Re: [QUAD-L] Sores

[RONALD L PRACHT]

 I used a full electric blanket yrs ago after my injury. One night I rolled on 
my side and the blanket got wedged between my knees. When I woke up I had two 
burns with blisters on the insides of my legs. Thats the danger, if the blanket 
gets on the skin  ith weight and you dont move.
Ron 
On Thursday, January 31, 2019, 9:21:31 AM CST, Greg  
wrote:  
 
  I never thought an electric blanket would get that hot.
 I have burned my self so many ways. The worst was dropping a cup of coffee. I 
had an insulated cup that got so hot it burned my hand and leg. I rest my cup 
on a pillow on my lap often leaning it on my stomach. I'v burned my stomach 
many times.
 Greg
 
 
 
 On 1/31/2019 1:03 AM, Dana Wray wrote:
  
 
     I am so sorry. We need to really check our roho’s  every day but we don’t. 
I have heard of many people getting burned On heating pads  and electric 
blankets, since I first joined the Quad-list.    I recently was burned when my 
hot coffee glass’s straw broke . It was a Drink Aide straw attached to 
insulated mug that I got at CVS. We   Were duct  taping it together. A 
caregiver was not carefully watching and it  siphoned .I am now I am using a 
Fleximug by Fleming. You can order different lengths of straws. We don’t know 
we are getting burned because we can’t feel.  I have had long straw siphon 
quite a number of times causing burns, but I didn’t need surgery. They did need 
debriefing and  wound care appointments for several weeks . 
  It is terribly unfortunate that the Roho  Corporation cannot make a device to 
check the quantro cushion  for the proper air distribution . Why sell a product 
that can cause wounds on Spinal cord injuries. It has happened to me several 
times .   Dana C 4-5 44 yrs post   
  On Fri, Jan 25, 2019 at 7:08 PM Greg  wrote:
  
  I wanted to dress up a bit for a photo, jeans instead of sweats. Only 1 day 
and I got a sore on my butt. It was not bad, but kept  getting worse. Found out 
I was bottoming out my Roho. The cover I used was a bit too big. So the Roho 
was spreading out too much.
 
 Now last night my shoulder really hurt so I used a heating pad. Like a mini 
electric blanket 2x2 feet. It left a big burn blister about 2 inches. 
 
 Greg
   

   

Re: [QUAD-L] Sores

[Greg]

I never thought an electric blanket would get that hot.
I have burned my self so many ways. The worst was dropping a cup of 
coffee. I had an insulated cup that got so hot it burned my hand and 
leg. I rest my cup on a pillow on my lap often leaning it on my stomach. 
I'v burned my stomach many times.

Greg



On 1/31/2019 1:03 AM, Dana Wray wrote:
   I am so sorry. We need to really check our roho’s  every day but we 
don’t. I have heard of many people getting burned On heating pads  and 
electric blankets, since I first joined the Quad-list.
 I recently was burned when my hot coffee glass’s straw broke . It was 
a Drink Aide straw attached to insulated mug that I got at CVS. We   
Were duct  taping it together. A caregiver was not carefully watching 
and it  siphoned .I am now I am using a Fleximug by Fleming. You can 
order different lengths of straws. We don’t know we are getting burned 
because we can’t feel.
 I have had long straw siphon quite a number of times causing burns, 
but I didn’t need surgery. They did need debriefing and  wound care 
appointments for several weeks .


It is terribly unfortunate that the Roho  Corporation cannot make a 
device to check the quantro cushion  for the proper air distribution . 
Why sell a product that can cause wounds on Spinal cord injuries. It 
has happened to me several times .

Dana C 4-5 44 yrs post

On Fri, Jan 25, 2019 at 7:08 PM Greg > wrote:


I wanted to dress up a bit for a photo, jeans instead of sweats.
Only 1 day and I got a sore on my butt. It was not bad, but kept
getting worse. Found out I was bottoming out my Roho. The cover I
used was a bit too big. So the Roho was spreading out too much.

