Re: [QUAD-L] Sweating on right side

[jume9999]

I have been getting the sweats and my doc thinks i have a kidney stone, that 
could possibly be your issue Greg but as far as the stomach thing it could be 
an ulcer if you are taking anti-inflammatory meds? 

Meredith 

- Original Message -

From: "greg"  
To: "quad-list"  
Sent: Tuesday, May 30, 2017 1:07:55 PM 
Subject: Re: [QUAD-L] Sweating on right side 

I am right now. I thought a UTI but meds didn't help. Now I'm off for an x-ray 
to try and find the cause. I asume its that. 
Sweats and stomach pain. 
Greg 

> Ive been sweating on my right side pretty bad. I believe its from 
> taking pain meds because when I pop the antacids it gets better. 
> Anybody deal with mild ulcer/stomach irritation due to meds? 
> 
> 
> Quad 98 

Re: [QUAD-L] Females! Do you use ostomy pouches for urine only?

[jume9999]

My gosh Julie, what you have had to go through! So sorry however I have a 
stupid question, do you now have to use two bags? For both bowel and bladder?
Meredith
Sent from my LG Mobile



-- Original message--From: Julie Napper Date: Sat, May 6, 2017 6:25 
PMTo: Carrie Pinter;quad-list;Subject:RE: [QUAD-L] Females! Do you use ostomy 
pouches for urine only?
Hi Carrie,
Here goes.
1. 54 years old
2. I had an indwelling catheter 
3.  I had a few complications.  First, I lost blood, so I was given blood 
afterwards.   Second, my bowels did not want to wake up. So, after 3 or 4 days, 
I had a NG tube put in my nose, which was horrible!!  I was fed by IV.  After 
about 1 1/2 weeks, my bowels woke up and I went home.  Then, I was admitted to 
the hospital a week later because my blood count was low, which made me feel 
really bad.  It turned out that the NG tube gave my stomach an ulcer.  That was 
an easy fix with giving me more blood and medication that I took for a few 
months. I was in the hospital 2 days  No bleeding since.
My bladder was removed and my female organs.  The cancer didn't go beyond my 
bladder wall.  
4. My life is easier in the sense that I don't have to worry about my catheter 
plugging, leaking or being pulled out.  Before the cancer was found, I was 
leaking really bad, more than I ever did.  But, someone still has to change my 
pouch twice a week or more, depending on if it leaks.   I use a leg and bed bag 
as before, so nothing new there.  I thunk it's turning out to be better than 
having a catheter.   It saved my life. 
5.  My stoma area is healrhy.  I've had a few UTi's.  Also, when I had a CT 
scan done last December, it was determined my left urether was a little narrow, 
but putting a stent in for a few months cured that.  I'm having another scan 
next month, so hopefully it's all good.
Sorry this was so long, but I hope it's useful info .  If I forgot anything, 
I'll let you know. 
Julie


Sent from my Samsung Galaxy Tab®4 Original message 
From: Carrie Pinter > 
Date: 5/5/2017 4:20 PM (GMT-07:00) 
To: 'Julie Napper' >, wheelch...@aol.com, 'quad-list' >
Subject: RE: [QUAD-L] Females! Do you use ostomy pouches for urine only? 

Quad and cancer?? Wow, that’s rough, but I bet you’re a trooper.Thanks for 
replying. Are you willing to answer these questions?Approximately how old were 
you when you had the operation? I was 29.How did you urinate prior to the 
operation? I had an indwelling catheter.Did the operation go smoothly? Did you 
have complications afterward? I didn’t.Has your life been easier having the 
ostomy bag? Is it easier to empty? Has it made you more independent? Yes to 
all, for me.Is the stoma-area still healthy ? Any infections or any other 
problems in the last couple years? This is a no for me, and I’ve had it for 16 
years.Thank you again. I’m really looking for honesty about your experience, so 
If you want to answer any of these I’d appreciate it. If not, I totally get 
it.Have a great weekend Carrie  From: Julie Napper [mailto:jnapp...@msn.com] 
Sent: Friday, May 5, 2017 4:00 PM
To: wheelch...@aol.com; quad-list >; Carrie Pinter >
Subject: Re: [QUAD-L] Females! Do you use ostomy pouches for urine only? I had 
a urostomy done in October 2015, due to bladder cancer. Julie c4-5 
From:wheelch...@aol.com 
Sent: Thursday, May 4, 2017 4:51 PM
To: cpinte...@comcast.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Females! Do you use ostomy pouches for urine only? Most, 
who actually use that system are those with Spna Bifida, rather than Spinal 
Cord Injury.  Granted, there are a few, but far between. Consider some of the 
other methods, Supra-pubicIndwellingTexas CathSelf Taps Cath. Best Wishes In a 
message dated 5/4/2017 5:44:52 P.M. Central Daylight Time,cpinte...@comcast.net 
writes:Hi ladies,Do you, or any paralyzed woman you know, have a urostomy bag? 
I’m researching quads who urinate through a stoma into the bag, and then simply 
empty the bag, rather than catheterizng through the stoma (aka, umbilicus 
urostomy).I’m not finding much research on the topic, but I thought of all of 
you!I’d appreciate any experience or info you might have.Thank you so very 
much,Carrie 

Re: [QUAD-L] Ask For Help

[jume9999]

Re: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[jume9999]

Do you know how to apply?Meredith
Sent from my LG Mobile



-- Original message--From: greg Date: Sun, Apr 9, 2017 4:05 PMTo: 
quad-list@eskimo.com;Subject:RE: [QUAD-L] Amazon to hire 30,000 virtual 
customer service workers | Jesse Jones  - KIRO TV
Yes, lots of them are part time from home

> They appear to be according to the report that I read.>>> From: 
> jume9...@comcast.net [mailto:jume9...@comcast.net]> Sent: 07 April, 2017 
> 10:21 AM> To: quad-list@eskimo.com> Subject: Re: [QUAD-L] Amazon to hire 
> 30,000 virtual customer> service workers | Jesse Jones - KIRO TV

Re: Fwd: [QUAD-L] Getting Old

[jume9999]

Greg, I was diagnosed with HO when I was first injured 36 yrs ago. It 
caused me to be lopsided and over the yrs made my other hip and leg to become 
jacked up causing me major pain in the last few years.  Didn't know back then 
that it could be helped with radiation.Meredith 
Sent from my LG Mobile



-- Original message--From: greg Date: Thu, Apr 6, 2017 2:09 PMTo: 
quad-list@eskimo.com;Subject:RE: Fwd: [QUAD-L] Getting Old
I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing. Without pain meds, my leg will not go 
straight. Spasms are so bad, I grunt, almost pull myself out of my chair, and 
the worst thing is my chest gets so heavy it's hard to breath. Like someone is 
sitting on my chest. If I miss my meds, within hours my body is like 1 solid 
muscle clinch. They almost OD me trying to raise Baclofen high enough to ease 
my spasms. Many tests to find the cause. Finely took pain meds for my shoulder 
and it was like life changing difference. Docs said no way would pain meds stop 
spasms, I need more Baclofen. I went in and showed them, I'm not spasming. Then 
finely they agreed it was pain causing the spasms. And they found the cause. 
Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse. Greg

Re: [QUAD-L] Amazon to hire 30,000 virtual customer service workers | Jesse Jones - KIRO TV

[jume9999]

These jobs are not work from home are they?Meredith
Sent from my LG Mobile



-- Original message--From: Jim Lubin Date: Thu, Apr 6, 2017 11:50 PMTo: 
quad-list@eskimo.com;Subject:[QUAD-L] Amazon to hire 30,000 virtual customer 
service workers | Jesse Jones  - KIRO TV
http://jessejones.com/story/amazon-to-hire-3-virtual-customer-service-workers/

Re: [QUAD-L] Holiday

[jume9999]

Happier new year to all of you!! Can't be worse eh?Meredith
Sent from my LG Mobile



-- Original message--From: Bobbie Humphreys Date: Sat, Dec 24, 2016 
11:22 AMTo: Nichole Rohling;Cc: Ismael Cavazos;quad-list@eskimo.com;Subject:Re: 
[QUAD-L] Holiday
My gift  is you all being there whenever we need each other all year longI 
love ❤️ and respect each and every one of you Have a healthy New Year!Bobbie 

"You must fail in order to succeed"
On Dec 24, 2016, at 12:24 PM, Nichole Rohling  wrote:

Merry Christmas From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] 
Sent: Saturday, December 24, 2016 6:24 AM
To: Blue
Subject: [QUAD-L] Holiday Hello my friends quadriplegic I want to wish you from 
my family to your family a Merry Christmas and a safe and enjoy your Christmas 
and God bless you

Re: [QUAD-L] Virtual Reality Devices

[jume9999]

The future seems awesome especially for us quads. Can't wait for a robot to 
help in the morning (no more dealing with hiring aides). Doubt I'll be around 
to see itMeredith
Sent from my LG Mobile



-- Original message--From: greg Date: Fri, Dec 23, 2016 4:48 PMTo: 
quad-list@eskimo.com;Subject:Re: [QUAD-L] Virtual Reality Devices
The Microsoft store was letting people use them at the Mall. Very cool. The 
animated programs were so good. I feed an alien. Ran from a T-Rex. Went on a 
roller-coaster. Went right up to the edge of a building and looked down. I can 
see making a world where we can all meet and chat together. Sex trade would be 
fantastic in time I bet. If you could 3D scan yourself. It's only just 
beginning. I can imagine interactive TV, movies. It was not cheap and the 
content is not huge right now.Greg

> Anyone own or ever tried the Samsung Gear VR or any other VR> device?  If so, 
> how is/was your experience with it?  Fun, dizzy,> etc.?>> I'm thinking about 
> getting the Gear. >>> Thanks,> Larry

Re: [QUAD-L] sex

[jume9999]

 Hi Ed,    Yes, I too allow myself to get caught up in pain and nothing 
else like socialization happens as much as it should. I save my pain meds for 
special times or when I need to accomplish things. It sucks. How do you deal 
with pain?Meredith
Sent from my LG Mobile



-- Original message--From: Ed Tessier Date: Sun, Dec 18, 2016 2:08 
PMTo: Quad-list Post;Subject:[QUAD-L] sex
Just had a lazy afternoon sex with my wife... all oral, since that's what works 
dependably...
 so enjoy times like this… So why does it happen so infrequently, why do I let 
my chronic aches and pains and hassles distract me from enjoying life?  I 
struggle so hard to get through the day sometimes, I don't leave any energy for 
something that should be IMPORTANT
Anybody else in this boat?

Re: [QUAD-L] hi again, it is Annette

[jume9999]

Thanks for sharing Annette, I also broke my neck in 81. Do you have any 
feeling?Meredith
Sent from my LG Mobile



-- Original message--From: Annette Storesund Date: Mon, Dec 19, 2016 
6:38 AMTo: quad-list@eskimo.com;Subject:[QUAD-L] hi again, it is Annette
Some asked about my accident and life soooHere is a summery of me:   May 
30/31st at 1am 1981, I was driving a good friend on on a freshly graveled road. 
 I was driving a station wagon Pinto.  A very light car.  I hit loose gravel 
lost control and rolled it into a very deep ditch.  Of course back then no one 
wore seatbelts.  My friends fell out of the car and I was thrown through the 
windshield.  How that happen is beyond everyone because there is very little 
room between the steer wheel and roof, that is probably why when I went out my 
forehead hit the rim where the windshield was attached.  It caused my neck to 
bend backward breaking at an angel of C5,6,7 and scalping me in an L shape.  
They doctors at the time thought the spinal cord was completely severed once I 
was able to get an MRI years later they found there was a little still attached 
which expand how I had full use of shoulders and biceps.  I was lucky my friend 
was able to get up and go get help because I was laying in the middle of the 
gravel road and no one would have seen me until it was too late so God was 
watching over me that way.  I was blessed with no internal injuries and no 
brain damage.  Luckily my scalp was able to be cleaned and folded back in 
place.  Surprisingly my hair even grew back which they did not expect.The 
ambulance driver and attendant were family friends, it was harder on them 
seeing someone they knew.  But it was a small community so I am sure they knew 
everyone they helped.  I was taken to a local hospital then Life flown to Iowa 
Methodist Medical Center/hospital IN Des Moines IA where I spent three weeks in 
ICU, 3 weeks in the hospital the went Younkers which was attached to IMMC. I  
was there from the beginning of July until January 1st 1982.  I was able to 
stay caught up with my senior class while I was in Yonkers.  When I got out I 
joined my class of 34(that is including me.)  I graduated with them.Small town 
people rally together and help.  Thanks to my classmates which I had gone to 
school with since I was in Kindergarten, other friends from surrounding 
communities, family and so many others.   

[QUAD-L] Re: [QUAD-L] Pre pay smart 邏 phone

[jume9999]

I use a "grip it" sold at Hsn.com on my smart phone. I bought a Tracfone 
there. BTW they have a Samsung Tracfone today only which looks like a good deal.
Meredith
Sent from my LG Mobile



-- Original message--From: Bobbie Humphreys Date: Sun, Dec 4, 2016 2:57 
PMTo: quad-list@eskimo.com;Subject:[QUAD-L] Pre pay smart 邏 phone 
Dose anybody know, or have, a pre pay smart phone?I'm in the market.How do you 
physically handle these phones, I find them very slippery.That's why I've had a 
flip phone  for many years because they don't slide out of my hands so 
easily."You must fail in order to succeed"

Re: [QUAD-L] Has anyone heard much about the Republicans cutting Medicare and Medicaid by $1 BILLION? :|

[jume9999]

Are you in California? I believe you need to get on a waiting list but 
disabled people are considered first.Meredith
Sent from my LG Mobile



-- Original message--From: Nadeana Halamar Date: Sat, Dec 3, 2016 10:50 
PMTo: Judy Me.;Cc: quad-list@eskimo.com;cboy...@swbell.net;Subject:Re: [QUAD-L] 
Has anyone heard much about the Republicans cutting Medicare and Medicaid by $1 
BILLION? :|
I need my Medicaid I didn't know I was going to break my neck when I was 23 and 
I only make $700 a month Social Security. Is there anyone else having an issue 
trying to find a landlord that take Section 8 because Section 8 is not wanting 
to pay them on time I can't find a house for me and my daughter I need more 
room my wheelchair is running into all the walls what does anybody know about 
Section 8 HUD and things like that
On Nov 30, 2016 1:43 PM, "jume9...@comcast.net"  wrote:
I have heard they want to turn Medicare into a voucher system. I will 
forward a petition if anyone is interested into signing it.
Meredith
Sent from my LG Mobile
-- Original message--From: Carolyn Boyles Date: Tue, Nov 29, 2016 3:19 
PMTo: quad-list@eskimo.com;Subject:Re: [QUAD-L] Has anyone heard much about the 
Republicans cutting Medicare and Medicaid by $1 BILLION? :|
I haven't been able to find anything about the current version of the bill 
doing so. There have been so many revamps and revisions of the bill and it's 
still constantly being changed and argued over..Carolyn

[QUAD-L] Fw: Sign the petition: Don’t privatize Medicare

[jume9999]

table, td, p {  color:#4a4744;  font-size:13px; line-height:18px;   
font-family:arial,helvetica,sans-serif; text-align:left;}p 
{margin-top:12px;margin-bottom:12px;}a { color:#235ab7; }sup, sub { position: 
relative; top: -0.4em; font-size: 65%; line-height: 0; }sub { top: 0.4em; 
vertical-align: baseline; }..footnotes { color:#4a4744;  font-size:12px; 
line-height:15px;   font-family:arial,helvetica,sans-serif; 
text-align:left;}



Sent from my LG Mobile



-- Original message--From: Josh Nelson, CREDO Action Date: Tue, Nov 29, 
2016 6:50 AMTo: Judy Meredith;Subject:Sign the petition: Don’t privatize 
Medicare
Stop Republicans in Congress 
from gutting Medicare.Petition to Mitch McConnell, Paul Ryan and Donald Trump:
"Do not cut, privatize, weaken or otherwise damage Medicare or Social Security. 
We should expand these successful programs – not cut them."Add your name:   
  Dear Judy,Medicare is a fundamental tool of economic security – a 
guarantee that seniors will not be denied health care just because they can’t 
afford it. But Republicans in Congress, led by House Speaker Paul Ryan and 
Senate Majority Leader Mitch McConnell, are making plans right now to privatize 
Medicare and hand it over to greedy insurance companies.1The fight over the 
future of Medicare could come to a head as soon as the next session of Congress 
starts in January. Add your name to our petition now and Sen. Bernie Sanders 
will deliver it to Republicans in Congress next week. We need to make it clear 
that any attempt to privatize, cut, weaken or damage Medicare or Social 
Security is completely unacceptable.Sign the petition: Stop the Republican 
attack on Medicare. Click here to sign the petition.Speaker Ryan has wanted to 
destroy Medicare for years. His ultimate goal is to end Medicare as we know it 
and replace it with a privatized program in which seniors would get federal 
vouchers to help offset the cost of premiums charged by commercial insurance 
plans. It’s a trick designed to create the appearance of cutting costs by 
shifting some of the financial burden from the federal government to America’s 
seniors.During the campaign, Trump repeatedly pledged that he would not attack 
Medicare. But then, just two weeks after the election, his senior adviser 
Kellyanne Conway admitted that he would “take a look at Speaker Ryan’s 
proposal.”2 One thing’s for certain: We can’t trust Trump, Rep. Ryan or Sen. 
McConnell to do what’s right for America’s seniors.House Democratic Leader 
Nancy Pelosi is adamant that Democrats in Congress will remain united in 
opposing the imminent Republican attack on Medicare.3 But with Republicans in 
control of the White House and both chambers of Congress, we need a powerful 
show of grassroots opposition now to show Rep. Ryan, Sen. McConnell and Trump 
that we won’t tolerate any attacks on Medicare or the rest of our social safety 
net.Sign the petition: Stop the Republican attack on Medicare. Click here to 
sign the petition.Thanks for everything you do.Josh Nelson, Deputy Political 
Director
CREDO Action from Working AssetsAdd your name:
Michael Hiltzik, "Paul Ryan is Determined to Gut Medicare. This Time he Might 
Succeed," Los Angeles Times, Nov. 23, 2016.Matt Shuham, "Conway: Trump Will 
Look At Paul Ryan's Plan, Other Medicare 'Alternatives' (VIDEO)," Talking 
Points Memo, Nov. 23, 2016.Greg Sargent, "Democrats Will Hold Firm Against Paul 
Ryan’s Medicare Plan, Pelosi Vows," The Washington Post, Nov. 21, 2016..
  Share on Facebook 
 Post to your wall  Tweet this 
 Post to Twitter © 2016 CREDO. All rights reserved.This email was sent to 
jume9...@comcast.net.to change your email or mailing address, please click 
here:  https://act.credoaction.com/me/update/?t=16=20674.7821694.G4s8YmTo 
unsubscribe, please visit our subscription management page at: 
http://act.credoaction.com/cms/unsubscribe/unsubscribe/?t=18=20674.7821694.G4s8Ym
  

Re: [QUAD-L] Has anyone heard much about the Republicans cutting Medicare and Medicaid by $1 BILLION? :|

[jume9999]

I have heard they want to turn Medicare into a voucher system. I will 
forward a petition if anyone is interested into signing it.
Meredith
Sent from my LG Mobile



-- Original message--From: Carolyn Boyles Date: Tue, Nov 29, 2016 3:19 
PMTo: quad-list@eskimo.com;Subject:Re: [QUAD-L] Has anyone heard much about the 
Republicans cutting Medicare and Medicaid by $1 BILLION? :|
I haven't been able to find anything about the current version of the bill 
doing so. There have been so many revamps and revisions of the bill and it's 
still constantly being changed and argued over.Carolyn

Re: [QUAD-L] My package was stolen!

[jume9999]

It helps to use Amazon lockers, there might be one near you. I live in a 
fairly nice neighborhood but we have had similar problems.
Meredith
Sent from my LG Mobile



-- Original message--From: Johnny Cammon Date: Wed, Nov 30, 2016 5:17 
AMTo: quad-list@eskimo.com;Subject:[QUAD-L] My package was stolen!
Hello quadriplegics? Do I have some news for you guys, okay I ordered the 
echo.and a Air mattress. They knocked but no one was able to get to the door in 
time so tell me why Whoever left it on the porch. I had Ms. the first time they 
 delivered. And email was sent to me and I follow the email to reschedule the 
delivery they would not let me pick the next day so I peaked November 30 to be 
delivered. So I wasn't expecting it to come anyway. Someone came on the porch 
took the stuff out of the box and left the box on the porch. So now I am 
contacting Amazon and see if I can get some help.. Hopefully I heard they will 
replace it.

