to seal a little longer for lack of better 
words.

I DID get up on Tuesday of this week to go see my urologist about the strategy 
of what to do about this urinary leaking and I was going over very smooth roads 
and did not go over any extraordinary bumps or anything. And it is only 10 
minutes away. But in that time I got an abrasion over my right is she'll 
tuberousity, which is caused by shearing. My Roho Cushion has served me well 
for shearing and that is why I started using one beginning in 2010/2011 
timeframe. So I could get up after my old battle wounds were mostly closed and 
then closed.

What I have noticed a great correlation to happen is between all the stress I 
have been through over the last six months (because of what happened to me 
around February 1, of having my urethra stretched terribly, but of which I did 
not report at the time, because I did not think it would hurt long-term. And 
there was really no way I could "prove" that one particular nurse did it under 
the circumstances).

Being without any family is what hurts the most and none of this would have 
happened had my sister and brother-in-law been able to keep me living with them 
and they very well could have because they took me in for 3 1/2 years after my 
husband's passing for what I thought would be much longer than that . And they 
had nowhere for me to go because there was no accessible houses or apartments 
in their town or around it. They did not even think twice about the 
consideration of putting me in a nursing home I have always been an active 
person and I was getting great care by hiring morning and evening caregivers 7 
days a week and I had a great home health agency providing me with all nursing 
needs and 3 morning home health aide visits, which Medicare Certified Home 
Health Agencies started to cut way back on, starting in 1999  thanks to the 
Clinton administration.

Their reasons for not being able to keep me on more selfish ones in my humble 
opinion. Besides, the three or four other family members lived in the same area 
and they could have kept "sharing the care" outside of my morning and evening 
caregivers. For example, I can feed myself and I was eating with them or if 
they went on vacation and my other sister would come down to help me during the 
day and overnight if I needed anything. My sister had to take me to doctors 
appointments, but they were only a few times a year.

Everything was going great when living with my sister and brother-in-law and 
having other family around, but after they were forcing me to "move on" I had 
to decide what I had to do and do it quickly. Since my husband 

[QUAD-L] Years they fly

[Bryce Willis]

Hey peeps. On this fine day 45 years ago I entered the world of Quadom. August 
7, 1971, I made a simple two-foot jump into Green River Lake. My c-5 vertebra 
went CRACK and so did my life. Now here I am at age 64 still trying to make 
sense of it all.

Sent from my iPad

Fwd: [QUAD-L] Strange Request

[Bryce Willis]

Strange indeed. I would steer clear of this fellow.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: alcibiates2 >
Date: July 29, 2016 at 3:14:31 PM EDT
To: greg >, 
quad-list@eskimo.com
Subject: RE: [QUAD-L] Strange Request

Well Craig there's a lot of crazy people out there. And it's a cold cold world.


 Original message 
From: greg >
Date: 07/29/2016 2:31 PM (GMT-05:00)
To: quad-list@eskimo.com
Subject: [QUAD-L] Strange Request

I got a strange request today. A guy I thought was a quad on Facebook ended up 
saying he was a caregiver. After chatting a bit, asked me if we could pretend 
he was my caretaker??? I said... "not into that, sorry..."
He says... "You're already a quad, so its easy for you."
Then he says... "You should take that off FB its inappropriate."
I said what is? His reply was only a... U

Strange guy, Greg

[QUAD-L] Disability issues

[Bryce Willis]

DNC puts disability issues front and center
http://www.cnn.com/2016/07/27/opinions/dnc-on-disability-issues-opinion-thomson-deveaux/index.html


Sent from my iPad

Fwd: [QUAD-L] Pens?

[Bryce Willis]

I put the pen over my ring and middle finger and under my little and index 
fingers.
Works decently enough.

Sent from my iPad

Begin forwarded message:

Resent-From: >
From: Eric Olson >
Date: July 27, 2016 at 6:35:51 PM EDT
To: >
Subject: Re: [QUAD-L] Pens?

Can you use pen again? http://www.penagain.com/


On 7/27/2016 1:39 PM, Bobbie Humphreys wrote:
I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any 
pressure.
Bobbie

Smile Everyday



---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

Fwd: [QUAD-L] 50 years

[Bryce Willis]

Keep on chooglin' Glenn! You really are an inspiration, my friend. Better not 
slow down though. Bobbie and I are right behind you at 45 years post!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Bobbie Humphreys 
> Date: July 8, 2016 at 6:34:00 PM EDT
> To: Eric Olson 
> Cc: quad-list@eskimo.com
> Subject: Re: [QUAD-L] 50 years
> 
> We're all standing on your shoulders 
> Thank you
> Bobbie 
> 
> Smile Everyday
> 
>> On Jul 8, 2016, at 2:14 PM, Eric Olson  wrote:
>> 
>> Nicely done.  What level are you?
>> 
>>> On 7/8/2016 12:29 PM, gah17...@aol.com wrote:
>>> On Sunday, July 10, I will have reached a milestone. I have not known many 
>>> people with severe spinal cord injuries reaching this milestone. On July 10 
>>> it will be 50 years post spinal cord injury. In the past, those on the 
>>> world of  quadriplegics were not expected to reach this milestone. In fact, 
>>> in 1968 after 2 ½ years post injury, my parents made the decision to bring 
>>> me home from the Elizabethtown Cripple Children’s Hospital.  The head nurse 
>>> took my father aside and gave him some advice.  Her advice, take him home, 
>>> buy him a television and wait for him to die. It sounds cruel, but the 
>>> thinking in the 1960s was quadriplegics do not survive a long life.
>>>  
>>> There are several reasons I have reached this milestone, the first is by 
>>> the grace of God and second is the Vietnam War. During the Vietnam War the 
>>> MASH units were advanced resulting in many soldiers returning home severely 
>>> wounded with many spinal cord injuries and our government pushed research 
>>> on how to better their lives.
>>>  
>>> Throughout the years after 1966, many trials, tragedies, blessings and 
>>> lessons were learned. The 2 ½ years I spent in Elizabethtown Hospital 
>>> helped prepare me for these 50 years. Being exposed to all kinds of 
>>> children with illnesses, injuries and birth defects helped prepare me for a 
>>> life much different than I would’ve ever dreamed.
>>>  
>>> Starting a small business in the early 1970s seem to reinforce the fact 
>>> that with God’s help I could do anything. I believe that physical issues or 
>>> injuries to a person when they are young gives them the stamina and drive 
>>> to succeed.
>>>  
>>> I wanted to work in electronics, but was encouraged by OVR (Office of 
>>> vocational rehabilitation) not to go into this field.  I always was 
>>> interested in electronics and enjoyed making things spark. I told my OVR 
>>> counselor, if you were not helping me to take a correspondence course, I 
>>> would pay for it myself. The Lord put the need on people’s hearts and I 
>>> would take money sent to me in get well cards and put that toward a 
>>> correspondence course. After I had completed three quarters of the course, 
>>> the counselor realized I was serious and OVR paid the last part of my 
>>> education.
>>>  
>>>  
>>> The Lord always put you in the right place at exactly the right time. In 
>>> the 1970s and early 1980s our country had a gas crisis. One of the things 
>>> jumping in popularity was the citizens band radio. This was the start of my 
>>> journey into the electronics field. The Lord guided me to treat my 
>>> customers with respect and honesty. I definitely followed his lead. We 
>>> migrated from consumer electronics into business communications, then into 
>>> the public service. In 1998, when we sold the business, we had serviced 
>>> fire equipment through our mail in division to 49
>>> States.
>>>  
>>> Throughout the years I learned many lessons, some hard and some easy, but I 
>>> learned that God was guiding my life. In the mid-1990s my wife had a hip 
>>> replacement surgery go bad and as she was my main caregiver, outside people 
>>> were hired taking pretty much everything we had saved. No bitterness, this 
>>> is God’s plan, suck it up and follow him. That has been pretty much what I 
>>> have done all my life.
>>>  
>>> The last two years have been quite a roller coaster ride. There were days 
>>> that I did not believe I would make it through, other days I felt like I 
>>> could lick the world. Things are still happening physically, but we keep 
>>> our focus on Him and we take each day as it comes.
>>>  
>>> I’ve been on the quadlist, probably over 20 years and many times found 
>>> information from others helpful.
>>>  
>>> I’m going to “ suck it up”, 51 is only 365 days away.
>>>  
>>> Glenn Henry
>> 
>> 
>> 
>>  
>> This email has been checked for viruses by Avast antivirus software. 
>> www.avast.com
>> 
>> 

Fwd: [QUAD-L] 18 Years today

[Bryce Willis]

Congrats Nicki on 18 years of Quadom. It takes a strong, brave, and resilient 
person to do what you have done. God bless, keep the faith, and keep on 
truckin'! Love and stuff, Larry Willis 

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "nichole rohling" 
> Date: June 27, 2016 at 7:58:33 PM EDT
> To: 
> Subject: [QUAD-L] 18 Years today
> 
> 18 years ago today I performed my Olympic dive J changing my life for 
> forever………I was 29, my son 13 and daughter 19 months
>  
> Thank you all for your many years of advice and help.
>  
> Nicki
> c5/6

Fwd: [QUAD-L] Chair Problems

[Bryce Willis]