Now last night my shoulder really hurt so I used a heating pad.
Like a mini electric blanket 2x2 feet. It left a big burn blister
about 2 inches.


Greg

Re: [QUAD-L] Sores

[Dana Wray]

   I am so sorry. We need to really check our roho’s  every day but we
don’t. I have heard of many people getting burned On heating pads  and
electric blankets, since I first joined the Quad-list.
 I recently was burned when my hot coffee glass’s straw broke . It was a
Drink Aide straw attached to insulated mug that I got at CVS. We   Were
duct  taping it together. A caregiver was not carefully watching and it
 siphoned .I am now I am using a Fleximug by Fleming. You can order
different lengths of straws. We don’t know we are getting burned because we
can’t feel.
 I have had long straw siphon quite a number of times causing burns, but I
didn’t need surgery. They did need debriefing and  wound care appointments
for several weeks .

It is terribly unfortunate that the Roho  Corporation cannot make a device
to check the quantro cushion  for the proper air distribution . Why sell a
product that can cause wounds on Spinal cord injuries. It has happened to
me several times .
Dana C 4-5 44 yrs post

On Fri, Jan 25, 2019 at 7:08 PM Greg  wrote:

> I wanted to dress up a bit for a photo, jeans instead of sweats. Only 1
> day and I got a sore on my butt. It was not bad, but kept getting worse.
> Found out I was bottoming out my Roho. The cover I used was a bit too big.
> So the Roho was spreading out too much.
>
> Now last night my shoulder really hurt so I used a heating pad. Like a
> mini electric blanket 2x2 feet. It left a big burn blister about 2 inches.
>
>
> Greg
>

[QUAD-L] Sores

[Greg]

I wanted to dress up a bit for a photo, jeans instead of sweats. Only 1 
day and I got a sore on my butt. It was not bad, but kept getting worse. 
Found out I was bottoming out my Roho. The cover I used was a bit too 
big. So the Roho was spreading out too much.


Now last night my shoulder really hurt so I used a heating pad. Like a 
mini electric blanket 2x2 feet. It left a big burn blister about 2 inches.


Greg

Re: [QUAD-L] Sores

[DAANOO]

I had a sore that was on the bottom of my bottom. Kind of like the panty  
line. I was in bed. 6 months and they use a treatment to go inside the  wound 
and it helped to grow new tissue. It is called is 
I was using my laptop and somehow 
er cord got under my 
 
I was using my laptop and somehow the power cord got  under my bottom. It 
was super hot, because there was something wrong with  it. 
I think I was on Blue Cross primary, and Medicare  secondary. I didn't have 
to have co-pay. You might check it out. There may be  something better than 
this on the market. At that time I was drinking  L-arginine, but not the 
generic kind. It was a drink. Now I get in a pill form,  much cheaper. I 
believe I just 2 L-arginine and 2 zinc 250  each. 
Have you checked the wound clinic? I go there any time  I'm getting a spot 
I am worried about. 
This sore was 6 inches long. And I'm not sure how  deep. This seemed to 
cure me in six months. I was in bed unless I went to the  doctor, wound care or 
wash my hair. 
Fibracol plus. 
http://www.systagenix.net/our-products/lets-promote/fibracol-plus-185I was 
using my laptop and somehow the power cord got  under my bottom. It was 
super hot, because there was something wrong with  it. 
I think I was on Blue Cross primary, and Medicare  secondary. I didn't have 
to have co-pay. You might check it out. There may be  something better than 
this on the market. At that time I was drinking  L-arginine, but not the 
generic kind. It was a drink. Now I get in a pill form,  much cheaper. I 
believe I just 2 L-arginine and 2 zinc 250  each. 
Have you checked the wound clinic? I go there any time  I'm getting a spot 
I am worried about. 
This sore was 6 inches long. Several inches wide. I'm  not sure how deep. 
This seemed to cure me in six months. I was in bed unless I  went to the 
doctor, wound care or wash my  hair. 
Fibracol plus. 
http://www.systagenix.net/our-products/lets-promote/fibracol-plus-185
 