Re: [QUAD-L] Weather

[jume9999]

It is just awful, it actually hurts to be that cold right?
Meredith
Sent from my LG Mobile



-- Original message--From: greg Date: Tue, Nov 29, 2016 6:52 AMTo: 
quad-list@eskimo.com;Subject:[QUAD-L] Weather
I have a remote for a space heater, I attach it to he cord of my bed remote. I 
can use it, but must pull my arm out from the covers, but often can get it back 
under.It must be air presure, etc., because I turn my heat up so my house is 
just as warm as always, yet I'm ll bundled up, yet freezing shaking, cold.Greg

Re: [QUAD-L] Unidentified subject!

[jume9999]

I live in California but it went from 75 to 53 in a week!
Sent from my LG Mobile



-- Original message--From: greg Date: Mon, Nov 28, 2016 3:19 PMTo: 
jume9...@comcast.net;Subject:Re: [QUAD-L] Unidentified subject!
Where do you live?I moved to AZ just to get warm. Still have cold issues, but 
not as bad. Its really cooling off now, 60 degrees for the high. I'm wearing 
sweaters, hat, blanket, drinking coffee.Greg

> I'm freezing and depressed. Any of you feeling this way?>>> Meredith

[QUAD-L] Unidentified subject!

[jume9999]

I'm freezing and depressed. Any of you feeling this way?
Meredith

Re: [QUAD-L] Pain, sleep, and other trivia

[jume9999]

Yes, I warm up my electric blanket one half hour before bedtime. I also 
have a wi-fi thermostat that I operate from my phone AND a heating pad.
Meredith
Sent from my LG Mobile



-- Original message--From: Johnny Cammon Date: Thu, Nov 24, 2016 6:35 
PMTo: Danny Hearn;quad-list@eskimo.com;Subject:Re: [QUAD-L] Pain, sleep, and 
other trivia
Me too.i have the pain in my neck an shoulders for years now,,and my 
right shoulders is the worse;.

On Thu, Nov 24, 2016 at 8:07 PM, Danny Hearn  wrote:
Yep, Larry...at night my sleeping has been rough, neck,shoulders and mid spine 
area kills me...I always seem to do much worse in the winter/cold & rainy 
monthsI hope we survive another winteralready longing for spring.  Dan 
H*** 

On Thursday, November 24, 2016 7:56 PM, Bryce Willis  
wrote:
  

 Hey guys. For the last two months my neck and shoulders have hurt so much I 
can't sleep at night. I don't know if it's arthritis or sleeping like a 
pretzel. Anyone else have this problem? Hope everyone had a great day! Larry 

Sent from my iPad

 

Re: [QUAD-L] Everyone that you

[jume9999]

Happy Thansgiving to all of you.
Meredith



-- Original message--From: Johnny Cammon Date: Wed, Nov 23, 2016 12:15 
PMTo: Larry Willis;quad-list@eskimo.com;Subject:Re: [QUAD-L] Everyone that you
happy holidays to my quadriplegic friends and everyone. Let's enjoy our  day in 
a grateful way. God bless you

On Wed, Nov 23, 2016 at 9:53 AM, Larry Willis  wrote:
Love and blessings to all my fellow quads. In our situation, it is often hard 
to give thanks.. We in the US are still blessed beyond belief. Just watch the 
evening news.. So much suffering, pain, and hopelessness in this world. God 
bless you, my peeps. Let us give thanks for life and for each other on this day 
of Thanksgiving. Larry Willis

Larry WillisRetired and proud of it

Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: wheelch...@aol.com
Date: November 23, 2016 at 8:51:09 AM EST
To: ismaelcavaz...@gmail.com, quad-list@eskimo.com
Subject: Re: [QUAD-L] Everyone that you

Thank You!  and May You Have Just Enough.Best Wishes In a message dated 
11/23/2016 2:59:24 A.M. Central Standard Time, ismaelcavaz...@gmail.com writes: 
 Hello quadriplegic friends I want to wish you every one   that you and happy 
Thanksgiving beside we don't know each other and have a   safe one you and your 
family are main problem as a quadriplegic we get   constipated very often but 
Thanksgiving is one time out of the year and make   it worth it and God bless 
you to you and your family my friends

Re: [QUAD-L] please tell me what kind of cellular phone with you are able to use!

[jume9999]

Debra, I bought an LG sunset Tracfone from HSN awhile back for 79.00. It is 
nothing fancy but it works for me. It came with 1200 minutes is each calling, 
texts and data (however I use my home wi-fi).
You press a button on the back of the phone so it is easy to turn on. I use a 
"grip it" and stylus and google. I have had it for about four months and have 
only used about 200 minutes of each so it is a bargain and a better phone than 
the state giveaway ones. Good luck to You it really is awesome to just say 
google call so and so
Meredith
Sent from my LG Mobile



-- Original message--From: DEBRA DEW Date: Tue, Nov 8, 2016 8:54 AMTo: 
quad-list@eskimo.com;Subject:[QUAD-L] please tell me what kind of cellular 
phone with you are able to use!
I cannot figure out how a quadriplegic can utilize one without being able to 
touch it to turn it on. I desperately need one and have the money available, 
but cannot find one to buy.
Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

Re: [QUAD-L] lifeline-free cell phone from the government

[jume9999]

It doesn't matte what phone you have I a certain extent. You just need a 
"grip it" it sticks on the back of my phone and I put my thumb through it on 
the back and I can hold the phone. Then I use a stylus to type anything that 
google won't let me speak.
Meredith
Sent from my LG Mobile



-- Original message--From: Date: Mon, Nov 7, 2016 5:52 AMTo: 
lorilivin...@gmail.com;quad-list@eskimo.com;Subject:Re: [QUAD-L] lifeline-free 
cell phone from the government
I agree with Lori.  Read the fine print on the back of the advertisement.  Free 
phones and you pay for minutes.  Free minutes and you may pay for a phone. Best 
Wishes In a message dated 11/6/2016 9:50:26 P.M. Central Standard Time, 
lorilivin...@gmail.com writes:I looked it up and I see it   differs by 
state. Just keep trying to research it for yourself because of your   
individual situation.  
  On Sun, Nov 6, 2016 at 7:54 PM, DEBRA DEW  wrote:
  I am trying to ascertain if this program includes cell phones 
that quadriplegics can use.
If anyone participates in this program, please advise me.
I attempted to contact them with the question, and their contact page is
 down.
Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs  
ROMANS 8:28 B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 

  
-- 
"Petting, scratching and cuddling a dog could be soothing to the   mind 
and heart and deep meditation and almost as good for the soul as prayer."   
~Dean Koontz

Re: [QUAD-L] Wheelchair cushion's

[jume9999]

. Here in California it actually benefits one to have Medi-Medi when it comes 
to supplies but it takes awhile for the billing. 

Meredith



-- Original message--From: Lori Michaelson Date: Sun, Nov 6, 2016 1:17 
PMTo: glenn henry;quad-list;Subject:Re: [QUAD-L] Wheelchair cushion's
Hi Glenn,
I have had so much happen to me over the last eight months and been so busy 
that I can't remember who actually wrote to me about something they use when 
the Roho no longer worked for them but, in any case, that person thought that 
the Ride Designs cushions offered the best for stability and pressure relief, 
etc. etc. etc.
http://www.ridedesigns.com/

http://www.ridedesigns.com/wheelchair-cushions

http://www.ridedesigns.com/custom-cushion

http://www.ridedesigns.com/forward-cushion

I don't know what we are going to do with what the future is going to bring re: 
pain for durable medical equipment. Medicare alone is covering less and less 
and less and although many feel safe being on some sort of Medicaid... that is 
not going to always be available in my humble opinion. 
~Lori
On Sun, Nov 6, 2016 at 1:10 PM, glenn henry  wrote:
Other than the Roho pad, does anyone else use a different type of cushion? The 
Roho pad does not work for me and I am looking for an alternative.
Other suggestion:Otto Block Terra Flair Comfort Company, M2Vector I looked at 
the information on the vector, it almost seems to simple to be effective.

Thanks for your help,

Glenn



-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Re: [QUAD-L] Groin rash

[jume9999]

You shoul see Dr. But in the time antibiotic cream could help ease the 
redness. Niastation cream is good through presription. 
Sent from my LG Mobile



-- Original message--From: Date: Thu, Oct 20, 2016 7:49 AMTo: 
lissw...@hotmail.com;quad-list@eskimo.com;Subject:Re: [QUAD-L] Groin rash
 See a doctor, There are creams that you need a prescription for. It is 
treatable. I have had it too.  In a message dated 10/19/2016 2:54:58 P.M. 
Eastern Daylight Time, lissw...@hotmail.com writes:  Hello everyone,

I hardly ever write here but I read the   emails frequently. This time I need 
help though.
I've had a terrible rash   in my groin/inner thigh area for about 2 months now. 
I have tried different   ointments, corn starch,
Chamomile and nothing works. I'm 10 years post   injury and this has never 
happened to me before. I have no feeling there   but
when I'm being cleaned my body get pain reactions, strong spasms,   chills and 
my face gets really hot.
Anything someone could recommend? Do I   need to see a doctor?

Thanks in advance and best regards to all.

From: g...@eskimo.com
To: quad-list@eskimo.com
Date: Tue, 18 Oct 2016   16:47:43 -0700
Subject: [QUAD-L] Internet

I've been having very   bad internet problems, so I had them come out. I've 
been paying for fast cable   internet. I found out the modem / router they put 
in a long time ago can't   handle those speeds. So Its been slower than it 
should be... Good news is, our   area is one of the first with Gigablast. 
1gbps. And its less than I pay now.   Can't wait. Greg=

[QUAD-L] Blood pressure

[jume9999]

My blood pressure is very like yours Bobbie all the time. They sometimes can't 
even get a reading. 
MeredithSent from my LG Mobile

Re: [QUAD-L] colostomys

[jume9999]

Thank you all for your answers, I know it won't be a picnic, but the prep, 
surgery and hospitalization scare me. I also have a pee bag! 

Meredith 

- Original Message -

From: "Quadius"  
To: jume9...@comcast.net 
Cc: "quad-list"  
Sent: Saturday, December 5, 2015 7:17:05 PM 
Subject: Re: [QUAD-L] colostomys 

I have the surgery performed in late May. The recovery was next to nothing. I 
didn't have any problems with pain or anything like that. 

I had difficulty with my bowels transitioning to the colostomy. My body kept 
wanting to put out a large amount every 48 hours because I had been doing that 
for 20 years. We ended up going to bowel irrigation (similar to an enema 
through the colostomy stoma). We do this every two days and it really helps 
with my bowels. Don't have too many problems with stoll coming out at odd 
times. 
Wish I had done it earlier. 
Q 
On Saturday, December 5, 2015, jume9...@comcast.net < jume9...@comcast.net > 
wrote: 



Please, those of you who have colostomy's. I need some answers. I have had it! 
My aide didn't show up AGAIN so of course gotta find a new person. I can't take 
one more day training and hoping to keep someone for BM mornings. Not to 
mention how they rule my schedule. Could I please get some info about how 
severe is the surgery, recovery, problems that I may encounter such as 
infections etc. I am truly afraid od of surgery but I need to do something!! 

Meredith 

[QUAD-L] colostomys

[jume9999]

Please, those of you who have colostomy's. I need some answers. I have had it! 
My aide didn't show up AGAIN so of course gotta find a new person. I can't take 
one more day training and hoping to keep someone for BM mornings. Not to 
mention how they rule my schedule. Could I please get some info about how 
severe is the surgery, recovery, problems that I may encounter such as 
infections etc. I am truly afraid od of surgery but I need to do something!! 

Meredith 

[QUAD-L] Ways to keep warm

[jume9999]

I have been filling a pot with water, bring to boil and simmer all day. Warms 
the house at least 5-10 degrees. 

Meredith 

Re: [QUAD-L] Bowel Problems

[jume9999]

What do you mean dukes traveling up the bowel? Also, what is a ghost BM? 

- Original Message -

From: wheelch...@aol.com 
To: zoocr...@windstream.net, sbell...@cox.net, "quad-list" 
 
Sent: Wednesday, December 2, 2015 5:24:53 PM 
Subject: Re: [QUAD-L] Bowel Problems 

I use milk, instead of water when making oat meal. I like the old fashion over 
the 1 minute (smaller oats). 
The oatmeal tends to absorb. Do you think you are experiencing ghost BM ? If 
so, a small piece of the dukes are breaking off and traveling up the bowel, for 
later reaction. I hope it works for you and your bowels. 
Best Wishes 
In a message dated 12/2/2015 7:10:23 P.M. Central Standard Time, 
zoocr...@windstream.net writes: 





I’m sure going to give it a try and I will let you know. I’m to the point of 
being afraid to eat lunch for fear of accidents during the day. 



Nicki 




From: shirley bell [mailto:sbell...@cox.net] 
Sent: Wednesday, December 02, 2015 6:35 PM 
To: nichole rohling 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Bowel Problems 





Those never worked right for me . I had many accidents. I LOVE the magic 
bullet, changed my life! go to concepts in confidence web site and get them. 
The guy who developed the bullet owns it. You can get small sample size to try, 
I think. Also, when you try it, give it a chance. May take a few tries. Eat a 
big fruit every day, apple or wedge of melon works for me daily. I love dates 
and eat 3 or so a day as well. let me know if you try them and how you do. 


Kind regards, 
Shirley Bell 





www.ShirleyBellDesigns.com 





- Original Message - 


From: nichole rohling 


To: 'shirley bell' ; quad-list@eskimo.com 


Sent: Wednesday, December 02, 2015 6:44 PM 


Subject: RE: [QUAD-L] Bowel Problems 





No Shirley, I’ve used generic Dulcolax suppositories for 17 yrs. 



Thinking maybe I should try them? 



Nicki 






From: shirley bell [ mailto:sbell...@cox.net ] 
Sent: Wednesday, December 02, 2015 4:34 PM 
To: nichole rohling 
Subject: Re: [QUAD-L] Bowel Problems 





are you using magic bullet? 


Kind regards, 
Shirley Bell 





www.ShirleyBellDesigns.com 





- Original Message - 


From: nichole rohling 


To: quad-list@eskimo.com 


Sent: Wednesday, December 02, 2015 5:01 PM 


Subject: [QUAD-L] Bowel Problems 





Back in August my bowels started deciding they wanted to empty (consistency of 
cow poop for lack of better term) in the evenings about 2 hrs after going to 
bed. I get chills, etc and generally caregiver gets here and gets me on the 
shower chair before it’s too late. This went on about once a week for a month 
or so. I had been taking Culturelle since last December so I stopped taking it. 
My body is still doing the same thing – but only about once every 2 weeks if 
I’m lucky. No particular food triggers it. Went to the dr yesterday, all labs 
came back fine. 

Of course bowel program is jacked up because there’s nothing there, sometimes 
it happens on evenings when I do bowel program that morning and sometimes it is 
on non-bowel program evenings. 

No rhyme or reason for it. 



I’m up for suggestions and anyone else had this happen? 



Nicki 

Re: [QUAD-L] Bowel Problems

[jume9999]

I have hated BM days for yrs due to the sweats, nausea etc. Milk of Magnesia or 
sennekot is what I use. 

Meredith 

- Original Message -

From: "nichole rohling"  
To: "quad-list"  
Sent: Wednesday, December 2, 2015 2:01:10 PM 
Subject: [QUAD-L] Bowel Problems 



Back in August my bowels started deciding they wanted to empty (consistency of 
cow poop for lack of better term) in the evenings about 2 hrs after going to 
bed. I get chills, etc and generally caregiver gets here and gets me on the 
shower chair before it’s too late. This went on about once a week for a month 
or so. I had been taking Culturelle since last December so I stopped taking it. 
My body is still doing the same thing – but only about once every 2 weeks if 
I’m lucky. No particular food triggers it. Went to the dr yesterday, all labs 
came back fine. 

Of course bowel program is jacked up because there’s nothing there, sometimes 
it happens on evenings when I do bowel program that morning and sometimes it is 
on non-bowel program evenings. 

No rhyme or reason for it. 



I’m up for suggestions and anyone else had this happen? 



Nicki 

Re: [QUAD-L] Ryzodomy

[jume9999]

Thank you Bobbie, Two other questions, was it permanent? Was it like an office 
visit where you left the same day? 

- Original Message -

From: "Gmail"  
To: jume9...@comcast.net 
Cc: "quad-list"  
Sent: Tuesday, November 24, 2015 11:13:59 AM 
Subject: Re: [QUAD-L] Ryzodomy 

I got the ryzodomy in 1988 because of spazams and the surgery stopped the 
spazams completely. 
Bobbie 

Smile Everyday 

On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: 




Hi guys, 

Those of you who have had a ryzodomy, can you tell me does it just help with 
spasms? I guess it doesn't help with pain but what about stiffness? I really 
would love some details??? Thanks 

Meredith 

[QUAD-L] Ryzodomy

[jume9999]

Hi guys, 

Those of you who have had a ryzodomy, can you tell me does it just help with 
spasms? I guess it doesn't help with pain but what about stiffness? I really 
would love some details??? Thanks 

Meredith 

Re: [QUAD-L] I'm 60 today

[jume9999]

Happy Birthday Bobbie (Belated) Hope you enjoyed it!! 

Meredith 

- Original Message -

From: "Gmail"  
To: "quad-list"  
Sent: Saturday, November 14, 2015 7:31:20 PM 
Subject: [QUAD-L] I'm 60 today 

I can't believe I'm turning 60 November 15th 
My body feels like 80 

Saturday afternoon I spent it with 15 family & friends painting at a place 
called Uptown Art 

It is a franchise UptownArt.com. Check it out, they are popping up all over the 
states. 
Bobbie 

Smile Everyday 

[QUAD-L] Fwd: No fun getting older

[jume9999]

Astute Observations 











There are two sides to every divorce: Yours and dipshit's. 





The closest I ever got to a 4.0 in college was my blood alcohol content. 





I live in my own little world, but it's OK. Everyone knows me here. 





I saw a very large woman wearing a sweatshirt with "Guess" on it. I said, "Left 
Tackle?” 





I don't do drugs. I find I get the same effect just by standing up really fast. 





I don't like political jokes. I've seen too many get elected. 





The most precious thing we have is life, yet it has absolutely no trade-in 
value. 





If life deals you lemons, make lemonade. If life deals you tomatoes, make 
Bloody Mary’s. 





Shopping tip: You can get shoes for a buck at bowling alleys. 





Every day I beat my previous record of consecutive days I've stayed alive. 





No one ever says, "It's only a game!" when their team's winning. 





Ever notice that people who spend money on beer, cigarettes and lottery tickets 
are always complaining about being broke and not feeling well? 





Isn't having a smoking section in a restaurant like having a peeing section in 
a swimming pool? 





Marriage changes passion . . . suddenly you're in bed with a relative. 





Why is it that most nudists are people you don't want to see naked? 





Snowmen fall from Heaven unassembled. 





Now that food has replaced sex in my life, I can't even get into my own pants. 





I signed up for an exercise class and was told to wear loose fitting clothing. 
If I HAD any loose fitting clothing, I wouldn't need the freakin' class! 





Don't argue with an idiot; people watching may not be able to tell the 
difference. 





Wouldn't you know it! Brain cells come and brain cells go, but FAT cells live 
forever. 

Re: [QUAD-L] No Fun Getting Older

[jume9999]

Haven't heard that one in a while. 