Nikki, I have that very same chair and joystick.Five days ago it decided to do 
something similiar. When I turn it off, the screen freezes in the gear I was 
in. It won't turn off or go back in gear. I have to disengage the batteries and 
shove them in with some force to make it come back on. I too, am baffled.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "nichole rohling" 
> Date: June 25, 2016 at 6:23:58 PM EDT
> To: 
> Subject: [QUAD-L] Chair Problems
> 
> I have an Action Arrow Storm with a MK6I joystick. Over the past several 
> weeks my chair is doing the following:
>  
> sometimes when I lock in my EZ Lock the green line that says Driving will 
> turn yellow and say “Low Battery” and won’t go until I turn it off/on then it 
> will go……I have new batteries that are fully charged. The screen also appears 
> to go dim and bright. It also will do it sometimes going over door thresholds
> after this happened a few times it quit while backing up the ramp into my 
> van. Got same message several times so I finally turned around and went 
> forward (that didn’t work though today, wouldn’t go forward or backward)
> It also will just quit moving and say Stopping on the green line and says 
> Release JS – I’ll lose a bar or 2 bars then had full battery when I turned 
> chair off/on
> A few times the screen turns red when hitting a bump and says batteries have 
> no charge – chair won’t move, turn off/on and it goes, batteries show fully 
> charged
>  
> Now it has started occasionally only going a few inches, especially on any 
> incline, some days it does fine.
>  
> I had my brother check battery connections and he said they were tight, 
> checked bolt on my chair for EZ Lock and it’s not loose, released motor locks 
> and pulled them back up.
> Even unplugged wires going into motors and plugged them back in
>  
> Any suggestions what else to check? I think it has to have something to do w/ 
> battery connections somewhere but they can’t come until Friday to check it 
> (been waiting for 3 weeks)
>  
> Hoping one of you has had the same experience J
>  
> My dearest friends daughter’s wedding is tonight and I can’t go because my 
> chair is messing up
>  
> Nicki
>  

Fwd: [QUAD-L] Have sore on rear. Have Roho question

[Bryce Willis]

Outstanding answer, Bob.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Robert Vogel 
> Date: May 24, 2016 at 12:52:47 PM EDT
> To: DAVID LEWIS 
> Cc: Quad-list Post , Borcherding Tom 
> 
> Subject: Re: [QUAD-L] Have sore on rear. Have Roho question
> 
> Hi David,
> 
> Bob Vogel here.  I’m a T10 complete para, 31 years post injury and I’ve had 
> experience in both
> questions you ask.
> 
> Per your ROHO question—the first and most important thing to do is have your 
> sore documented by
> your doctor, either your primary care doctor or PM doc—meaning you get in 
> to see the doc, and the
> sore is in your medical chart.  From there it *should* be a slam dunk to get 
> a ROHO.  Usually the best way
> to go about it is can call your local DME provider (wheelchair and cushion 
> store) and tell them
> you have a pressure sore, you are on an egg crate cushion and and need to 
> move up to a ROHO at which 
> point they *should* take you step by step through the process which is: 1. 
> Document by doctor.  2. Set up an 
> appointment with a seating clinic, either a physical or occupational 
> therapist that specializes in seating. 3. The 
> DME provider then does a great deal of paperwork contacting your insurance 
> provider for approval, getting detailed 
> chart notes from seating clinic as well as chart notes from your doctor, 
> getting a detailed “letter of medical necessity” for 
> your cushion etc.  This is a lengthy and time consuming process, however in 
> the case of a pressure sore you should
> be given top priority.
> 
> An example of this—30 years ago—despite asking for a ROHO, I was sent home 
> from rehab on a memory foam cushion.
> Despite constant weight shifts and mirror-skin-checks every night, about 
> three months after I was out of rehab I developed
> a small pressure sore (about the size of the round eraser at the end of a 
> pencil).  It wasn’t deep, but it wouldn’t heal.
> I went to my PM doc, had them look at the pressure sore and they contacted 
> my DME provider and my insurance
> (Medicaid) paid for a ROHO—which I got within a month.  A combination of the 
> ROHO, lots of weight shifts, spending
> lots of time off my butt, I was able to heal the sore.
> 
> Per your question about a wound care nurse, they are vital! A wound care 
> nurse works wonders helping heal a
> sore as fast as possible.  A pressure sore needs very specific care and 
> environment at different stages of 
> healing—such as debridement, (removing dead skin in or around the wound), 
> specific types of packing materials 
> (stuff that goes in the wound to give healing cells something to hang on to), 
> creams for specific PH, etc. etc.  Wound
> care nurses know exactly what to do with a sore and when to do it to heal you 
> as fast as possible.
> 
> Hope this helps.
> 
> Bob Vogel
> 
> 
> 
> 
>> On May 24, 2016, at 8:58 AM, DAVID LEWIS  wrote:
>> 
>> Hiya, 
>> I have a sore starting on my butt. It wont seem to heal.
>> They asked me if i needed a wound nurse. What do they do.
>> 
>> And does Medicare cover the cost of one of those   Roho Cushions?
>> I have been using those foam eggrcrate ones.
>> Thank you.  Quad over 35 years.
> 

[QUAD-L] Aqua cel

[Bryce Willis]

You guys know a good substitute for aqua cel? I use it on pressure sores and it 
is very effective. Trouble is a two inch square is five dollars! I can't handle 
that. All suggestions welcome. Larry

Sent from my iPad

Fwd: [QUAD-L] a question

[Bryce Willis]

Ah yes. Saw a show on tv a couple of years ago about people who felt they were 
in the wrong body. They believed they were supposed to be disabled. I remember 
one fellow put his leg in a bucket of dry ice until it was destroyed, had to be 
amputated. The fellow was overjoyed. He said that leg never belonged to him. 
Well, I would be glad to trade bodies with someone (if they were strong and 
healthy). I cannot imagine wanting to be a quad!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: April 6, 2016 at 2:28:34 PM EDT
> To: Quad-list Post 
> Subject: Re: [QUAD-L] a question
> Reply-To: RONALD L PRACHT 
> 
> Ive read all about people that have a sexual desire to be with a disabled 
> individual, be disabled themselves or have a certain disabled fetish like 
> crippled feet or legs. Ive had men come on to me for that reason, women 
> pretend to be disabled and phone me. There are paralyzed girls online that 
> make a living doing videos for these crazy people. I say give them what they 
> want and cut out there spines and give it to people that really want their 
> normal life back, lol.
> 
> Ron
> 
> 
> On Wednesday, April 6, 2016 1:17 PM, "diannal...@aol.com" 
>  wrote:
> 
> 
> DaveOc once told us about "wheelchair want to be's" I quess they fake their 
> injuries and used wheelchairs. they have a website but if you googled it, i'm 
> sure you'll find it. I don't have the link. he posted it years ago.
> dianna
> wheelchair wanna be'ssomething to that sort.
> 
> 
> -Original Message-
> From: Robert Vogel 
> To: Larry Willis 
> Cc: quad-list 
> Sent: Wed, Apr 6, 2016 1:59 pm
> Subject: Re: [QUAD-L] a question
> 
> Hi Larry,
> 
> To answer your question, Yes.  A devotee is a person that gets sexually 
> turned on by people with 
> disabilities, wheelchair users, amputees etc.
> 
> Not sure about devotees interest in para’s vs. quads.
> 
> Bob V
> 
> On Apr 6, 2016, at 8:15 AM, Larry Willis  wrote:
> 
> Good question, Danny. Quad devotee? We are not talking fetish here, are we?
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
> Resent-From: quad-list@eskimo.com
> From: "Danny Espinoza" 
> Date: April 6, 2016 at 9:43:35 AM EDT
> To: "'john owens'" , "'Quad-list Post'" 
> 
> Subject: RE: [QUAD-L] a question
> Reply-To: 
> 
> Quadriplegic devotee? What’s that?
> -Danny
>  
> From: john owens [mailto:jrowen...@yahoo.com] 
> Sent: Wednesday, April 6, 2016 5:52 AM
> To: Quad-list Post 
> Subject: [QUAD-L] a question
>  
>   
> Are there any quadriplegic devotees on here?
> 
> 
> 

Fw: [QUAD-L] One More ?

[Bryce Willis]

That is a great analogy. The difference in current and voltage is an important 
point as well.






Sent from Windows Mail





From: wheelch...@aol.com
Sent: ‎Friday‎, ‎March‎ ‎25‎, ‎2016 ‎9‎:‎59‎ ‎AM
To: Danny Espinoza, poaj...@sbcglobal.net, quad-list@eskimo.com





To every Rule, there are some exceptions.  I've read a couple stories here that 
exceeded the normal and that is good.  Since wheelchairs ARE medical devices, 
why risk one's mobility by exceeding the normal?  Always have a plan B or 
backup device.

 

When batteries, the energy inside the battery is the size of golf balls, with 
each overnight charge the size of the energy is reduced to the size of marbles, 
until each battery can hold almost 14 volts of energy.  As the battery ages... 
those marbles of energy reverse back to the size of golf balls.  The batteries 
will continue to hold 12 volts, but lose the ability to retain amperage.

 

Best Wishes

 


In a message dated 3/25/2016 1:23:27 A.M. Central Daylight Time, 
da...@immortaldesigns.co writes:


Ya I kept having my chair batteries die every so often but once I started 
plugging it in when I wasnt using it I havent had a problem. When I looked into 
it more I was told that the gel batteries start to form crystals if they sit 
while not being used or charged. 
-Danny




 Original Message 
Subject: Re: [QUAD-L] One More ?
From: wheelch...@aol.com
Date: Thu, March 24, 2016 6:16 pm
To: poaj...@sbcglobal.net, quad-list@eskimo.com


Joan, its kinda like a light bulb.  They may shine bright for a long time, but 
when the amps begin to fade, then pop, the bulb is gone forever.