In a message dated 3/14/2014 6:58:02 P.M. Central Daylight Time,  
lwillis82...@gmail.com writes:

Wow, guys, Some  tough situations and even tougher people. I've had a 4 
inch sore on my butt  for over 6 yrs. It just refuses to heal. We dress it 
twice a day. It is not  deep and doesn't tunnel. However, it is a wide open 
sore. I sit on a Roho and  fully expect to take this sore to the grave with me. 
I simply cannot and will  not spend the 12 months or more in bed that 
healing would require. It burns  and hurts like crazy some daysand nights. 
However, I am 62 and 43 years  post. I'm pretty sure I'm not nearly as 
motivated as I once was.

Sent from my  iPad

Re: [QUAD-L] Sores

[Don Smith]

I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years





 From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

Re: [QUAD-L] Sores

[Danny Hearn]

I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**

 


 From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
  


I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years


 


 From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
  


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

Re: [QUAD-L] Sores

[c5sci97]

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001473/






---
Eric W Rudd
c5sc...@gmail.com






From: Danny Hearn
Sent: ‎Saturday‎, ‎March‎ ‎15‎, ‎2014 ‎12‎:‎58‎ ‎PM
To: Don Smith, Larry Willis, quad-list@eskimo.com






I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**







From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
 




I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years










From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad

Re: [QUAD-L] Sores

[Nan]

Hi Larry,
I know you've probably tried every 'modern' treatment out there ... have you 
ever tried using the old wet to dry saline and gauze packing?  I was in a 
nursing home waiting for a flap to be done and my Ex and I got so frustrated 
that we demanded they try the old wet to dry.  I went in Christmas Eve and was 
out by Valentines Day.  I did stay off my butt, but, this was in 2007-2008 and 
it's been good since.  Btw, I'm nearly 63 years old and I'm close to 46 years 
post injury.  I hear you abut being less motivated ... I've lost a lot of my 
get up and go also.

Take care.

Nan



On Saturday, March 15, 2014 1:58 PM, Danny Hearn ddh...@sbcglobal.net wrote:
 
I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**

From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
 


I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years



From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

Re: [QUAD-L] Sores

[Danny Hearn]

Thank You Eric !

 


 From: c5sc...@gmail.com c5sc...@gmail.com
To: Don Smith scamper2...@att.net; Larry Willis lwillis82...@gmail.com; 
quad-list@eskimo.com quad-list@eskimo.com; Danny Hearn 
ddh...@sbcglobal.net 
Sent: Saturday, March 15, 2014 2:59 PM
Subject: Re: [QUAD-L] Sores
  


 
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001473/



---
Eric W Rudd
c5sc...@gmail.com


From: Danny Hearn
Sent: ‎Saturday‎, ‎March‎ ‎15‎, ‎2014 ‎12‎:‎58‎ ‎PM
To: Don Smith, Larry Willis, quad-list@eskimo.com

I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**
 


 From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
  


I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years


 


 From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
  


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

Re: [QUAD-L] Sores

[Don Smith]

Tried it for several months with no resuls, just spun my wheels

Don





 From: Nan nlg52...@yahoo.com
To: Danny Hearn ddh...@sbcglobal.net; Don Smith scamper2...@att.net; Larry 
Willis lwillis82...@gmail.com; quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 1:03 PM
Subject: Re: [QUAD-L] Sores
 


Hi Larry,
I know you've probably tried every 'modern' treatment out there ... have you 
ever tried using the old wet to dry saline and gauze packing?  I was in a 
nursing home waiting for a flap to be done and my Ex and I got so frustrated 
that we demanded they try the old wet to dry.  I went in Christmas Eve and was 
out by Valentines Day.  I did stay off my butt, but, this was in 2007-2008 and 
it's been good since.  Btw, I'm nearly 63 years old and I'm close to 46 years 
post injury.  I hear you abut being less motivated ... I've lost a lot of my 
get up and go also.