Meredith 

- Original Message -

From: wheelch...@aol.com 
To: stu...@gmail.com 
Cc: g...@eskimo.com, "quad-list"  
Sent: Thursday, November 12, 2015 5:44:47 PM 
Subject: Re: [QUAD-L] No Fun Getting Older 

Still Loving It. 
Best Wishes 
In a message dated 11/12/2015 7:39:27 P.M. Central Standard Time, 
stu...@gmail.com writes: 



https://www.youtube.com/watch?v=13olfeD026g 

THE ROLLING STONES LYRICS 
"Mother's Little Helper" 

What a drag it is getting old 
"Kids are different today," 
I hear ev'ry mother say 
Mother needs something today to calm her down 
And though she's not really ill 
There's a little yellow pill 
She goes running for the shelter of a mother's little helper 
And it helps her on her way, gets her through her busy day 
"Things are different today," 
I hear ev'ry mother say 
Cooking fresh food for a husband's just a drag 
So she buys an instant cake and she burns her frozen steak 
And goes running for the shelter of a mother's little helper 
And two help her on her way, get her through her busy day 
Doctor please, some more of these 
Outside the door, she took four more 
What a drag it is getting old 
"Men just aren't the same today" 
I hear ev'ry mother say 
They just don't appreciate that you get tired 
They're so hard to satisfy, You can tranquilize your mind 
So go running for the shelter of a mother's little helper 
And four help you through the night, help to minimize your plight 
Doctor please, some more of these 
Outside the door, she took four more 
What a drag it is getting old 
"Life's just much too hard today," 
I hear ev'ry mother say 
The pusuit of happiness just seems a bore 
And if you take more of those, you will get an overdose 
No more running for the shelter of a mother's little helper 
They just helped you on your way, through your busy dying day 
Doctor please, some more of these 
Outside the door, she took four more 
What a drag it is getting old 



On Thu, Nov 12, 2015 at 4:52 PM, < wheelch...@aol.com > wrote: 



Greg, I hope your situation improves. The infection is due to bacteria and the 
lack of acid. Consider the use of white vinegar soak in cotton balls to 
neutralize the yeast. 
Best Wishes 
In a message dated 11/12/2015 1:09:51 P.M. Central Standard Time, 
g...@eskimo.com writes: 


I'm falling apart as I'm getting older. Bad hip, bad shoulder, spine curving, 
heavy chest when laying flat, anxiety issues, uncontrollable shaking feeling 
frozen if head not up high enough in bed (even if too hot). Just got over a UTI 
and the antibiotics caused a very painful yeast infection in crotch, then 
yesterday I find out a rash I have is Shingles. 

I was spasming so bad last night I new if I was in bed I'd not sleep and go 
stir crazy, so I stayed up in my chair all night. The yeast infection is so 
painful, just toughing anywhere in the area causes spasms so hard, AD makes my 
head feel like it's going to explode. Hopefully 24 houses on meds and cream 
will take some tenderness away tonight. 

Greg 









-- 
Freedom: United States Constitution© 1791 All Rights are not Preserved and so 
Far only the 2nd is preserving our LIBERTY! It is under attack, but if all the 
Citizens who took the OATH keep their sworn duty we can SAVE our country OUR 
constitutional REPUBLIC from THE TYRANNY FROM WITHIN! 
Are you an internet Litterbug? http://nw-in.com/smartemail.html 

Re: [QUAD-L] Gallbladder problems?

[jume9999]

Nicki, I don't understand, do you have a colostomy now? BTW, how much is 
involved with getting the surgery to have a colostomy? How long does the 
recovery take? Do you have to stay in the hospital? Why do you think this is 
your gall bladder? 

Meredith 


- Original Message -

From: "nichole rohling"  
To: "greg" , "quad-list"  
Sent: Wednesday, November 4, 2015 4:37:04 PM 
Subject: RE: [QUAD-L] Gallbladder problems? 

I had a major hemorrhoidectomy last December and considered a colostomy 
then. 

The amount of feces coming out at night would probably blow a colostomy bag 
offseriously. 
However, I am having pain when sitting on shower chair and I think it's my 
rear (hemorrhoids), we just don't see any prolapsed yet. 

I will again be considering a colostomy if more problems present. 

Nicki 

-Original Message- 
From: greg [mailto:g...@eskimo.com] 
Sent: Wednesday, November 04, 2015 6:08 PM 
To: nichole rohling 
Subject: Re: [QUAD-L] Gallbladder problems? 

I was having issues like that, also about 1 or 2 times a week I was leaking 
just enough to leave a mark and smell. I was embarrassed every time I had to 
get lifted out of my chair. I finely got a colostomy. I only wish I would 
have gotten it 30 years ago. I put it off thinking it would be embarrassing, 
but it was s much nicer. Fast, easy, clean, 2 minutes a day, 5 minutes 
once a week or so. And that's over estimating. I recommend looking into it 
and asking your Doc. 
Greg 


> For about 3 ½ months I have been having problems w/ having to call one 
> of my caregivers to come and get me up on my shower chair at night 
> about 3.5 to 4 hours after I eat dinner. 
> 
> 
> It was once a week then I quit taking Culterelle and I've been going 
> about 10 to 14 days in between episodes. No particular type of food 
> sets it off, Monday night it was stew. 
> 
> 
> The stool isn't watery but lacks form, kind of like a cow 
> patty...I know, gross. 
> 
> 
> I do bowel program on M W F and it has been both on bowel program days 
> and not on bowel program days. 
> 
> 
> Open to any and all experiences or suggestions..calling dr in the 
> morning. 
> 
> 
> Nicki 
> 
> C5/6 

Re: [QUAD-L] Ditroplan

[jume9999]

There is always Probantheline which also causes dry mouth but I don't think it 
causes Alzheimers. 

- Original Message -

From: cviewe...@aol.com 
To: e...@teamjeved.com, lwillis82...@gmail.com 
Cc: "quad-list"  
Sent: Wednesday, November 4, 2015 5:42:06 PM 
Subject: Re: [QUAD-L] Ditroplan 

I have been on ditropan or the generic for more than 30 years...no problems. It 
still works.I have not had any signs of dementia or other problems. Rose 
In a message dated 11/4/2015 5:08:13 P.M. Eastern Standard Time, 
e...@teamjeved.com writes: 









My big worry now about Ditropan is recent research showing it increases risk of 
developing dementia/Alzheimer's/cognitive health problems. I've been taking it 
for a decade. I was also a long-term regular user of Benadryl for chronic 
allergies. Benadryl was identified in that same research as another high risk 
factor. 

All of this becomes super scary for me, because Alzheimer's runs and family. My 
father is in the late stages of the disease. 

At 48, I have to be focusing on preventative measures. with 30 years of 
quadriplegia under my belt I can't assume I'll be dead before I get into my 60s 
and 70s when Alzheimer's risk is increasingly common. 

I've asked my urologist for alternatives to Ditropan. he says there are some 
but he has to research them – – that was months ago. 

Have any of you been on a similar drug that was as effective as Ditropan? 

Thanks everybody 

Ed 




Ed Tessier 
Mobile: (909) 994-5900 


Jeved Management, Inc. 



On Mon, Nov 2, 2015 at 5:06 AM, Larry Willis < lwillis82...@gmail.com > 
wrote: 


It doesn't give me dreams, but the dry mouth is terrible. But it's a trade off 
- dry mouth or cold sweats. The sweats just kill me. Can't win. 


-- Forwarded message -- 
From: greg < g...@eskimo.com > 
Date: Sunday, November 1, 2015 
Subject: [QUAD-L] Ditroplan 
To: quad-list@eskimo.com 


I took Ditropan for awhile, but it gave me very weird dreams, almost panic 
dreams. I'd wake up startled out of breath. 
I had to stop. Plus a very dry mouth. 
Greg 


> I take 20 mg ditropan in the morning, then cath at about 7am and 10 
> pm. I try to balance fluid intake with that routine. 

Re: [QUAD-L] Medicaid?

[jume9999]

Medicaid helps with caregivers in California. How does assets in a trust not be 
considered monthly income? 

Meredith 

- Original Message -

From: "greg"  
To: "quad-list"  
Sent: Thursday, November 5, 2015 1:10:13 PM 
Subject: [QUAD-L] Medicaid? 

Those with Medicaid, AZ if it matters. How much of a wheelchair does it cover? 
Medicare is 80% 
If I put my assets in a Trust, my SS is small enough I'd qualify. But is it 
worth changing from Medicare to Medicaid? 

Does Medicaid help with caregivers? If so, can you pick who, or does it have to 
be an agency? 

Thanks, Greg 

[QUAD-L] Ryzodomy

[jume9999]

Hi All, 

I remember a couple people on this list who had the ryzodomy. Can you tell me 
if you need an MRI first? Also, does it help with spasms only? or with pain 
also? 

Meredith 

Re: [QUAD-L] UTI

[jume9999]

Ive been there before. What are you on? Cipro works well for me. 

Meredith 

- Original Message -

From: "greg"  
To: "quad-list"  
Sent: Tuesday, October 20, 2015 9:52:04 AM 
Subject: [QUAD-L] UTI 

I got a UTI this week, first bad one in a long time. The antibiotic made me 
almost get sick. I do not do sick very well. When I feel bad, I have a hard 
time laying in bed. Twice this week I actually stayed up in my chair all night 
instead of laying down. I felt like I was going to get sick and hate that 
feeling in bed. I actually sleep almost as well in my chair. I recline over a 
big stuffed chair, with pillows on each side, so my arms don't hang down. Every 
time I wakeup I sit up for a few minutes just to move around a bit. I called 
the doc to switch pills, I just can't tak them anymore. 
Greg 

Re: [QUAD-L] 25 years October 15

[jume9999]

Happy 25 yrs Joan! What an awesome outlook you have, thanks for sharing. 


Meredith 

- Original Message -

From: "Joan Anglin"  
To: "quad-list"  
Sent: Wednesday, October 14, 2015 8:28:22 PM 
Subject: [QUAD-L] 25 years October 15 



25 years, a quarter of the century, almost one third of my life. Where did the 
time go from that moment when I fell off the scaffolding and tried to move my 
arm and realized it did not respond? That was the start of my new life, and 
although it is not always a home run, it certainly is not a strikeout either. 

So many people who have helped me, encouraged me, devised a little something 
that made my life better, cuddled me when I needed it, scolded me when I needed 
it, and just simply told me to buckle down and get on with life. Thanks to each 
and every one and you know who you are. Family, friends, therapists, doctors, 
and yes many strangers. 

To every little kid (some of them not so little but just as curious) who asked 
me why I was in a wheelchair, how did I drive my chair without my hands or 
arms, who offered to help me, I say thank you and bless you that you accepted 
me for the person I am, especially the young one who wanted to race me and when 
I won told me to get out of my chair and he would drive it and win! I love you 
all. 

I appreciate all of the strangers who are so helpful and kind and open doors 
for me without my asking, offer to carry my packages out to my car, ask me if I 
would like a drink from my cup on my wheelchair, or would I like something to 
eat while I am waiting for someone at the food court to pick up our orders. I 
don't believe for a minute that the majority of people do not want to help or 
look down upon me in the wheelchair. Conversely, I love the smiles, the how are 
you doings, and the people who say- isn't it a great day to be outdoors or 
shopping or whatever. 

To the very few and far between people who say or imply something such as " my 
you really know how to use the wheelchair" I try to smile and reply " you do 
really well on your feet also" and make them laugh. They probably will think 
twice the next time. 

Being a total C4 quadriplegic was definitely not my game plan for my life, but 
honestly things could have been worse and I am looking forward to what the 
future holds. I have already outlived by 10 years what they told me at rehab in 
1990, so hopefully the rest will be a piece of cake! Thanks for letting me 
celebrate 25 years. 

Re: [QUAD-L] Quick poem

[jume9999]

Sorry Ron about your appendix etc. How did you know that it burst? Did you have 
surgery? 

Meredith 


- Original Message -

From: "RONALD L PRACHT"  
To: "quad-list"  
Sent: Wednesday, October 14, 2015 12:57:34 AM 
Subject: Re: [QUAD-L] Quick poem 

Ive had some setbacks these past few years. My appendix burst which set into 
motion a set of events that I would have never expected, then my dad got 
meningitis and hurt his back . I had to teach my mother to come in and help out 
.My Rio Dragonfly handcycle never let me down though, every evening this summer 
I was able to put on my ipod, connect my handcycle and ride my stress away. I 
got to about 250 miles this summer then my left elbow got a severe case of 
bursitis. I iced and used a compression sleeve which got me a few more months 
but I had to quit just over a week ago for fear of doing permanent damage to 
the elbow. I love exercise and the high you get after. it also helps with 
depression and dealing with challenges 



On Wednesday, October 14, 2015 2:43 AM, Gail Holmes  wrote: 


Is the broken chair the only factor that's keeping you in bed? 

Sent from my iPhone 

> On Oct 14, 2015, at 1:34 AM, Jim Lubin < jlu...@eskimo.com > wrote: 
> 
> I thinking it's because, being paralyzed from the neck down and dependent on 
> a ventilator to breathe, I always have someone around me to feed me, brush my 
> teeth, wash my cloths, etc. Just been fortunate ​my bowel routine. I don't 
> own a van so use a service anytime I have gone anywhere. Chair broke down at 
> home but got transferred back to bed. 

Re: [QUAD-L] Quick poem

[jume9999]

The first 4 for sure. 

- Original Message -

From: "Larry Willis"  
To: "quad-list"  
Sent: Tuesday, October 13, 2015 12:22:35 PM 
Subject: Fwd: [QUAD-L] Quick poem 

More quad quickies to meditate. Feel free to contribute. 

Have you ever 
1. Not eaten for a long time because you dread the bowel ritual. 
2. Not brushed your teeth because of the hassle. 
3. Worn dirty clothes because no one would/could do the laundry. 
4. Had chips for a meal because there was nothing else that you could fix. 
5. Sat for hours after your chair/van broke down. 
6. Had a bowel/bladder accident in a public place with no way to 
exit.church, theater, class, work. 
7. Fallen from your chair while home alone. 
8. Become choked or congested and unable to cough. 
9. Been cursed, belittled by a caregiver. 
10. Had a public confrontation with a stranger. 
11. Gone over a week without a bowel movement. 
12. Prayed to God that you won't wake up. 
13. Been so depressed you lose all interest in living. 
14. Wrecked your van. 
15. Been stuck at the bottom of the stairs with no offer of help. 
Larry Willis 
Retired and proud of it 


Begin forwarded message: 




From: Gmail < bobbiehumphre...@gmail.com > 
Date: October 13, 2015 at 1:55:19 PM EDT 
To: Larry Willis < lwillis82...@gmail.com > 
Cc: " quad-list@eskimo.com " < quad-list@eskimo.com > 
Subject: Re: [QUAD-L] Quick poem 






I do. Bobbie 

Smile Everyday 

On Oct 13, 2015, at 1:28 PM, Larry Willis < lwillis82...@gmail.com > wrote: 




The opening line of your poem is a grabber. How many of us on here actually do 
that? I do. Often. 

Larry Willis 
Retired and proud of it 


Begin forwarded message: 




From: Gmail < bobbiehumphre...@gmail.com > 
Date: October 13, 2015 at 12:21:47 PM EDT 
To: Larry Willis < lwillis82...@gmail.com > 
Cc: " quad-list@eskimo.com " < quad-list@eskimo.com > 
Subject: Re: [QUAD-L] Quick poem 






Wow, right on the mark. Especially as the years and decades pass by. 

It's quite indescribable, but you came pretty fucking close. 
Bobbie 



On Oct 13, 2015, at 6:56 AM, Larry Willis < lwillis82...@gmail.com > wrote: 




Wow, Ron, my feelings exactly. Exactly. 

Larry Willis 
Retired and proud of it 


Begin forwarded message: 




Resent-From: quad-list@eskimo.com 
From: RONALD L PRACHT < r.pra...@sbcglobal.net > 
Date: October 13, 2015 at 3:06:14 AM EDT 
To: Quad-list Post < quad-list@eskimo.com > 
Subject: [QUAD-L] Quick poem 
Reply-To: RONALD L PRACHT < r.pra...@sbcglobal.net > 






Quad Life 

Every night when I go to bed, I pray to god to wake up dead. 

As morning comes, I always get scared, because another day must be beared. 

People say to look above, but all I get is abused and shoved. 

Life took a young man with hopes and dreams, and reduced him to nothing as so 
it seems. 

I try as I may to still be a man, during the bowell routines and all the hell 
that quad life demands. 

Everyones forgotten who I was , and treat me like shit just because. 

I started strong in this game, but when I think...who is to blame? 

Was I just another victim of circumstance or from the beginning did I have no 
chance? 

As the years go by it means less and less because I am still human 
nevertheless. 





Ron 

Re: [QUAD-L] Quick poem

[jume9999]

That was moving, sad and true 

Meredith 

- Original Message -

From: "RONALD L PRACHT"  
To: "quad-list"  
Sent: Tuesday, October 13, 2015 12:06:14 AM 
Subject: [QUAD-L] Quick poem 

Quad Life 

Every night when I go to bed, I pray to god to wake up dead. 

As morning comes, I always get scared, because another day must be beared. 

People say to look above, but all I get is abused and shoved. 

Life took a young man with hopes and dreams, and reduced him to nothing as so 
it seems. 

I try as I may to still be a man, during the bowell routines and all the hell 
that quad life demands. 

Everyones forgotten who I was , and treat me like shit just because. 

I started strong in this game, but when I think...who is to blame? 

Was I just another victim of circumstance or from the beginning did I have no 
chance? 

As the years go by it means less and less because I am still human 
nevertheless. 





Ron 

Re: [QUAD-L] Re: LittleQuad is back!

[jume9999]

Oh my gosh, I guess I came back at the right time, I've had the same pain, but 
it is not constantI assumed it was because of my being crooked due to 
calcium deposits long ago. It is hard to tell by the conversation did you also 
get a ryzodomy and did it help? Who else has had one.? I really want something 
done. I don't get much hep from meds anymore. 

Meredith 

- Original Message -

From: "Amy Elizabeth Baldwin"  
To: "Gmail"  
Cc: "quad-list"  
Sent: Monday, October 12, 2015 4:13:05 PM 
Subject: [QUAD-L] Re: LittleQuad is back! 



Hey ya'll sorry for the late reply! 

Question: Do you "feel" any different other than the pain? 

Answer: Yes, the left leg has been tingling most of the day and I have asked 
the doctor and he said that it would take time to heal. 

What kind of pain is it? 
The nerves and skin are very sensitive to touch by anything. 

Anyone else ever had it happen? 
LittleQuad 
On Sep 24, 2015 4:50 PM, "Gmail" < bobbiehumphre...@gmail.com > wrote: 



Yes it was/is permanent. No regrets at all. 

Do you "feel" any different other than the pain? 

What kind of pain is it? 

I have none stop all, at T-12 anyway 
Bobbie 

Smile Everyday 

On Sep 24, 2015, at 5:20 PM, Amy Elizabeth Baldwin < littleq...@gmail.com > 
wrote: 






Thanks for the reply Bobbie! 
Was the ryzodomy surgery to cut the nerves at T-12 a permanent solution? 
I have sensation to touch all over my body. I don't really want to lose the 
ability to feel. Just want the painful part to go away? 
LittleQuad 


On Sep 24, 2015 3:47 PM, "Gmail" < bobbiehumphre...@gmail.com > wrote: 
> 
> Welcome back!!! 
> Isn't odd that you/we don't think nothing of breaking your back?! 
> 
> I had surgery to cut the nerves at T-12 called a ryzodomy. It was to stop 
> extreme leg spasms, and it did the job. 
> Bobbie 
> 
> Smile Everyday 
> 
> On Sep 24, 2015, at 1:59 PM, Amy Elizabeth Baldwin < littleq...@gmail.com > 
> wrote: 
> 
>> Hey gang! I'm back for a while. I need some help with a situation. Several 
>> months ago, I was semi-dropped onto the bed and I began having weird 
>> sensation on my left hip all the way down my leg. Turns out that it broke 
>> T-12. Obviously the doctor couldn't do anything to help it. 
>> Have any of you had a similar situation and what was your outcome? 
>> Thanks for your help! 
>> LittleQuad 
>> 
>> P.S. I have a personal blog I started to wake up the businesses and 
>> restaurants about how ADA accessible they are from a disabled persons point 
>> of view. 
>> You can visit it at: 
>> https://m.facebook.com/littlequadblog 

[QUAD-L] Back on list

[jume9999]

Hi all, 
How have you all been? 
I was unable to receive mail from this list for awhile. Now I am just sending a 
test to see if I can receive posts again. 

Meredith 

Re: [QUAD-L] Back on list

[jume9999]

Yes, I did thanks. 

- Original Message -

From: "Amy Elizabeth Baldwin"  
To: jume9...@comcast.net 
Sent: Sunday, October 11, 2015 2:30:05 PM 
Subject: Re: [QUAD-L] Back on list 



Welcome back! 
Did you my response? 
On Oct 11, 2015 3:56 PM, < jume9...@comcast.net > wrote: 



Hi all, 
How have you all been? 
I was unable to receive mail from this list for awhile. Now I am just sending a 
test to see if I can receive posts again. 

Meredith 

Re: [QUAD-L] Propanthaline (sweat pills)

[jume9999]

No, i am in N. California. 