Happy Easter

 

Best Wishes

 

 


In a message dated 3/24/2016 8:10:29 P.M. Central Daylight Time, 
poaj...@sbcglobal.net writes:



Holy cow!  I am lucky to get 18 months before they will not last a day.  I’m in 
my chair usually 13-14 hours, and only 1/3 of that is usually what I call, go 
mode where I am running around outside or out shopping.  The rest of the time 
I’m usually just moving around in the house etc..  I wish they would last that 
long.  Joan 

 



From: Bryce Willis [mailto:lwillis82...@msn.com] 
Sent: Thursday, March 24, 2016 5:50 PM
To: quad-list@eskimo.com
Subject: Fw: [QUAD-L] One More ?

 



Lol…. you are right, pretty amazing. Unfortunately, that is pretty much it when 
it comes to my good luck



 


Sent from Windows Mail


 



From: wheelch...@aol.com
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎8‎:‎29‎ ‎PM
To: Larry Willis, quad-list@eskimo.com


 



Original Batteries since 2008 ?  That is unheard of.  Go out and purchase a 
lotto ticket. You are definitely LUCKY!


Happy Easter!


 


Best Wishes


 



In a message dated 3/24/2016 6:29:56 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:



I also have an Arrow. Got it new in 2008. I charge it once or twice a week. It 
still has the original batteries and they show no sign of weakening. I charge 
it when the meter shows about half a tank. 



 


Sent from Windows Mail


 



From: nichole rohling
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎6‎:‎55‎ ‎PM
To: wheelch...@aol.com, quad-list@eskimo.com


 



Excellent advice! Lesson learned the hard way!

Happy Easter!

 



From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Thursday, March 24, 2016 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] One More ?

 


This is an after thought.   There are 4 major holidays each year.  
ThanksGiving, Christmas, Easter and 4th of July.  When you have issues, have 
your evaluations and repairs scheduled in between any holiday. CMS doesn't pay 
for emergency and overtime to perform repairs.


Hope this helps.


Happy Easter.


Best Wishes


 



In a message dated 3/24/2016 4:37:15 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:



I have an Invacare Action Arrow Storm and only 1 port which is on the joystick. 
We never knew my charger shows empty battery, half charged and charged until 
last night (pathetic really, after almost 18 yrs you’d think I would know). 

Learned something new and think I will start charging every other day. Thank 
you!

 

 

 


From: Quadius [mailto:quad...@gmail.com] 
Sent: Thursday, March 24, 2016 4:19 PM
To: Danny Hearn
Cc: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] One More ?

 

I have heard all kinds of different answers. Me personally I charge my cheer 
every other day. Do you had another charge port?  What type of chair do you 
have? One thing I do is check to see if the chair is charging by turning my 
display on.

On Thursday, March 24, 2016, Danny Hearn <ddh...@sbcglobal.net> wrote:




They tell me to try and never let it get low and to charge every nightthey 
said waiting to charge it would weaken the batteries.  Dan H***


 





On Thursday, March 24, 2016 3:50 PM, nichole rohling <zoocr...@windstream.net> 
wrote:

 






If you have Group 24 Gel Cell batteries do you charge your chair every night 
even if yo

Fw: [QUAD-L] One More ?

[Bryce Willis]

I remember my first power chair in 1979, an E that used wet cell batteries. 
They would boil over and make an unreal mess. My battery box looked like a 
glazed donut, acid everywhere. Had to buy new ones every year. The good thing, 
they weren't too expensive… about $90 for a set. And my insurance paid 90% of 
that. Have things ever changed!….






Sent from Windows Mail





From: Danny Hearn
Sent: ‎Friday‎, ‎March‎ ‎25‎, ‎2016 ‎12‎:‎38‎ ‎PM
To: Raymond Kelly, x quad-list






Well...some vendor is giving the wrong information...it can't be both 
ways...let it run down then charge OR charge every night, I been in powerchairs 
for over 18 years and all my vendors say charge mostly every night...My 
batteries last 3 years and are still working but the vendors tell me to get new 
ones by the time i get to 3years..i have never had a set of my gel 
batteries go bad as of yet. dan**








On Friday, March 25, 2016 10:48 AM, Raymond Kelly <kelra...@gmail.com> wrote:








I plug in my wheelchair whenever the display for the batteries shows that it is 
getting rather low. My first wheelchair I got back in 1993 I plugged in every 
night and was surprised when the batteries were junk after a year. The 
wheelchair company said that it was because I was plugging in an every night. 
Since then I have only plugged the wheelchair in when the batteries show they 
are quite discharged. I have not had to replace batteries in any of my 
wheelchairs before the wheelchair itself was replaced. I had the Invacare for 
seven more years, then a Quickie for seven years, then a PerMobile for five 
years. Now I am on this PerMobile for about a year and a half. The wheelchair 
people think I am crazy when I tell them that, but that is the way it is. I 
wait to plug the wheelchair in until the display shows that is basically fully 
discharged. If I expect to be going a lot the next day I may plug it in sooner. 
I am in the wheelchair every day for about 11 hours so it does get used quite a 
bit.

Happy Easter

Ray

 




From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Thursday, March 24, 2016 9:17 PM
To: poaj...@sbcglobal.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] One More ?

 


Joan, its kinda like a light bulb.  They may shine bright for a long time, but 
when the amps begin to fade, then pop, the bulb is gone forever.


Happy Easter


 


Best Wishes


 


 




In a message dated 3/24/2016 8:10:29 P.M. Central Daylight Time, 
poaj...@sbcglobal.net writes:




Holy cow!  I am lucky to get 18 months before they will not last a day.  I’m in 
my chair usually 13-14 hours, and only 1/3 of that is usually what I call, go 
mode where I am running around outside or out shopping.  The rest of the time 
I’m usually just moving around in the house etc..  I wish they would last that 
long.  Joan 

 



From: Bryce Willis [mailto:lwillis82...@msn.com] 
Sent: Thursday, March 24, 2016 5:50 PM
To: quad-list@eskimo.com
Subject: Fw: [QUAD-L] One More ?

 




Lol…. you are right, pretty amazing. Unfortunately, that is pretty much it when 
it comes to my good luck



 


Sent from Windows Mail


 



From: wheelch...@aol.com
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎8‎:‎29‎ ‎PM
To: Larry Willis, quad-list@eskimo.com


 




Original Batteries since 2008 ?  That is unheard of.  Go out and purchase a 
lotto ticket. You are definitely LUCKY!


Happy Easter!


 


Best Wishes


 




In a message dated 3/24/2016 6:29:56 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:




I also have an Arrow. Got it new in 2008. I charge it once or twice a week. It 
still has the original batteries and they show no sign of weakening. I charge 
it when the meter shows about half a tank. 



 


Sent from Windows Mail


 



From: nichole rohling
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎6‎:‎55‎ ‎PM
To: wheelch...@aol.com, quad-list@eskimo.com


 




Excellent advice! Lesson learned the hard way!

Happy Easter!

 



From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Thursday, March 24, 2016 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] One More ?

 


This is an after thought.   There are 4 major holidays each year.  
ThanksGiving, Christmas, Easter and 4th of July.  When you have issues, have 
your evaluations and repairs scheduled in between any holiday. CMS doesn't pay 
for emergency and overtime to perform repairs.


Hope this helps.


Happy Easter.


Best Wishes


 




In a message dated 3/24/2016 4:37:15 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:




I have an Invacare Action Arrow Storm and only 1 port which is on the joystick. 
We never knew my charger shows empty battery, half charged and charged until 
last night (pathetic really, after almost 18 yrs you’d think I would know). 

Learned something new and think I will start charging every other day. Thank 
you!

 

 

 


From: Quadius [mailto:quad...@gmail.com] 
Sent: Thursday, March 24, 2016 4:19 PM
To: Danny Hearn
Cc: n

Fw: [QUAD-L] One More ?

[Bryce Willis]

Lol…. you are right, pretty amazing. Unfortunately, that is pretty much it when 
it comes to my good luck






Sent from Windows Mail





From: wheelch...@aol.com
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎8‎:‎29‎ ‎PM
To: Larry Willis, quad-list@eskimo.com





Original Batteries since 2008 ?  That is unheard of.  Go out and purchase a 
lotto ticket. You are definitely LUCKY!

Happy Easter!

 

Best Wishes

 


In a message dated 3/24/2016 6:29:56 P.M. Central Daylight Time, 
lwillis82...@gmail.com writes:


I also have an Arrow. Got it new in 2008. I charge it once or twice a week. It 
still has the original batteries and they show no sign of weakening. I charge 
it when the meter shows about half a tank. 






Sent from Windows Mail





From: nichole rohling
Sent: ‎Thursday‎, ‎March‎ ‎24‎, ‎2016 ‎6‎:‎55‎ ‎PM
To: wheelch...@aol.com, quad-list@eskimo.com






Excellent advice! Lesson learned the hard way!

Happy Easter!

 



From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Thursday, March 24, 2016 5:25 PM
To: zoocr...@windstream.net
Subject: Re: [QUAD-L] One More ?

 


This is an after thought.   There are 4 major holidays each year.  
ThanksGiving, Christmas, Easter and 4th of July.  When you have issues, have 
your evaluations and repairs scheduled in between any holiday. CMS doesn't pay 
for emergency and overtime to perform repairs.


Hope this helps.


Happy Easter.


Best Wishes


 



In a message dated 3/24/2016 4:37:15 P.M. Central Daylight Time, 
zoocr...@windstream.net writes:



I have an Invacare Action Arrow Storm and only 1 port which is on the joystick. 
We never knew my charger shows empty battery, half charged and charged until 
last night (pathetic really, after almost 18 yrs you’d think I would know). 

Learned something new and think I will start charging every other day. Thank 
you!

 

 

 


From: Quadius [mailto:quad...@gmail.com] 
Sent: Thursday, March 24, 2016 4:19 PM
To: Danny Hearn
Cc: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] One More ?