Take care.

Nan



On Saturday, March 15, 2014 1:58 PM, Danny Hearn ddh...@sbcglobal.net wrote:
 
I have heard a few quads talk about getting bone infections, how do you find 
out it went to the bone? are there any signs or ? thanks, Dan H**

From: Don Smith scamper2...@att.net
To: Larry Willis lwillis82...@gmail.com; quad-list@eskimo.com 
quad-list@eskimo.com 
Sent: Saturday, March 15, 2014 11:52 AM
Subject: Re: [QUAD-L] Sores
 


I have a small ischeal sore on my right butt cheek, It's been there for years.  
A few years ago I got ostyomolits (bone infection) and did 5 days in the 
hospital and 8 weeks on vincamyacn.  A nurse visits 3x a week and takes care of 
it, I spend most of my time off of it so it don't get worse and it well 
probably go with me to my grave but I'm not going to let it put me there.

Don c5/6 incomp 26 years



From: Larry Willis lwillis82...@gmail.com
To: quad-list@eskimo.com 
Sent: Friday, March 14, 2014 4:57 PM
Subject: [QUAD-L] Sores
 


Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
day. It is not deep and doesn't tunnel. However, it is a wide open sore. I sit 
on a Roho and fully expect to take this sore to the grave with me. I simply 
cannot and will not spend the 12 months or more in bed that healing would 
require. It burns and hurts like crazy some daysand nights. However, I am 
62 and 43 years post. I'm pretty sure I'm not nearly as motivated as I once was.

Sent from my iPad 

[QUAD-L] Sores

[Larry Willis]

Wow, guys, Some tough situations and even tougher people. I've had a 4 inch
sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice
a day. It is not deep and doesn't tunnel. However, it is a wide open sore.
I sit on a Roho and fully expect to take this sore to the grave with me. I
simply cannot and will not spend the 12 months or more in bed that healing
would require. It burns and hurts like crazy some daysand nights.
However, I am 62 and 43 years post. I'm pretty sure I'm not nearly as
motivated as I once was.

Sent from my iPad

Re: [QUAD-L] Sores

[Gmail]

Larry, I hear ya. It is YOUR body and of you don't want to stay in bed for X 
amount of months in bed, then don't.

I, personally have NEVER EVER seen an OBGYN or had a PAP smear or have a 
mammogram. I'll never have a Colonoscopy or any other type of tests for 
disease hunting. I've been plugging along doing this Quad living for over 
40 years now. 

My 2 cents.Bobbie  

Smile Everyday

 On Mar 14, 2014, at 7:57 PM, Larry Willis lwillis82...@gmail.com wrote:
 
 Wow, guys, Some tough situations and even tougher people. I've had a 4 inch 
 sore on my butt for over 6 yrs. It just refuses to heal. We dress it twice a 
 day. It is not deep and doesn't tunnel. However, it is a wide open sore. I 
 sit on a Roho and fully expect to take this sore to the grave with me. I 
 simply cannot and will not spend the 12 months or more in bed that healing 
 would require. It burns and hurts like crazy some daysand nights. 
 However, I am 62 and 43 years post. I'm pretty sure I'm not nearly as 
 motivated as I once was.
 
 Sent from my iPad

[QUAD-L] sores

[William Willis]

Well, I have an appointment with a wound specialist this Wednesday. I figure 
a wound that hasn't healed in four years needs some serious assistance. I 
should have done this nearly three years ago but  just could not face 
putting my life on hold. Tis about 4x5 in, clean with very little depth, but 
ver stubborn and painful. Wish me luck guys. Larry


_
More photos, more messages, more storage—get 2GB with Windows Live Hotmail. 
http://imagine-windowslive.com/hotmail/?locale=en-usocid=TXT_TAGHM_migration_HM_mini_2G_0507