Meredith 
- Original Message -

From: llt1...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Monday, January 19, 2015 2:22:08 PM 
Subject: [QUAD-L] Propanthaline (sweat pills) 





Is anybody else having problems getting their propantheline filled? 


Sent from my MetroPCS 4G Android device 

Re: [QUAD-L] Best pain meds

[jume9999]

Has anyone tried Lyrica? Is oxycodone stronger than norco? 


- Original Message -

From: diannal...@aol.com 
To: jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Wednesday, January 7, 2015 3:50:29 PM 
Subject: Re: [QUAD-L] Best pain meds 

neurontin is one they often prescribe for diabetic nerve pain. 



Hi all, happy new year! 

I was wondering what if any of you know are the best pain meds for nerve pain. 
I have tried norco and slow acting morphine. The morphine works too slow. Any 
other ideas? 

Meredith 






-Original Message- 
From: jume jume9...@comcast.net 
To: quad-list quad-list@eskimo.com 
Sent: Wed, Jan 7, 2015 5:17 pm 
Subject: [QUAD-L] Best pain meds 

Hi all, happy new year! 

I was wondering what if any of you know are the best pain meds for nerve pain. 
I have tried norco and slow acting morphine. The morphine works too slow. Any 
other ideas? 

Meredith 

[QUAD-L] Best pain meds

[jume9999]

Hi all, happy new year! 

I was wondering what if any of you know are the best pain meds for nerve pain. 
I have tried norco and slow acting morphine. The morphine works too slow. Any 
other ideas? 

Meredith 

Re: [QUAD-L] Pneumovax

[jume9999]

Geez, all that once, sorry to hear that, hope 2015 is better for you. 

Meredith 

- Original Message -

From: Derrick wheel...@centurylink.net 
To: quad-list quad-list@eskimo.com 
Sent: Saturday, January 3, 2015 4:00:31 PM 
Subject: Re: Fwd: [QUAD-L] Pneumovax 

I just got out of hospital with the flu, uti infection, colon infection 
and touch pneumonia. 
It was rough being in a very rural hospital, that locals call the 
Band-Aid Station. 
I usually get flu shot but didn't this year. They said it would not of 
helped with flu strain going around. 
The nurses had to wear a gown, gloves and mask everytime they came into 
room. 
I'm back home and using nebuilizer to clear up lungs. 

Derrick W in PA 

Re: [QUAD-L] Dysreflexia and Spasms

[jume9999]

How does one do a bowel flush? 

Meredith 


- Original Message -

From: wheelch...@aol.com 
To: ddh...@sbcglobal.net, quad-list quad-list@eskimo.com 
Sent: Wednesday, December 17, 2014 9:27:48 AM 
Subject: Re: [QUAD-L] Dysreflexia and Spasms 

A bowel flush clears your upper and lower bowels. Waste contains bacteria and 
produces gas. 
Best Wishes 
In a message dated 12/17/2014 11:25:31 A.M. Central Standard Time, 
ddh...@sbcglobal.net writes: 



Thanks all, no Wheel, did bowel routine yesterday and all fine there, no skin 
breakdown or nothing else we can find. 


On Wednesday, December 17, 2014 11:02 AM, wheelch...@aol.com 
wheelch...@aol.com wrote: 


And when was the last time you flushed your bowels? Old waste/stool, can create 
gas and expansion within your bowels.. 
Best Wishes 
In a message dated 12/17/2014 10:59:02 A.M. Central Standard Time, 
ddh...@sbcglobal.net writes: 

blockquote

Hi all...I'm still having dysreflexia on and off, been about 3-4 weeks total 
now, get bad spasms-especially at night when in bed, I do better during day 
when up and taking pain meds. In 17 years as a quad I have only had problems 
similar to this when I had serious bladder infections. 1st I went to family doc 
and he did some blood work but found nothing, Next we sent A Urine sample to my 
Urologist and he found 2 bacteria's and put me on 7 days of cipro--just in case 
a uti or infection could be the cause, I will finish the cipro tomorrow but 
things are not getting better so It must be something else...I have a syrinx in 
my spine, don't know if that can be the cause and not sure I can even do an mri 
now due to spasms when I lay down, sure hope We can find the cause or I'm not 
sure what will happen...Oh well, I'll stop for now, If anyone has an Idea on 
this, please reply...Thanks Beforehand, hope your all doing well. Dan H*** 






/blockquote

Re: [QUAD-L] Autonomic Dysreflexia and pain

[jume9999]

I have the same thing with pinched nerves from my disc. Also, when I first 
broke my neck My hip on one side got inflamed with calcium deposits 
(hetertopicosification) witch has left me crooked. The last few years my whole 
other side has deterorated and so Norco has stopped working very well. What is 
the next step up in pain management.? They won't operate. 

Meredith 
- Original Message -

From: alcibiates2 alcibiat...@yahoo.com 
To: Danny Hearn ddh...@sbcglobal.net, quad-list quad-list@eskimo.com 
Sent: Monday, November 24, 2014 5:57:02 AM 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

I was told it was disintegrating disc disease. There's no cure for it. It 
causes nerves to be pinched as well as making it impossible to position 
comfortably. Spending long times sitting in the chair is really painful.I'm to 
the point now where I get out of bed for a couple hours each day. 
Best wishes. 
john s 


Sent from my Verizon Wireless 4G LTE smartphone 


 Original message  
From: Danny Hearn 
Date:11/24/2014 5:44 AM (GMT-05:00) 
To: alcibiates2 ,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

John, I read that many quads develope disc problems in their backs, did they do 
anything for yours or do you just get by as best you can with that?? thanks, 
Dan** 


On Sunday, November 23, 2014 6:55 PM, alcibiates2 alcibiat...@yahoo.com 
wrote: 


Dan, I've had some fractures that were almost undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration of spinal disc's have 
played hell with me. Try sitting straight up and take something for pain. Don't 
recline until your pulse returns to your normal never be afraid to 911 yourself 
to an er. 
Tip:take a copy of a medical definition of AD with you along with your med 
list. I swear they can be pig ignorant of what is going on and what to do. Help 
has gotten ambivalent in Cincinnati. 
Best Wishes, 
John s 







Sent from my Verizon Wireless 4G LTE smartphone 


 Original message  
From: Danny Hearn 
Date:11/23/2014 4:42 AM (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Autonomic Dysreflexia 

Man, I hate having dysreflexia and unable to find the cause, I have been having 
it on and off for about 3 days and have had almost no sleep for the last 2 
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can 
find. When I try to lay down at night after a while I get real hot and clammy, 
my heart begins to pound and act up. I do have a syrinx and bad neck and back 
pain but not sure if that can be the problem. I guess Monday I'll try to call 
my primary doctor and get checkup and bloodwork for a start, This stuff is 
depressing and drives my wife crazy making her lose sleep also, plus she is a 
caregiver to an elderly woman with alzheimers 4 days a week. This Quad related 
stuff can be so challenging at times ! Well I guess i'm done venting...it's 
about 3:45 am. Hope To get better before long. Dan H*** 

Re: [QUAD-L] Autonomic Dysreflexia and pain

[jume9999]

You are correct and I do that. Also, i have noticed that when you have a 
thorough bowel movement it helps the medicine work better...weird I know, but 
true for me. Anyone else notice that? 

- Original Message -

From: alcibiates2 alcibiat...@yahoo.com 
To: jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Monday, November 24, 2014 1:21:23 PM 
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 

I think that the first thing everyone needs to know about most pain drugs is 
that you must continually break the forming addiction. Staying on one drug will 
cause it to lose its effectiveness.at that point you are taking the drug and 
its not doing anything but feeding an addiction. No one in pain wants to hear 
this but the fact is you must find another drug or device while you detox. 
The drug needs to come from another family of drugs. Altering your medications 
and using milder drugs whatever the pain isn't quite as bad can help extend the 
use of Norco or vicodin. 
Don't get me wrong, I'm totally sympathetic I've been on the trip myself. 
john s 


Sent from my Verizon Wireless 4G LTE smartphone 


 Original message  
From: jume9...@comcast.net 
Date:11/24/2014 3:40 PM (GMT-05:00) 
To: quad-list 
Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain 

I have the same thing with pinched nerves from my disc. Also, when I first 
broke my neck My hip on one side got inflamed with calcium deposits 
(hetertopicosification) witch has left me crooked. The last few years my whole 
other side has deterorated and so Norco has stopped working very well. What is 
the next step up in pain management.? They won't operate. 

Meredith 
- Original Message -

From: alcibiates2 alcibiat...@yahoo.com 
To: Danny Hearn ddh...@sbcglobal.net, quad-list quad-list@eskimo.com 
Sent: Monday, November 24, 2014 5:57:02 AM 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

I was told it was disintegrating disc disease. There's no cure for it. It 
causes nerves to be pinched as well as making it impossible to position 
comfortably. Spending long times sitting in the chair is really painful.I'm to 
the point now where I get out of bed for a couple hours each day. 
Best wishes. 
john s 


Sent from my Verizon Wireless 4G LTE smartphone 


 Original message  
From: Danny Hearn 
Date:11/24/2014 5:44 AM (GMT-05:00) 
To: alcibiates2 ,quad-list@eskimo.com 
Subject: Re: [QUAD-L] Autonomic Dysreflexia 

John, I read that many quads develope disc problems in their backs, did they do 
anything for yours or do you just get by as best you can with that?? thanks, 
Dan** 


On Sunday, November 23, 2014 6:55 PM, alcibiates2 alcibiat...@yahoo.com 
wrote: 


Dan, I've had some fractures that were almost undetectable but really sent my 
bp up and pulse way down. Just the weight of my foot separated my tibia at the 
mantle below the knee. Chalky bones and deterioration of spinal disc's have 
played hell with me. Try sitting straight up and take something for pain. Don't 
recline until your pulse returns to your normal never be afraid to 911 yourself 
to an er. 
Tip:take a copy of a medical definition of AD with you along with your med 
list. I swear they can be pig ignorant of what is going on and what to do. Help 
has gotten ambivalent in Cincinnati. 
Best Wishes, 
John s 







Sent from my Verizon Wireless 4G LTE smartphone 


 Original message  
From: Danny Hearn 
Date:11/23/2014 4:42 AM (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: [QUAD-L] Autonomic Dysreflexia 

Man, I hate having dysreflexia and unable to find the cause, I have been having 
it on and off for about 3 days and have had almost no sleep for the last 2 
days. Bladder and bowels all seem fine-no pressure sores or etc. that we can 
find. When I try to lay down at night after a while I get real hot and clammy, 
my heart begins to pound and act up. I do have a syrinx and bad neck and back 
pain but not sure if that can be the problem. I guess Monday I'll try to call 
my primary doctor and get checkup and bloodwork for a start, This stuff is 
depressing and drives my wife crazy making her lose sleep also, plus she is a 
caregiver to an elderly woman with alzheimers 4 days a week. This Quad related 
stuff can be so challenging at times ! Well I guess i'm done venting...it's 
about 3:45 am. Hope To get better before long. Dan H*** 

Re: [QUAD-L] My Birthday is today!

[jume9999]

Happy birthday Bobbie!! 

Meredith 

- Original Message -

From: wheelch...@aol.com 
To: bobbiehumphre...@gmail.com, quad-list quad-list@eskimo.com 
Sent: Saturday, November 15, 2014 5:05:07 PM 
Subject: Re: [QUAD-L] My Birthday is today! 

Happy Birthday Bobbie! May You Have 1000 More! 
Best Wishes 
In a message dated 11/15/2014 12:31:36 P.M. Central Standard Time, 
bobbiehumphre...@gmail.com writes: 


Today I turned 59! Holly crap ... when did THAT happen! 
Tonight I'm going out to dinner with 5 of my closest friends, we're going to 
have a blast!!! 
Bobbie 

Smile Everyday 

Re: [QUAD-L] Question

[jume9999]

You qualify for Medicare no matter your age if you are disabled. 

Meredith 

- Original Message -

From: Larry Willis lwillis82...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Friday, October 24, 2014 3:29:03 PM 
Subject: [QUAD-L] Question 

I have a serious insurance question for you guys. I have private health 
insurance through the Kentucky Retired Teachers Assoc. I just learned that it 
will pay only 70% for 2015. That leaves a whopping 30% to come from me. Is it 
possible or even worthwhile to get a supplemental policy to cover the 30%? Or 
do those only apply to Medicare? At age 65 I will switch to Medicare 
automatically. I am 62 now. My peeps got any wisdom on this? 

Re: [QUAD-L] Fwd: Walking again?

[jume9999]

I realize this has been talked about for years and would not help those of us 
who have been disabled for decades but even if we could get SOME movement back 
it would be nice. 

Meredith 

- Original Message -

From: Bob Vogel rhvsh...@mac.com 
To: Shelly Kerchner shelly.kerch...@yahoo.com 
Cc: jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Wednesday, October 22, 2014 11:19:15 AM 
Subject: Re: [QUAD-L] Fwd: Walking again? 

I appreciate all efforts in research toward a cure. However mainstream news is, 
in my opinion, making 
too much out of this. 
The results are exciting, however this is one person, and he is not walking 
he is ambulating with braces. 
He also went through two years of 5-hours-a-day, 5-days-a-week physical therapy 
after the surgery to get 
where he is today. It is good, it is progress, but it is not--as most news 
outlets say--a cure. 
Here is my article--on the New Mobility website that attempts to cut through 
the hype and explain 
what we know so far. 

http://www.newmobility.com/2014/10/nasal-stem-cell-transplant-enables-recovery-man-sci/
 

Bob V 

On Oct 22, 2014, at 11:08 AM, Shelly Kerchner wrote: 



Great news, progress is so slow so when I hear stories like this I don't get 
too excited anymore. have been hearing stories like this for years But nothing 
has changed and I don't believe they ever will in my life time. I am 47 and 8 
years post injury. 

Don't misunderstand I am hopeful but doubtful! I think a lot of it has to do 
with my spinal cord injury doctor. I went to him and shared with him about 
someone who had recovered after a spinal cord injury. his response to me was 
you can spend your life being a patient or just start living again. 
Well I never stopped living to begin with!!! As a matter of fact my life has 
been better in some ways since my SCI. 



Just my thoughts... 

Anyone else??? 

Sent from Yahoo Mail for iPad 


From: jume9...@comcast.net  jume9...@comcast.net ; 
To: quad-list  quad-list@eskimo.com ; 
Subject: [QUAD-L] Fwd: Walking again? 
Sent: Wed, Oct 22, 2014 1:57:12 AM 



What do you all think about the guy who was parilysed and got stem cell therapy 
and is now walking? They say clinical trials will start very soon. I doubt many 
of us will walk again but wouldn't it be great to get bowel function again? 

Meredith 
- Original Message -


From: Danny Hearn  ddh...@sbcglobal.net  
To: Jim Lubin  jlu...@eskimo.com , quad-list  quad-list@eskimo.com  
Sent: Tuesday, October 21, 2014 12:02:21 PM 
Subject: Re: [QUAD-L] sure is quite 

I'm still here...I think lol 


On Tuesday, October 21, 2014 12:10 PM, Jim Lubin  jlu...@eskimo.com  wrote: 


did everyone get removed? 

[QUAD-L] Fwd: Walking again?

[jume9999]

What do you all think about the guy who was parilysed and got stem cell therapy 
and is now walking? They say clinical trials will start very soon. I doubt many 
of us will walk again but wouldn't it be great to get bowel function again? 

Meredith 
- Forwarded Message -


From: Danny Hearn ddh...@sbcglobal.net 
To: Jim Lubin jlu...@eskimo.com, quad-list quad-list@eskimo.com 
Sent: Tuesday, October 21, 2014 12:02:21 PM 
Subject: Re: [QUAD-L] sure is quite 

I'm still here...I think lol 


On Tuesday, October 21, 2014 12:10 PM, Jim Lubin jlu...@eskimo.com wrote: 


did everyone get removed? 

Re: [QUAD-L] Unbeatable pain

[jume9999]

Not for nerve pain. 

Meredith 

- Original Message -

From: linda...@comcast.net 
To: Danny Hearn ddh...@sbcglobal.net 
Cc: Gmail bobbiehumphre...@gmail.com, quad-list quad-list@eskimo.com 
Sent: Monday, October 6, 2014 9:19:53 AM 
Subject: Re: [QUAD-L] Unbeatable pain 

I too have the chronic pain in my neck  the only thing I take is 325mg one 
time a day. It's killing me! Does anyone take celebrex, if so does it help? 
lindaf 

- Original Message -

From: Hearn, Danny ddh...@sbcglobal.net 
To: Gmail bobbiehumphre...@gmail.com, quad-list quad-list@eskimo.com 
Sent: Monday, October 6, 2014 9:13:42 AM 
Subject: Re: [QUAD-L] Unbeatable pain 

Bobbie --have you tried amitriptyline, it's generic for (elavil ) a few others 
on the list told me about it..I take a low dose of 10mg at night at bedtime, 
I've been on it for years, some take a higher dose but start low if you try it 
because you can always up the doseage. Doctors said it was invented for 
depression but have found many quads can be helped with this to manage cronic 
pain and sleep betterit usually takes a week or 2 to tell how it's really 
working, and if it will help or not. good luck, I hope you get better, growing 
older as a quad is hard on us all. Dan H*** 


On Sunday, October 5, 2014 9:28 PM, Gmail bobbiehumphre...@gmail.com wrote: 


I am in a ridiculous amount of pain in my neck and down my complete spine ... 
constantly. 
I'm taking 20mgs of morphine For 10 weeks I was talking 30mgs which helped lot 
but made me feel better but I was constantly groggy. I'm back on 20mgs. 
I can't sleep though the night. 
I cry frequently. 

Help me, what can I do? What can I take? Bobbie 

Smile Everyday 

Re: [QUAD-L] Unbeatable pain

[jume9999]

Bobbie, I think Norco works better than morphine, that is my opinion. Nothing 
works all the time. Has anyone tried Lyrica? 

Smile 
Meredith 


- Original Message -

From: Gmail bobbiehumphre...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Sunday, October 5, 2014 7:28:53 PM 
Subject: [QUAD-L] Unbeatable pain 

I am in a ridiculous amount of pain in my neck and down my complete spine ... 
constantly. 
I'm taking 20mgs of morphine For 10 weeks I was talking 30mgs which helped lot 
but made me feel better but I was constantly groggy. I'm back on 20mgs. 
I can't sleep though the night. 
I cry frequently. 

Help me, what can I do? What can I take? Bobbie 

Smile Everyday 

Re: [QUAD-L] Bad few Days

[jume9999]

Doesn't it help with the sweating? 

- Original Message -

From: greg g...@eskimo.com 
To: jume9...@comcast.net 
Sent: Friday, August 22, 2014 1:14:51 PM 
Subject: Re: [QUAD-L] Bad few Days 

yes I think it's Propantheline I take. Why? 
Thanks 

 Greg, being in the hospital is like jail for us quads. I'm sorry 
 you have to feel panicked. If I were you I would get on some anti- 
 anxiety meds or antidepressants. Also, I keep both a heating pad 
 and a cooling towel by my bed at night so that I'm covered either 
 way. Do you take Propantheline? 

Re: [QUAD-L] inhalers?

[jume9999]

My lungs are around the same. I use Advair every 12 hours. It has been proven 
to increase lung capacity. Kinda expensive though. 

Meredith 


- Original Message -

From: greg g...@eskimo.com 
To: quad-list quad-list@eskimo.com 
Sent: Friday, August 22, 2014 1:10:28 PM 
Subject: [QUAD-L] inhalers? 

I saw a lung doctor yesterday, was tested at 30% lung capacity. 
He wants me to try some Inhaler and a Nebulizer? or something like that. 
My lungs don't work because of lack of muscle, not mucus stuff. 
Do you think anything like that ill help? 
Anyone else try those things? 
Greg 

Re: [QUAD-L] Bad few Days

[jume9999]

Greg, being in the hospital is like jail for us quads. I'm sorry you have to 
feel panicked. If I were you I would get on some anti-anxiety meds or 
antidepressants. Also, I keep both a heating pad and a cooling towel by my bed 
at night so that I'm covered either way. Do you take Propantheline? 