 

I have heard all kinds of different answers. Me personally I charge my cheer 
every other day. Do you had another charge port?  What type of chair do you 
have? One thing I do is check to see if the chair is charging by turning my 
display on.

On Thursday, March 24, 2016, Danny Hearn  wrote:




They tell me to try and never let it get low and to charge every nightthey 
said waiting to charge it would weaken the batteries.  Dan H***


 





On Thursday, March 24, 2016 3:50 PM, nichole rohling  
wrote:

 






If you have Group 24 Gel Cell batteries do you charge your chair every night 
even if you barely use it or charge it once it gets low?


I’ve been told both ways so I’m asking the experts J


 


Thank you


Nicki

Fwd: [QUAD-L] Malware

[Bryce Willis]

Got a credit card bill from Home Depot today with $900 of charges for home 
electronics. Problem is, I have never had that cc and never shopped at Home 
Depot. I called them and found three more cc applications were being processed. 
I spent all afternoon talking to HD, HD fraud dept, an independent fraud dept, 
and the credit bureau. Makes me mad enough to chew nails.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Lori Michaelson 
> Date: March 7, 2016 at 4:49:25 PM EST
> To: quad-list 
> Subject: Re: [QUAD-L] Malware
> 
> My husband was a software/hardware computer guru and he always had our system 
> back up with multiple protectors. I see that he had/and therefore I still 
> have at least use Norton and Malwarebytes Anti-Malware.
> 
> Lori
> 
>> On Mon, Mar 7, 2016 at 1:29 PM, Fragile  wrote:
>> My mother's computer somehow got infected with DNS Unlocker. Finally
>> got rid of it, took 3 programs. AdwCleaner, Malwarebytes Anti-Malware
>> Free, HitmanPro.  Kind of strange, have to download programs to get
>> rid of a virus that resulted from downloading a program.
>> 
>> On 3/6/16, greg  wrote:
>> > Got Malware taking over my computer. I know of at least one called DNS
>> > Unlocker. Sounds like I have to take it out manualy. The Spybot guys gave 
>> > me
>> > instructions. 3 pages. I hate these guys, do they realy think I'm going to
>> > buy something from ad pop-ups going to pages I don't want, interfering with
>> > what I'm doing. They should be able to find more of these A$$e$.
>> > Greg
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

[QUAD-L] Read this guys

[Bryce Willis]

Sent from my iPad

Begin forwarded message:

> Hey peeps. Here is a letter from a friend of mine. We were both friends of c4 
> quad named Wayne. Background
Story-- I was hurt in diving accident in 1971 at age 19. Wayne was hurt in 73 
at age 21. He was doing
mechanic work underneath a bus when the support gave way and fell on him 
breaking his neck
at c4. Over the years our mothers compared notes as we struggled together. 
Unfortunately, he never
Recovered enough to drive or work. His mother died a few years ago. Wayne 
joined her this week.
Robbie is not disabled.
> 
> 
>   
> Robbie Philpott   8:43pm Mar 1
> Hey Larry he got confused about 2 wks ago and they thought he had a stroke. 
> Gary his brother took him to trh and they did some tests and didnt find any 
> evidence of a stroke but did find urinary tack infection im sure you know 
> about this and kidney stones Wayne had trouble alot especially after his Moms 
> death. He had a lung to collaspe and they went in and did something to get it 
> going and then his heart tryed to stop and they put in a pace maker. The next 
> thing was his other lung partially collasped and they got it going and put a 
> mask over his nose and mouth looked as if it was forcing oxygen really hard 
> keeping his mouth open i guess to prevent the lungs from collasping. I saw 
> him last Friday nite and he had all this on. then sat i went by and they were 
> giving him a bath and Gary said they took everything off him and wanted to 
> put a feeding tube in and Wayne had already told them no to that and to using 
> the shocker paddles on him. So i rode the bike u Sunday morning and sat with 
> him and his sis inlaw and niece for awhile. I would talk to him and he would 
> just say im reading this agreement rite now. So the nurse came in and was 
> wanting to know if he wanted some more pain med and he said yeah. I told her 
> that his name was mule lips and she laughed and he raised up his head and 
> said Robbie. So at least he knew i was there im pretty sure. He used to call 
> me melon head and i called him mule lips. before i left Sunday i told him to 
> hurry up and get home i needed help with my pc and he said ok. Monday morning 
> Judy called me and said he passed about 630. He really went down after his 
> Mom passed kinda gave up. Im pretty sure Larry that you have been able to be 
> more active and more independent with your driving and everything. Id say you 
> have had a lot more exercise than Wayne. He was worried that he was a burden 
> to his brother and family. i hope this was helpful to you b ut always 
> remember everyone is different.
> 
> View Conversation on Facebook

[QUAD-L] Fwd: [Spinal Cord Peer Support USA] What year were ya'll injured, what level & how?

[Bryce Willis]

August 7, 1971, Saturday about 1:30 pm. C-4-5-6, 19 years old, taken to 
hospital in a hearse cause there were no ambulances. About 45 years ago. Bummer 
X 100.

Sent from my iPad

Begin forwarded message:

> From: "Bobbie Humphreys" 
> Date: February 7, 2016 at 9:19:50 PM EST
> To: Spinal Cord Peer Support USA 
> Subject: [Spinal Cord Peer Support USA] What year were ya'll injured, what 
> level & how?
> Reply-To: Reply to Comment 
> 
> 
> 
>
>  
> 
>
> Facebook
>  
>
>
>  
> Bobbie Humphreys posted in Spinal Cord Peer Support USA.
>  
> 
>
> Bobbie Humphreys
> February 7 at 9:19pm
>  
> What year were ya'll injured, what level & how? 
> 
> 1973 C4,5,6,7. Motorcycle
>  
>   Like
>   Comment
>  
>  
>
>
>  
> View on Facebook
>
> Edit Email Settings
>  
>
>
> Reply to this email to comment on this post.
>  
>
>
>  
> This message was sent to lwillis82...@msn.com. If you don't want to receive 
> these emails from Facebook in the future, please unsubscribe.
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
>
>  

Fwd: [QUAD-L] Fwd: The Comfort Company Adjuster Vicair Cushion vs. Roho Wheelchair Cushion!

[Bryce Willis]

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Larry Willis 
> Date: December 27, 2015 at 8:04:59 PM EST
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Fwd: The Comfort Company Adjuster Vicair Cushion vs. Roho 
> Wheelchair Cushion!
> 
> 
> You guys know anything about this cushion?
> Vicair by comfort company.
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> From: lwillis...@yahoo.com
>> Date: December 27, 2015 at 8:00:42 PM EST
>> To: "lwillis82...@gmail.com" 
>> Subject: The Comfort Company Adjuster Vicair Cushion vs. Roho Wheelchair 
>> Cushion!
>> 
>> Check out this video on YouTube:
>> 
>> http://youtu.be/vEz86ggv8pw
>> 
>> 
>> Sent from my iPad

Fwd: [QUAD-L] Wet back

[Bryce Willis]

I take 20 mg ditropan in the morning, then cath at about 7am and 10 pm. I try 
to balance fluid intake with that routine.

Sent from my iPad

Begin forwarded message:

> From: cviewe...@aol.com
> Date: November 1, 2015 at 8:02:17 PM EST
> To: lwillis82...@msn.com
> Subject: Re: [QUAD-L] Wet back
> 
> How often do you take ditropan ( or the generic oxybutynin ) ?I can't cath 
> only twice a day. I take ditropan 5mg 3 times a day and nees to cath 3 and 
> sometimes 4 times a day.   Rose
>  
> In a message dated 10/31/2015 5:35:16 P.M. Eastern Standard Time, 
> lwillis82...@msn.com writes:
> I cath twice a day, take ditropan, and am usually ok. If I overdo the coffee 
> or soft drinks, things become problematic. I should know better, but.I 
> don't! Diet Mt.Dew and mocha caramel coffee creamer are my downfall.
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: Danny Hearn <ddh...@sbcglobal.net>
>> Date: October 31, 2015 at 4:44:18 PM EDT
>> To: Bryce Willis <lwillis82...@msn.com>, hey-guys <quad-list@eskimo.com>
>> Subject: Re: Fwd: [QUAD-L] Wet back
>> Reply-To: Danny Hearn <ddh...@sbcglobal.net>
>> I have a supra-pubic indwelling catheter, it has never leaked unless it was 
>> blocked, are you guy's having accidents or leakage not wearing indwelling 
>> catheters or ? Dan H**
>> 
>> 
>> On Saturday, October 31, 2015 3:31 PM, Bryce Willis <lwillis82...@msn.com> 
>> wrote:
>> 
>> 
>> Same here. Hate it, especially when the odor is strong. Embarrassing.
>> 
>> Sent from my iPad
>> 
>> Begin forwarded message:
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: "nichole rohling" <zoocr...@windstream.net>
>>> Date: October 31, 2015 at 4:21:48 PM EDT
>>> To: "'Gmail'" <bobbiehumphre...@gmail.com>, <quad-list@eskimo.com>
>>> Subject: RE: [QUAD-L] Wet back
>>> I completely understand. I absolutely hate urine! Especially when my
>>> catheter leaks when I'm in my chair and I have to sit in it until my
>>> caregiver comes to put me in bed. 
>>> 
>>> Nicki
>>> 
>>> -Original Message-
>>> From: Gmail [mailto:bobbiehumphre...@gmail.com] 
>>> Sent: Friday, October 30, 2015 2:17 PM
>>> To: quad-list@eskimo.com
>>> Subject: [QUAD-L] Wet back
>>> 
>>> I woke up this morning soaking wet from guess what? Yep, urine!
>>> To me it is the most degrading thing to wake up to.
>>> Bobbie
>>> 
>>> Smile Everyday
>> 
>> 

[QUAD-L] ID

[Bryce Willis]

You guys probably have noticed that I am sometimes listed as MELISSA or Bryce. 
That's my wife and son. Somehow our accounts get crossed and names mixed up. 
Should be Larry on all of them. Gracias etc.