Meredith 

- Original Message -

From: greg g...@eskimo.com 
To: quad-list quad-list@eskimo.com 
Sent: Tuesday, August 19, 2014 7:28:56 PM 
Subject: [QUAD-L] Bad few Days 

Just spent 2 days in the ER, well 1 in the ER, 1 in a room. 
Woke up overheated which sometimes causes a claustrophobic / panic feeling. I 
felt panicked and like I could not get enough of a breath. I also felt like I 
was going to get sick. I thought maybe a UTI or something. They were worried 
about my heavy chest, so I had an x-ray, CAT scan, which lead to an 
angioplasty. Luckily everything came out fine. They think my heavy chest is 
from my spine curving causing pressure. So they are setting up an appointment 
with a lung doctor soon. I did have a UTI also. 
But I get so frustrated with this stupid panic feeling. I worry about 
everything and can't stop. I worry about that I'm going to worry. Wake up 
feeling like I just have to get up into my chair. It's a scary panic. It use to 
happen maybe once every few years, but lately it's more often. I think it's my 
heavy chest making it worse. I just don't feel like I'm getting enough oxygen. 
The doc says the lung doc might subscribe an oxygen tank at night. Once the 
feeling is one, I feel so stupid about worrying about that stuff. 
Getting overheated seems to be the trigger point most of the time. The problem 
is I feel so cold at night, even shivering. I would swear I'm cold… But if I 
uncover a bit and cool off, I actually get better. So I swear I'm cold, but 
actually I'm too hot. This only started a few years ago. Anyone else have that 
issue? I'm sure it's a nerve ending issue. But I just shake I feel so cold, 
problem is sometimes it is because I'm cold. So anything I do to get warmer 
only makes me shiver more and get more overheated. So I just don't know if I'm 
hot or cold, it feels exactly the same. 
No fun getting old, Greg 

Re: [QUAD-L] Robin Williams story

[jume9999]

I hope at least there will be attention brought to the seriousness of 
depression. I think most of us on this list can understand how debilitating it 
can be. 

Meredith 

- Original Message -

From: Nan nlg52...@yahoo.com 
To: wheelch...@aol.com, lissw 75 lissw...@hotmail.com, 
jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Tuesday, August 12, 2014 7:48:20 PM 
Subject: Re: [QUAD-L] Robin Williams story 

I find it inconceivable that Robin Williams is gone. It hurts in ways I never 
imagined. I hope he has finally found some peace. God speed Robin. 




On Tuesday, August 12, 2014 9:47 PM, wheelch...@aol.com wheelch...@aol.com 
wrote: 


If it means anything to anyone... He was quoted once as saying  Life Is Not 
For Everyone during an interview with Public Radio. 
Best Wishes 
In a message dated 8/12/2014 8:28:15 P.M. Central Daylight Time, 
lissw...@hotmail.com writes: 



The more I read and watch about him, the more it breaks my heart. I just can't 
get over it! So sad! 


Lissette Whitehead 
416 W. San Ysidro Blvd. 
San Ysidro, CA 92173 
www.lwgripgloves.com 






From: wheelch...@aol.com 
Date: Tue, 12 Aug 2014 21:10:32 -0400 
Subject: Re: [QUAD-L] Robin Williams story 
To: jume9...@comcast.net; quad-list@eskimo.com 

I am very angry with Robin Williams right now. Yes, he was very good friends 
with Christopher Reeves and often went out of his way to visit him in the 
hospital and raised money for the family. The world lost a great humorist and 
comedian. 
Best Wishes 
In a message dated 8/12/2014 8:00:21 P.M. Central Daylight Time, 
jume9...@comcast.net writes: 

blockquote

I just heard on the news a story about the time Robin Williams dressed up and 
disguised himself as a russian doctor who came to Christopher Reeves bedside at 
the hospital after he broke his neck. In a fake accent he kept telling 
Christopher to roll over. It was the first time he had laughed since his 
accident. I will miss him. 

Meredith 



= 
/blockquote

Re: [QUAD-L] Robin Williams story

[jume9999]

I'm sorry Ron, how do you get out of the hole? 

- Original Message -

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, August 13, 2014 9:06:04 AM 
Subject: Re: [QUAD-L] Robin Williams story 

You hit the nail on the head there. I need help right now dealing with that. 


On Wednesday, August 13, 2014 10:46 AM, jume9...@comcast.net 
jume9...@comcast.net wrote: 


I hope at least there will be attention brought to the seriousness of 
depression. I think most of us on this list can understand how debilitating it 
can be. 

Meredith 

From: Nan nlg52...@yahoo.com 
To: wheelch...@aol.com, lissw 75 lissw...@hotmail.com, 
jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Tuesday, August 12, 2014 7:48:20 PM 
Subject: Re: [QUAD-L] Robin Williams story 

I find it inconceivable that Robin Williams is gone. It hurts in ways I never 
imagined. I hope he has finally found some peace. God speed Robin. 




On Tuesday, August 12, 2014 9:47 PM, wheelch...@aol.com wheelch...@aol.com 
wrote: 


If it means anything to anyone... He was quoted once as saying  Life Is Not 
For Everyone during an interview with Public Radio. 
Best Wishes 
In a message dated 8/12/2014 8:28:15 P.M. Central Daylight Time, 
lissw...@hotmail.com writes: 



The more I read and watch about him, the more it breaks my heart. I just can't 
get over it! So sad! 


Lissette Whitehead 
416 W. San Ysidro Blvd. 
San Ysidro, CA 92173 
www.lwgripgloves.com 




From: wheelch...@aol.com 
Date: Tue, 12 Aug 2014 21:10:32 -0400 
Subject: Re: [QUAD-L] Robin Williams story 
To: jume9...@comcast.net; quad-list@eskimo.com 

I am very angry with Robin Williams right now. Yes, he was very good friends 
with Christopher Reeves and often went out of his way to visit him in the 
hospital and raised money for the family. The world lost a great humorist and 
comedian. 
Best Wishes 
In a message dated 8/12/2014 8:00:21 P.M. Central Daylight Time, 
jume9...@comcast.net writes: 

blockquote

I just heard on the news a story about the time Robin Williams dressed up and 
disguised himself as a russian doctor who came to Christopher Reeves bedside at 
the hospital after he broke his neck. In a fake accent he kept telling 
Christopher to roll over. It was the first time he had laughed since his 
accident. I will miss him. 

Meredith 



= 
/blockquote

Re: [QUAD-L] Robin Williams story

[jume9999]

Wow, quite the story. It is the same for me. When I was first injured I tried 3 
times to overdose but finally decided that I had to get with the program. I was 
much better for decades after that but as I've gotten older I feel myself 
falling into that same ol feeling of dread. In fact I was super depressed all 
weekend and when I heard the news about Robin Williams it made me sad but also 
knocked some sense into me. You CAN pull yourself out, it isn't easy, also I 
love my dog too much. 

Meredith 

- Original Message -

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, August 13, 2014 10:32:25 AM 
Subject: Re: [QUAD-L] Robin Williams story 

A couple years ago I went through terrible month hospital stay with a ruptured 
appendix. After I got out things went to shit. I lost my girlfriend of 6 yrs, 
Got screwed out of the swim program I was involved in for 12 yrs. Lost my 
counselor of 5 yrs. Had to get rid of the van I had for 10 yrs. Started to deal 
with increased pain and started pain meds. Lost my best friend. Had to get an 
additional surgery . I got so low that I was arranging who would carry me at my 
funeral. I was just surviving, everything I thought about brought me down 
further. 

I cut all the excess baggage out of my life and didn't contact the people that 
were bringing me down anymore. Deleted my facebook account because that was 
bringing me down looking at my x girls new lover. I bought a newer van and 
started handcycling 30 miles a month. Started reading a lot and working on 
myself. Im much better than I was, but not back to my old self. I need the YMCA 
back in my life, the people, the waterI loved getting out of my chair 
and able to move freely in the water. If I would have been a suicidal person I 
wouldn't be here anymore. My father keeps a loaded 38 on his desk, not the best 
thing when your down. 

Ron 


On Wednesday, August 13, 2014 11:20 AM, jume9...@comcast.net 
jume9...@comcast.net wrote: 


I'm sorry Ron, how do you get out of the hole? 

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, August 13, 2014 9:06:04 AM 
Subject: Re: [QUAD-L] Robin Williams story 

You hit the nail on the head there. I need help right now dealing with that. 


On Wednesday, August 13, 2014 10:46 AM, jume9...@comcast.net 
jume9...@comcast.net wrote: 


I hope at least there will be attention brought to the seriousness of 
depression. I think most of us on this list can understand how debilitating it 
can be. 

Meredith 

From: Nan nlg52...@yahoo.com 
To: wheelch...@aol.com, lissw 75 lissw...@hotmail.com, 
jume9...@comcast.net, quad-list quad-list@eskimo.com 
Sent: Tuesday, August 12, 2014 7:48:20 PM 
Subject: Re: [QUAD-L] Robin Williams story 

I find it inconceivable that Robin Williams is gone. It hurts in ways I never 
imagined. I hope he has finally found some peace. God speed Robin. 




On Tuesday, August 12, 2014 9:47 PM, wheelch...@aol.com wheelch...@aol.com 
wrote: 


If it means anything to anyone... He was quoted once as saying  Life Is Not 
For Everyone during an interview with Public Radio. 
Best Wishes 
In a message dated 8/12/2014 8:28:15 P.M. Central Daylight Time, 
lissw...@hotmail.com writes: 



The more I read and watch about him, the more it breaks my heart. I just can't 
get over it! So sad! 


Lissette Whitehead 
416 W. San Ysidro Blvd. 
San Ysidro, CA 92173 
www.lwgripgloves.com 




From: wheelch...@aol.com 
Date: Tue, 12 Aug 2014 21:10:32 -0400 
Subject: Re: [QUAD-L] Robin Williams story 
To: jume9...@comcast.net; quad-list@eskimo.com 

I am very angry with Robin Williams right now. Yes, he was very good friends 
with Christopher Reeves and often went out of his way to visit him in the 
hospital and raised money for the family. The world lost a great humorist and 
comedian. 
Best Wishes 
In a message dated 8/12/2014 8:00:21 P.M. Central Daylight Time, 
jume9...@comcast.net writes: 

blockquote

I just heard on the news a story about the time Robin Williams dressed up and 
disguised himself as a russian doctor who came to Christopher Reeves bedside at 
the hospital after he broke his neck. In a fake accent he kept telling 
Christopher to roll over. It was the first time he had laughed since his 
accident. I will miss him. 

Meredith 



= 
/blockquote

[QUAD-L] Robin Williams story

[jume9999]

I just heard on the news a story about the time Robin Williams dressed up and 
disguised himself as a russian doctor who came to Christopher Reeves bedside at 
the hospital after he broke his neck. In a fake accent he kept telling 
Christopher to roll over. It was the first time he had laughed since his 
accident. I will miss him. 

Meredith 

Re: [QUAD-L] device made up in my head to stay cool

[jume9999]

I bought a cooling towel xtralarge (from Amazon). I get it wet b4 bed and keep 
it on my nightstand. In the middle of night when I get hot I throw it across my 
body and zip the ceiling fan on high.a. 

Meredith 

- Original Message -

From: diannal...@aol.com 
To: r pracht r.pra...@sbcglobal.net, quad-list quad-list@eskimo.com 
Sent: Sunday, August 10, 2014 12:26:40 PM 
Subject: Re: [QUAD-L] device made up in my head to stay cool 

we took a garden/weed sprayer when we went boating. a life saver! 


-Original Message- 
From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Sun, Aug 10, 2014 1:17 pm 
Subject: [QUAD-L] device made up in my head to stay cool 

Being a quad, especially when I was younger I always wanted to solve the 
problem of staying cool above 85 degrees. I always thought of making something. 
I had this idea of a plastic cap like a membrane( goes on your head) that could 
hold water and have little holes on the bottom side It would have a tube going 
to to a water reservoir and a egg shaped pump you could press on to push the 
water from the reservoir, up the tube in the hat and out the holes onto the 
whole surface of your head. You could disguise this device with a ballcap or 
boonie hat. It would immediately cool you down with a couple pumps. maybe even 
find a better way to activate the pump without pushing. Would be so valuable. I 
use a mini hairspray bottle to cool me off. nobody gets the fact that quads 
don't sweat. Nobody ever believes me. They want to have a 30 minute 
conversation with me in the blazing sun. 

Re: [QUAD-L] Hey Ron

[jume9999]

Does it make you tired? 

Meredith 

- Original Message -

From: Danny Espinoza da...@immortaldesigns.co 
To: RONALD L PRACHT r.pra...@sbcglobal.net, quad-list 
quad-list@eskimo.com 
Sent: Saturday, August 2, 2014 5:04:54 PM 
Subject: RE: [QUAD-L] Hey Ron 

Whats the ripped fuel do to your blood pressure? I'm only curious because I've 
been trying not to take anything that raises mine for fear that I'll have an AD 
episode and that things that raise my BP will get me closer to something 
horrible happening. 

-Danny 



 Original Message  
Subject: Re: [QUAD-L] Hey Ron 
From: RONALD L PRACHT  r.pra...@sbcglobal.net  
Date: Sat, August 02, 2014 12:58 pm 
To:  quad-list@eskimo.com  

Well, when I first was injured and came home I was weak as a kitten and needed 
something to give me the energy to build myself up. Each day I would strap my 
belly bag on with my Walkman and plenty of water and hit the streets to wheel 
as far as I could. At first I couldn't make it a quarter mile and if I fell 
over I couldn't get back up. I went to GNC and started buying ripped fuel. I 
would take 2 capsules and hit the streets and within a few months I was doing 
3+ miles a day with energy to spare. Not only did I increase my stamina, but I 
was able to maneuver my chair better and get myself up and down. This allowed 
me to be able to start swimming at the YMCA, which led me to be able to drive a 
fullsize Ford Van with standard paraplegic hand controls. I kept taking it b4 I 
entered the pool or any workout. I was able to bench 150 on an Olympic weight 
bench with quad hands and use the sci-fit bike for an hour after swimming an 
hour in the pool. What really messed me up is after all my working out, 
lifting, wheeling and biking I developed a spinal syrinx then my appendix 
burst, then got a hernia. I believe that all those issues can be linked to my 
vigorous workouts. At the same time though when I went down in the hospital, I 
was able to come back because of the good shape I was in. I still take one 
ripped fuel capsule w/ephedra b4 a I handcycle or wheel. You can take it 
without working out, but it makes you a little jumpy sometimes. you have to buy 
it from a special website called neutri I believe, but I will get you the 
actual website. some people are scared of ephedra, but it is like anything 
else..if you take six capsules at once you will have a problem. They have 
another pill called a yellow devil which is more ephedra, but I wouldn't 
suggest that. 

ron 


On Saturday, August 2, 2014 11:58 AM, Larry Willis  lwillis82...@gmail.com  
wrote: 


Hey Ron, tell me about the ephedra for weight loss. I have developed a belly 
that just makes me miserable. It hurts, is in the way, and presses on my 
bladder causing pain and accidents. The gut has got to go. 

Sent from my iPad 

[QUAD-L] Lyrica

[jume9999]

I meant does the Lyrica make you tired? 

- Original Message -

From: jume9...@comcast.net 
To: quad-list quad-list@eskimo.com 
Sent: Saturday, August 2, 2014 5:13:22 PM 
Subject: Re: [QUAD-L] Hey Ron 

Does it make you tired? 

Meredith 

- Original Message -

From: Danny Espinoza da...@immortaldesigns.co 
To: RONALD L PRACHT r.pra...@sbcglobal.net, quad-list 
quad-list@eskimo.com 
Sent: Saturday, August 2, 2014 5:04:54 PM 
Subject: RE: [QUAD-L] Hey Ron 

Whats the ripped fuel do to your blood pressure? I'm only curious because I've 
been trying not to take anything that raises mine for fear that I'll have an AD 
episode and that things that raise my BP will get me closer to something 
horrible happening. 

-Danny 



 Original Message  
Subject: Re: [QUAD-L] Hey Ron 
From: RONALD L PRACHT  r.pra...@sbcglobal.net  
Date: Sat, August 02, 2014 12:58 pm 
To:  quad-list@eskimo.com  

Well, when I first was injured and came home I was weak as a kitten and needed 
something to give me the energy to build myself up. Each day I would strap my 
belly bag on with my Walkman and plenty of water and hit the streets to wheel 
as far as I could. At first I couldn't make it a quarter mile and if I fell 
over I couldn't get back up. I went to GNC and started buying ripped fuel. I 
would take 2 capsules and hit the streets and within a few months I was doing 
3+ miles a day with energy to spare. Not only did I increase my stamina, but I 
was able to maneuver my chair better and get myself up and down. This allowed 
me to be able to start swimming at the YMCA, which led me to be able to drive a 
fullsize Ford Van with standard paraplegic hand controls. I kept taking it b4 I 
entered the pool or any workout. I was able to bench 150 on an Olympic weight 
bench with quad hands and use the sci-fit bike for an hour after swimming an 
hour in the pool. What really messed me up is after all my working out, 
lifting, wheeling and biking I developed a spinal syrinx then my appendix 
burst, then got a hernia. I believe that all those issues can be linked to my 
vigorous workouts. At the same time though when I went down in the hospital, I 
was able to come back because of the good shape I was in. I still take one 
ripped fuel capsule w/ephedra b4 a I handcycle or wheel. You can take it 
without working out, but it makes you a little jumpy sometimes. you have to buy 
it from a special website called neutri I believe, but I will get you the 
actual website. some people are scared of ephedra, but it is like anything 
else..if you take six capsules at once you will have a problem. They have 
another pill called a yellow devil which is more ephedra, but I wouldn't 
suggest that. 

ron 


On Saturday, August 2, 2014 11:58 AM, Larry Willis  lwillis82...@gmail.com  
wrote: 


Hey Ron, tell me about the ephedra for weight loss. I have developed a belly 
that just makes me miserable. It hurts, is in the way, and presses on my 
bladder causing pain and accidents. The gut has got to go. 

Sent from my iPad 

[QUAD-L] Lyrica

[jume9999]

Does anyone here take Lyrica for pain? My Dr. gave me a sample but I'm afraid 
of all the side effects. Anyone know about this med? 

Meredith 

Re: [QUAD-L] Peristeen

[jume9999]

Thank you so much for completely answering my questions. I guess it won't work 
lying on your side as most quads do. Oh well, glad that you are feeling as good 
as one can paralyzed. Thanks again. 

Meredith 

- Original Message -

From: cviewe...@aol.com 
To: rhvsh...@mac.com, jume9...@comcast.net 
Cc: quad-list quad-list@eskimo.com 
Sent: Monday, July 28, 2014 7:34:17 AM 
Subject: Re: [QUAD-L] Peristeen 

Bob, How often do you use Peristeen? 
In a message dated 7/27/2014 10:04:11 P.M. Eastern Daylight Time, 
rhvsh...@mac.com writes: 


Hi Meredith, 

Here is an article I wrote for New Mobility magazine about the Peristeen 
system. http://www.newmobility.com/2014/04/peristeen-for-bowel-management/ 

As a survey of one, I've been using Peristeen since November 2013. As far as 
the A.D. issue, I'm a T10 para 
so I'm just below the cutoff for A.D., but it is a very good question and one I 
would discuss with your doctor. 

The way you go about getting it is to either ask your doctor and/or nurse 
practicioner about it or write an email 
to the folks at Peristeen, made by Coloplast: us-perist...@coloplast.com Or 
call Rita Ward at Coloplast at: 
(612) 337-7856 

The entire system is small and fits into a bag the size of shaving kit and/or 
small woman's purse. I travel with my 
Peristeen system, it fits easily into my suitcase and/or carry on bag on a 
plane. 

It is designed to be used while sitting upright--on the toilet. I use the 
system while sitting on a standard commode. 
I have full use of my hands and arms--I find it very easy to use. Setting up 
the system from the box takes about a 
minute. It takes about another minute and a half to fill up the water bag with 
tap water, attach the rectal catheter. 
The next step is inserting the catheter, filling up the catheter balloon and 
adding water to the colon via squeezing 
a a rubber hand pump. On average the entire process--filling the water bag with 
water through pumping water into 
the colon (bowel)--takes me about 4-5 minutes. Once water is in the colon, the 
catheter is removed and it is a matter of 
sitting and waiting--I find it a good time to catch up on reading or listening 
to my favorite podcasts. Time to empty 
the colon (bowel) varies from about 20 minutes to 40 minutes. For me it takes 
30 minutes, like clockwork. Everybody 
is different, for some reason I find I empty in three waves about 10-minutes 
apart. It still amazes me how much 
comes out--at least 3-4 times more than I've ever managed to empty with 
digital stim, suppositories, or using 
standard enemas. 