Sent from my iPad

Fwd: [QUAD-L] Wet back

[Bryce Willis]

Same here. Hate it, especially when the odor is strong. Embarrassing.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "nichole rohling" 
> Date: October 31, 2015 at 4:21:48 PM EDT
> To: "'Gmail'" , 
> Subject: RE: [QUAD-L] Wet back
> 
> I completely understand. I absolutely hate urine! Especially when my
> catheter leaks when I'm in my chair and I have to sit in it until my
> caregiver comes to put me in bed. 
> 
> Nicki
> 
> -Original Message-
> From: Gmail [mailto:bobbiehumphre...@gmail.com] 
> Sent: Friday, October 30, 2015 2:17 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Wet back
> 
> I woke up this morning soaking wet from guess what? Yep, urine!
> To me it is the most degrading thing to wake up to.
> Bobbie
> 
> Smile Everyday
> 
> 
> 

Fwd: [QUAD-L] Wet back

[Bryce Willis]

I cath twice a day, take ditropan, and am usually ok. If I overdo the coffee or 
soft drinks, things become problematic. I should know better, but.I don't! 
Diet Mt.Dew and mocha caramel coffee creamer are my downfall.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Danny Hearn <ddh...@sbcglobal.net>
> Date: October 31, 2015 at 4:44:18 PM EDT
> To: Bryce Willis <lwillis82...@msn.com>, hey-guys <quad-list@eskimo.com>
> Subject: Re: Fwd: [QUAD-L] Wet back
> Reply-To: Danny Hearn <ddh...@sbcglobal.net>
> 
> I have a supra-pubic indwelling catheter, it has never leaked unless it was 
> blocked, are you guy's having accidents or leakage not wearing indwelling 
> catheters or ? Dan H**
> 
> 
> On Saturday, October 31, 2015 3:31 PM, Bryce Willis <lwillis82...@msn.com> 
> wrote:
> 
> 
> Same here. Hate it, especially when the odor is strong. Embarrassing.
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: "nichole rohling" <zoocr...@windstream.net>
>> Date: October 31, 2015 at 4:21:48 PM EDT
>> To: "'Gmail'" <bobbiehumphre...@gmail.com>, <quad-list@eskimo.com>
>> Subject: RE: [QUAD-L] Wet back
>> 
>> I completely understand. I absolutely hate urine! Especially when my
>> catheter leaks when I'm in my chair and I have to sit in it until my
>> caregiver comes to put me in bed. 
>> 
>> Nicki
>> 
>> -Original Message-
>> From: Gmail [mailto:bobbiehumphre...@gmail.com] 
>> Sent: Friday, October 30, 2015 2:17 PM
>> To: quad-list@eskimo.com
>> Subject: [QUAD-L] Wet back
>> 
>> I woke up this morning soaking wet from guess what? Yep, urine!
>> To me it is the most degrading thing to wake up to.
>> Bobbie
>> 
>> Smile Everyday
> 
> 

Fwd: [QUAD-L] Lift repair

[Bryce Willis]

My lift went bad last summer and I kept a running account of it on here. You 
guys were a big help finding manuals, diagrams, etc. for me. Anyway, the shop 
in Louisville who installed the lift two years prior said the main circuit 
board was bad and would cost around $1000. Then they said oops, that board is 
obsolete and no longer available. Sorry about your luck. To shorten the story, 
a friend at church took a look at it, replaced a three dollar relay, and 
problem solved. They are good at following diagrams to install or replace but 
could not diagnose an empty tank.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT 
> Date: October 30, 2015 at 12:36:04 AM EDT
> To: Quad-list Post 
> Subject: Re: Fwd: [QUAD-L] Lift repair
> Reply-To: RONALD L PRACHT 
> 
> if you have a van and take it in to a handicap repair shop with a problem 
> that requires changing a part such as a van door motor plan on paying 1000.00 
> and returning 3 times. my 07 express with electric barn doors had the door 
> motors go out 3 times..the first I paid the 1000.00 .second 
> time was around 35.00 from ebay with an ac-delco motor. 3 months ago it went 
> out again and I bought 2 motors shipped for 73.00, my dad put one in and the 
> other is a spare.
> 
> Ron
> 
> 
> 
> On Thursday, October 29, 2015 9:27 PM, Larry Willis  
> wrote:
> 
> 
> I don't mind paying the going rate if the mechanic is knowledgable and 
> conscientious. I don't like to pay for incompetence and indifference. I 
> certainly don't begrudge anyone a living wage. We crips are po' folks (or at 
> least I am).
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: wheelch...@aol.com
>> Date: October 29, 2015 at 8:24:32 PM EDT
>> To: bobbiehumphre...@gmail.com, quad-list@eskimo.com
>> Subject: Re: [QUAD-L] Lift repair
> 
> How much should you have been charged? What do you think would have been 
> fair?  If you had been charged half the price, would you have felt... just as 
> safe and secure.  The cost of funding a business and keeping employees well 
> trained is not getting any cheaper.  Just as any task involves certification.
> I agree with you that it could be too much. But I don't know the perfect 
> answer.
> I wish you well
> Best Wishes
>  
> In a message dated 10/29/2015 4:17:57 P.M. Central Daylight Time, 
> bobbiehumphre...@gmail.com writes:
> Today I had my 2001 ford E-150 van dual doors checked out because the first 
> one that opens started opening more slowly than usual and slower that the 
> other.
> Labor at my conversion company is $110 per hour
> On the bill was written;
> 
> 2.25. Labor. $220
> 1 shop supplies.  $10
> 
>   "Check power - "working slowly" . Open door & disconnect operator 
> arms-found hinges of right door had been "drilled" previously for applying 
> lube. (Could not swing door easily) 
> Apply penetrating lube (PB Blaster) to hinges . Lube lift at all moving 
> location-platform pivots, hinges, pins, connecting joints, etc. 
> Observed lift oil leaking from rubber plug a of side access plate. 
> Remove rubber plug and tap & install threaded  plug. 
> Check oil level and add 1 pint of gear oil. Check EZ locks-lube jaws & check 
> operation. 
> Glue & ty-wrap passenger EZ-lock dash switch (hanging off bracket) Chech hand 
> control & hard wear -ok
> Check power park break-ok
> Check back-up steering operation, lines hoses, fittings & liquid level
> Advise customer of maintenance required on power door hinge-monthly.
> 
> Total.$247.50
> 
> It took them 2 1/2 hours to do the work and 1/2 hour to type up bill
> 
> To me it seamed like it took a LOT longer then need be. But am greatfull to 
> have a van to repair.
> Bobbie
> 
> Smile Everyday
> 
> 

Fwd: [QUAD-L] 25 years October 15

[Bryce Willis]

Joan, that is a beautiful story. You are such a kind, gentle person, yet strong 
as steel. I wish I had just half your strength, patience, and faith. As I get 
older, I find myself constantly giving in to anger and despair. Your sweet 
powerful testimony puts me to shame. God bless you, my friend. Larry
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Joan Anglin" 
> Date: October 14, 2015 at 11:28:22 PM EDT
> To: 
> Subject: [QUAD-L] 25 years October 15
> 
> 25 years, a quarter of the century, almost one third of my life.  Where did 
> the time go from that moment when I fell off the scaffolding and tried to 
> move my arm and realized it did not respond?  That was the start of my new 
> life, and although it is not always a home run, it certainly is not a 
> strikeout either.
> 
> So many people who have helped me, encouraged me, devised a little something 
> that made my life better, cuddled me when I needed it, scolded me when I 
> needed it, and just simply told me to buckle down and get on with life.  
> Thanks to each and every one and you know who you are.  Family, friends, 
> therapists, doctors, and yes many strangers.
> 
> To every little kid (some of them not so little but just as curious) who 
> asked me why I was in a wheelchair, how did I drive my chair without my hands 
> or arms, who offered to help me, I say thank you and bless you that you 
> accepted me for the person I am, especially the young one who wanted to race 
> me and when I won told me to get out of my chair and he would drive it and 
> win!  I love you all.
> 
> I appreciate all of the strangers who are so helpful and kind and open doors 
> for me without my asking, offer to carry my packages out to my car, ask me if 
> I would like a drink from my cup on my wheelchair, or would I like something 
> to eat while I am waiting for someone at the food court to pick up our 
> orders.  I don't believe for a minute that the majority of people do not want 
> to help or look down upon me in the wheelchair.  Conversely, I love the 
> smiles, the how are you doings, and the people who say- isn't it a great day 
> to be outdoors or shopping or whatever.
> 
> To the very few and far between people who say or imply something such as " 
> my you really know how to use the wheelchair" I try to smile and reply " you 
> do really well on your feet also" and make them laugh.  They probably will 
> think twice the next time.
> 
> Being a total C4 quadriplegic was definitely not my game plan for my life, 
> but honestly things could have been worse and I am looking forward to what 
> the future holds.  I have already outlived by 10 years what they told me at 
> rehab in 1990, so hopefully the rest will be a piece of cake!  Thanks for 
> letting me celebrate 25 years.

[QUAD-L] Movie

[Bryce Willis]

Any of you seen a Danish film called Murk (or Morke). It sounds highly 
interesting!

Sent from my iPad

[QUAD-L] Calcium

[Bryce Willis]

Well, just watched an ABC news report that said calcium supplements do 
absolutely no good and may actually cause organ damage. Calcium has always been 
a quad's main defense against osteo.hasn't it?  am a man of 
constant sorrooow...I've seen troubles all my days! We got us some 
obstackles boys! He done gone and got saved!


Sent from my iPad

Fwd: [QUAD-L] Who wrote and sang

[Bryce Willis]

You had me completely stumped on that one, Don. Finally had to google it. I 
love that fellow but don't remember ever hearing those lyrics.

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Don Price 
> Date: September 29, 2015 at 3:31:59 PM EDT
> To: Larry Willis ,  "quad-list@eskimo.com" 
> 
> Subject: Re: Fwd: [QUAD-L] Who wrote and sang
> Reply-To: Don Price 
> 
> John Prine?
> 
> Here's one for you:
> 
> And if I ever lose my legs, I won't moan, and I won't beg,
> Yes if I ever lose my legs, Oh if I won't have to walk no more.
> 
> From: Larry Willis 
> To: "quad-list@eskimo.com"  
> Sent: Tuesday, September 29, 2015 3:33 AM
> Subject: Fwd: [QUAD-L] Who wrote and sang
> 
> It's a half an inch of water and you think you're gonna drownyou're up 
> one day, the next you're down...that's the way that the world goes 
> round
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: Gmail 
>> Date: September 28, 2015 at 10:19:54 PM EDT
>> To: Lissette Whitehead 
>> Cc: "quad-list@eskimo.com" 
>> Subject: Re: [QUAD-L] Who wrote and sang
> 
> 
> 
> Thanks  
> 
> Smile Everyday
> 
>> On Sep 28, 2015, at 10:15 PM, Lissette Whitehead  
>> wrote:
>> 
>> Paul Simon
>> 
>> 
>> Lissette Whitehead
>> 
>> 
>> 
>> > From: bobbiehumphre...@gmail.com
>> > Date: Mon, 28 Sep 2015 22:12:18 -0400
>> > To: quad-list@eskimo.com
>> > Subject: [QUAD-L] Who wrote and sang
>> > 
>> > "I'd rather feel the earth beneath my feet, if I could, I surly would."
>> > Bobbie
>> > 
>> > Smile Everyday
>> >
> 
> 

Fwd: [QUAD-L] Getting Old, Panic

[Bryce Willis]

Don, that is one of the best posts I have read in a long time! Intelligent, 
passionate, informative, and captivating. I agree that panic is entirely 
mental, but oh what power it has! Your third paragraph really hits home because 
I've experienced the same thing. It is the helplessness, the anger, the fear, 
the heart and blood pounding irrationally in the ears, and the exploding head 
that set things off. Thanks for sharing, Don. Embrace the night and all that it 
brings, Calm my soul as the night bird sings.
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Danny Hearn 
> Date: September 29, 2015 at 7:09:15 PM EDT
> To: Don Price , Larry Willis ,  
> "quad-list@eskimo.com" 
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> Reply-To: Danny Hearn 
> 
> Well said Don, I think you are right , I used to get panic attacks and many 
> times it can be related to the fear of dying or loss of control, like you 
> said try to find a way to control as much as possible then try to learn ways 
> to calm the mindlike you said Tv or etc., Myself I  think praying helps 
> me plus trying to stay positive as much as one can.  Dan H**
> 
> 
> 
> On Tuesday, September 29, 2015 3:34 PM, Don Price  
> wrote:
> 
> 
> 
> I think a large factor in panic attacks is related to loss of control (e.g. 
> inability to get up, turn, etc.) I've learned that if you can find ways of 
> controlling as many things in your environment -- especially while in bed -- 
> it greatly helps reduce panic/anxiety attacks. Examples: raising and lowering 
> your bed independently, ability to control room temperature or a fan, ability 
> to control tv/radio/lights and especially the ability to use the phone and 
> computer. All of these things are possible using today's technology. If you 
> are able to control things around you I believe you will feel less anxious. 
> However, I'm not a doctor and I don't even play one on TV.
> 
> I remember my first anxiety attack; it occurred one night while I was in the 
> acute care hospital after my diving accident. I was still in a halo-like 
> device and completely immobile. I began to feel the walls closing in on me 
> and the panic set in. Somehow, I managed to flip through the TV channels and, 
> mercifully, I found a movie that held my attention and calmed me down. To 
> this day that miracle film is still one of my all-time favorite movies -- 
> it's not that it's all that special cinematically, but it holds a special 
> place in my heart for calming my soul that dark night in 1982. The movie is: 
> Jeremiah Johnson.
> 
> The only other times I get these anxiety attacks is when I roll myself too 
> far at night and end up face-down in my bed, unable to roll back over. For 
> one thing it's hard to breathe, but secondly it puts me back in the memory of 
> floating face-down in the water when I had my diving accident. I was fully 
> conscious and floated face down, unable to move for what seemed like minutes, 
> although it may have been seconds. Very scary stuff, and I wouldn't wish that 
> kind of panic on anyone. Sometimes, when I hear news stories about an 
> earthquake where people are buried alive, I think about the people under that 
> rubble and how they must have that same feeling of horror being unable to 
> move and breathe. Nightmare inducing.
> 
> OK, now let's think of something more positive: if we still have trouble with 
> panic attacks, instead of relying on drugs we might want to check into 
> hypnosis or meditation techniques. I've thought about doing this many times, 
> but haven't. The power of the mind is amazing; if we can learn techniques to 
> shut off the negative thoughts we will be better able to avoid the worry, 
> panic, anxiety.
> 
> This morning I was driving to pick up a friend. As I pulled my Honda into her 
> parking lot the sun was just rising and I was driving east, looking straight 
> into the orange-yellow glow. My windshield was dusty so I hit the fluid 
> button and the wiper solvent sprayed onto my window. For a brief moment I 
> witnessed a tiny rainbow prism in the mist, against the morning sky, and 
> then, as if by magic, a hummingbird flew in view and hovered, for a second, 
> right in front of me. The beauty of that moment was so moving that I 
> literally said thanks to God. If I saw that scene in a movie I would say it 
> was over-the-top hokey, but it actually happened. The next time I'm panicking 
> I'll try to recall that image of the hummingbird in the rainbow in the 
> morning sun. Of course, Jeremiah Johnson might laugh at me, but Robert 
> Redford would understand.
> 
> Don P.
> Tempe, AZ
> 
> 

Fwd: [QUAD-L] Who wrote and sang

[Bryce Willis]

John Prine it is! He is my musical hero! Seems like not many folks around here 
know about him. But those who do are devoted. He comes to Louisville about once 
a year and always sells out! 
Let me think on those lines, Don!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Don Price 
> Date: September 29, 2015 at 3:31:59 PM EDT
> To: Larry Willis ,  "quad-list@eskimo.com" 
> 
> Subject: Re: Fwd: [QUAD-L] Who wrote and sang
> Reply-To: Don Price 
> 
> John Prine?
> 
> Here's one for you:
> 
> And if I ever lose my legs, I won't moan, and I won't beg,
> Yes if I ever lose my legs, Oh if I won't have to walk no more.
> 
> From: Larry Willis 
> To: "quad-list@eskimo.com"  
> Sent: Tuesday, September 29, 2015 3:33 AM
> Subject: Fwd: [QUAD-L] Who wrote and sang
> 
> It's a half an inch of water and you think you're gonna drownyou're up 
> one day, the next you're down...that's the way that the world goes 
> round
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: Gmail 
>> Date: September 28, 2015 at 10:19:54 PM EDT
>> To: Lissette Whitehead 
>> Cc: "quad-list@eskimo.com" 
>> Subject: Re: [QUAD-L] Who wrote and sang
> 
> 
> 
> Thanks  
> 
> Smile Everyday
> 
>> On Sep 28, 2015, at 10:15 PM, Lissette Whitehead  
>> wrote:
>> 
>> Paul Simon
>> 
>> 
>> Lissette Whitehead
>> 
>> 
>> 
>> > From: bobbiehumphre...@gmail.com
>> > Date: Mon, 28 Sep 2015 22:12:18 -0400
>> > To: quad-list@eskimo.com
>> > Subject: [QUAD-L] Who wrote and sang
>> > 
>> > "I'd rather feel the earth beneath my feet, if I could, I surly would."
>> > Bobbie
>> > 
>> > Smile Everyday
>> >
> 
> 

[QUAD-L] Joyless stick

[Bryce Willis]

Those of you with Invacare chairs -- do you have a problem with the joystick 
knob popping off? I have tried everything...glue, tape, prayer...nothing seems 
to work. Anybody got a solution?

Sent from my iPad

Fwd: [QUAD-L] Cold Arms at Night

[Bryce Willis]

Same problem here but not as severe. Sometimes I start shaking for no 
discernible reason. Can't tell if I am hot or cold. Then the cold sweat feels 
like icicles. Miserable as hell. Wish I could quit this whole disgusting game.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: Danny Hearn ddh...@sbcglobal.net
 Date: August 22, 2015 at 5:02:49 PM EDT
 To: greg g...@eskimo.com, quad-list@eskimo.com quad-list@eskimo.com
 Subject: Re: [QUAD-L] Cold Arms at Night
 Reply-To: Danny Hearn ddh...@sbcglobal.net
 
 I pretty much have all those problems too Greg...and at times my back will be 
 sweaty hot and top of my body freezing as I lay in bed, It drives my wife 
 crazy because she is always hot with air and fan on us while i'm miserable 
 and cold. I guess it's part of Quad life..I think a lot is nerve damage plus 
 with me I have diabetes that causes even more nerve damage. Dan H***
 
 
 
 On Saturday, August 22, 2015 3:27 PM, greg g...@eskimo.com wrote:
 
 
 
 As I mentioned a number of times I am going crazy at night. I wake up a bunch 
 of times, with my arms bent tight to my chest, shivering. I swear I'm 
 freezing cold, but it's very warm in my room, and I can feel the heat coming 
 out from under the covers.  I feel exactly the same when I'm warm or cold, 
 shiver just as bad. If I get up, the worst of the shivering starts to go away 
 in about 10 minutes.
 