Again in my survey of one I give the system a 10. Since starting using 
Peristeen in November I have had zero 
accidents and (despite risking Murphy's law) for the first time since I was 
injured 29 1/2 years ago, I don't think or 
worry about bowel accidents. I also feel much better. As I wrote earlier today, 
I recently had my yearly KUB 
(kidney, ureter, bowel) X-ray to check for kidney stones. Over the past decade 
or so these X-rays always included 
a statement by the radiologist that said something like difficult to see 
because of stool, meaning I was full of 
s#%t. My urology nurse practicioner showed me my current X-ray and compared it 
to a previous X-ray and said 
you can see that you have much less stool in this X-ray. In my old X-rays it 
was easy to see that my entire colon 
(bowel) was full, even though I had done a bowel program the morning of the 
X-ray. In the current X-ray it is easy to 
see that the 2nd half of my bowel (1/2 of my transverse colon and my entire 
descending colon=2 1/2 feet of colon) is 
empty. 

Probably way more than you wanted to know but really important to me. 

Bob V 

On Jul 27, 2014, at 12:02 PM, jume9...@comcast.net wrote: 


blockquote

How do you go about getting the Peristeen? Do you have to sit on a toilet to 
use it? How difficult is it? I had another evacuation machine (P.I.E.) a while 
back that was just huge and difficult. It also caused me to have A.D. I have 
seen the video but I would love some personal reviews. 

Meredith 



- Original Message -

From: Bob Vogel  rhvsh...@mac.com  
To: Bill Lang  blan...@verizon.net  
Cc: quad-list  quad-list@eskimo.com  
Sent: Saturday, July 26, 2014 12:43:54 PM 
Subject: Re: [QUAD-L] Peristeen 

Hi Bill, 

Thanks for the kudos. I've been using the Peristeen system since November 2013. 
It has changed 
my life! No more accidents, plus I feel much better. I had an KUB (checking for 
stones in kidney, 
ureters,  bladder) X-ray and my Dr. compared it to my previous ones--in every 
previous X-ray there 
was a notation much of area is occluded by stool. In this X-ray the entire 
2nd half of my large investing 
(bowel) was empty. Before Peristeen I was literally full of s#%t. 

Bob V 

On Jul 26, 2014, at 12:10 PM, Bill Lang wrote: 

 Thank you Bob. 
 Great article. 
 
 I am waiting on CPC codes for Medicare. Should be coming soon. I am expecting 
 to do training within 3 

Re: [QUAD-L] Peristeen

[jume9999]

Thanks again. I very much want to try it. 

Meredith 

- Original Message -

From: Bob Vogel rhvsh...@mac.com 
To: jume9...@comcast.net 
Cc: cviewe...@aol.com, quad-list quad-list@eskimo.com 
Sent: Monday, July 28, 2014 8:42:11 AM 
Subject: Re: [QUAD-L] Peristeen 

Hi Meredith and everybody, 

To answer your question Will Peresteen work laying on my side? Great 
question! The ansere 
is, Yes! Peristeen will work if you do your bowel program (BP) laying on your 
side! 

In a perfect world it is better to do a bowel program works better when you are 
upright for two reasons. 
1, When you are in an upright position, gravity helps in emptying. 
2 It is easier when the contents of the BP fall directly into the toilet. 

However I understand that in the real world doing a BP in an upright position 
isn't possible for a variety of 
reasons. I had my BP done on my side (by a nurse or aid) for the first 1 1/2 
months when I 
was first injured. And for for several periods of time, years after my SCI I 
had other injuries or surgeries 
and had to do my BP on my side because I couldn't sit upright. 

The challenge in doing a BP with the Peristeen system laying on your side is 
you will need to collect have 
enough pads, chucks, or other collection system to collect an extra 500cc to 
700cc of liquid (500cc equals 
two measuring cups, 700cc equals 2.8) along with the regular amount of stool 
that comes out. 

In my survey of one, if I had another injury or medical situation that 
prevented me from sitting upright and I 
had to do my BP laying on my side (fingers crossed and *knocking wood* this 
doesn't happen) I would still use 
Peristeen laying on my side. 

Hope this answers your question. 

All the best! 
Bob V 

On Jul 28, 2014, at 8:03 AM, jume9...@comcast.net wrote: 




Thank you so much for completely answering my questions. I guess it won't work 
lying on your side as most quads do. Oh well, glad that you are feeling as good 
as one can paralyzed. Thanks again. 

Meredith 

- Original Message -

From: cviewe...@aol.com 
To: rhvsh...@mac.com, jume9...@comcast.net 
Cc: quad-list quad-list@eskimo.com 
Sent: Monday, July 28, 2014 7:34:17 AM 
Subject: Re: [QUAD-L] Peristeen 

Bob, How often do you use Peristeen? 
In a message dated 7/27/2014 10:04:11 P.M. Eastern Daylight Time, 
rhvsh...@mac.com writes: 

blockquote
Hi Meredith, 

Here is an article I wrote for New Mobility magazine about the Peristeen 
system. http://www.newmobility.com/2014/04/peristeen-for-bowel-management/ 

As a survey of one, I've been using Peristeen since November 2013. As far as 
the A.D. issue, I'm a T10 para 
so I'm just below the cutoff for A.D., but it is a very good question and one I 
would discuss with your doctor. 

The way you go about getting it is to either ask your doctor and/or nurse 
practicioner about it or write an email 
to the folks at Peristeen, made by Coloplast: us-perist...@coloplast.com Or 
call Rita Ward at Coloplast at: 
(612) 337-7856 

The entire system is small and fits into a bag the size of shaving kit and/or 
small woman's purse. I travel with my 
Peristeen system, it fits easily into my suitcase and/or carry on bag on a 
plane. 

It is designed to be used while sitting upright--on the toilet. I use the 
system while sitting on a standard commode. 
I have full use of my hands and arms--I find it very easy to use. Setting up 
the system from the box takes about a 
minute. It takes about another minute and a half to fill up the water bag with 
tap water, attach the rectal catheter. 
The next step is inserting the catheter, filling up the catheter balloon and 
adding water to the colon via squeezing 
a a rubber hand pump. On average the entire process--filling the water bag with 
water through pumping water into 
the colon (bowel)--takes me about 4-5 minutes. Once water is in the colon, the 
catheter is removed and it is a matter of 
sitting and waiting--I find it a good time to catch up on reading or listening 
to my favorite podcasts. Time to empty 
the colon (bowel) varies from about 20 minutes to 40 minutes. For me it takes 
30 minutes, like clockwork. Everybody 
is different, for some reason I find I empty in three waves about 10-minutes 
apart. It still amazes me how much 
comes out--at least 3-4 times more than I've ever managed to empty with 
digital stim, suppositories, or using 
standard enemas. 

Again in my survey of one I give the system a 10. Since starting using 
Peristeen in November I have had zero 
accidents and (despite risking Murphy's law) for the first time since I was 
injured 29 1/2 years ago, I don't think or 
worry about bowel accidents. I also feel much better. As I wrote earlier today, 
I recently had my yearly KUB 
(kidney, ureter, bowel) X-ray to check for kidney stones. Over the past decade 
or so these X-rays always included 
a statement by the radiologist that said something like difficult to see 
because of stool, meaning I was full of 
s#%t. My urology nurse 

Re: [QUAD-L] Peristeen

[jume9999]

How do you go about getting the Peristeen? Do you have to sit on a toilet to 
use it? How difficult is it? I had another evacuation machine (P.I.E.) a while 
back that was just huge and difficult. It also caused me to have A.D. I have 
seen the video but I would love some personal reviews. 

Meredith 



- Original Message -

From: Bob Vogel rhvsh...@mac.com 
To: Bill Lang blan...@verizon.net 
Cc: quad-list quad-list@eskimo.com 
Sent: Saturday, July 26, 2014 12:43:54 PM 
Subject: Re: [QUAD-L] Peristeen 

Hi Bill, 

Thanks for the kudos. I've been using the Peristeen system since November 2013. 
It has changed 
my life! No more accidents, plus I feel much better. I had an KUB (checking for 
stones in kidney, 
ureters,  bladder) X-ray and my Dr. compared it to my previous ones--in every 
previous X-ray there 
was a notation much of area is occluded by stool. In this X-ray the entire 
2nd half of my large investing 
(bowel) was empty. Before Peristeen I was literally full of s#%t. 

Bob V 

On Jul 26, 2014, at 12:10 PM, Bill Lang wrote: 

 Thank you Bob. 
 Great article. 
 
 I am waiting on CPC codes for Medicare. Should be coming soon. I am expecting 
 to do training within 3 weeks. 
 
 Sent from my iPad 
 
 On Jul 25, 2014, at 13:32, Bob Vogel rhvsh...@mac.com wrote: 
 
 Hi Billy, 
 
 Here is an column I wrote about it in New Mobility in April. 
 
 http://www.newmobility.com/2014/04/peristeen-for-bowel-management/ 
 
 Bob V 
 
 On Jul 25, 2014, at 9:19 AM, Bill Lang wrote: 
 
 Guys, 
 
 Has anyone used this Bowel Irrigation system? 
 I am awaiting trial kickoff to begin and could use input. 
 
 http://www.coloplast.co.uk/Peristeen-Anal-Irrigation-System-en-gb.aspx#section=videos-and-animations_100
  
 
 Billy Lang 
 
 Sent from my iPad 
 

Re: [QUAD-L] i want this van......opinions?

[jume9999]

Ron, it is difficult sometimes to get insurance for modified vans that have 
been in an accident. Check into that first. 

Meredith 

- Original Message -

From: Fragile swl...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Monday, June 16, 2014 5:35:13 AM 
Subject: Re: [QUAD-L] i want this van..opinions? 

Looks nice. I have a full-size Econoline van, rear suspension is pretty stiff, 
makes for an uncomfortable ride. I wonder if anybody around 6 feet tall can fit 
inside a minivan like this? 


On Sun, Jun 15, 2014 at 11:29 PM, RONALD L PRACHT  r.pra...@sbcglobal.net  
wrote: 



http://www.ebay.com/itm/Toyota-Sienna-SE-VMI-Handicap-Wheelchair-Access-Side-Ramp-Mobility-Northstar-SE-Nav-DVD-Like-New-/331230843120?forcerrptr=truehash=item4d1ee590f0item=331230843120pt=US_Cars_Trucks
 


I want this van. Only has 2000 miles and has hand controls.HM 


Ron 

Re: [QUAD-L] Jealousy

[jume9999]

I agree, the bowel care is worst. Sometimes I think I have to plan my whole 
life around it. 

- Original Message -

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Sunday, June 15, 2014 12:51:06 AM 
Subject: Re: [QUAD-L] Jealousy 

I personally go up and down as to how I handle being paralyzed. Sometimes I do 
wonderful, then I will hit a stretch, usually in winter that Im down and have a 
hard time pulling out. When I was in school and going to the ymca to swim, my 
moods were much better and more leveled out. 

The worst part at least for me about being paralyzed is the bowell routines. I 
get so tired of living my life around that. Another thing I cant stand is 
walking people that snub me or treat me less than human just because I use a 
chair. I live in a neighborhood that has a three mile oval. Ive been around 
this oval hundreds of times either in my chair or my handcycle. Some people are 
my friends others wont even look at me . The worst ones are those that you see 
hide in their garage to avoid you then come back out when you pass. What I do 
sometimes is stop in front of their house and get my water bottle out and take 
a break. Then they have to stay in hiding for a long time!! Its amazing how 
many people out there are passive aggressive as well. Everyday is a holiday. 

Ron 


On Saturday, June 14, 2014 2:52 PM, Gmail bobbiehumphre...@gmail.com wrote: 


AB's of all sorts wish they could do what another AB can do or have. The grass 
is ALWAYS greener no matter if it's physical, emotional or financial. 

YOU must be proud of who you are, what you have, where you've been. 

When I was down and out, my sister pointed out to me ALL of my accomplishments 
and my mental strength and patients. 

Bobbie 

Smile Everyday 

On Jun 14, 2014, at 2:50 AM, RONALD L PRACHT  r.pra...@sbcglobal.net  wrote: 




Everybody is jealous of somebody. The c1 just wants to breath on his own. The 
c4 has dreams of self transferring. The c5 wishes he could push a manual chair 
faster and up hills. The c7 wishes he had just a little more to perform all the 
tasks of a bowell routine. The t4 wants more ab control. The t12 wishes he 
could urinate on his own. The l1 wishes he could feel his penis. The guy that 
can stand and shuffle wishes he could walk. The guy that can walk a little 
wishes he could run. The man that runs wishes he had the guts to ask his dream 
girl out. The guy with the dream girl wishes he had more time to himself. 

The meaning of what Im saying is life is a gift and is short. Thousands of 
people die everyday. Thirty five thousand people die in car accidents every 
year. Thirty thousand people commit suicide each year. Ten thousand are 
paralyzed each year. All of this just in the united states. 

Try to do what you can with what you have left. Comparing yourself to others 
will bring you misery. If you do one thing each day to improve yourself, it 
will amount to something b4 you know it. 

Ron 


On Saturday, June 14, 2014 1:05 AM, Danny Espinoza  da...@immortaldesigns.co  
wrote: 


*jealous of those of you who have enough function to handcycle 

-Danny 

blockquote

 Original Message  
Subject: Re: [QUAD-L] Dreams 
From: RONALD L PRACHT  r.pra...@sbcglobal.net  
Date: Fri, June 13, 2014 8:04 pm 
To:  quad-list@eskimo.com   quad-list@eskimo.com  

Another drug that works well to calm you and wont hurt you is lorezapam. You 
can take a 1mg pill and it helps out a lot. 

I have dealt with the crazy dreams at night. When Im experiencing pain or when 
im dysreflexic from needing to urinate my dreams get more intense. 

One more thing to add is activity during the day to wear you out helps you 
sleep. Obviously your level of function depends on how much you can wear 
yourself out. When I wheel my chair at least a mile or attach my handcycle and 
do a few miles Im in a better mood, less pain and sleep better. Each person can 
probally figure some activity to tire themselves out, maybe a handcycle on a 
table like at rehab or have some 20 min routine you do with moving your arms or 
a light freeweight attached to a cuff. 

There is a guy on youtube that sets up basic simple workout routines for people 
in chairs that require very little. I set goal for myself of 30 miles each 
month on my attachable rio dragonfly handcycle. I document the miles and write 
it all down. It helps my mind and the pain from my syrinx and hernia. 

Good luck 
Ron 


On Friday, June 13, 2014 8:23 PM, Quadius  quad...@gmail.com  wrote: 


I have been having a similar problem, but not as often. I usually have it a 
couple of times a night. I have found putting my TV on a timer and listening to 
a historical-based documentary has helped me get to sleep without having these 
terrible dreams. If they keep up, I might consider asking for medication. 
Quadius 


On Fri, Jun 13, 2014 at 8:20 PM, Larry Willis  lwillis82...@gmail.com  wrote: 

blockquote
Panic attacks. 

Re: [QUAD-L] Dreams

[jume9999]

Very wise words. 

Meredith 
- Original Message -

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Friday, June 13, 2014 11:50:04 PM 
Subject: Re: [QUAD-L] Dreams 

Everybody is jealous of somebody. The c1 just wants to breath on his own. The 
c4 has dreams of self transferring. The c5 wishes he could push a manual chair 
faster and up hills. The c7 wishes he had just a little more to perform all the 
tasks of a bowell routine. The t4 wants more ab control. The t12 wishes he 
could urinate on his own. The l1 wishes he could feel his penis. The guy that 
can stand and shuffle wishes he could walk. The guy that can walk a little 
wishes he could run. The man that runs wishes he had the guts to ask his dream 
girl out. The guy with the dream girl wishes he had more time to himself. 

The meaning of what Im saying is life is a gift and is short. Thousands of 
people die everyday. Thirty five thousand people die in car accidents every 
year. Thirty thousand people commit suicide each year. Ten thousand are 
paralyzed each year. All of this just in the united states. 

Try to do what you can with what you have left. Comparing yourself to others 
will bring you misery. If you do one thing each day to improve yourself, it 
will amount to something b4 you know it. 

Ron 


On Saturday, June 14, 2014 1:05 AM, Danny Espinoza da...@immortaldesigns.co 
wrote: 


*jealous of those of you who have enough function to handcycle 

-Danny 



 Original Message  
Subject: Re: [QUAD-L] Dreams 
From: RONALD L PRACHT  r.pra...@sbcglobal.net  
Date: Fri, June 13, 2014 8:04 pm 
To:  quad-list@eskimo.com   quad-list@eskimo.com  

Another drug that works well to calm you and wont hurt you is lorezapam. You 
can take a 1mg pill and it helps out a lot. 

I have dealt with the crazy dreams at night. When Im experiencing pain or when 
im dysreflexic from needing to urinate my dreams get more intense. 

One more thing to add is activity during the day to wear you out helps you 
sleep. Obviously your level of function depends on how much you can wear 
yourself out. When I wheel my chair at least a mile or attach my handcycle and 
do a few miles Im in a better mood, less pain and sleep better. Each person can 
probally figure some activity to tire themselves out, maybe a handcycle on a 
table like at rehab or have some 20 min routine you do with moving your arms or 
a light freeweight attached to a cuff. 

There is a guy on youtube that sets up basic simple workout routines for people 
in chairs that require very little. I set goal for myself of 30 miles each 
month on my attachable rio dragonfly handcycle. I document the miles and write 
it all down. It helps my mind and the pain from my syrinx and hernia. 

Good luck 
Ron 


On Friday, June 13, 2014 8:23 PM, Quadius  quad...@gmail.com  wrote: 


I have been having a similar problem, but not as often. I usually have it a 
couple of times a night. I have found putting my TV on a timer and listening to 
a historical-based documentary has helped me get to sleep without having these 
terrible dreams. If they keep up, I might consider asking for medication. 
Quadius 


On Fri, Jun 13, 2014 at 8:20 PM, Larry Willis  lwillis82...@gmail.com  wrote: 

blockquote
Panic attacks. About four years ago I began having them at night. Not as 
frequent as yours, but I still felt like I was going to explode. It was 
horrible. My doc gave me a small dose of Xanax to take at bedtime. I haven't 
had one since. Good luck. 


-- Forwarded message -- 
From: greg  g...@eskimo.com  
Date: Friday, June 13, 2014 
Subject: [QUAD-L] Dreams 
To: quad-list@eskimo.com 


For weeks now I've been waking up every few hours, with panic dreams. My heart 
is racing, pounding. My breathing is heavy, and I feel like I need to get up. I 
haven't changed meds or anything. If it was just waking up in the morning like 
that I could handle it, but it's like 5 times a night. Often I think I can't 
breath. Other times I'm getting chased by a mob, etc. I'm so tired. 
Greg 








/blockquote

Re: [QUAD-L] Unidentified subject!

[jume9999]

Wow, Nan, that was almost exactly my story, from my boyfriend being there to 
them cutting off a borrowed swimsuit. Some things you never forget. 

Meredith 

- Original Message -

From: Nan nlg52...@yahoo.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, June 11, 2014 4:34:18 PM 
Subject: [QUAD-L] Unidentified subject! 

June 7, 1968. A day just like today. It was a Friday ... I woke up, did all my 
primping and went to school ... I was a sophomore in HS and my world was 
perfect. My parents had opened our pool earlier in the week, so I had invited 
my best friend and our boyfriends over for a swim after school. We got home 
about 2:30 and headed out back - full of youthful enthusiasm. We hit the pool 
playfully, used the diving board and the slide ... we were having a blast. 
Sometime before 3:30 (the details about time are a bit fuzzy), I took my last 
step. I walked to the slide, climbed the ladder, put my hands over my head and 
gracefully slid down hands first. The minute my head hit the water I felt a 
zing and everything stopped. I just floated in the water ... it felt like I 
was doing the jellyfish (aka dead man's) float, but I realized I couldn't move. 
I knew I was in trouble, and wondered if anyone else knew it. I directed my 
thoughts to my boyfriend ... Paul, help me. Please, see me. Please He was 
the only one who realized I wasn't playing. (I think I do believe in 
telepathy.) They pulled me up into the air, and I could breathe again. The next 
thing I remember is laying on the pool deck. It was hard to get a deep breath, 
but I was breathing on my own. People kept putting my hands across my stomach, 
and they would just fall off... again and again. I still don't know why they 
did that. Eventually a sheriff came - he wanted to do artificial respiration, 
but my neighbor sternly told him not to lay a f***ing finger on me. I was 
shocked to hear an adult use that word ... no one I knew used it back then. 
Finally an ambulance came, about 45 minutes after my accident. They lifted me 
onto their gurney (n o manual stabilization, no C-collar, no back board ), slid 
me into the back of the ambulance and placed a sandbag on either side of my 
neck. We rode to the hospital with one guy kneeling over me holding the sand 
bags and the other blaring the siren the whole way. Gave me one hell of a 
headache! At the hospital they cut off my bathing suit - I was so embarrassed. 
I was also appalled ... it was a borrowed suit after all - I scolded them for 
wrecking it. My memories start to fade out at that point. I did hear the 
clippers as they shaved off most of my hair and the drill as they prepared to 
place the Crutchfield tongs in my head, but that was all. 