 I started to wear a t-shirt at night, I cut the back off, and half the 
 length. It did help a lot, that way I did not nee to cover my arms ad pull 
 the blanket up tight. But it still happens often.
 
 I do not know if this is heat related. Am I too hot, to cold.
 Or is it (nerve / blood flow) related. I put my arms down at night, but a 
 yawn, deep breath, spasm, my arm naturally just bend back up. Then the colder 
 I feel, the tighter I squeeze my arms bent. Am I squeezing the blood flow 
 off..
 
 At night my arms feel like they are in ice water. So last night I tried a 
 long sleeve shirt cut up.  I think it did help my arms but I know I woke up 
 overheated. I had to get it off. My arms are so sensitive feeling. The hairs 
 are always sticking up, like when cold, even outside when it is over 100.
 
 Anyone find a fix for this? I'm going crazy not sleeping.
 
 Thanks, Greg
 
 

Fwd: [QUAD-L] Old sci

[Bryce Willis]

For the first 22 years of my Quadom, things went pretty well. No sores, no 
pain, no depression. Then on 7-14-93 I crashed head-on into a large maple tree. 
It broke me up pretty bad. Shattered my knees, my ankle, leg, messed up my 
hips..and basically put me at death's door for a few days. Wasn't 
pleasant. That was the beginning of the problems I have today. It was tolerable 
at first, but the last5-6 years have been awful. Doc told me this would happen. 
And he was right. Now I have some big decisions to make. Not good.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: Michelle michelle.keph...@gmail.com
 Date: August 8, 2015 at 11:10:31 PM EDT
 To: Don Price donpric...@yahoo.com
 Cc: Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] Old sci
 
 Thank you, Don :)
 
 -Michelle 
 
 
 
 On Aug 8, 2015, at 9:01 PM, Don Price donpric...@yahoo.com wrote:
 
 
 I'm writing this for any new quads on the list because I see things 
 differently than most of those who have responded to this post.
 
 I will be 33 years post injury on August 15th--C5-6 complete quad due to 
 diving accident. At this time I would love nothing more than to someday be 
 the oldest living quad. I suppose I can say that because I don't have the 
 debilitating pain or issues many on this list speak of. I'm not saying this 
 to undermine their struggles--I know I'm very lucky.
 
 I get up every day looking forward to the adventure ahead. I am thankful for 
 every moment I have and I try to radiate that positive vibe to every person 
 I meet. I don't always succeed, and I have bad days just like everybody 
 else. Still, my greatest fear is dying too soon, not dying too old. 
 
 As others have said here: they were fine living as quads for years and then 
 things just fell apart. I know that is a possibility for me, too. That 
 realization adds even greater urgency to every day--I want to experience 
 everything I possibly can while I'm healthy.
 
 So, for any new quads on this list, let me be testimony that life as a quad 
 can be full, happy, active and rewarding, even after 33 years. I only speak 
 for myself, but I know I'm not alone.
 
 I wish you all health and happiness,
 
 Don P 
 C5-6, 33 yrs post
 Tempe, AZ

Fwd: [QUAD-L] Old sci

[Bryce Willis]

I sleep on my left side. Any other position is too painful. I use a lightly 
inflated donut for my hip.

Sent from my iPad

Begin forwarded message:

 From: Gail Holmes fgdhol...@cox.net
 Date: August 5, 2015 at 11:41:55 PM EDT
 To: Bryce Willis lwillis82...@msn.com
 Subject: Re: [QUAD-L] Old sci
 
 I'm just curious, do you sleep on your side? 
 You said you roll over on your back in the morning.
 
 Sent from my iPhone
 
 On Aug 5, 2015, at 8:55 PM, Bryce Willis lwillis82...@msn.com wrote:
 
 Me too, Bobbie. When I wake up in the morning, I hurt so bad all over that I 
 just don't think I can do it. Then I roll over on my back and the muscle 
 spasms begin. They hurt like hell and take my breath away. When I am finally 
 in my chair it takes a good two hours before I can function. Then fatigue 
 hits me and I hang my head for another hour of sleep.if the pain has 
 eased off. This is every dayevery stinking day. Then muddle through the 
 day till bedtime, then do it all over again. Stinks.
 
 Sent from my iPad
 
 Begin forwarded message:
 
 Resent-From: quad-list@eskimo.com
 From: Gmail bobbiehumphre...@gmail.com
 Date: August 5, 2015 at 9:38:35 PM EDT
 To: John S. alcibiat...@yahoo.com
 Cc: Robert Vogel rhvsh...@me.com, Larry Willis lwillis82...@gmail.com, 
 quad-list@eskimo.com quad-list@eskimo.com
 Subject: Re: [QUAD-L] Old sci
 
 Me two John. I do NOT want to get even close. I'm ready to go to sleep 
 tonight and not wake up tomorrow. I'm ready.   Bobbie
 
 Smile Everyday
 
 On Aug 5, 2015, at 5:29 PM, John S. alcibiat...@yahoo.com wrote:
 
 I sure would hate to go near that record. God bless him. 
 Best Wishes, 
 John s.
 
 
  Original message 
 From: Robert Vogel rhvsh...@me.com 
 Date: 08/05/2015 3:51 PM (GMT-05:00) 
 To: Gmail bobbiehumphre...@gmail.com 
 Cc: Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
 Subject: Re: [QUAD-L] Old sci 
 
 Hi Bobbie and Larry,
 
 Check out this link to March, 2015 New Mobility—an article and link about 
 Lee Goldstein, 82 years old
 and 69 years post injury C6/7 para.  Talk about beating the odds!!!  
 Fantastic book!!!
 
 Here is the link:  http://www.newmobility.com/2015/03/so-far-so-good/
 
 Cheers,
 Bob Vogel
 
 On Aug 5, 2015, at 9:13 AM, Gmail bobbiehumphre...@gmail.com wrote:
 
 1973 is when I had my accident. I'll be 60 this November. Bobbie 
 
 Smile Everyday
 
 On Aug 5, 2015, at 6:13 AM, Larry Willis lwillis82...@gmail.com wrote:
 
 Hey peeps, New Mobility magazine has a very good article about aging 
 with SCI. It looks at the Longevity Project, a research project started 
 in 1973 to track a group of SCI folks through the years. It also says 
 that in 1973 it was not believed possible for a quad to live forty 
 years. Well well.
 
 Larry Willis
 Retired and proud of it
 
 
 

Fwd: [QUAD-L] Old sci

[Bryce Willis]

Tomorrow at about 1:00 pm will be my 44th year as a quad. For me, it's a day 
that will live in infamy. (Sorry FDR)

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: Danny Hearn ddh...@sbcglobal.net
 Date: August 5, 2015 at 6:21:46 PM EDT
 To: John S. alcibiat...@yahoo.com, Robert Vogel rhvsh...@me.com,  Gmail 
 bobbiehumphre...@gmail.com
 Cc: Larry Willis lwillis82...@gmail.com,  quad-list@eskimo.com 
 quad-list@eskimo.com
 Subject: Re: [QUAD-L] Old sci
 Reply-To: Danny Hearn ddh...@sbcglobal.net
 
 I hear you John, I just hit my 18 year post accident date the other day on 
 August 3rd. from a car wreck. Some day's like today my aches-pains and body 
 feels like I imagine an 80 0r 90 year olds body would feel, I am 58 years old 
 now, but was paralyzed at age 40. Thank God there are days and nights that 
 are pretty good, We just got to take everything a day at a time and Try to 
 keep on keeping on. Dan H** St. Louis, MO. Area.
 
 
 
 On Wednesday, August 5, 2015 4:29 PM, John S. alcibiat...@yahoo.com wrote:
 
 
 I sure would hate to go near that record. God bless him. 
 Best Wishes, 
 John s.
 
 
  Original message 
 From: Robert Vogel rhvsh...@me.com 
 Date: 08/05/2015 3:51 PM (GMT-05:00) 
 To: Gmail bobbiehumphre...@gmail.com 
 Cc: Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
 Subject: Re: [QUAD-L] Old sci 
 
 Hi Bobbie and Larry,
 
 Check out this link to March, 2015 New Mobility—an article and link about Lee 
 Goldstein, 82 years old
 and 69 years post injury C6/7 para.  Talk about beating the odds!!!  
 Fantastic book!!!
 
 Here is the link:  http://www.newmobility.com/2015/03/so-far-so-good/
 
 Cheers,
 Bob Vogel
 
 On Aug 5, 2015, at 9:13 AM, Gmail bobbiehumphre...@gmail.com wrote:
 
 1973 is when I had my accident. I'll be 60 this November. Bobbie 
 
 Smile Everyday
 
 On Aug 5, 2015, at 6:13 AM, Larry Willis lwillis82...@gmail.com wrote:
 
 Hey peeps, New Mobility magazine has a very good article about aging with 
 SCI. It looks at the Longevity Project, a research project started in 1973 
 to track a group of SCI folks through the years. It also says that in 1973 
 it was not believed possible for a quad to live forty years. Well well.
 
 Larry Willis
 Retired and proud of it
 
 
 

Fwd: [QUAD-L] Old sci

[Bryce Willis]

Me too, Bobbie. When I wake up in the morning, I hurt so bad all over that I 
just don't think I can do it. Then I roll over on my back and the muscle spasms 
begin. They hurt like hell and take my breath away. When I am finally in my 
chair it takes a good two hours before I can function. Then fatigue hits me and 
I hang my head for another hour of sleep.if the pain has eased off. This is 
every dayevery stinking day. Then muddle through the day till bedtime, then 
do it all over again. Stinks.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: Gmail bobbiehumphre...@gmail.com
 Date: August 5, 2015 at 9:38:35 PM EDT
 To: John S. alcibiat...@yahoo.com
 Cc: Robert Vogel rhvsh...@me.com, Larry Willis lwillis82...@gmail.com, 
 quad-list@eskimo.com quad-list@eskimo.com
 Subject: Re: [QUAD-L] Old sci
 
 Me two John. I do NOT want to get even close. I'm ready to go to sleep 
 tonight and not wake up tomorrow. I'm ready.   Bobbie
 
 Smile Everyday
 
 On Aug 5, 2015, at 5:29 PM, John S. alcibiat...@yahoo.com wrote:
 
 I sure would hate to go near that record. God bless him. 
 Best Wishes, 
 John s.
 
 
  Original message 
 From: Robert Vogel rhvsh...@me.com 
 Date: 08/05/2015 3:51 PM (GMT-05:00) 
 To: Gmail bobbiehumphre...@gmail.com 
 Cc: Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
 Subject: Re: [QUAD-L] Old sci 
 
 Hi Bobbie and Larry,
 
 Check out this link to March, 2015 New Mobility—an article and link about 
 Lee Goldstein, 82 years old
 and 69 years post injury C6/7 para.  Talk about beating the odds!!!  
 Fantastic book!!!
 
 Here is the link:  http://www.newmobility.com/2015/03/so-far-so-good/
 
 Cheers,
 Bob Vogel
 
 On Aug 5, 2015, at 9:13 AM, Gmail bobbiehumphre...@gmail.com wrote:
 
 1973 is when I had my accident. I'll be 60 this November. Bobbie 
 
 Smile Everyday
 
 On Aug 5, 2015, at 6:13 AM, Larry Willis lwillis82...@gmail.com wrote:
 
 Hey peeps, New Mobility magazine has a very good article about aging with 
 SCI. It looks at the Longevity Project, a research project started in 1973 
 to track a group of SCI folks through the years. It also says that in 1973 
 it was not believed possible for a quad to live forty years. Well well.
 
 Larry Willis
 Retired and proud of it
 

Fw: [QUAD-L] Surgery

[Bryce Willis]

This little story is baloney, but grammar terms abound. Bout five or six, I 
believe. AND about an hour ago a severe thunderstorm wrought havoc with a big 
maple tree in my front yard. Several huge limbs on the ground and a whopper on 
my roof. God bless us all.






Sent from Surface





From: lwillis82...@gmail.com
Sent: ‎Thursday‎, ‎July‎ ‎9‎, ‎2015 ‎4‎:‎04‎ ‎PM
To: quad-list@eskimo.com





Doctors discovered last month that my good friend Lisa had polyps in her large 
intestine. Last Wednesday they operated on her. The surgeon was Dr. Sanjay 
Marc. She trusted him so she did not question Marc before the surgery. Mistake. 
Her period had just started and she was on blood thinner. Well, he was very 
religious. Lisa knew this and for a moment she wondered which Bible quotation 
Marc would use to slow the bleeding. Fortunately, he gave her an anti-coagulant 
and proceeded to remove half her intestine. Now she has a semi-colon instead of 
a colon.



For once, I am punctual about reading my email!

Fw: [QUAD-L] Life span

[Bryce Willis]

Very true, Ron. That is true in the general population as well. 






Sent from Surface





From: RONALD L PRACHT
Sent: ‎Sunday‎, ‎June‎ ‎14‎, ‎2015 ‎3‎:‎19‎ ‎AM
To: Quad-list Post






There are so many factors that go into how long a quad will live. Quality of 
care, mindset, genetics, age of injury, severity of injury, male or female, 
climate, weight, support in general, injury complications, drug use, quality of 
doctor and hospital care, decisions made, and many more.




Ron 









On Saturday, June 13, 2015 9:21 PM, Larry Willis lwillis82...@gmail.com wrote:
 



I found a research site the other day that had tables on quad info. The one 
that struck me was, A C4-5-6 quad injured at age 20 can expect to live another 
40 years on average. If that is true, then some of us tough nuts are beating 
the odds. I'll see if I can find the site again.

Larry Willis
Retired and proud of it

Fw: [QUAD-L] the weather is

[Bryce Willis]

Its 88° in the shade here in old Kaintuck. Expect 90+ tomorrow.






Sent from Surface





From: Danny Espinoza
Sent: ‎Sunday‎, ‎June‎ ‎7‎, ‎2015 ‎8‎:‎02‎ ‎PM
To: wheelch...@aol.com, ismaelcavaz...@gmail.com, quad-list@eskimo.com





Well its not in your head :)
people like to deny it mainly republicans or like minded 
http://en.wikipedia.org/wiki/Temperature_record#/media/File:2000_Year_Temperature_Comparison.png
  
http://climate.nasa.gov/scientific-consensus/  

-Danny



 Original Message 
Subject: Re: [QUAD-L] the weather is
From: wheelch...@aol.com
Date: Sun, June 07, 2015 2:42 pm
To: ismaelcavaz...@gmail.com, quad-list@eskimo.com


Can you imagine... if we were in Florida, we could not have this discussion.   
Climate Change

Best Wishes

 


In a message dated 6/7/2015 4:28:39 P.M. Central Daylight Time, 
ismaelcavaz...@gmail.com writes:



Hello my friends I don't know how the weather is where ever you are but in 
South Texas Brownsville it is extremely hot today is 95 and is not summer you 
hardly could brief outside there is no air blowing I was outside for a while I 
could not stand the heat I was outside just for 10 mins.  I've been in Texas 
all my life but it seems like it's getting hotter and hotter year after year

Fw: [QUAD-L] CRANBERRY

[Bryce Willis]

I get a supper bug ever now and then, but a ham sandwich takes care of it. LOL 
love you, Bobbie!






Sent from Surface





From: Gmail
Sent: ‎Friday‎, ‎June‎ ‎5‎, ‎2015 ‎12‎:‎20‎ ‎PM
To: Paul Jacobson
Cc: quad-list





I've been taking them, then stopped. Then I got a supper bug.

Went to a infectious disease Doctor and he told me to take cranberry pills 
EVERY SINGLE DAY!

Bobbie. C-4,5,6,7  42 years post

Smile Everyday


On Jun 5, 2015, at 12:43 AM, Paul Jacobson pjacob...@san.rr.com wrote:







What are people’s experiences with Cranberry capsules?  Good and bad.

 

Thanks,

Paul c5/6  11/03

[QUAD-L] Birfdays!

[Bryce Willis]

Hey peeps.  Two highly esteemed(well, sorta, one anyway) people on this list 
have big old birthdays tomorrow. Hmmm, who?






Sent from Surface

[QUAD-L] Hey Don

[Bryce Willis]

Good for you, Don. I would not have the onions to live by myself. I can imagine 
my night as one long panic attack. It is almost that way now. You are more man 
than I am my friend.






Sent from Surface





From: Don Smith
Sent: ‎Friday‎, ‎April‎ ‎24‎, ‎2015 ‎1‎:‎07‎ ‎PM
To: Gmail
Cc: Larry Willis, quad-list@eskimo.com







I spend most of my time in bed due to a small cornic  isheal sore.  There is 
depression in my family, and I dealt with it after my divorce in 2000.  My Dr. 
put me on 20mgs of prozac daily which I still take.  I live alone with my cat, 
most days start between 5am and 8am, depending on which pca is working.  After 
breakfast and any other things needing done, they leave and I watch tv make 
needed calls and spend time on my  computer reading email, local news, facebook 
and other thing.  My evenings are much the same.  I do go out two or three 
times a week (weather depending) and run some errands, visit friends and enjoy 
the out doors.  I'm always looking forward to tomorrow to see what it brings .



Don c5/6 incomplete 27 years post.
In sunny dry Calif



On Thu, Apr 23, 2015 at 11:32 AM, Gmail bobbiehumphre...@gmail.com wrote:



I love doing aerobic exercises three days a week it just makes me feel good 
mentally.Bobbie 

Smile Everyday




On Apr 23, 2015, at 9:24 AM, Larry Willis lwillis82...@gmail.com wrote:





I agree. A trip to the grocery or even Walmart gets my blood flowing!





Begin forwarded message:




Resent-From: quad-list@eskimo.com
From: Quadius quad...@gmail.com
Date: April 23, 2015 at 2:12:50 AM EDT
To: Bob Vogel rhvsh...@mac.com
Cc: quad-list@eskimo.com quad-list@eskimo.com
Subject: Re: [QUAD-L] Does exercise help with depression




Getting out and riding around the neighborhood makes me feel better.

On Wednesday, April 22, 2015, Bob Vogel rhvsh...@mac.com wrote:

I am doing an article for New Mobility magazine about exercise and its role in
helping with depression.  I have studies on how it can help by increasing and
or releasing endorphins in the brain, and have read that even being up in our
wheelchair vs. laying down helps this process.

In my *survey of one* I find this to be true--clinical depression runs in my 
family--
my dad had it, and running and/or riding an exercise bike helped him a great 
deal.
I have it as well and find pushing my chair and/or getting my heart rate up by 
peddling
my stationary hand cycle helps.

Does anybody find that exercise helps fight the blues?  If so, I am looking for 
people
that could do a short phone interview, for a quote or two for the article.

Please contact me at rhvsh...@mac.com

Sincerely,
Bob Vogel
Senior Correspondent/New Mobility magazine
www.NewMobility.com