Much later, I found out that the doctors had given me a 5% chance ... of 
surviving. 
I am 62 years old, and have forgotten so much of my life, yet these memories 
remain crystal clear. Time has not clouded them. You'd think by now these 
memories would only bring remembrance ... not regret and sorrow. Usually I 
celebrate each anniversary - the survival of one more year. This year, however, 
it's hit me hard. I am not needed as I once was. I am so lonely. Being 
dependent on others sucks. I want a do over - another chance. I don't want to 
be a quad any more. 

Thanks, O Quads, for being there to hear me. 

Re: [QUAD-L] Itchy Head

[jume9999]

I agree, it keeps yeast away too! 

- Original Message -

From: Quadius quad...@gmail.com 
To: quad-list quad-list@eskimo.com 
Cc: quad-list quad-list@eskimo.com 
Sent: Saturday, May 31, 2014 6:01:32 PM 
Subject: Re: [QUAD-L] Itchy Head 

how do you use it? 


On Fri, May 30, 2014 at 9:30 PM, Joan Anglin  poaj...@sbcglobal.net  wrote: 





I started using olive leaf from Amazon- Nature's Way Olive Leaf 20% Oleuropein, 
60 Vcaps-and it has worked wonders for me. My skin is not as itchy and my scalp 
hardly ever itches. Ran out one month, and was really glad that I got the next 
supply. Joan 




From: shirley bell [mailto: sbell...@cox.net ] 
Sent: Friday, May 30, 2014 1:07 PM 
To: wheelch...@aol.com 
Cc: quad-list@eskimo.com 

Subject: Re: [QUAD-L] Itchy Head 








scalpacin(sp?) works great for me. 


Best, 
Shirley - Original Message - 

blockquote



From: wheelch...@aol.com 


To: g...@eskimo.com ; quad-list@eskimo.com 


Sent: Friday, May 30, 2014 3:05 PM 


Subject: Re: [QUAD-L] Itchy Head 





Crisco was used during WW-II. Today, Extra Virgin Olive Oil, will do better. 


Best Wishes 





In a message dated 5/30/2014 2:02:48 P.M. Central Daylight Time, 
g...@eskimo.com writes: 

blockquote



I've had such an itchy scalp for years. It comes and goes and sometimes itches 
so bad it hurts. I can't reach the center worst area, so I have others scratch 
it hard and long. The doc suggested rubbing my scalp with Crisco Oil/Shortening 
at night and massaging it in good. Then washing it out in the morning. Then 
scrapping your scalp with a plastic black comb. Lots of dead skin flaked off. I 
had to do it a couple times, but it's great now. Relief. 


Greg 




/blockquote


/blockquote

Re: [QUAD-L] WHAT THE FUCK! This guy is scum! ;(

[jume9999]

Now that I saw the video, I see it was more abusive than I thought! 

Meredith 

- Original Message -

From: RONALD L PRACHT r.pra...@sbcglobal.net 
To: quad-list quad-list@eskimo.com 
Sent: Friday, May 30, 2014 12:31:47 PM 
Subject: Re: [QUAD-L] WHAT THE FUCK! This guy is scum! ;( 

My brother is on the swat(tactical team),and I was a police officer b4 my 
injury. I have also been in the security guard field. You are trained many 
hours on how to handle people that get out of control . It starts with verbal 
commands, then pepper spray, asp baton, taser then finally deadly force. 

Nothing in this case required the guard to resort to what he did. The fact the 
person was disabled and under 18 comes into play. He should have left the kid 
alone when things escalated. Spitting on the guard was a poor decision by the 
disabled kid, but he should have got away and cooled off then came back. The 
guard should be put on suspension upon further investigation. 

When you are a cop or security guard you are held at a high integrity level 
than a normal individual. This was just a security guard that didn't have 
enough training and let a kid pull his strings by spitting which led to some 
bad decisions. 

Ron 


On Friday, May 30, 2014 11:06 AM, jume9...@comcast.net jume9...@comcast.net 
wrote: 


I haven't heard about this story and I live in Northern California (I guess the 
shootings are dominating the news) I agree with Danny, Too many sue happy 
people and too many guns too!, however I feel that the guard should have shown 
more restraint also. 

Meredith 


From: Danny Hearn ddh...@sbcglobal.net 
To: RONALD L PRACHT r.pra...@sbcglobal.net, quad-list 
quad-list@eskimo.com 
Sent: Friday, May 30, 2014 8:38:44 AM 
Subject: Re: [QUAD-L] WHAT THE FUCK! This guy is scum! ;( 

Yes, like all do today-he and his family will sue and get a huge settlement 
from the school/state. Everyone is Sue Happy while states are going broke...he 
may have even initiated it all, hoping for a law-suit..One thing nobody has 
a right to do, is lay hands on or Hit or SPIT on a person, as this kid did . 
When a person does this, then they give the person they hit or spit on the 
right to retalliate back. That is just my opinion--there are two sides to all 
stories and we only heard one side. Dan H.** 


On Friday, May 30, 2014 10:20 AM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote: 


This security officer doesn't have the authority that a regular police officer 
has. If the person is under 18 that classifies them as a juvenile and they have 
special rights. You better watch what your doing when dealing with a juvenile. 
You have to contact a juvenile officer when dealing with them if you want to 
keep your job. 

Its an open and shut case, this guy will lose his job and you find the deepest 
pocket to sue. This kid can get a good payoff if he finds the right lawyer soon 
enough. 

I like how the list has a little more flair lately. Keep it up. 

Ron 


On Friday, May 30, 2014 5:38 AM, Danny Espinoza da...@immortaldesigns.co 
wrote: 


I appologize for cursing this really pisses me off... 

-Danny 



 Original Message  
Subject: [QUAD-L] WHAT THE FUCK! This guy is scum! ;( 
From: Danny Espinoza  da...@immortaldesigns.co  
Date: Fri, May 30, 2014 3:22 am 
To: quad-list@eskimo.com 

A special needs student in a wheelchair was allegedly beaten by a school 
security guard in California -- and much of the incident was caught on video. 

He slapped me. He hit me so hard, it threw me out of my chair. I hit the floor 
with my chin first. I had a scar right here, Oakland High School student 
Francisco Martinez told KTVU, pointing to his chin. 

The security guard was identified as 23-year-old Marchell Mitchell. 

The school said Mitchell, who was a substitute school resource officer, was 
urging students to get to class on time on May 19. Martinez, 17, who has 
cerebral palsy and is in a wheelchair, either refused to comply or was slow to 
do so, Principal Matin Abdel-Qawi wrote in a letter to parents cited by the 
San Francisco Chronicle. 

Mitchell then began to push Martinez's wheelchair. When Martinez objected and 
tried to slap the guard's hands away, Mitchell allegedly handcuffed the teen to 
the chair. 

Martinez admits he then spit on the guard. 

I was handcuffed, so I didn't have no way to defend myself but my mouth, 
Martinez told KTVU. 

That's when the alleged assault on the student began, and Martinez says there's 
more to it than what's seen on the video. Along with being attacked in the 
hallway, Martinez said he was beaten and thrown to the ground in an elevator. 

He's been battling pain since the incident. 

Mitchell was fired, arrested by Oakland police and charged with corporal injury 
to a child, a felony. 

I'm shocked and deeply hurt by this behavior and apologize on behalf of the 
staff at Oakland High, Abdel-Qawi wrote. This incident is not reflective of 
the kind of culture we cherish at 

Re: [QUAD-L] WHAT THE FUCK! This guy is scum! ;(

[jume9999]

I haven't heard about this story and I live in Northern California (I guess the 
shootings are dominating the news) I agree with Danny, Too many sue happy 
people and too many guns too!, however I feel that the guard should have shown 
more restraint also. 

Meredith 

- Original Message -

From: Danny Hearn ddh...@sbcglobal.net 
To: RONALD L PRACHT r.pra...@sbcglobal.net, quad-list 
quad-list@eskimo.com 
Sent: Friday, May 30, 2014 8:38:44 AM 
Subject: Re: [QUAD-L] WHAT THE FUCK! This guy is scum! ;( 

Yes, like all do today-he and his family will sue and get a huge settlement 
from the school/state. Everyone is Sue Happy while states are going broke...he 
may have even initiated it all, hoping for a law-suit..One thing nobody has 
a right to do, is lay hands on or Hit or SPIT on a person, as this kid did . 
When a person does this, then they give the person they hit or spit on the 
right to retalliate back. That is just my opinion--there are two sides to all 
stories and we only heard one side. Dan H.** 


On Friday, May 30, 2014 10:20 AM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote: 


This security officer doesn't have the authority that a regular police officer 
has. If the person is under 18 that classifies them as a juvenile and they have 
special rights. You better watch what your doing when dealing with a juvenile. 
You have to contact a juvenile officer when dealing with them if you want to 
keep your job. 

Its an open and shut case, this guy will lose his job and you find the deepest 
pocket to sue. This kid can get a good payoff if he finds the right lawyer soon 
enough. 

I like how the list has a little more flair lately. Keep it up. 

Ron 


On Friday, May 30, 2014 5:38 AM, Danny Espinoza da...@immortaldesigns.co 
wrote: 


I appologize for cursing this really pisses me off... 

-Danny 



 Original Message  
Subject: [QUAD-L] WHAT THE FUCK! This guy is scum! ;( 
From: Danny Espinoza  da...@immortaldesigns.co  
Date: Fri, May 30, 2014 3:22 am 
To: quad-list@eskimo.com 

A special needs student in a wheelchair was allegedly beaten by a school 
security guard in California -- and much of the incident was caught on video. 

He slapped me. He hit me so hard, it threw me out of my chair. I hit the floor 
with my chin first. I had a scar right here, Oakland High School student 
Francisco Martinez told KTVU, pointing to his chin. 

The security guard was identified as 23-year-old Marchell Mitchell. 

The school said Mitchell, who was a substitute school resource officer, was 
urging students to get to class on time on May 19. Martinez, 17, who has 
cerebral palsy and is in a wheelchair, either refused to comply or was slow to 
do so, Principal Matin Abdel-Qawi wrote in a letter to parents cited by the 
San Francisco Chronicle. 

Mitchell then began to push Martinez's wheelchair. When Martinez objected and 
tried to slap the guard's hands away, Mitchell allegedly handcuffed the teen to 
the chair. 

Martinez admits he then spit on the guard. 

I was handcuffed, so I didn't have no way to defend myself but my mouth, 
Martinez told KTVU. 

That's when the alleged assault on the student began, and Martinez says there's 
more to it than what's seen on the video. Along with being attacked in the 
hallway, Martinez said he was beaten and thrown to the ground in an elevator. 

He's been battling pain since the incident. 

Mitchell was fired, arrested by Oakland police and charged with corporal injury 
to a child, a felony. 

I'm shocked and deeply hurt by this behavior and apologize on behalf of the 
staff at Oakland High, Abdel-Qawi wrote. This incident is not reflective of 
the kind of culture we cherish at our school or how we treat one another. 
More: 
Video Wheelchair Student Beaten Caught on Tape Caught on Tape Beating Caught on 
Video Student Beaten Oakland Security Guard Beats Student 


http://www.ktvu.com/videos/news/oakland-family-of-teen-beaten-by-school-security/vCcWTR
 / 
http://www.huffingtonpost.com/2014/05/30/student-in-wheelchair-beaten_n_5415867.html?ncid=tweetlnkushpmg0067
 

Re: [QUAD-L] To wake, or not to wake up?

[jume9999]

Really well stated Don!! Hope you feel better Bobbie, we are all in this 
together. 

Meredith 

- Original Message -

From: Larry Willis lwillis82...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, May 28, 2014 7:26:48 PM 
Subject: Re: [QUAD-L] To wake, or not to wake up? 

Don, your reply is eloquent and passionate, not to mention brave. It is very 
easy to fall into despair as a quad, especially as you grow older and see 
friends and family pass away and others become disabled or crippled with pain. 
My mother and wife both have physical problems that make me weep. My wife, 
Melissa, has heart and blood pressure problems plus edema and recurring 
pleurisy that hangs over our heads like a dark cloud. My mom is nearly 81. She 
still gets around, but I can see a difference in her nearly every day. And all 
I can do is be an added burden. I know life is precious, and I have been 
blessed with two beautiful kids and a 31-year job as a teacher. I am causing 
pain and physical damage to my wife as she rolls and tugs me around. She can 
barely walk for the back pain. It just seems to be all downhill for all of us. 
Thanks to everyone for letting me blow steam. Larry 

Sent from my iPad 

On May 27, 2014, at 11:33 PM, Don Price  donpric...@yahoo.com  wrote: 




Bobbie, I've been thinking about your email since you posted it, trying to 
mentally compose a reply. Here's my short answer: No, I've never wished not to 
wake up. In fact, the opposite is true for me--I go to sleep every night 
praying that I get another opportunity to be alive tomorrow. 

But, it's not a simple question to answer, is it? I consider myself extremely 
lucky because 32 years post-injury I don't have the debilitating pain many of 
you describe. I don't have any pressure sores or kidney stones; my bladder and 
bowels function well and I still don't need Viagra. I'm not bragging; I am 
grateful for everything I have. 

My first thought is that you have to be honest with yourself, Bobbie. Is this 
simply a temporary period of 'the blues,' or do you possibly have clinical 
depression? It's a very important distinction because depression does have a 
physiological basis and can be effectively helped with medical intervention. If 
you are having suicidal thoughts I beg you to seek a mental health hotline--I 
guarantee there's one available in your community. 

On the other hand, if you're just feeling down and out, having a rough go of 
things at the moment, then I'm glad you had the guts to mention it here. Yes, I 
honestly think it took great courage to share a weak moment here, to be 
vulnerable. 'Us people' with disabilities are always held up as inspirational; 
we're fonts of strength and wisdom because we survived a disability. We all 
know what a bunch of bullshit that is. Partly, that misconception is fed by the 
media and their fixation on the 'supercrip.' I'm sorry, but if I see one more 
news story about a guy climbing Half Dome in Yosemite using only his tongue I'm 
going to puke! All of us here know we're just regular human beings, getting up, 
doing our business, going to bed. Guess what? Sometimes we even have bad days! 

However, Bobbie (and all), it is my firm belief that--barring medical issues 
causing depression--we (and only we) have the power to make ourselves happy. I 
don't just believe that, I know it. 

It's somewhat ironic that I read your email, entitled To wake, or not to wake 
up? the same day I started reading 'The Last Lecture,' by Randy Pausch. For 
those of you unfamiliar with Mr Pausch's Last Lecture, he's a Professor at 
Carnegie Mellon University who learned he had only a few months to live due to 
pancreatic cancer. His accurately-titled 'last lecture' is available on youtube 
and shouldn't be missed. The irony is that this man endured mind-boggling 
surgeries and procedures so he could have even a chance at living a few days 
longer, and here we are talking about throwing away precious days, weeks, 
years. I'm reading the book because my father--the strongest man I've ever 
known--has recently been diagnosed with leukemia. 

I'm not judging anyone here. I can't walk a mile in your shoes (to use an 
exceedingly inappropriate cliche,) so I don't have the right, or desire, to 
lecture anyone. But, as I said, I know that we have the ability to choose (yes, 
choose) happiness and gratefulness in our lives. HOW you do that is going to be 
very much an individual thing. There are a million self-help books out there, 
and a few of them are even good, but that journey is yours to take on your own. 

Having said that, I still feel the compulsion to make a few suggestions (once I 
start typing I just can't stop--sorry!) First of all, one has to make the mind 
shift from what we've lost (or can't do,) to what we still have available (or 
can do.) If you can see, be thankful. If you can hear, be grateful. If you can 
think, praise the heavens. Somebody wrote that they miss the simple things, 

Re: [QUAD-L] Larry, Nan's b-day

[jume9999]

Happy birthday to both of you! 

Meredith 

- Original Message -

From: Nan nlg52...@yahoo.com 
To: linda...@comcast.net, Larry Willis lwillis82...@gmail.com 
Cc: quad-list quad-list@eskimo.com 
Sent: Saturday, May 24, 2014 1:31:05 PM 
Subject: Re: [QUAD-L] Larry, Nan's b-day 

Thanks Linda F. :) 



On Friday, May 23, 2014 8:23 PM, linda...@comcast.net linda...@comcast.net 
wrote: 


Happy Birthday Larry  Nan!!! 
lindaf 

[QUAD-L] Re: Colostomy and Supra pubic

[jume9999]

How long is the surgery and recovery to get a colostomy? Does the bag stay at 
your side? 

- Original Message -

From: greg g...@eskimo.com 
To: jume9...@comcast.net 
Sent: Friday, May 16, 2014 4:38:15 PM 
Subject: Re: Colostomy and Supra pubic 

Yes... SP for 20+ years and Colostomy for about 6 months. 
Wish I got it sooner. I got it because I was stuck in bed with a pressure sore 
on my butt. 
Doing my b-program interfered with my sore.Greg 

 Does any one on the list have have both Colostomy and supra pubics? 
 Is it doable? 
 
 
 Meredith 
 
 
 From: greg g...@eskimo.com 
 To: quad-list quad-list@eskimo.com 
 Sent: Wednesday, May 14, 2014 2:21:47 PM 
 Subject: Re: [QUAD-L] Speeding Up The Bowel Program 
 
 
 I found that Enemeez worked faster. Tough I switched up with the 
 Bullets now and then, just so they did not stop working as fast. 
 Like getting resistant to them. Though after having to get a 
 colostomy I'm so glad I did. I wish I had gotten it years ago. My 
 program was so hard on my body. 2 plus hours of sweating and 
 spasms. Plus the worrying every time I went out and scheduling 
 appointments and my days around it. 
 Greg 
 
 Quadius What is the ingredient in magic bulletts? 

[QUAD-L] Colostomy and Supra pubic

[jume9999]

Does any one on the list have have both Colostomy and supra pubics? Is it 
doable? 


Meredith 

- Original Message -

From: greg g...@eskimo.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, May 14, 2014 2:21:47 PM 
Subject: Re: [QUAD-L] Speeding Up The Bowel Program 

I found that Enemeez worked faster. Tough I switched up with the Bullets now 
and then, just so they did not stop working as fast. Like getting resistant to 
them. Though after having to get a colostomy I'm so glad I did. I wish I had 
gotten it years ago. My program was so hard on my body. 2 plus hours of 
sweating and spasms. Plus the worrying every time I went out and scheduling 
appointments and my days around it. 
Greg 
 Quadius What is the ingredient in magic bulletts? 

Re: [QUAD-L] Shoulder

[jume9999]

I'm sorry Greg, could you let us know how the compression brace works for you? 

Meredith 


- Original Message -

From: greg g...@eskimo.com 
To: quad-list quad-list@eskimo.com 
Sent: Saturday, May 3, 2014 1:57:09 PM 
Subject: [QUAD-L] Shoulder 

After going to my doc and seeing a PT, they think my shoulder pain is mostly 
from being a quad for 32 years and my muscles are just no longer able to hold 
my shoulders in place. Since being a C/4-5 quad my shoulders have always been 
pretty week. Soon after my injury my muscles no longer would hold my shoulder 
blades in the correct place. They almost touch each other and my right shoulder 
hangs much lower than my left one. The PT is going to look for a shoulder 
compression brace. Some days it can hurt so bad I can't hardly move my arm. 
(#%@* Greg 

Re: [QUAD-L] 41st Anniversary

[jume9999]

Happy anniversary!! 

Meredith 
- Original Message -

From: Don Smith scamper2...@att.net 
To: Gmail bobbiehumphre...@gmail.com, quad-list quad-list@eskimo.com 
Sent: Thursday, April 17, 2014 1:22:49 PM 
Subject: Re: [QUAD-L] 41st Anniversary 

Ya if I had listened to my mom I wouldn't have busted my neck either. We live 
and learn, that was my lesson for that day. 

Don 



From: Gmail bobbiehumphre...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Thursday, April 17, 2014 1:00 PM 
Subject: [QUAD-L] 41st Anniversary 

Today is 41 years ago at 4:15 I was trying to learn to do jumps on a 250 
Kawasaki notarized dirt bike. I went with n old boyfriend to watch him, he was 
very good. Then he decided that I should learn, I told him I didn't want to. We 
had taken my Mom out for lunch and the last thing she said to me as she looked 
at the dirt bike tied down in the back of his van I don't want you riding that 
thing. So, I reminded Eddie as he was attaching the helmet onto me  ... for 
the first time I want to do something my Mother told me to do. But he wouldn't 
hear of it. 
He showed me how the gas and break worked and then I started zipping around 
very sloppy. Then I accidental went over a jump, the bike flew ... I loved it, 
I was hooked. I asked him How can I make this bike go higher and faster over 
the jump? He said When the front wheel hits the jump, give it all the gas. 
So I backed up, looked at my watch 4:15. This is the only time I'm going to 
try this because I promised Mom I'd pick up my sister Patti and bring home my 
sister DeDee's girlfriend because we were on Easter break from school. I was 17 
a junior in high school Patti was 16 a sophomore and DeeDee was 14 in 8th 
grade. 
So, over the jump I went but when the front wheel hit the jump I FORGOT to lift 
the handle bars up. SHIT! I knew right then and there I did something wrong. 
I ended up flying through the air, in slow motion, at 30 miles an hour on till 
I hit the side of a very large jump head on. While I was in the air I knew when 
I hit the ground I was going to either die instantly or break my neck and be 
paralyzed for life. I landed on my left side, when I opened my eyes I saw the 
dirt and thought I was buried until Eddie came and turned me onto my back. 
He said Are you alright? I told him immediately No, I broke my neck. Call an 
ambulance and get me a blanket because I'm in shock. 
It was so very, very strange. How could I possibly know that I broke my neck? 
Bobbie 

Smile Everyday 

Re: [QUAD-L] Roho repair

[jume9999]

Greed runs this country for sure. 

Meredith 

- Original Message -

From: Gmail bobbiehumphre...@gmail.com 
To: Larry Willis lwillis82...@gmail.com 
Cc: quad-list@eskimo.com 
Sent: Tuesday, April 15, 2014 1:10:54 PM 
Subject: Re: [QUAD-L] Roho repair 

I know. The molds haven't changed, neither has the formula for the rubber. 
The ONLY thing that has changed is their greed. Bobbie 

Smile Everyday 

On Apr 15, 2014, at 3:57 PM, Larry Willis  lwillis82...@gmail.com  wrote: 




Guys, On another discussion board a fellow said the best way to repair a Roho 
is to use a cement called Goop. You just apply it over the hole and let it set 
up. I've heard of Goop, but I have never used it. Any of you guys ever used it? 
Larry 
BTW I bought a new high profile Roho two years ago for about $275. Same 
cushion, same place today quoted me $450. They had a used one for $300. 
Sickening. Absolutely damn sickening. Greed. 
That other board is alsforums.com in case you are interested. 

Re: [QUAD-L] Butt Sore, Shoulder

[jume9999]

It is always something huh? I'm sorry Greg, do you have a heating pad? I know 
it doesn't help much but better than nothing. 

Meredith 


- Original Message -

From: greg g...@eskimo.com 
To: quad-list@eskimo.com 
Sent: Tuesday, April 15, 2014 2:08:38 PM 
Subject: [QUAD-L] Butt Sore, Shoulder 

After 9 months my butt sore has healed up... Yeah 
But somehow in the last 2 weeks I have hurt my shoulder. While in bed it feels 
fine, but as soon as I sit up it starts hurting me. After a few hours I can 
hardly move my arm. Letting it hang, or trying to lift my arm above my neck. 
just is painful as heck. It's the muscles around my right shoulder. First goes 
the muscle on the side on my shoulder. Then goes the one on the top. Though I 
can't feel much of my arm I get shooting pains down to my elbow. Lastly goes my 
collarbone area. At that point I can hardly move my arm. 
Yet, in bed on my back, I can move it as much as I want with no pain. 
I might have hurt it trying to move my computer or the table it's on while 
laying in bed. I put my hand under the table then try lifting up and trying to 
roll the table towards or away from me. It's an awkward thing and might have 
straining a muscle. I go to a doc tommarow. But damn right after my butt gets 
better, it starts hurting to much to stay up very long. 
Greg 

[QUAD-L] Supra pubic catheters and swimming

[jume9999]

Hi, 
I'm writing on behalf of Patricia who is having trouble getting a post to go 
through. She is getting a supra pubic done on Tuesday and would like any advice 
about what to do when swimming in a pool. Anyone have any advice? 

Meredith 

Re: [QUAD-L] Pillows?

[jume9999]

I also sleep on 2 pillows, the top one has an indentation in the middle like a 
hole where your head fits. You can find them online and in Sleep and healthcare 
catalogs. Also Amazon, Works the best for me. 


Meredith 
- Original Message -

From: Don Smith scamper2...@att.net 
To: Gmail bobbiehumphre...@gmail.com, quad-list quad-list@eskimo.com 
Sent: Thursday, April 10, 2014 8:48:51 AM 
Subject: Re: [QUAD-L] Pillows? 

I do, but it's well broke in and I like it one way although I can use it 
flipped over it's not as comfy. 



From: Gmail bobbiehumphre...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, April 9, 2014 6:06 PM 
Subject: [QUAD-L] Pillows? 

Just curious. How many of you sleep with a pillow behind your head when you 
sleep on your back? I can't it hurts my neck to much. 
But when I sleep on my side I need a VERY thick pillow to support my neck. 
Bobbie 

Smile Everyday 

Re: [QUAD-L] Big Prob...

[jume9999]

Is there a way to view that online? I don't subscribe. 


- Original Message -

From: wheelch...@aol.com 
To: gentr...@yahoo.com, blan...@verizon.net 
Cc: jume9...@comcast.net, quad-list@eskimo.com 
Sent: Thursday, April 10, 2014 8:58:06 AM 
Subject: Re: [QUAD-L] Big Prob... 

This month's copy of New Mobility (April) has a complete article on this 
procedure and covers both Pro's and Con's. Also a nice article by one of 
members here on Peristeen by Coloplast. 
Best Wishes 
In a message dated 4/10/2014 10:55:08 A.M. Central Daylight Time, 
gentr...@yahoo.com writes: 



My husband has been paralyzed since 1992. In 2008, he opted for a colostomy. 
Actually he had no choice as it was under emergency circumstances, but they did 
explain it would be reversible. However it is so much more convenient---he has 
never considered going back. No more being a slave to the BP. If anyone has 
questions specific to this procedure or life with a colostomy bag, feel free to 
email me. 

Sent from my iPhone 


blockquote



Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.) 




My best, 




On Apr 10, 2014, at 10:42 AM, Bill Lang  blan...@verizon.net  wrote: 


blockquote

hi, 

I hear you. I'd be using OxyContin and Fentyl for the last four years. 30 mg. 
Very 3 hrs, and patches at 250 mg changing every 48 hours. 

I too have a problem with my bowel program, seems it's either very soft and 
sticky or very hard and needing an enima to evacuate. When I do that it really 
screws everything up. 

Best advice I can give you is to keep it soft at least it's coming down. When I 
need to go (badly my BP is every other day), I will use warm prune juice and 
double doses of MiraLAX. My body goes when it has to, and it seems that it 
takes 48 to 54 hours for those solutions to finally work. 

I have been prescribed Amitiza and it does work to keep me regulated most 
times. There is a $200 co-pay for a 90 day supply. 

Sadly, our schedules are slaves to our bowel programs. 

I will look for advice from our other friends on the list to see if there is 
anything that I have not tried. Just thought that our situations are so 
mirrored that I would dictate this off to you. 

Good luck 

Billy Lang 

Sent from my iPad 

On Apr 9, 2014, at 20:14, jume9...@comcast.net wrote: 


blockquote

Stool softeners don't help most people. we have all talked and fiber, water, 
fruits, sugar free see's chocolate, prunes, senekot.and did I say water 
seem to be somewhat helpful. 

- Original Message -

From: wheelch...@aol.com 
To: moip...@yahoo.com , quad-list@eskimo.com 
Sent: Wednesday, April 9, 2014 3:57:26 PM 
Subject: Re: [QUAD-L] Big Prob... 

What did the doctor advise? Oatmeal is a good way to begin the day. It contains 
fiber. Drinking lots of fluids is equally important. 
Best Wishes 
In a message dated 4/9/2014 5:20:09 P.M. Central Daylight Time, 
moip...@yahoo.com writes: 

blockquote

Ok, son is on Oxycodone X 5 and 50 mg.Fentanyl and only eats solid foods when 
we go out to doc 1-2 a time a week other then that its all soft. He has had 2 x 
rays said he is full and they have me doing daily stool softeners, 
suppositories, miralax this has been from Feb.24 th when he went in for 
colonoscope I've got 12-15large marbles what do you all tack. 

Hate to take him off anything we just got to where we manage the pain after 4 
yr. 

/blockquote



/blockquote


/blockquote
= 
/blockquote

Re: [QUAD-L] Big Prob...

[jume9999]

Stool softeners don't help most people. we have all talked and fiber, water, 
fruits, sugar free see's chocolate, prunes, senekot.and did I say water 
seem to be somewhat helpful. 

- Original Message -

From: wheelch...@aol.com 
To: moip...@yahoo.com, quad-list@eskimo.com 
Sent: Wednesday, April 9, 2014 3:57:26 PM 
Subject: Re: [QUAD-L] Big Prob... 

What did the doctor advise? Oatmeal is a good way to begin the day. It contains 
fiber. Drinking lots of fluids is equally important. 
Best Wishes 
In a message dated 4/9/2014 5:20:09 P.M. Central Daylight Time, 
moip...@yahoo.com writes: 



Ok, son is on Oxycodone X 5 and 50 mg.Fentanyl and only eats solid foods when 
we go out to doc 1-2 a time a week other then that its all soft. He has had 2 x 
rays said he is full and they have me doing daily stool softeners, 
suppositories, miralax this has been from Feb.24 th when he went in for 
colonoscope I've got 12-15large marbles what do you all tack. 

Hate to take him off anything we just got to where we manage the pain after 4 
yr. 

Re: [QUAD-L] am I cold, or am I hot

[jume9999]

I can relate, I'm back and forth turning on my electric blanket and then 
turning on my overhead fan. I would be miserable without both. My dog doesn't 
know what to think. Seems to be effective though. 

Meredith 

- Original Message -

From: greg g...@eskimo.com 
To: quad-list@eskimo.com 
Sent: Thursday, April 3, 2014 2:48:27 PM 
Subject: RE: [QUAD-L] am I cold, or am I hot 

My issue is not being too cold, but overheated, my arms just think they are 
freezing. Like shivering cold, but once I uncover my arms, I feel better. So I 
swear I am freezing, I'd bet everything I am, it feels so cold. But once I 
uncover my arms I'm ok. 
But... If I start with my arms uncovered I really feel cold, until I cover up 
for a few hours. So no matter what, I shiver cold. 
I've tried fleece hats, but thy only helped in cold Seattle. I never had this 
issue in seattle, only Phx. 
Thanks, Greg 

 I don�t know if it would help your problem, but I sleep much more 
 comfortably at night (and feel warmer during the day) when I wear a 
 knit cap. 
 
 -Dave 
 
 
 From: greg [ mailto:g...@eskimo.com] 
 Sent: Thursday, March 06, 2014 4:10 PM 
 To: quad-list@eskimo.com 
 Subject: [QUAD-L] am I cold, or am I hot 
 
 
 I've mentioned this before, but I never heard if anyone else was 
 experiencing the same problem. I can sit in the sun for long times 
 in hot weather and feel fine. A few times I have gotten overheated, 
 but at those times I felt hot and overheated. And in Seattle at 
 night I would use a blanket, a sheet, and a heavy comforter. And 
 all through the night I felt toasty warm. 
 
 
 But the last few years when I'm in bed daytime or night, but mostly 
 nighttime. Just using a sheet and one blanket. When my arms are 
 covered. I can feel like I am freezing cold, I can even be 
 shivering. I can turn up the heat, I can add a blanket, but I just 
 feel colder. I often check my temperature and it is about 97 or 
 there about, my normal temperature is about 96.5. I am so sure that 
 I am cold, my arms feel like all the hair is standing up and my 
 arms are shaking. Then I realize what must be happening, that I'm 
 overheated. So I uncover my arms and at first, when the air gets my 
 arms I feel even a bit colder. But as my arms cool off they start 
 to feel better, no longer hot or cold. But then in the middle of 
 the night they get cold again from being uncovered. So it is damned 
 if I do, damned if I don't. 
 
 
 My arms often feel cold and tingly, except when the sun is shining 
 on them. But only when under covers do they get to bad. When I sit 
 under the furnace vent and get warm I don't shivering like that. 
 When I fall asleep with my arms covered I wake up shivering, my 
 arms are clenched tight, and I would bet everything I have that I 
 am cold. Obviously I would lose that bet. 
 
 
 I can't figure out how to stay warm night, without feeling like I'm 
 freezing. 
 
 
 Greg 

Re: [QUAD-L] Hemorrhoids?

[jume9999]

Thank you for sending this, looks interesting. 

Meredith 

- Original Message -

From: Bob Vogel rhvsh...@pacbell.net 
To: Nan nlg52...@yahoo.com, Larry Willis lwillis82...@gmail.com, 
quad-list@eskimo.com 
Sent: Tuesday, March 25, 2014 11:15:40 AM 
Subject: Re: Fwd: [QUAD-L] Hemorrhoids? 

In my survey of one--check out the Peristeen system by Coloplast. It is a 
rectal catheter with a small inflatable 
balloon--basically a rectal Foley. Water goes into your bowel through the Foley 
and the balloon keeps the water 
from going out. This is done while sitting on the commode. For most people, 
complete emptying takes place 
in 20-40 minutes. I've been using it for 5 months now, no accidents and my 
hemorrhoids have vanished. 

At the moment medicaid and some private insurance is covering the system and 
Medicare coding is expected this 
fall. 

Bob V 

http://www.coloplast.com/products/bladder-bowel/#section=Anal-irrigation-system_7930
 


From: Nan nlg52...@yahoo.com 
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 1:22 PM 
Subject: Re: Fwd: [QUAD-L] Hemorrhoids? 

Larry, 

Yes, I turn my head. I started in rehab w/ a collar on. I liked it because I 
wasn't being woken up every 2 hours to be turned! 

Nan 


On Saturday, March 15, 2014 4:13 PM, Larry Willis lwillis82...@gmail.com 
wrote: 
How in the world do you sleep on your stomach? Do you simply turn your head 
sideways? I would either smother or break my neck (again). 

-- Forwarded message -- 
From: Nan  nlg52...@yahoo.com  
Date: Saturday, March 15, 2014 
Subject: Re: [QUAD-L] Hemorrhoids? 
To: Nan  nlg52...@yahoo.com , Quadius  quad...@gmail.com ,  
wheelch...@aol.com   wheelch...@aol.com  
Cc: Nancy Pritchard  ntpgrn...@aol.com , quad-list  quad-list@eskimo.com  


I've been doing my BP in bed for over 40 years. Since I sleep on my stomach, 
it's relatively easy for me. Every night we put a chux under me and one between 
my legs to catch the results. Before I put my blankets on, my aide inserts a 
dulcolax suppository. 
That means that I have all night to fully empty and 99.9% of the time there is 
no suppository residue. 

I started doing this within a few years of my injury. I felt I had better 
things to do during the day, so why not try it while sleeping. 

Nan 


On Friday, March 14, 2014 11:38 PM, Quadius  quad...@gmail.com  wrote: 
I really wish I could get my bowel program down to an hour and a half like it 
was when I was a new injury. Unfortunately I am now stuck with three hour to 
four hour bowel care every other night. Most of the fecal matter is evacuated 
in about two hours, but we often spend another hour and a half to two hours 
waiting on the mucus to come down. 

It's a significant amount of mucus and if I tried to wait until the next 
morning to check for it, it creates a pretty bad mess. Not to mention the fact 
that it is terribly uncomfortable for me. 

I'd appreciate any advice. 

Oh yeah, I do my bowel regimen in bed because of my high level of injury does 
not allow me to sit comfortably in a shower chair in order to do the procedure. 

Thanks, 
Quadius 


On Wed, Mar 12, 2014 at 12:09 PM,  wheelch...@aol.com  wrote: 



There are several new procedures for hemorrhoids. I would check with your 
primary to one of those major clinics that specializes in hemorrhoid issues. 
Best Wishes 
In a message dated 3/12/2014 4:24:45 A.M. Central Daylight Time, 
ntpgrn...@aol.com writes: 

blockquote
Any words of wisdom? Bowel program every other day...1.5 hours between bp and 
shower using the magic bullet. Not constipated. Discomfort and obvious 
hemorrhoids becoming a concern. 

Sent from my Verizon Wireless 4G LTE Smartphone 





/blockquote

[QUAD-L] Something tasty to keep you regular

[jume9999]

Hi all, 
I have found that eating sugar free See's candy keeps thing moving smoothly. 
They use Maltitol instead of sugar. Seriously. 

Meredith 

[QUAD-L] Pain medicine

[jume9999]

I heard Dr. Sanjay Gupta say that pain medicine over time induces pain. I 
always suspected that was true but never heard a Dr. admit it. I have noticed 
it myself. I am not judging anyone here but what are your experiences? Do you 
feel that pain medicine can can induce pain? Or is it just tolerance? 

Meredith 

- Original Message -

From: Gmail bobbiehumphre...@gmail.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, March 26, 2014 7:02:46 PM 
Subject: [QUAD-L] Contacting pharmaceutical company 

Has anybody ever contacted a pharmaceutical company to request a discount on a 
medication? 
I use Pennsaid 1.5% every single day for pain in my neck  lower back ... it 
works extremely well for me. Pennsaid cost $200 per bottle, it lasts me about 1 
1/2 months. 
Bobbie 

Smile Everyday 

Re: [QUAD-L] Hive got a question

[jume9999]

Have you started any new meds? Perhaps a drug interaction? 

Meredith 

- Original Message -

From: Larry Willis lwillis82...@gmail.com 
To: quad-list@eskimo.com 
Sent: Friday, March 21, 2014 2:27:24 PM 
Subject: [QUAD-L] Hive got a question 

Hey buds. Hope everyone had a good day. Mine got much better thanks to Mercer 
college! Anyway, I've been taking Percocet for pain for well over ten years 
with no problems. Suddenly, a few weeks ago, I started breaking out with very 
nasty hives every time I take one. It is really ugly with red rash and what 
looks like big blisters over my arms, neck, shoulders, and thigh. It itches 
terribly. I take a couple of Benadryl and within an hour it is pretty much 
gone. Anyone else had this experience? This is the first time I have ever had 
hives and I thought I was possessed (Too many movies!). 

Concerning dreams -- I seem to remember only the ones caused by restlessness or 
pain. 
A few weeks ago I was having terrible stomach/bladder pain with cold sweats 
etc. at night. I had vivid dreams for four nights in a row. They were all 
populated by friends and family who have passed on. My dad who died in 2003 was 
in all of them. There was nothing particularly scary about them, but I woke up 
with an eerie, uncomfortable feeling and my heart racing. I haven't had any 
more since I started taking Benadryl at night. Knocks me out. 
What to make of all of this? Larry 

[QUAD-L] From the mind of a dancer comes a new kind of wheelchair

[jume9999]

Hi, I saw this on Katie, kinda cool. 


Meredith 


I thought you'd like this: 
http://fw.to/6bxqBgD 

From the mind of a dancer comes a new kind of wheelchair 







To unsubscribe click here . 

Re: [QUAD-L] trips

[jume9999]

oh, I truly envy you, would luv to go. I'm sorry that I have no advice except 
maybe try to contact a quad over there to ask. Please let us know how it goes. 

Meredith 

- Original Message -

From: cviewe...@aol.com 
To: quad-list@eskimo.com 
Sent: Tuesday, March 18, 2014 8:43:34 AM 
Subject: [QUAD-L] trips 

Hi, Has anyone been on a trip to Europe? We are going on a cruise. I have been 
on a cruise ship before and the staff and accommodations were wonderful. I had 
no problem getting around, the cabin was large and all doorways were plenty big 
enough for my chair. I am wondering about when we dock, are streets all 
cobblestones and how about attractions? We are going to the Baltic so will stop 
in Copenhagen and St. Petersburg among other places. I just want to know what 
difficulties I might run into. Thanks in advance for any help. Rose